Help Others In Getting Their Pain Medications Go To Care2petitionsite And Sign Demand That Chronic Suffers Get Medication Now (Page 5)

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valerie Says:


Here it is, your sincere effort to help us all get back our right to having our pain medications now!! sign this petition to get action and be a part in changing the DEA'a plan that is surely not working. Give us back our lives, Let the junkies overdose is they so choose to. Go to "Care2petitionsite" now sign the petition on "demand that chronic pain sufferers get their medication now, by valerie. I thank you for your support. Feel free to share it because the more signatures that we get the sooner we can make this a reality.


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81
Chris Says:

Re: Mare (# 79)

You are exactly right! I work in pain management and there is addiction and there is dependence my patients who have a legitimate problem and a need for pain medications will always get their medications, I don’t care what the FDA says or Congress. And those who became addicted will get the help they need.

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82
Cynthia Says:

Okay, for people that actually want to do something, here it is. We had a Rally on 1/29/19 with great results! If you want to know more about them and what You can do, join, go to one of the Rallies. If your health prevents it, have someone go in your place. If you still cannot do that, we have articles you can print out and put up anywhere (that allows it), in your State. Share, share, share!! So now You can finally make a difference... don't you want to help? We even have another commercial coming out soon! Join to find out when and so much more information. As the saying goes, "Ball is in your court". We are now on TV being interviewed... so much more since our last Rally... check it out and see for yourself.

Description:

"The Don't Punish Pain Rally page was created to organize rallies/protests throughout the United States. We are protesting again in major cities on Wednesday, May 22th, 2019. Protests will be held at your state's capitol, ERs, hospitals, pain management centers, CDC, FDA, DEA, Department of Health, CVS, parks, and other venues that are suitable to receive media coverage.

We are protesting to have our voices heard regarding the neglect the chronically ill community/pain patients have experienced due to the new CDC guidelines, the DEA, and the FDA's involvement. We are not a support group; however, as we have bills sponsored in our state, we are happy to assist you in doing the same."

IMPORTANT: Also, please join your state page to organize within that page as these pages will assist you in future protests, media, and providers' questions.

DPP's mailing address is: PO Box 48902, Fort Worth TX 76148

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83
Vickie Says:

Re: Liberty (# 3)

You are absolutely right. It sucks bad for new comers with Chronic Pain. Not a new comer I guest. Been hurting for years.

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84
Charlene Says:
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Re: TT (# 65)

I hear you loud and clear, I'm in the same situation I am prescribed buprenorphine for addiction since 2007. I also go to my psychiatrist for this medication and others. As far as anxiety goes I found out how difficult it is to get prescribed something that would actually work other than depression medication. The most I have had is called buspirone 30mg x3 daily slightly works. I guess its better than nothing..as far as getting klonopin or axanax I have found out " don't ask" it's a was of time..still the only thing that will work. Oh don't get me wrong I still slip the question in from time to time. But its updated version says that it's ok to take if you'r doctor prescribed it..to were before it mentioned it's a big no,no, to prescribe. It seems anything that is a controlled substance it is as hard as pain medacine is to get. Even my adderall I noticed my doctor slowly puts his pen to paper...hopefully this huge mess will be solved. I'm older 58 but have my dad 73 that desperately needs his medication and I hope he does not suffer the pain that's controllable with medication. It's not fair what has happened because nothing has changed ,..there is still illegal drugs on the streets..and pain management patients are the only ones who are suffering from this issue

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85
Charlene Says:
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Re: Bella (# 67)

THANK YOU SO MUCH FOR SAYING WHAT I THOUGHT, let the junkies overdose? Humm I would never wish that on anyone...I have to say I'd bet a big majority of people in this group are addicted, how can one not be for taking stronge pain medication for months into years... all one would have to do is test one for a week or so and see how fast they are to get their medications back in hand. I do understand people are in pain I am and probably 80% of most are. My dad is 72 he needs his medication so I get it. But to wish one to overdose or even go into withdrawal is so PAINFUL. I have been there and its worst than real pain

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86
Bella Says:
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Re: Charlene (# 85)

Excuse me? I would NEVER EVER say let them overdose and I wouldn’t even use the word ‘junkie’ I lost my nephew and if this were not a board in which I respect everyone here, I’d tell you EXACTLY what I think of you.

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87
Mare Says:
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Re: Charlene (# 85)

It’s the same with any medication we take on a daily basis. Someone taking heart medication or diabetic medication would be in the same category. We need these medications to function on a daily basis. Otherwise how can someone function if you are in debilitating pain. The only other option for some would be is to have yet another operation (which many patients are like this because of a failed surgery. It happened to me) So I should go without? I wouldn’t call most chronic pain patient “addicted”. You could call it dependent. We are dependent because it’s cheaper for the insurance companies to approve medication than authorize a much more expensive operation. And even with an operation there are no guarantees that we will be in the same or even worse position. Most chronic pain patients take their meds as indicated. Of course, there will be some taking advantage. But isn’t this way for most instances? I don’t understand the concern.

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88
Bella Says:
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Re: Treatment (# 77)

Where did I write “your a junkie?” I would never say that! My nephew died from the drugs that are coming in from Mexico. Not talking medically necessary and even so I would never ever say that. Keep in mind this board is very Liberal for whatever reasons.... I fight for people to have their pain meds as I too need mine given a recent diagnosis. I am also active in drug addiction in teens. For those who cannot think outside the box there is a real crisis going on with Heroin And Fentanyl. Most started young as teens with pills wherever they got them from. In my nephews case it was the wisdom teeth he had out with 2 refills of 30. YES TWO REFILLS OF 30. That is what I am speaking of, that is why I want the wall built period. Where do you think the Heroin and Fentanyl come from?? As far as real patients with real pain there is a problem. Do not blame your President for this, as my nephew passed in 2012 and who was in office then? Don’t answer.

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89
Sandy P Says:

Re: sandy (# 41)

Please tell me about rallies and any petitions. U am a senior and after 10 years they took my medications. I am only allowed 2 pill for the entire day. I cannot functions. I cannot perform my house work nothing. Please tell where in Virginia or calling and writing where I can get involved.

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90
Charlene Says:
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Re: Bella (# 86)

So sorry. I have to find my post and correct it. I had to jump in to say I'm sorry because I don't think I accused you of saying something like that at all. I believe I was thanking you for saying what I thought was a bad thing to say to whom ever said this in the beginning. You stood up and said how wrong it is to say l" let the junkies overdose "". So please reread I'm trying to figure out how I got this twisted

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91
Charlene Says:
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Re: Mare (# 87)

Yes, mare... thank you for clarifying my statement. Never looked at it like this and has me thinking I call myself addicted but could I myself only been dependent this whole time?? If so when I went for help they put me on a much stronger medication Buprenorphine and now I cannot get off. I have tried on my own several times and finally went for help using a doctor and still couldn't do it..now maybe it's my age and someone younger could do it idk..and as much as buprenorphine treatment I guess saved me, I call it a devil's pill and would suggest nobody take it unless absolutely necessary

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92
Mare Says:

Re: Charlene (# 91)

I’m so sorry you are having difficulties getting off that medicine. It took me a while to get off the oxy’s or MS Contin. I did reduced mine very slowly until I only take a muscle relaxer.

Have you tried reducing the amount slowly? I would even ask the doctor if there is something else you can take. But if you are in pain when you stop, what will you do then? Stopping may not be a option but reducing may help as long as you are still getting relief. Don’t let pressure from anyone dictate what helps your pain. I am speaking about pain that takes over the simplest of things like just getting up off the couch or doing simple chores. Anyway, good luck with whatever you choose to do. It’s your life. You are the best judge of your pain.

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93
Marin5 Says:

I am almost 86 years old and someone (everyone) informed me around October or November that my Vicodin brand isn't available any longer. At first, they made me hunt for them for about 3 months then each pharmacy I went to would tell me they couldn’t get it. This from my Rite aid that I had been a customer for many many years! My doctor had no problems with me, I was still on the same dosage that I started on about two and a half years before. I always had a legitimate script from my doctor that they were refusing! I was on 2 pills 4 times a day and they stopped me cold, I had been taken off of the generic long ago because of allergic reactions. My Dr gave me a month's supply of these but just looking at them I was reluctant to take them, so I decided to try to get off them completely. I didn’t even tell my doctor. I didn’t really know how to taper off without going into withdrawal, but did the best I could. I tried at first to go too fast and kept getting pretty sick. I went through hell it took about 3 months I think, but I didn’t keep track. I kept getting sick and didn’t stop until I succeeded. I have been off all opioids since about 1/28th and I am now in the worse pain of my life! I have Fibromyalgia, hashimoto’s thyroiditis, osteoarthritis, bursitis, tendinitis, and many other painful diseases! I have been trying CBD but it hasn’t started helping too much yet. I never want to be a slave to pharmaceuticals again. I am on Oxygen for COPD also and because of a fall down 4 or 5 stairs, Bumping on my right hip on every stair, I now have my right leg 1 1/4” shorter than my left, which makes it very painful to try to walk. I have to have my walker, but to go upstairs, I have to hold the banister with my left hand and my cane with my right hand. If I ever dropped my cane, I wouldn’t be able to get downstairs!

My life is terrible, I don‘t have anyone in my everyday life! I really need something more for my pain, but natural! I want to get LDN but my Dr won’t help me with that because he doesn’t know enough, even though I brought him info about a year ago so he could research it! Even though I’m eligible, he doesn’t believe in medical marijuana, which he knows I wouldn’t smoke because of my chronic lung disease. He says His hospital doesn’t allow it?? Any ideas about natural remedies for me anyone? See the difference with us Chronic pain sufferers and the Drug Addicts is when we get off the opioids, we are in worse pain than when we started, but if they go in for recovery, they come out pretty brand new. They may still have cravings, I don’t know, but I know I don’t!

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94
Bella Says:
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Re: Tara (# 9)

So many addicted kids and I’m talking under 30 who are just kids to me are becoming addicts. My nephew started by having wisdom teeth pulled and got 3 refills of Vicodin at age 19. Another I know was on anti depressants started at 15 but they made her worse she then went to drugs. They both passed away within 3 years. NEVER EVER would I call these kids a junkie. The broken system who doesn’t give a rats a** about them is a huge problem. Stop blaming the addicts! We all experimented in one way or another in our youth. Some if not most kids do it a few times then get stuck in that bubble they cannot get out of! They truly want help except they are frowned upon as you say “ let the junkies overdose.” So ignorant! This upsets me to the max because your uneducated about this problem. I am a grandmother and so my experimenting in the 70’s was very different from today. I also take pain meds for a terrible diagnosis and just fought again with my primary for half the amount per month. What these doctors are afraid of is malpractice. Money. Most doctors won’t give you anything then the special pain doctors treat you as if they own you. Awful and I understand everyone here! We are all or most adults some seniors! You’d think by then you wouldn’t have a problem! Chronic pain is what we have and they don’t! Doctors do not understand pain just a bad name for themselves. Anyway sorry to get off topic and I see I have a message from my doctor I guarantee she cuts it down and for what. They have our definitive diagnosis yet still we have to fight. Now I need the rant to tell you my nephew was never in trouble, an A student. Very sad for us he was a handsome nerd. Please never say that again I cry each time it is said. I pray you all find peace and just live your lives like we all want to without any stress from these doctors for CS.

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95
Mare Says:

Re: Charlene (# 91)

I don’t know why everyone is talking about addiction on this blog. This blog is for chronic pain. We go to the doctors on a regular basis. My pain Dr also had a psychologist in his office & I took a class for about a year. It was about how you manage your pain & how medication should be used. The one thing he said is that we go through cycles where the pain would flare up then may go down. The important thing he said was chasing the pain will lead into taking more in the long run. Rather than taking the meds 3 or 4 times a day so you keep your pain relief at the same level. By not taking them until your in a lot of pain, you will need to take more than you would have if you had taken them every 3, 4 or 6 hours as directed. The whole basis of treating chronic pain is to be at the same level at all times. Sure, you may have worse days but for the majority of the time, it keeps you medicated throughout the day. Years ago, oral meds were not helping me. So my doctor & neurologist felt it was better to have a pain pump implanted where the medicine gets delivered on a constant basis. I go back every 1 1/2 to 2 months where they digitally monitors the pump. If I still find myself in more pain, he can adjusted the amount that gets delivered or may consider changing what meds are put in. He then gives me a printout of what he gives me & the amount that goes through the tube. My pump is implanted at my lower left abdomen with a line the runs up to the T10 in my spine. He also gives me Soma for the bad days. You may want to ask about that. Medtronic is the company that makes the pump. Ever since, I no longer worry about if I took my meds or possibly taking too much. The pump would need to be replaced every 7 years so there is no possibility of breaking down. Also, pills effects the liver where the pump doesn’t. I will get breakthrough pain & thats when I would take the Soma.

Just wanted to give you another option. No one in the pharmacy or anyone will look at you like an addict. (Which is ridiculous anyway). Only you knows what you are feeling. I hope this helps you. If you have any questions, please do not hesitate to ask. Good luck!

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96
Bella Says:
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Re: Mare (# 95)

Why not mention me? There is talk about addiction because someone on here brought up “ let the junkies overdose.” And I don’t like what she said. For me that is someone saying this who is young and probably is addicted themselves. Not all in here are older people who actually have chronic pain. Address when needed don’t pretend it’s not me. Pay attention to the boards and you will see the reasons why.

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97
Laurel Says:

My Doctor reduced my Norco script. She basically did it because of the crack down on opioids. I have never been prescribed more than 2-10mg er day.My medical issues are so severe, I have been put on disability. I still work approximately 15 hours per week. My pain levels have turned my life upside down. I maintained with 2. It gave me about 5 hours of relief, but I cry a lot from pain. People who suffer with pain should not have to go through this. In 3 years, I never asked my doctor for more medicine. I just accepted what she gave me and appreciated the relief for a time being. I also need to add I have many allergies to medicine. My heart almost exploded from tramadol. I am allergic to gabapetin, neurontin, lyrica, and cymbalta. I’m just one of those people who is extremely sensitive to medicine. In my own personal opinion, I never abused medicine...so why with the one thing that could give me relief for a time being do I need to be punished and have it taken away? It’s very frustrating! Was I dependent on those two pills per day? I would say yes, but at my pain levels, I could easily have been a person to have wanted more, but I’m strong in that aspect. Relieve pain...yes...be an addict...no. There are many of us who need pain relief, but we know our limits. The problem lies in the people who go beyond their limits or for people who only wish to get high. I can sincerely tell you that over time, that so called euphoria goes away and goes away quick, but it still does the job, or takes the edge off of pain. They have punished the wrong people here. There are many people out there just like me...even in worse shape...and they have made their life a living Hell. It’s not fair. They need to re-evaluate this whole situation.

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98
Chris Says:

Re: Laurel (# 97)

I work in Pain Management and am also a pain medication user for Crohns Disease, my doctor along with my recommendations have put me on Buprenorphine which is 100 times more potent than Morphine, and even though the FDA hasn’t approved Buprenorphine for pain control my doctor does give it to me for that specific reason. I try to let my patients decide which pain medications are right for them, and by talking and educating them on the benefits and risks they will be facing while taking opiate pain medications I usually have no problems with The DEA or FDA.

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99
Charlene Says:
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Re: Bella (# 96)

Bella, I don't think I said anything about the bad statement made on " let the junkies overdose "...I'm just trying to clear this statement up. I would think anyone reading the ( conversation starter ) of this group chat. What appears to me is seems nobody likes that statement either..it bad. No one asked to end up being a junkie, or overdosed. Maybe WE all should continue on to keep fighting for what we want and stop using hurtful words

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100
Mare Says:

Re: Bella (# 96)

It was said for everyone that goes on this blog who has had issues with there pain meds. No one is excluded. Sorry if you thought I excluded you. It was not intended that way. I only wish the best for everyone.

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