Prolia Side Effects (Page 5)
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Alexis Says:
 
Would like to know of side effects after Prolia infusion from other persons. Up to now I have none.

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2107
Marti Says:
 
I too was incapicated, big time, for over a year. This drug was poison to me. I'd join a class action suite if there is one.

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2106
Goat c Says:
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I have contacted a attorney to represent me in a law suit against Amgen. This drug is a bad drug. I did not know about all the side effects of this and not told they could incapacitate me. If more people would step forward we could get a class action suit filed.

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2105
Sal Says:
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My last shot was in January, and a Dr. whom I respect and is anti Osteo. meds estimated that the Prolia would celear my body around now, and I think that might be happening; as I am not so weak. However, there is a good chance that the pain signals that were activated
might not deactivate.


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2104
Goat c Says:
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No info on how long either. This is troubling. My pain is being managed by pain meds. I will never take another shot this has destroyed my life.

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2103
Barbara Says:
 
I took my first Prolia shot on June 5th. It's been about 2 months and my hair is falling out. I will never take another's shot because of many side effects I have from this drug. My question is, does your hair grow back when you stop this medication?

After readings so many comments on how long Prolia stays in your body, I'm completely confused. I can't seem to get a definitive answer on this even after talking to a pharmacist at Amegen, or any other professional. Has anyone gotten credible information concerning this?

Also, has anyone had a tooth extracted while on Prolia, and did you have any problems? I have read that you could get osteonecrosis and I'm really concerned since I have to have this tooth taken out, and I just had my first shot of Prolia 9 weeks ago.

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2102
Sal Says:
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Unfortunately there is nothing new for IC.
There is one very expensive drug and Aloe Vera that had been purified.

I have a new pain management Dr. When I recently saw him for a follow up, he told me that he just saw another patient who like me, had been in a re mission from pain; then took Prolia and had a severe exacerbation ! I urged him to investigate.

Actually, knock on wood, but the last few days; I have had much less pain and weakness. My last shot was 71/2 months ago. Do I dare believe I have turned a corner ? Taking it a day at a time.

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2101
Poodle Says:
 
My mother had cystitis and the Docs never really got it completely cured. She had to have dilation frequently which hurt too. Maybe something new has come on the market that will help as long as it is not a biologic drug. You have my deepest sympathy because I know what you are going thru. Yes, Prolia causes lots and lots of infection by binding to RANKL which just happens to include our immune system. It's the wonder drug that wasn't. Also, in the Clinical Trials, people were only followed for 11 months. Seems to be a large chunk missing there to me. Be well~Pood

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2100
Poodle Says:
 
Judy~as your Dr. will tell you we seldom get enough magnesium from our food. I recommend it only for stopping the muscle cramps that Prolia causes. When I have my blood tested my Dr. is always surprised at how great my magnesium level is. i still get muscle cramps at night and that prevents them. If you are not experiencing any muscle cramping from our lovely Prolia, you may not need it. Be well~Pood

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2099
Poodle Says:
 
Judy~please stop freaking out. When they put in the implants, they use ground up donor bone to fill in for what we lack. It's not taking out anything from you. When they do the implants, they just stuff that around where we need it so they will heal properly in bone. There is hardly any pain involved. I go for sedation because I don't want to know about it. When I wake up I have some pain meds that work and ice packs. It's not bad or terrible at all. It's a good thing!! This good thing is expensive tho. I have no idea how much they cost where you live. Mine were $5,000 for two and Linda lives in a different State and hers were even cheaper than mine. The crowns that go on top of the implants are a separate charge and are made for you by your own dentist. They cost the same as an average crown does. Please stop fearing this. It's a very good thing. It's very sad that Prolia does this to us but in the end, we get teeth that will outlast us. That is what they mean by grafting -- just stuffing ground up donor bone into our jaws so they can properly hold the implants. It's been super cleansed and we can only thank the people that left their bodies to help all of us. Feel better now? Hugs~Pood

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2098
Sal Says:
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If I had known about the risk of bladder irritation, I NEVER would have agreed to Prolia. I have Interstitial Cystitis and Prolia has been a big trigger. In 20 years with IC, I never showed 4plus white blood cells in my urine!. My Dr. didn't believe me, but the Nurse Practitioner in my Urologist's office assured me that Prolia can be irritating to the bladder.

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2097
D Says:
 
Had my 3rd prolia shot. No probs with the first 2. Unfortunately, this one left me with an irritated bladder. This is listed as a prolia side effect. It is horrible.

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2096
Grace Says:
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Hey Poodle,
Oh ma gosh, I'm back as I'm writing this in the ER, left neck feels like electrical shock , four days now. It goes under my skull up left side of brain. Just had CTwContrast , waiting on ER Doctor for results . I can't help but think that it's part of my symptoms brought on by Prolia shot. Yes, my bones or gums hurt all over and it isn't constant the pain shifts from one area to the next, alternately :( weird , pain does not allow me to rest.. That is some awesome info on the old meds for Osteoporosis, I'm going to find a specialist and check on the drug you mentioned.. I'm so grateful for your post. Folks that are not involved have no possible idea of the struggles to try to get better. I have the biggest issue with my docs when they say , "you need to realize this is who you are now", I will push on and hope all the good people on this forum do as well , I want natural to replace the horrible drugs that have been used on me. Thank you and God Bless
Gracie

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2095
Linda Says:
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My insurance won't pay for complete blood very often and I had it done in April. Guess I will just have to wait. Some days are better than others.

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2094
Poodle Says:
 
Well Gracie, that is about why all of us got the dreaded Prolia injection - osteoporosis. There is another drug, it's old and Dr. don't like it because there is no money in it. It is Calcitonin. It's made from salmon but has zero fish smell or taste. It does a good job of tackling osteoporosis by putting down new bone instead of old bone like Prolia does. I would have been dead in a year and a half of Prolia. 6 months about did me in. May I ask that you get referred to an Immunologist since most of what Prolia does to us is through our immune system that it depletes to some degree; sufficient for all types of infections. There has to be a reason your gums hurt so badly. Do they hurt on all sides or just the side of the body that got the Prolia injection? When we receive an injection in the arm, it causes muscles and tendons in our arm to go up our neck and into our mouth. It HURTS. I know. I had it too and thought I was getting ONJ. My dentist knows me and knows if I complain, I have a real reason to complain so he started feeling around in my mouth and he found the spot that was causing all the pain. It can be relieved by acupuncture or dry needling. Same idea but using different strategies. Dry needling is done by Physical Therapists. Please get a referral to help you. Pain drugs are for certain types of pain and sometimes they work well and sometimes not. I really and truly believe you will benefit from either of the aforementioned. It can only get better so hang in there lady. Be well~Pood

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2093
Poodle Says:
 
Linda, regarding your thyroid. For what specific reason does it have to wait until October???? It's not that difficult to draw out blood and send it to a lab to check on the levels. Any primary doctor can do that. It does not require a specialist. I know things are different up north but still, you have problems that need answers. Diana who posts here had her's operated on and now she feels 100% better and is back to her art work. You need answers honey. Get in now. Hugs~Pood

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2092
Linda Says:
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I did have to get two bone grafts because if thinning bone. I did call the drug company and FDA and told them what happened to me. The drug company said no one had complained about dental problems. I don't believe that. I also asked them to pay for my implants and got a letter saying they couldn't do that. Surprise, surprise. I would be willing to be in a class action lawsuit if there is one.

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2091
Poodle Says:
 
Linda, you are lucky to only have to wait 4 months to have the crowns put on. Mine said six months which would be the middle of September. It's a very, very good thing that the X-rays show you have sufficient jaw bone for the implants. That is a huge plus for you. Have you reported yours to Amgen? I have not and I should. The only thing that stopped Prolia from taking more of mine is because it ran into a titanium implant that was already there. Even Prolia cannot get thru titanium. Soon you will be back to your beautiful self. Hugs~Pood

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2090
Feeling Crappy Says:
 
terrible stuff - evil drug - after several weeks still feel pain, nauseaus, headache, I will never do more of this stuff

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2089
Sal Says:
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Linda,
My wish for you is that your nightmare end swiftly, and that you have a complete healing.

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2088
Linda Says:
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Had my implants today and it is rough but I will get through it. My dentist gave me a discount because I have known him all of his life and he and my son were frat brothers. I really appreciate it but do not expect a discount any more. The lab will cost more for the teeth that I will get in four months. I have an ice pack and on pain pills and he also gave me a steroid shot. It may be a long night.

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