Prolia Side Effects
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Alexis Says:


Would like to know of side effects after Prolia infusion from other persons. Up to now I have none.


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2647
Gloria Says:

Norma (# 2645) --

Hi, Prolia was horrible for me. My last injection was May, 2015 and I am still suffering from most of the horrible side effects. Not sure I will ever be the same. I would not recommend Prolia to anyone. Horrible drug!

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2646
sal Says:
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Norma (# 2645) --

There are a very few instances when Prolia is indicated such as bone cancer that is a metastasis, or a VERY high risk because of long term steroids, but they are few and far between in comparison to the number of people it has been prescribed. Unless one falls into the category for it original intent DO NOT TAKE IT !!!!! It is not safe !

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2645
Norma Says:
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Lynne Herndon (# 17) --

Don’t do any more injections. I was on it for 5 years. I had all the side effects. It will only get worse. I have not had Prolia in 8 months trying to get the poison out of my body taking Algae Cal and Strontium Pluse. Doing very well considering how much pain I was in

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2644
Linda Says:
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I lost all of my top teeth and had implants. Now I have a very loose bottom tooth. Very depressing. Never ever take Prolia if you want to keep your teeth...

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2643
Norma Says:
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Andrea (# 2624) --

I use SALUS STRUCTURE SILVER every day. It is better then antibiotics they can give you. No mouth sores anymore

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2642
Judy Says:

Marginot (# 2640) --

And in answer to Lizzie, I was given an anti-viral which caused nausea so I had to stop. The specialist I saw also suggested it could be a herpes virus. Up until Prolia I had only experienced one cold sore. I will check out the info on dry mouth. At the moment I am using Mi Paste in tooth trays every night to help with my dry mouth. Unfortunately it's not helping my mouth sensitivity. Of course I'm still having to wear a flipper until I get my implant which probably won't be for at least another 6 months. A long process as I had a bone graft in February which also has to heal and "take"!

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2641
Marginot Says:

Judy (# 2627) --

Lizzie replied to you about using acyclovir.Keep in mind the dose she was given would be the original dose of 200mg 3X /day. This dose can be maxed to 800mg5X/day which is what I take for Ramsay Hunt syndrome (chicken pox virus reactivation)for 5 days.You will have to find a willing dentist or doctor to prescribe this which won't be easy.
James

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2640
sal Says:
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Judy (# 2638) --

There is such a thing as Glossodynia, otherwise known as burning mouth disease. There are steps you can take to manage it, but too many to mention here. You can find it in " Google University" as it is a bona fide medical condition.

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2639
Judy Says:

Lizzie (# 2635) --

i certainly will mention it to my dentist. Unfortunately my mouth is continually sensitive whenever I eat. It's as if all the taste buds are ultra sensitive to any food that has any kind of seasoning. Even eating a crispy cookie irritates my mouth. All of this started after the 3rd injection of prolia. I guess I've just accepted that this is what I'll have to live with. I can only hope that anyone who contemplates using this drug gets a chance to read what many of us have had to deal with. My life has changed immensely. I've exhausted all avenues to find an answer to deal with this issue.

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2638
sal Says:
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Lizzie (# 2635) --

Regarding pain in shoulder and toes: It has been 19 months since my last shot; yet my toes and shoulders are still painful and even deformed. I suspect that arthritis was there, but Prolia caused it to manifest. Clearly, this is not going to resolve. P.s. my ankles too. This is a highly toxic drug and should not be prescribed so easily.

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2637
Lizzie Says:

Andrea (# 2632) --

I was on Prolia for 4 months when I posted re: the hair loss, mouth infections and bone pain. Am due for the next shot at the end of September but will not be taking it... so far have escaped the tooth problems reported on this site and still have hair.... so I am quitting while somewhat ahead. Will post results of the bone scan...

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2636
Norma Says:

Lynne (# 3) --

Get off as quick as you can. This is a dangerous drug. Do your research on Prolia.

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2635
Lizzie Says:

Judy (# 2627) --

My dentist gave me a prescription for Acyclovir which helped. You have to take it at the first time you feel the problem erupting. It does help get rid of the symptoms but does not prevent other outbreaks. I really believe this is a result of Prolia as this has not previously been a problem for me. I have only had one shot and that was 4 months ago. Will not get a second shot. Now beginning to experience severe pain in shoulder bones and oddly enough in toes. Fortunately it too goes away. I have been just using OTC Salon Pas which enables some movement which is painful but not excruciating.

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2634
Marion Says:

Andrea (# 2627) --

This is the first time I have read anything about excess saliva on this site. Not long after I had my first shot I was having to sleep with a handkerchief in my mouth just stretched across to soak up the saliva. The handkerchief was soaked in the morning. I also had jaw ache on the left side but my GP passed it off as neuralgia. I should have twigged then that there was more to it but I allowed myself to be bullied into 4 or 5 more shots. I made bad friends with 2 more GPs because of my insistence that my problems, including aching thighs, are caused by Prolia. The only person who agrees with me is the Physiotherapist. Thank you for posting.

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2633
Andrea Says:

Marginot (# 2620) --

So sorry for you and the others here talking about this.

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2632
Andrea Says:

Lizzie (# 2629) --

Lizzie, how long were you on it? Also I am curious how long Diana was on it. For her to still have side effects two years after going off is just crazy. I feel for you women. Glad that yours is not so bad any more! I am feeling hopeful for my future. Now I want to know: Is estrogen blocker eventually gonna do something to me???

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2631
Andrea Says:

Judy (# 2626) --

Oh you make me feel scared that you have been off it so long and still have the problems!! I'm so sorry. I had four doctors look at me and just say "it must 'hidden' Acid reflux" or "you may have hidden yeast infection" (for the small white bumps but no white coating on my tongue) I took stuff to fight yeast infection which I think has helped. The antibiotic pill did not help. Maybe it could help with YOUR symptoms. The product is called Yeastonil and has cat's claw and other good natural things in it. I drink lemon water with honey to balance my PH levels in case I have acid in my mouth, but now I am wondering if it's the chemicals of Prolia I am tasting. I swish my mouth with coconut oil and gargle with salt water (salt actually seems to calm my mouth). I saw a neurologist at Neuro Clinic who said my balance was off and maybe he could help me with both that and the mouth thing. You could try a clinic like that. He was an HONEST doctor who said he would wait till Prolia was out of my system rather than treat me in the middle of my 4th injection. He said maybe I will get better and I am feeling hopeful that I AM getting better now. I recommend eating really healthy and taking supplements to boost the immune system. My friend gave me a bottle of nascent iodine which seems to be helping. Also try chewing Xylitol gum. It makes my mouth feel fresher. The doctors can't know how to treat us because this is all abnormal stuff. We are all floating on a life raft hoping for what help we can get. I hope you can get better!

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2630
Lizzie Says:

Andrea (# 2627) --

Your expeience does sound horrible; At least the mouth infections I experienced come and go...with the good part being go....Hope things improve for you..

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2629
Diana Says:

Andrea (# 2627) --

So sad what they did to you, without even having osteoporosis. I feel simultaneously sick to my stomach and like crying for you. Yes, I've lost my ability to taste pretty much - realize it slows when one is older, but suddenly? I don't think so. Yes, on right ankle. Me too. Now have symptoms of other autoimmune diseases. Too many battles.

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2628
Andrea Says:

Lizzie (# 2625) --

Yes, your experience is a bit different from mine though.Mine is mostly stupid saliva that I can basically suck up from an all too strange-feeling lower lip (it is almost numb or something) and I keep sucking it up to help myself swallow! But my symptoms vary and just keep changing on me day by day. I treated the sores with yeast infection pills but the saliva issue remains. Now the roof of my mouth is weird feeling. I have no real pain, just terrible annoyance . Like some horrible nuisance you cannot get rid of through the day, and it picks up speed at night. I chew lots of Xylitol gum now to absorb the feeling in my mouth. It helps a bit. I did read SOME less common side effects I have: a feeling like I am walking on a boat (my balance off, but not in a serious way yet) and occasional weird feelings at my right ankle and other places. I wish we could find lots of people with horrid mouth problems and get Prolia off the market. I feel it was pushed on me unncessarily. I am told to take it because as a breast cancer survivor, I have to take estrogen blocker and they tell me I have that precursor to osteoarthritis. Don't most older woman have that?? Why not tell me to just take lots of bone meal or bone broth or something? Why does everything have to be treated UNNATURALLY?? I am SO done with Prolia. Praying in three months I am normal again.

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