Epclusa Side Effects (Page 2) (Top voted first)

Hello. I am 16 months post epclusa and feel worse than when I started. I was a server for over 40 years. Full of energy. Then hep c happened. I had epclysa for 12 weeks. Now I am in bed most of the tune from no energy. My ears are ringing. I feel deflated. Anyone else feel like this? My hep c nurse waived off my complaints.

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Yes this is devastating I was a healthy person no liver issues shouid have been left alone this is not living I hope someone gets them

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Re: Anna (# 66)

Anna sorry that you have had similar effects ,what part of world are you ? I think it's time we started getting some kind of action on these people there's a lot of really good people suffering , with not Evan apology just lies.take care, a lot of people have had a hard enough life already we didn't deserve crap and lied.

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Re: Sunshyne (# 65)

We all deserve apology for all the crap theve put us thru, take care ! MN is it good place ??

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Re: VerFree (# 2)

I don’t believe for a minute that the myriad side effects that these patient are experiencing are due to the Hep C virus. Don’t doubt that the drug is causing serious problems that may or may not resolve after one finishes the treatment.

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Re: KatyKat (# 98)

Same here this is awful nobody told us this would be our life’s I am 6 years post treatment and I am getting worse my ears are so loud I can’t sleep neuropathy muscles spasms damaged my eyes BP dropping so much pain I can barely walk having heart palpatations and breathing problems

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I am trying to be open minded here. I am no friend of Big Pharma or mainstream anything, my friends call me a conspiracy wonk.

The problem here is that many of the side effects of Epclusa are very similar to the damage from Hep C. I am aware that the testimonials here say the problems “did not start until the Epclusa treatment was started”.

I am male, over 60 yrs old, I probably had Hep C for 46 years after a blood transfusion in 1976, but was not diagnosed until this year, 2022. I am on week four of Epclusa, 8 weeks to go.

Before this year, MRI showed two herniated discs, which resulted in radiculopathy in one foot and one hand. That happened about 15 months ago.

To complicate things, I was on prescribed morphine for over 30 years for chronic pains, diagnosed as Fibromyalgia but probably due to liver disease from Hep C. I quit the opiates 8 months ago, before I knew about my Hep C infection, the withdrawals were traumatic and I will never recover from that, mentally, lime PTSD. Rehab ended when I started pooping black, bleeding varacise (sp?). That is when they finally discovered the Hep C

Stage four cirrhosis, short life expectancy.

There, that’s the background. The many terrible symptoms could be getting worse due to the Epclusa. I asked why bother with it if I am dying anyhow, but I did not get a satisfactory answer, Now I wonder if the Doctors are pushing Epclusa for “reasons other than my well being”

I have to stop now, so tired.

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Re: VerFree (# 2)

I.m also having restless leg body jerks every day also really bloated around stomach ,but I haven't gained much weight also ,I'm worried they say virus is cured ,but I have definitely got liver symptoms happening,the liver people who signed me up are no help at all , favourite line is damage was probably done years ago would not be the DAAs ,I'm forever dropping coffee cups due to numbness feet puffy toes look puffy anxiety there's heaps I could go on for ages,I tell my GP all he says is oh I spoke to liver clinic they said treatment wouldn't do this ,mmm it all seems to much for him,I had abdominal xray yesterday I wonder what or if it finds anything ,I'm 66yrs old I was Geno 3also VL very high before tx .cheers take care

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Re: Friendz4 (# 9)

Sounds very similar to me. My breathing seems to be getting worse. What kind of breathing problems are you getting? So sick of bloating and body jerks, it's like the treatment has effected everything. I felt so much better before I touched Epclusa. Anyway please take care, we are not alone.

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Re: New day (# 14)

Agree totally,I felt ok pre treatment,now it's 14 mths Poste treatment iv so many problems now numb feet hands swollen abdomen arthritis nausea anxiety just too many problems ,hate to think what's next,the liver clinic that scared me into doing treatment no support at all,in fact Iv had the misfortune of having suffer a lot of poor excuses over my yrs but IV never had anybody destroy my life like the Epclusa people ,not even a oh we are sorry about what our new wonder med has done to you.think the DAAs keep working on destroying things in your body long after the virus has gone ,I'm sitting here 4am Thurs morning after being awake all night looking at my puffed out deformed looking feet,anyway good luck hope people have better luck,,peace,

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Re: Sunshyne (# 17)

Hi. I can relate to what you are saying. What part of the world are you in? I'm in Australia. I'm in my 60s. There's a lot of people just starting to find out giliards new miracle med also damages a lot of us seriously. I wish I hadn't tried to cure the virus. I didn't feel that bad before treatment started, I would just like to see someone from giliard or fix hep C man up and admit they have really stuffed up and hurt a lot of people, maybe apologize for what's happened to a lot of us. This silence is like them just showing how little they care about us. They should just admit that $$$ is what matters to them, not how terrible we feel, like really when did people like that start caring about people like us... As I said before, bout time someone aimed up. Really sorry for your loss. Your husband was lucky you were with him..take care.

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Re: Friendz4 (# 12)

Hi I'm in Australia sounds same as people here are going through ,not everyone but a lot of people are really feeling bad ,I had no support at all ,seems they just wanted me to sign dotted line ,and sign my life away ,makes me so mad I'm 67 yrs old ,and got through many of the struggles you get living an alternate life style ,which I don't regret ,only to be brought down by so called liver experts ,I must have had a 5 min interview with liver dr ,who assured me it's so easy to do maybe a headache or very slight nausea ,nothing that drinking water would not fix ,ha ha I doubt it ,now this new virus has arrived I feel as if my immune system is stuffed so I expect to come in contact ,IV met a lot of shady people but the ones I had to deal with on this Epclusa treatment win hands down ,the fact that they said wear always here for any problems you may have ,plus support you might need ,what a joke .somebody should have to take responsibility ,for the damage an hurt .good luck everyone.

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Kathleen,how are you going since hospital? Every day here seems to be more people getting coronaviris, I hope you are ok ,noticed it seems to be spreading fast ,USA really seems bad, I really don't need it, mentally or physically,my legs are are aching so much today trouble walking plus feet numb puffy feels like I have tight socks on has to be circulation problem, impossible to even see s dr ATM, hope you are ok.sometimes I wonder where these viruses come from.like cud it be manmade or natural,stay well ????

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Hello Kathleen,how are you since your recent hospital drama,hope too are feeling bit better ,Well this coronaviris has changed everything ,I never mixed with people very often so that part is ok,I'm not sure but I think you are on cortasteroids for asthma ,I am on them twice a day,I read on line that they can effect our chances of catching this new virus plus weaken our immune system ,I mentioned this to my dr all he said was don't stop taking the cortasteroid as they are helping my condition,I am just so mixed up who do I believe ??after the Epclusa treatment I was told so many things that were wrong,I don't know if I should just stop or do what my dr says again, I really don't need to catch coronavirus ,I've been coughing a lot lately and I'm really getting bad leg pain from the Epclusa I think my feet feel like I have extra tight socks on 24 hrs a day plus numbness,now they have stopped people going over the border so can't see my grandkids ,I worry they might catch something one has rhumatoid arthritis isn't very strong ,sometimes I feel like IV had enough of going to drs stressing out putting up with pain ,telling my story ect, please try stay safe ,hope you are ok.

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Hi Kathleen ,are you going ok ,been worried ,please let me know how you are , you understand me an my problems, waiting to hear from you.

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Re: Sunshyne (# 17)

Hi hope you are going ok !this coronavirus has changed things ,I can't ever see things going back to what they were ,I'm just hoping U don't catch it ,since doing Epclusa treatment my breathing is t good ,I'm same as you would love to see someone take responsibility for screwing up so many lives,the liver clinic near where I live still denigh there horrible DAAs might have caused problems ,just heard of 3rd death from people who did the treatment ,I so wish never did it ,my immune system is wrecked ,stay safe sunshine,what part of the world are you from? I'm in Australia ,use to be good place ,

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Kathleen,how are you ? I'm worried that you may not be well !! Your friend from Australia

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Re: Friendz4 (# 8)

Hi my pains are getting worse wish I never took the crap

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Re: Friendz4 (# 16)

Hi how are you going? Lou here from Australia are you still getting side effects? I sure am. I don't think they will ever go away now, my feet really painful plus numbness, really aching leg joints, anxiety, diagnosed with asthma couple yrs ago plus COPD. Now they have discovered two spots on lungs. It's so crazy I felt near normal before I was talked into Epclusa. Now I'm stuffed, they tell me not to smoke. OMG it's the first thing I felt like doing when they told me about spots on lung, I just about give up!!

Since doing tx no body has even rang me to see how things are going tried ringing Gilead what a joke !! they just deny everything. I've had so many skin infections antibiotics etc, every day I get body jerks or jumps, my dr hasn't a clue, just gets his info from liver clinic that put me on Epclusa, totally useless. Please let me know how you are going, just wish we could do something about the poison they gave us, wish I could turn back clock. cheers

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Re: New day (# 14)

Hi hope you are going ok,my symptoms after Epclusa haven't improved maybe worse,numb acking feet sore legs an joints ,body jerks every day nausea anxiety so many skin infections plus antibiotics breathing problems now they have found couple spots on lungs ,omg I use to feel ok pre treatment ,anyway hope you have improved,can't get much help here in Australia,been reading about Cryo, something can't remember how to spell ,but apparently connected to hcv infection I can relate to some symptoms.take care.

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Re: VerFree (# 2)

Do you know if there is any info on people over 40 who are now suffering or have died from cancers after Epclusa treatment ,I doubt if there would be ,as I have not been contacted since doing the treatment 2 yrs ago ,nor did I have any support whilst doing treatment ,since treatment IV had continual infections numb feet fingers nerve damage painful legs and joints nausea breathing problems ,(lungs ),I've also attended 3 funerals in last 8 mths Epclusa treatment was one thing each person did ,all were reasonably healthy pre Epclusa,IV read a lot on how good Epclusa is,I find it strange that very little is told about side effects people are now suffering.

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