Prolia Side Effects
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Alexis Says:


Would like to know of side effects after Prolia infusion from other persons. Up to now I have none.


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2694
sal Says:
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Marion (# 2693) --

My hypocalcemia symptoms continued long after my lab tests were normal.

It seems they all minimize the side effects. In fact, when I did have hypocalcemia, 3 Dr.s blew me off .
I went out of state to my previous Dr. who treats Osteo with Yoga; he was the one who diagnosed me.

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2693
Marion Says:

Bob (# 2690) --

Hi Bob. It's a dreadful drug and the only response I get from my medicos is that all drugs have side effects. really? I contacted Amgen Australia and their response was , 'well yes Prolia can cause those particular side effects but cases are very rare which I felt was an insinuation that my problems couldn't possibly be side effects from Prolia. My main problems are aching left side jaw and thigh bones plus other stuff which all started over 3 years ago. I have not had an infusion for almost a year but nothing has improved.

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2692
sal Says:
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Bob (# 2690) --

I too experienced hypocalcemia and hyperparathyroidism within months of my first shot. In addition I experienced numerous side effects.

It took about a year to lose those most of those negative effects, although some are permanent.

I join you in warning people not to
take this dangerous medication.

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2691
lizzie Says:

To the OP: Your message is seven years old... I hope that the side effects of Prolia vanished over time. I was supposed to get the second shot 2 months ago and did not. Am hoping side effects (hair loss, uti's, gum diseases, overwhelming fatigue, etc) will alleviate. So far I am feeling better (more alert, less digestive issues), but still have gum problems and hair loss issues. If you still check this site, I would like to see how you are doing after all of these years off the drug. Thanks.

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2690
Bob Says:
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Folks, I want to warn anyone who is planning on getting a shot of Prolia to treat bone density. I had one shot a month ago, and ended up in intensive care. My calcium and magnesium levels dropped dangerously, and I was told I was lucky my heart didn't stop.

I was pumped full of calcium via IVs, and was finally released from the hospital. Since then, the same symptoms have persisted that I got when I received the shot. Flu-like symptoms with no appetite, constantly tired, nausea and diarrhea. The shot is supposed to last for 6 months, so I am assuming I'm stuck with the symptoms for that long.

I then researched the drug on medical web sites and discovered thousands of other people who have experienced the same result from receiving a Prolia shot. I want to warn everyone to reconsider if a Prolia shot is planned in your future. There is a movement to file a class-action lawsuit against the manufacturer, and there have been thousands of complaints filed with the FDA.

The drug is Prolia. The side effects are devastating. Please reconsider before you receive this treatment for bone density!

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2689
Lizzie Says:

Judy (# 2687) --

Thanks to both of you for the anti itch advice...Have a dr appt and will ask about both of those. I honestly think I may be experiencing some kind of Prolia withdrawal symptoms.. sounds strange but I did not take the shot that was due one month ago... rashes have broken out all over and am having eye problems as well... maybe odd things happen as it slowly backs out of my body..Just guessing..

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2688
JenjiOz Says:
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Lizzie (# 2686) --

Novasone lotion (mometasone furoate 1mg/g) works really well on the scalp. It is runny, not a cream, so hair looks OK. Very effective for short-term use (up to a month if used regularly). Prescription needed in Australia and probably elsewhere.

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2687
Judy Says:

Lizzie (# 2685) --

Actually there is a prescription one called Betaderm Scalp Lotion which my doctor gave me to use. It really helped. I’m in Canada but I’m sure it would be available in the US.

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2686
Lizzie Says:

Gloria (# 2683) --

Haven't tried an anti. Itch ream. Did not occur to. Me to use one on my head.will try itThanks

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2685
JenjiOz Says:
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Gloria (# 2682) --

That is so awful that you became allergic to your beloved cat. It is bad enough that I am now allergic to some of my favorite foods, but if I had to give my cat away it would seem particularly cruel. It is very strange to develop new allergies in one's sixties or thereabouts. I think the causation is pretty clear. My new allergies include zippers, non-precious metal jewelry, elastic, soy sauce, and mushrooms. I'm gradually becoming OK with metals and may even be able to wear earrings again. We were definitely not given enough info about Prolia's side effects, which was utterly reprehensible. Just as bad, or even worse, is the fact that many of our prescribing doctors seemed genuinely unaware of its dark side due to Amgen's PR. I am furious that my life has been messed up so much. At least I have been awake for the last six months, unlike the previous year. That year of fifteen hour overnight sleeps plus daytime drowsiness was really destructive. I so hope these allergies of ours have time limits!

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2684
sal Says:
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Gloria (# 2683) --

I have just started breaking out with little hives again ! It took a year after my last shot for this to resolve, and now 8 months later it has returned !

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2683
Gloria Says:

Lizzie (# 2678) --

Yes, and my scalp started breaking out with rashes, really bad, and now my hair is thinning really badly. As I have stated many times on these forums, Prolia has been a nightmare for me and I wish I had never taken it without being told of all the horrible side effects of the drug! Prolia has been and still is a horrible drug for me. As for my scalp, I am now using Head and Shoulders shampoo and have to put anti-itch creams on my scalp sometimes. Hope this helps.

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2682
Gloria Says:

JenjiOz (# 2681) --

I have had a lot of skin problems, even have become allergic to animals, dogs and cats. And I loved my animals. Had to give away my last cat. Traveled with her in the car, skin started breaking out. Really bad, then started breaking out at home from her. It was terrible. I have had most of the horrible side effects of Prolia. I wish I had known before I ever took the first injection. A horrible drug for me and it looks like a lot of others that have taken it. As I said, a horrible drug. FDA needs to step in and do something. Prolia has been a nightmare for me personally!!!

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2681
JenjiOz Says:
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Lizzie (# 2678) --

I had so many skin issues of different kinds! Terrible itching on my scalp was part of it all. There were crusty lumps and smaller bumps, along with generalised hair loss, and a clump of hair missing from the worst bumpy area. I had a crawly sensation on my face, in my nose and ears, and particularly severe around my forehead, eyelids and brow bone.
There was hardly a part of my body that wasn't itchy at some stage, and disfigured by red marks of various kinds.
What got me through was Novasone lotion, but I used it for too long and got secondary side-effects - e.g. thin skin where I had used it most. I still get small echoes of these rashes etc when I eat certain foods that I never used to be allergic to pre-Prolia. At least now I rarely lose a night's sleep due to itching and I can get by without such expensive anti-itching creams and ointments most of the time. It has taken a year since my last injection to recover this far.
I think we all experience effects which are subtly different but with so much commonality.
I really hope this settles down for you quickly!

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2680
Judy Says:

Lizzie (# 2677) --

No, but I did have an itchy rash on my scalp that eventually spread to my forehead. The worst, as far as anything pertaining to skin are the sores and teeny blister- like bumps on the roof of my mouth that cause stinging when I eat certain foods. This, I’m afraid is still with me after being off prolia for 2 years! I’ve been to oral specialists, taken different drugs but nothing seems to have helped.

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2679
sal Says:
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Lizzie (# 2677) --

I certainly did, and my skin too.
It has resolved, though. My last shot was over a year ago.

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2678
Lizzie Says:

JenjiOz (# 2665) --

Did you ( or anyone else ) experience a crawling sensation in your scalp? It is like a weird tingling creeping all over my scalp.

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2677
sal Says:
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Judy (# 2676) --

I wish I had known about this site before I let myself be talked into taking Prolia. On the other hand, I was so frightened (I had vertebral fractures) I might have taken it anyway!

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2676
Judy Says:

sal (# 2675) --

You’re right, Sal. And that’s what I do......spread the word to anyone I can. My daughters are also doing the same with their friends even though they’re not yet dealing with bone issues to the same degree that I and my peers are.

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2675
sal Says:
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Judy (# 2674) --

I just share my experience with anyone who will listen !

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