Prolia & Hair Loss
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I've just recently had my second Prolia shot. So far so good...a little back pain. I continually have stress fractures on my feet and have also taken fosamax. My current problem is hair loss & I wondered if anyone else was having that problem?

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Re: Sue (# 469)

Me too! I submitted my side effect of hair loss to the FDA using the link on their website. This is how the company gets information about side effects after a drug is on the market. You really can’t blame them for not listing a side effect that only becomes apparent when thousands of people are using the drug after it is on the market. If we don’t report it then the company will never know.

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I too have experienced hair loss.

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Re: Gloria (# 467)

I found the same connection to cancer. You would not believe how badly I was talked to when I mentioned that! I’m so relieved to read that you found the same connection to cancer! Kaye

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Prolia caused my hair to thin, as I have stated many times, Prolia was a horrible drug for me. Back and joint pain, permanent damage to my whole body. I tolerated 7 shots and with each shot I got worse! I finally did research and found out that it is used for bone cancer patients. A form of Chemotherapy, yes. I will never take another Prolia shot, I suffered and still have permanent problems because of this horrible drug. A nightmare for me!!

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Re: Viv (# 463)

Same thing here!!! They should be telling us about the hair loss! I was shocked!

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Re: Kaye (# 464)

I only had one shot… tons of hair loss! That was it for me!!!

Also, ended up with TMJ!!! Never again!!!

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Yes, my hair really fell out after my second shot and I felt terrible all the time and my legs really hurt, especially when lying down!
My dr. said , when I asked about side effects, "not much of anything." Realy!!! I quit and feel back to 100%. All I take now is Vitamin D and B12. I should take calcium but cannot tolerate it if I want to be out of the bathroom. Also research everything now - but don't trust what the drug companies put out. Kaye

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Re: Mustang (# 462)

I was told the same thing about side effects. I did Forteo and then my doctor prescribed Prolia. It’s been several years and I have never felt good since, one issue after another. My biggest issue is hair lost it was so bad I needed a hair net when cooking. The last time I saw the doctor he wanted me to do Reclast Infusion. I haven’t been back that was 4 years ago. I take vitamins and do my best to not fall. One lesson I learned I research all my medications.

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Re: Dawn (# 436)

That’s the way I felt about Forteo. I know these are not the same drug.
I thought the side effects would never stop.

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Re: Sue (# 458)

We just have to remember that we are still ourselves and battle the feeling that Prolia's side effects rob us of our identity... which, I know is easier said than done. The potential for tooth loss is even more frightening.. but at least that is listed in the side effects so you can make an informed decision before starting the drug. They have yet to list hair loss as a side effect.

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Definitely hair loss is a major side effect for me cause the hair loss is a LOT!!!

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Re: Sue (# 458)

You are correct-- it is devastating. In our culture billions of dollars are made by selling the concept that hair is so important. It becomes embedded as part of our identity. Many guys have to adapt as they get older, but again society and the movie industry is more accepting of the fact that bald guys can still be attractively masculine. Bald women are never celebrated in the media...as if we lose our femininity along with our hair.

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Re: Lizzie (# 457)

Thank you, Lizzie! I appreciate your help with product. I’ve been crying a lot about the hair loss. It really is devastating for women and men but especially women.

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Re: Sue (# 456)

The one that worked the best was Phyto Source Syntress Volumizing lift shampoo by Nexus.. which is now unavailable and I can't find it anywhere. However OGX Thick and Full Biotin & Collagen does pretty well - it is not too expensive - purple bottle. I use a mousse when drying my hair which also gives it some oomph.. I just buy any mouse that says "volumizing" . I am not Farrah Fawcett but I am presentable...

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Re: Lizzie (# 455)


I’m so sorry to hear that…. I am just so depressed about all of this! It just makes me sick to my stomach. Is your shampoo working for you? And, if so, what brand?

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Re: Sue (# 452)

Had 1 shot-- within two weeks was shedding hair like a dog. Have not had a shot in 3 years. Hair looks normal again but I still shed. I have not used a hair brush since the first shot. I use a comb with large wide teeth and body building shampoos.

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Re: Viv (# 453)

NEVER AGAIN!!!!

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Re: Sue (# 452)

I am not going to lie things DON’T get better. It has been a few years since my last injection and I haven’t had a good day since. Good luck!

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Re: Christine (# 29)

I’ve started having incredible hair loss after Prolia injection. I will never have another injection. I am so depressed. I had NO idea this was yet another side effect.

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Hi, Yes, I have lost my hair about 2" back all around my face plus general thinning. It started after my first shot and continued after my 2nd until I stopped the shots. I also had terrible leg pain all the time - worse if I laid down. I have been off for about a year and feel great except when I look in the mirror!
Don't start! Have your doctor calculate your risk of broken bones without medication. My endocrinologist did and found that I had a 25% chance of any broken bone and a 10% chance of a broken hip in the next 10 years. I will take that risk as I feel it is much better than what I went thru with any of the osteoporosis medications! My mother was on Fosamax for years and she broke her shoulder, knee, pelvis 2 times and her hip! I like to think that I have a 75% chance of not breaking any bones and a 90% chance of not breaking my hip in the next 10 years. I am now 79.

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