Prolia Side Effects
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Alexis Says:


Would like to know of side effects after Prolia infusion from other persons. Up to now I have none.



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2709
Sal Says:

Marion (# 2708) --

So now that the patent on Prolia is about to expire, Amgen is coming out with a new drug previously denied approval by the FDA due to dangerous cardiovascular side effects.
It seems that they tweaked their warning label, and now they stand to be approved.

They will stop at nothing.

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2708
Marion Says:

Re: Judy (# 2726)

I'm sure Amgen bend the truth which is a sad thing to have to say. H in Australia it's the same story. They will admit to side effects but say that they are very rare...tell me about it.

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2707
Judy Says:

Re: Lizzie (# 2728)

Thanks, Lizzie. It’s going to be a challenge considering my husband's situation, but maybe I’ll be surprised! Sure beats the cold weather we’ve been having here!

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2706
Lizzie Says:

Re: Judy (# 2726)

I hope you enjoy every hour of your vacation.

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2705
Sal Says:

Re: Judy (# 2726)

But why don’t the Docs listen to us instead of just accepting Amgen’s word about side effects? Within 3 months of my first shot, I developed HypoCalcemia and Hyperparathyroidism. I saw three Docs who blew me off, despite the fact that HypoCalcemia is actually listed as a side effect, even in their magazine ads !!!!

It took going to another state to my previous physician who immediately order blood tests and I was severely deficient in calcium, a potentially life threatening situation. This Dr. is a Physiatrist and a Yoga master. If anyone is interested, he has an ongoing study, with good results of treating Osteoporosis with Yoga. His name is Dr. Loren Fishman in New York City.

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2704
Judy Says:

Re: Lizzie (# 2725)

Thanks, Lizzie. I guess I was so hoping that I would have a permanent tooth by now. We are leaving in a few days for a week in the Dominican Republic at a 5-star resort which we have never done before. I have great difficulty eating with the “flipper” in, and this resort has 9 restaurants to choose from. This will probably be our last holiday as my husband has been diagnosed with dementia and Alzheimer’s and it is getting increasingly difficult for him(and me!) to deal with traveling and adjusting to a new surrounding. All I can hope for is that when we get back and I see the oral surgeon she will give the OK for the crown! So sorry about your hair. I too had some hair loss due to an antidepressant but my hair stylist had me use a product from Italy that helped quite a bit. I also stopped the Wellbutrin and now things seem to have improved. I have also discovered that as we age, drugs that we had no problems with, start giving us side effects. It would be most encouraging if Amgen would listen to us and alert doctors that there, in fact, are real issues with a large number of people who have used prolia and only those who cannot tolerate other drugs, consider using it. And I mean CONSIDER. When I spoke to them I was told that they had had no one ever complain about any side effects! Of course, I’m in Canada and apparently we’re very polite people!!!

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2703
Lizzie Says:

Judy (# 2695) --

That is so awful! At least with the hair loss there are wigs and hope it will grow back. Teeth do not grow back and trying to fix them is cost prohibitive. Perhaps AMGEN execs would volunteer to have some teeth removed and shave their heads to determine the ultimate cost of their medication. Self esteem has no price tag..it is not vanity.. you can tell yourself its OK I am the same person, but if your mirror contradicts that statement on a daily basis, it is a struggle to maintain your inner confidence.

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2702
Marion Says:

Re: Lizzie (# 2722)

They don't want to admit that they have given you something so harmful. Even Amgen Australia admits that these can be side effects but their comment that they are very rare defies explanation in light of the fact that there are 1000s of patients complaining of the same problems that are being experienced with Prolia

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2701
Sal Says:

Re: Lizzie (# 2722)

This is similar to the Opiod epidemic, Dr.s are blindly accepting what Big Pharma tells them. Just like with opioids, there doesn’t seem to be prescribing criteria, or limiting prescribing to certain specialities. But how to accomplish that ??

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2700
Lizzie Says:

Re: sal (# 2711)

I also do not think my doctor meant any harm and truly did not think that side effects would occur-he assured me that none of his patients experienced side effects. HOWEVER, when I reported my first side effect (hair loss 2 weeks after the shot), he denied Prolia as the origin of the problem. When I reported bone pain, Prolia was also rejected as a cause. Now with the parathyroid problem and lower jaw pain, he is still not considering Prolia as a potential cause. So, while I do not feel that prescribing the shot was done with any negligence or harmful intent, I am not comfortable with the ongoing denial of the potential of Prolia to cause harm. I would really like a link to this site to be given to all patients BEFORE the shot occurs. We are not scientific proof, but there are enough of us to at least open the door to validation.

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2699
Maritere Says:

sal (# 2689) --

Yes...it may not be his or her direct intention to cause harm....However, they prescribe medication they don't even have a clue how they work in our bodies....and I think this is criminal! Considering that medication that is wrongly prescribed can kill you--ie. without taking into consideration the medical history of their patients--their prescribing whatever without knowing what it is, would be like policemen pulling the trigger not knowing what their guns do...

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2698
Gloria Says:

This drug is poison and should be removed from the market. It is a deadly and horrible drug. Amen drug company is still pushing it along with the doctors that prescribe it. It is all about money and not the welfare of the patients. I have and am still suffering from the injections I had. Not much information was available when I took the drug and I trusted my doctor. I really regret ever taking Prolia it has been a nghtmare for me. PROLIA POISON

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2697
Linda Says:
via mobile

Re: Judy (# 2717)

I lost all of my top teeth and it took over a year and thousands of dollars and I still do not look like I have any teeth. Very discouraging. The next time a doctor tells you that the only side affect is a little redness at the injection site, you better run. This drug is poison, please do not take it.

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2696
Sal Says:

Re: Lizzie123 (# 2716)

I am so sorry that this happened to you. Just know that Parathyroid problems are definitely related to Prolia. How are your calcium levels? Within 3 months of Prolia, I had both Hypocalcemia and Hyperparathyroidism. Hypocalcemia can be dangerous, so be sure it has been checked.

Be well.

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2695
Judy Says:

Re: Lizzie123 (# 2716)

It’s been almost 2 years since I lost my front tooth as a result of prolia. My immune system was affected by prolia which resulted in an infection of the tooth. My excellent dentist tried everything to save it but the root was so badly damaged that it finally had to be pulled. Six months later I had to have a bone graft and six months after that an implant. That was 4 months ago and it still is not ready for the crown. I won’t even begin to tell you the cost of this as the insurance companies consider it cosmetic! I’m wearing a “flipper” which is causing terrible gum sores....vanity is a terrible curse for we women but otherwise I’d look like a bag lady whenever I’m in public! So...why wasn’t I told that prolia could cause dental problems? All I can do now, like so many others, is warn anyone considering taking this drug to run, not walk if they are ever coerced into taking it.

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2694
Lizzie123 Says:

Shirley (# 2690) --

Just now starting with the jaw/teeth problems.. jaw is painful and beginning to pop and crack. Also now have a parathyroid problem. Parathyroid might not be related to Prolia, but the jaw and teeth probably are. I have always exercised good dental hygiene so I am discouraged by this potential expensive disaster...

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2693
Lizzie Says:

Re: Judy (# 2709)

It is really discouraging that no one in the medical profession will listen to the people who have had these experiences... our numbers are growing and there are many more people who experience the negative consequences of this drug but do not have a vehicle to voice their misery. Our doctors must think we are either hypochondriacs (sp?) or dismiss our problems as coincidence in that they occur after a Prolia injection. This website is a strong voice within our small community. I have to believe that eventually this voice will be heard in a larger setting and awareness will expand.

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2692
Gloria Says:

Re: Shirley (# 2712)

Hi, Prolia can be very bad for your teeth, I was informed of this by my dentist. Also, there are a number of post on these sites of people actually loosing their teeth and severe gums problems. As for me personally, the drug has been a nightmare. I tell everyone, it should be named Prolia poison, I suffered most of the horrible side effects, and was not told of them before taking the drug. As I said, it is a horrible drug and the FDA needs to take it off the market. I hope this helps you and others, hopefully not to suffer as I have from the injections of Prolia. I will never take it again.

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2691
Jennifer bate Says:
via mobile

Shirley (# 2710) --

Hi Shirley, I experienced afib after my first jab and terrible hives after my second one. My consultant decided not to give me any more. I hope you find other ways to strengthen your bones.

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2690
Shirley Says:
via mobile

Re: lizzie (# 2691)

I have had utis two broken teeth weakness balance problems and skin infections since having 2 prolix shots I’m considering not having anymore no matter what my dr says

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