Epclusa Side Effects

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Kathleen Says:
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Hello. I am 16 months post epclusa and feel worse than when I started. I was a server for over 40 years. Full of energy. Then hep c happened. I had epclysa for 12 weeks. Now I am in bed most of the tune from no energy. My ears are ringing. I feel deflated. Anyone else feel like this? My hep c nurse waived off my complaints.

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Lou Says:
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Hi Kathleen, I really feel for you, I finished Epclusa a year ago and like you I've had so many side effects l can hardly walk most afternoons due to leg joint pain. I get exhausted so easily, nausea, numb toes/fingers; probably a circulation problem. I did not have any of these problems pre-treatment. I've also got Edema on my legs and my stomach is really swollen. I feel so uncomfortable and unbalanced. If I mention this to the hep C liver people they just say, "oh it wouldn't be the treatment". So far the virus isn't showing, but I think I'd rather have the virus then feel like this. All I hear from the liver people are lies, plus no support when I ring them. I'm in Australia. I feel like a guinea pig and my life is wrecked. I think there is going to be a lot of very sick people in the near future. They know nothing about what DAAs do in a couple years time. Really hope you are ok. Take care.

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VerFree Says:

I am very sorry that you've both been miserable, I know it is very frustrating. The issue, however, is that the virus can be fatal, so the issues caused by the treatments have to be carefully weight against potential death.

Epclusa has been known to cause side effects, such as anemia, weakness, unusual tiredness, trouble sleeping, cough, and depression.

Issues similar to what you've both described have been reported, but it is hard to say if they are from the virus, the treatment, a combination of both, and/or how long they last after treatment.

Is there anything I can help with?

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Lou Says:
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Re: VerFree (# 2)

I'd like to see the percentage of people over 40yrs old who have done treatment who now have major health problems some fatal instead of being fed rubbish about very few sideeffect s ,I think that there would be a lot of people who would have not done treatment ,and took there chance with hcv instead of living in severe pain every day ,knowing that there's no body out there with a clue with what is going on with our bodies or any idea what damage the DAAs have done or what they will do , Also no support from the people who convinced us to do treatment ,I think it's about time some people looked up Epclusa post treatment side effects .

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Lou Says:
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Re: VerFree (# 2)

I think it's not a coincidence that a lot of people have lived near normal lives untill post treatment ,my virus has gone thankfully but so has my pain free days ,ears constantly ringing nausea total exhaustion numbness severe joint pain Edema infections ect .but oh I forgot very few side effects, sure thing mmm.

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