Prolia & Hair Loss (Page 18)

I've just recently had my second Prolia shot. So far so good...a little back pain. I continually have stress fractures on my feet and have also taken fosamax. My current problem is hair loss & I wondered if anyone else was having that problem?

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Re: Marilyn (# 338)

I just went through that cough business in July. I blamed all the flying and the sickness that people say is picked up on flights. We flew to Ma., Canada and home. We flew to Hawaii in September. The cough got worse instead of better. I went to the doctor in Hawaii and was given cough syrup script. It continued in October and finally stopped the beginning of Nov. I had already stopped taking Prolia the year before. I have no idea what caused this but when I was a child I had bronchitis often.

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Re: dietitian (# 334)

I am glad you found some positives! So we can now be bald people with no eyelashes who do not have to shave their legs and have no underarm hair. LOL.... Our misery does indeed love company. I am really happy that we have this site to share our experiences. Blessings and thanks to all who share here..

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Re: Karen (# 339)

Hi. I had the same problem with lumps on my hands and wrist, which just appeared after the Prolia. Hair loss continues, skin is awful with lumps and bumps. Doctors deny it is the Prolia but I know it is. Too many people on this site have the same problem. It's a poison, and never again. I tell everyone I know never to have this treatment.

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Re: Marilyn (# 335)

Vertigo had been a very big issue for me as well. I had to stop getting my hair washed at the beauty parlor as I couldn't stand up after the shampoo. All of those things I also had at one time or another while getting the Prolia shots but I never linked where the problem had came from. I am still messed up with aching bones and hair fall out like a dog. I will never, ever take any treatment a doctor recommends again without checking it out.

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Re: Lizzie123 (# 342)

I do have a little good news. A month ago, I decided to add a multi-vitamin to my diet. This was a leap of faith for me, because I relied entirely on my diet until now. I noticed that my hair stopped falling out as much, and I attribute this to the iron in the supplement. I also appreciate the opportunity to share with others, and having done so, my anxiety has diminished enormously. The best to all.

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Re: Goat c (# 164)

I've lost almost all my eyebrow hair after 2 prolia injections.

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Re: dietitian (# 345)

Glad that helped you. I don't hold much stock in vitamins and supplements, but 6 months ago I did start a multivitamin and some supplements for my immune system. My hair has not improved...nor is it worse. It may be your body is recovering as the Prolia leaves...though I doubt it totally leaves ever.

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Re: dietitian (# 345)

I will try the multi... it certainly can't hurt. thanks

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Re: Anne (# 19)

I agree!!!!! These prolia injections must be discontinued immediately!!! I had four injections that caused my hair loss in one month. Not a single hair on my head. I am completed devastated at this dramatic shock. Do not listen to the endocrinologists, they receive commission from pharmaceutical companies (amgen) to sell their product. Take my advice and never listen to them. Do not take these prolia shots. You'll regret it. Even after my four injections, my bone density did not increase. There are other ways to get your calcium. This is a warning!!!

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Re: julie (# 349)

I had written that by taking a multivitamin that it seemed that the hair loss I was experiencing after the 2nd prolia injection had subsided. I was wrong. A couple of months later, the hair loss continues and it's not pleasant to say the least, considering that just a year ago I had double the amount of hair. My next injection is scheduled for April 1st--and I'm hoping that there's an alternative. I hope that I did not give anyone too much hope that a multivitamin might prevent worsening hair loss. I am truly sorry having given that misleading information.

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Re: dietitian (# 350)

Don't feel badly..vitamins surely didn't hurt and may have helped with some other problem. I did not take my second shot. Stil losing hair but not as much. We all try whatever we can to deal with the consequences of Prolia

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Re: Gracie (# 2)

Prolia has been a horrible drug for me, an absolute nightmare. Hair loss, unbearable pain, I have suffered most of the horrible side effects of this drug. It is now marketed for cancer patients! Wish I had been more educated before I ever took the fist injection. $1984.00 per injection, Amgen drug company is making a killing, and hurting others, they do not care. As I said, it has been horrible for me, poison is what I call it. More negative reviews than positive, on a lot of forums. Hope this helps.

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Re: Gloria (# 352)

My doctor recently had me tested once again for thyroid problems. It is the third time since I stopped the shots. Another Dr. I had gone to suggested this test once again. This time the test failed. I am now on thyroid meds. My hair is still falling out but the doctor thinks after awhile it will stop. The Dr. said it takes a long time to fix hair problems with new medicine. I have problem after problem with pain in my bones as well. I still ride my bike every night for 30 minutes around the neighborhood. I have started losing weight on this thyroid drug so time will tell with all of this mess.

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Prolia gave me a bony tumor in my eye socket. Two years later my rheumy who is involved in research told me Prolia is being investigated for causing many, many bony growths under the tongue. It's only a matter of time before it's recalled. Be careful.

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Re: Daisy (# 354)

I had extreme pain in and around one of my eyes off and on that my ophthalmologist could not explain which has gone away now that I stopped Prolia. I am nine months out from my last shot and still have the persistent cough with mucous, but fatigue lessened, acid reflux improving, and I think the amount of hair loss is starting to slow. I don't see any signs of regrowth in bare spots, though, although I am now shaving my legs again after a year of no regrowth. When I told my doctor about these issues, he actually ridiculed me and was adamant that NONE of his patients had EVER experienced a single side effect

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Re: dietitian (# 350)

It is not listed as a known side effect of Prolia, according to FDA and manufacturer reports. Typical side effects include injection site irritation, redness, skin rash, and hypocalcemia. However, there is no way to really know how any given medication will affect anyone that tries it.

There is a report of one man experiencing alopecia areata, after taking Prolia in National Library of Medicine archives. You can read the report for possible reasons for it.

Are you on any other medications?

As to apologizing for stating that a multivitamin helped, please don't worry, you had your hopes up and tried to help others, it's what most of us would do.

The American Academy of Dermatology has a great article on thinning hair, and hair loss, including possible causes, and what might help.

I know that article states female patterned hair loss, but most of the remedies can help both males and females.

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Re: VerFree (# 356)

I am in several support groups for Prolia and Osteoporosis. Hair loss is actually a frequently reported side effect.

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Re: Marilyn (# 355)

My doctor also stated that none of his patients had ever experienced any problems with Prolia. When I reported the hair shedding that began two weeks after the shot, I was told it was not Prolia and porbably was something else Prolia was THE ONLY DIFFERENT THING IN MY BODY. Sometimes 2 + 2 actually do equal 4. It is easy to say no one has side effects when all of the reported side effects are casually dismissed.

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Hi Gracie, from experience, when I was taking Prolia, I had a lot of hair loss. I am still using products to help keep my hair for thinning and my last shot was in 2015. The drug in Prolia can stay in your body up to 10 years. As I have stated so many times, trying to help others not to go through what I have been through and am still going through, Prolia was a nightmare drug for me. I wish I had done research before ever taking one shot. The side effects have been horrible for me, and now they are using the drug in Prolia, marketed under another name for Cancer patients. A form of chemo, I would say yes. I hope this helps you and others. Sincerely, Gloria

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Re: Gloria (# 359)

I only had 2 shots the last exactly 4 years ago. I think Xgeva is the cancer drug you mention. My hair seems to be growing a bit now, but it's still not normal. I also think it caused my immune system to go down and in Jan. 2015 I had a bad virus which ultimately led to significant hearing loss with Tinnitus. I had the flu shot that season...which we know is no guarantee. I've told friends not to consider Prolia.

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