Stopping Levothyroxine

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Carol Says:

I have been taking Levothyroxine .88mg for the past two years. I just left town on a three week vacation and realized I left this prescription at home. Should I be concerned?

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David Says:

If you suddenly stop taking Levothyroxine, your body can go through withdrawal.

"Levothyroxine withdrawal may cause hypothyroidism, or underactive thyroid. Hypothyroidism causes weight gain, fatigue, depression and sensitivity to cold because your body does not have enough thyroid hormone so your body processes slow down. Patients with thyroid cancer may suffer acute hypothyroidism because of levothyroxine withdrawal."

Referenced from:

Since you've been taking this medication for so long, I would consider contacting your doctor about this if you have been experiencing any of the withdrawal symptoms mentioned above. Better to play it safe knowing that you're going to be alright these next few weeks.

I hope this helps!

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Sathish Says:


Would like your opinion on something. My wife has been taking 0.5 mg of levothroxine for the past few months. She was still having some of the original symptoms, and asked her doctor about upping the dose. The doctor said the throid levels were fine. So we went the other way now - she has stopped taking the pills to see how her body reacts. I would like to know if you stayed off the medication and what symptoms you faced? Please help. Thank you.

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Carol Says:

I did not find a difference stopping the medication for three weeks.

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Sathish Says:

Quite interesting! Thanks very much for replying! If you found no difference in 3 weeks are you planning on going back to it?

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Carol Says:

I went back on them as soon as I returned pending my next visit with my doctor.

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Daniela Says:

Hi, have you already gotten back to levothyroxine? I had been experiencing really bad symptons while taking it, so the doctor decided to lower the level from 75 mcc to 50 mcc, but I still didn't feel well, then I went to 25 mcc and kept on with diahrrea, nauseas... So I decided to quit. it's been a week now and I'm afraid of the withdrawal sympthoms... After a week, i got a little diahrrea you think I can get worse than that? I never find anything on the net telling what to do and the doctor says I have to keep on with the medication... Don't know what to do.

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Carol Says:

I did go back on Levothyroxine and my blood work show my thyroid levels to be fine. I have heard of some people not being able to tolerate generic forms of the medication and have very bad reactions. The exact one I have been taking is L-thyroxine 88 MCG. I think it is such a low dose that it does not really make much difference one way or another.

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Fred Says:

Hi Daneil,

How bad did you feel? I took 75mg for one week from 50 mg. I feel depression, very dry throat. So I go back to 50mg and see how it works.


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Fred Says:

Sorry Daniela, I typed your name wrong

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Stephen Says:

I have found that my body reacts very differently to the various generics and name brands of Levothyroxine. I had always done well with the Levoxyl brand, but now that product is being discontinued. I have had adverse reactions (feeling like I have the flu) with one particular generic made by Lannett. I am trying to determine if the other generics are still on the market or if I will have to pay the higher copay ($45) for Synthroid brand.

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Stephen Says:

I would call your pharmacy or doctor's office.

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Anne Says:

I tried going without my Levothyroxin and after a week or so had a blood draw and saw i was sliding back down so i'm back on it plus a supplement of iodine.Doing good now.

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roxy Says:

Have been off levothyroxine for 4 weeks now and two to go until I have the thyroid uptake test. Has anyone experienced this before and I have not felt any ill effects as yet, but sluggishness. I was on 150 mcg and have been on thyroid med since 1980.

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Lady O Says:

I decided to stop taking my levothyroxine because my doctor has informed me that my levels are low, but withing the "normal" levels. She prescribed it to me because I had told her that I am not able to get pregnant and she thought it might help with fertility. However, since it was within the normal levels, I felt that taking an additional medication while trying to conceive may not be wise. Also I have not been able to gain any weight (am under-weight) and it may be because of the meds. I have been taking 25 micrograms for about 2 months. I plan to increase my iodine intake, and hoping that I haven't messed anything up. If I'm in the range, it feels strange to take the medication.
Thoughts? Will I have horrible withdrawal symptoms?

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K2kate57 Says:
via mobile

I also have been off for almost 4 weeks as I didn't note the exact date. First two days was really off but after felt great . Better than ever. Now I feel horrible. Headache slight vertigo. I gained weight due to a 4 day overindulge holiday. Now will be the test if I can shake it off.

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motherhen Says:

I have been taking levo 88mcgs. for about 4 months due to underactive thyroid. I gained weight and have not been able to lose. Prior to the 88 mcgs. I was on 100 mcgs. and was doing well, when my TSH level went down I was put on 75 mcgs. and then changed to 88 mcgs. This is the first day I didn't take it and want to know if this is good or bad.

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apl Says:

I've been on this same medicine since i was 8 i am now 14. A while back my prescription ran out because i missed an appointment. i was off my medicine for 3 months then i started to get the effects. But even though u didn't get any side affects its not good to miss that many days. after while i could feel my stomach starting to shut down because I've been on it for so long that my body is ammuned to it.

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mamabear79 Says:

Ive been on levothyroxine for 6 months. I still feel a lot of fatigue, hot flashes, and have gained about 30 pounds. My moodswings have gotten better but still these bad side effects. I am considering stopping this medication because all my doctors keep telling me is my bloodwork comes back with normal thyroid levels. Why the side effects? Any answers would be awesome!!!!

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erin Says:
via mobile

I am 32 I have been taking levothyroxine for almost two years. At first it helped with my cold hands and feet and tiredness. My doctor decided to up it to .5 mcgs in the summer. I then experienced my first panic attack ever. I felt like I was going to die. Well she kept me on same dosage bc my blood work was fine. We'll after my recent blood work it showed too high. She kept me on it anyway thinking it would help me loose weight (Dr did this with out telling me). Well one week before my honeymoon I started feeling anxiety heart palpitations short of breath and hot. I went to Dr she took me off it completely and told me to take half when I returned from Barbados. Well nine days after being off meds (still in Barbados) my body went hay wire. I had heart palpitations dizzy mess anxiety like never before and shakes. I went to the medical center and they told me to start taking it again. So I did and I was starting to feel better but now a week later I'm feeling occasional anxiety and dizzyness. It happens in morning usually. I vs been taking my meds at night. So frustrated it makes me feel crazy or that I have a heart problem. I also have had weird tingles in my legs and my left arm. Anyone else experience this? Needless to say I made an appointment with an endocrinologist but can't get in til June 3rd. I'm also looking for a new primary dr.

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Kathie Says:

I am away and have run out of my medication as I have been on levothyroine (150mcg.) for ever, I have concerns. I will be without for a week and unless I am misunderstanding, I should not be experiencing bad effects in that length of time. I will resume taking it as soon as possible. I am grateful for the " chat" ,it has eased my concern. I am 72 years young and am always hearing that effects may be different for the " elderly", but for now I will accept what I've read. Thanks.... N

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