Crohns Disease 4mg Dilaudid Does Not Work Help! (Page 3) (Top voted first)

Hi everybody I suffer from crohns disease and my levels of pain are off the charts sometimes, it gets real unbearable, I am taking 4mg dilaudid pills 3x a day because I can only afford to see a general doctor, at the moment I have no insurance and paying for prednisone and 6-mp is beyond expensive. My doc won't give me dillys more than 3x a day because he is scared I will get addicted but I take these pills and the pain gets even worse, what am I to do, he told me I'm at a deadend in pain management with him because that's the most he can prescribe, but when I tell him it makes the pain worse he looks at me like I'm crazy but its true it makes it worse.. Has anyone else had a problem with this? What else is there that maybe I can see if he can switch it to? I just want to live a normal life again....being in constant pain I have no appetite, I am an awesome cook and I can't even cook myself a decent plate and eat it. What options do I have when this is the strongest opiate, when I was in the hospital dilaudid IV worked wonders but that goes straight to the viens, but in the pill form I feel worse. Anyone with anyone answers please let me know thank you

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Methadone/metadol is used for ppl that have developed such high tolerance for other narcotic pain meds(such as morphine), that they cannot increase anymore, or are not as effective/don't last. Methadone is also given to addicts trying to stop using, so there is a stigma. Methadone doesn't cause tolerance, and has a longer 1/2 life than things like morphine(even sustained release). It does come in a liquid form as well I believe. Only certain Drs can prescribe metadol (methadone). It is generally only considered in long term pain mngmt, and when max doses of morphine(narcotics) are not controlling pain, for a medically recognized illness.

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Entyvio has helped so tramendiously with the Crohn's. I do get flares sometimes so unbearable. Tylenol doesn't do anything. My GI has told me to stay away from ibuprofen and aspirin since it's hard on the stomach. A year later he says it's okay? But even then, those don't work.

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Yes it is called hyeralgesia. It happens a lot when people are tolerant to their pain medication. It actually causes the brain to get confused and think it is in more pain than it is. It is the reason many doctors are careful about the opiates they prescribe. It seems like a weird effect but it is scientific. Usually you have to come down off the pain medication for your pain receptors to get back to normal then a some point you can try to reinitiate the pain meds. I know it sounds awful. I don't know how I would survive a day without my pain meds but I have a similar problem to you. When I started taking high dosed of oxycodone it would make my back feel like it was breaking in half and my doctor looked at me the same way yours looked at your, but I happen to be a pharmacist so I was aware of this situation even more so than the doctor. I stopped taking such a high dose for a while then slowly went back up and I'm usually fine now. But sometimes it still happens. Good luck to you. I hope this information helps. But be sure whatever you do to consult your doctor.

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I have to admit that I started using Dilauda's I.V. because I also wanted the relief
That I felt at the hospital! I am keeping it a secret because I don't want to be judged!

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My name is Sharon I have chrons diease as well.have you ever had stadol nasal spray it's usually for migraine and or child birth pain but it works well for me it did.

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well its beeen about 7 days since i posted this......things have been a little better but the dilauded really doesnt work as it should. i am still in pain from time to time sometimes it gets really bad that i need to take 2 tramadol 50mg's to dull down to the pain to even being tolerable......if anyone has any suggestions or recommendations i greatly appreaciate it. thank you

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Well mitchell I completely understand what you are going thru, trust me. Being 21 does not help my cause when u need strong pain killers, also having no insurance they won't prescribe me what I need, they just look at you like you have a problem....now my family they really don't understand what I go through my mom has insurance and has fybromyalgia (idk how to spell it) well her doctor prescribes tramadol for her and I take that and finish a 30 day supply in less than 15 days and she said I'm addicted to tramadol I'm like wtf and got mad cuz they just don't understand......now you have had surgeries, that just leads to even more pain in the long run. Now you said you have a gi and pain management doctor what are you doing in the ER, they should b giving you enough medication for you to not have to go to the ER, also if you are fentanyl patches and your having much more pain they should really do some tests as to why your feeling this way. If I was you I would get off of remicade and switch to humira its much better, and maybe your body is to use to remicade and it no longer works.

Having people by yourside to support you is the one thing that you just can't come by very few people will actually put up with all the things that crohns has to offer. Its hard to find a support system,So you really can't get mad at that its tough but I just try to not focus on it. I try to to get the medication I need to live a normal life. I'm always here and will reply to any questions you may have I'm here to help. GOD BLESS

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i am surrering the same illness you are..and you are verry lucy i am not perscribed anything for my pain..and it is sometimes so severe that I alsmost pass out. and alot of times throw up because od the pain. any suggestions on how you get your dr to perscribe you pain management would be helpful.

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Hi my name is robin and I to have crohns disease. there is a wonderful app called GI Monitor and it has some usefull tools and a support group. come join us we are a great bunch of people

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