Prolia Side Effects (Page 2)

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Alexis Says:


Would like to know of side effects after Prolia infusion from other persons. Up to now I have none.



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21
auntylin Says:

hi, sorry to hear the problems go on, my friend jean,s 6 months were up 2 wk ago, she was offered and refused to take it again, the gp and nurse weren,t suprised, but on seeing the rheumatologist and telling him, he said `oh its not down to prolia`, she told him he should look on the internet, so he said no more, but offered her cortizone injection for the pain due to origonal complaint, pagets, diagnosed through arm fracture on falling, but she,s also a little osteo, spondy, also coeliac, with haitus hernia and heamo, a catalogue, she is 83yrs old, and no regrets about stopping prolia be it with increased risk of a fracture if falling, as she has got rid of some symptoms that made her feel so ill, just about finding a way of dealing with the pain now and taking suplaments, calcium etc. l,ll send her your posts as it helps her knowing others probs with it.

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22
Linda Says:

I took 1 dose of Atelvia and I was our of work for 3 days and sick for 7 days. This medicene is a once a week dose. I would not take it again. My doctor recommeneded Prolia. I have been reading about it and since I am very sensitive to drugs, I will definitely not be taking Prolia. Thanks for all your info. If any one knows of any other solution to Osteo - please let me know

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23
Sedona Says:

Just Calicum and Vit D with weight bearing exercises

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24
sheila ross Says:

So far no side effects , will be 7 days 17th Aug. I do have osteoporosis with 9 compressed fractures of the spine and aged 63 I was born with Turners Mosaic Syndrome so behind the 8 ball with a few things ..Prolia is very new in Australia, i seem to be a guinea pig yet again , but have to have something !

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25
sheila ross Says:

I posted today and said i had been on prolia a week on the 17th august ..i meant to say a week on this injection a week 24th august ..sorry JK:R

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26
Barbie Kuljis Says:

After getting the Prolia Injection...I had severe itching all over and in 3 weeks after a horrible rash on my body. The inner forearms were the worst....
I was given an injection of steroid which didn't even touch this rash...I had to go on oral steroids and creams....I also lost half my hair...it keep falling out and still is....My breathing got worse and my Asthma and Bronchitis were bad and after being on the steroids for about 3months and weening off of them....I have severe pain all over.... especially severe in my hips and knees....I can barley walk and my body feels like a mack truck has hit it...
I have always had GI problems & Crohns disease and this made it so much worse. I am also hypoparathyroid and take high doses of Calcium and Vitamin D regularly...but the cramps still keep coming especially in my feet. My teeth are hurting and the dentist is next.....Sleeping is not good....and since I feel so Crapy, my mood is bad and I am real "b****y" which is not like me....
There will be no more Prolia for me and hope this helps others when deciding whether this is the right drug for them or not.
My resistance is so low the Bronchitis got worse as did the Breathing and had to now go on antibiotics.
The minor problems are the numbness in fingertips and headaches. I am hoping all this stops after the 6 months...but I have this feeling....I might be dealing with this for quite some time and hope there are no more surprises.


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27
Lynne Herndon Says:

Barbie, sorry to hear you have suffered like this. I have recently had terrible pain in my jaw with headaches. My doctor has referred me to a specialist and I have to get a cat scan of may jaw. Just waiting for the insurance approval. I too have had itching especially in the scalp. At least my hair did not fall out. It has been like having the flu for 5 months with alot of GI issues. There difnatley will be no more Polia for me and I am sending a detailed report about what happened to me to the FDA. I would not be surprised to see a class action law suit over this medicine in the future - I have heard so many people have had problems. Take care Lynne

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28
auntylin Says:

hi, sorry to hear of your probs barbie, so many having severe side effects, l copy and send the messages to my friend jean, she had bad problems but now passed her 6 months by 2-3 wks, refused another jab, she,s still having some probs, maybe not as bad, but is also sending copies of complaints to her consultant, who disputed with her the probs were down to prolia, also sending copy to her adult son, who thinks it just down to her, commmon response by many who never ail at all.
Been there with years of undiagnosed intersticial cystitus, causing serious health problems and severe pain, damaging lifestyle, usual response, womens probs, gyny, hormone, phycalogical, neurotic, and others believe them, finally a diagnosis from urologist confirming chronic bladder inflammation, unknown reasons, but treatment for symptoms, how l met jean same problem, different subject, just simular response from experts, disbelief and down to you etc, etc, anyway wish you well asap.

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29
Mother McB Says:

I live in the UK where Prolia has only recently been made available. Having had bad reactons to Fosamax type medications my hospital consultant was very keen that I start this new medication and assured me that I would not suffer any of the Fosamax side effects and that the only problem I might experience would slight skin irritation. I received the injection on 30the June and the skin problem started straight away with itching all over followed by a small flat mole on my arm growing to the size of a marblel and then the sore throats and problems with air con at work. These all seemed to resolve themselves until about 4 weeks ago when the bentyl medication I have taken for 11 years stopped worked and I had the most awful IBS symptons. My doctor tried me on various other meds but they all caused the same reaction - things that were supposed to soothe bowel spasms now caused them and the pain has been horrendous. It has only been through reading other comments on this site and thoroughly investigating the side effects of Prolia that I realise that this is probably the root of all my problems. All my muscles ache and I even have problems wearing a bra because of the pain. Through food elimination I think I may be having a reaction to all spices even the hidden ones in food and so far I can eat rice krispies, custard and chocolate. Not ideal and as I am slim I can't afford to lose much weight. Although my own doctor has not agreed that Prolia is the problem she thinks my problems will eventually resolve themselves - I think I will have to wait until the 6 months are up so see what damage this has done to me. My analisys of this medication is that if you were very well you may be able to tolerate it but if you have any health problems they seem to have been exacerbated. I have no idea how a medication that interfered with the immune system was ever passed as fit for human use. I fully expect to hear a lot more people having bad reactions in the UK as more people start receiving it. Has anyone else had food type problems after having this treatment? Roll on December 30th.

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30
jackie zilch Says:

am 72 and was told I haveOsteo.
told to go on Prolia. Not sure I want to. will take

shaklee calcium w mag a d D first. My body does not
take strong meds well.
what do you think?

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31
Sedona Says:

At this point I have decided not to take another shot. The side effects are just to hard on me. At some point you have to decide the quality of life you want to have. Staying in be is not what I want to do for the rest of my life.
Hugs to All

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32
Faith Says:

Pharma Co called to see if I am going to take next injection of Prolia October 6th. A million dollars wouldn't convince me to get it. I am on a monthly dental check up to see the spacing and the bulging bones in the gums - have trouble with jaw/ear fluid, other previous injuries are now coming up with new bone growths and excrutiating pains - sweats, not sleeping - terrible fatigue - no end to this nightmare.
Hope this will be the beginning of the end of the 6 months, but the nurse for Prolia didn't have an answer.
The doctors are dismissing it, saying its not Prolia.
But most don't even know what this drug is. All I hear is that more and more patients are coming to see their doctors and all say the same thing, they received a Prolia injection.

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33
Sedona Says:

I have talked to a few Doctors, but the one that impressed me was my Pulmonary Doctor. He new what Prolia was and told me that he would not talk any of the drugs for Osteoporosis that are out in the market today. He stated that they do NOT know what the repercusions to these drugs are down the line and the at some point you have to go with quality of life instead of just taking another drug. I have COPD and this drug only made it worse. I was actually feeling fine before they gave me this shot. I hope to get back to that point. Hugs Sedona

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34
Sedona Says:

Alexis you are ione very lucky lady ...
Hugs Sed

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35
Faith Says:

You are lucky to have a good doctor, the Pulmonary one, that adviced you against any of these drugs.
That's more then I got here, they either ignore me, tell me, its not Prolia, and then to add insult to injury, say all drugs have side affects. Or, its not my specialty, anything, just to get rid of the patient that needs desparate help.
I too pray that after 6 months things will slowly get out of my system, but so much damage has been done, the growth of some old injuries, the bony gums, the separation of teeth, the aches and pains, and the fatigue.
Never again, will I take anything that will be given to me as I trully believe, that they are trying out new drugs for the big Pharma and big bucks.

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36
auntylin Says:

My friend jean passed her 6 month prolia jab a few week ago, refused a second one due to worsening health probs, at present she,s battling with a bladder infection gone onto her kidney, so thats just added to her severe back and side pain, on anti bs,she still thinks a lot is prolia effect and told visiting gp that, as she had her own gp and rheaumatologist, along with showing them copies of the posts on here, they deny it or ignore it, but think her pharmacist understood, often being more honest than doctors, no come backs for them.
She,s just hoping side effects will improve in time, as its still only a few week over the 6 month.
What about the oral b add, you wonder.

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37
Sedona Says:

He is a wonderful Doctor ... Let me tell you I used the work in a hospital pharmacy ... I made the IV's TPNS and Chemo. Doctors would come to the pharmacy all the time and ask the pharmacist about the drugs ... The doctors only have to have 1 year of Pharmacology while the Pharmacist have to have 7. Who would you choose to believe ? Also The Pharmacist have to keep up on the drugs. Doctors just have drug reps come into the office and tell them. Doctors do not know what a drug does to the body but a pharmacist has to know! I asked all my doctors but the oldest one was the one that told me he would not take any of thios stuff. If you want to know about a drug go to a pharmacist in a hospital.

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38
auntylin Says:

Interesting about the pharmacist, my own experience, not about prolia, but l had undiagnosed-untreated intersticial cystitus for many years, severe pain ill health poor quality life, Dr,s re gp and consultant put symptoms down to post op csection-sterilisation, later gyny, then hormonal, finally after years hypacondria etc despite proven nr persistent thrush, bouts of aneamia,
occasional bacterial cystitus, meds helped for short while and symptoms back, years went by, then got a bad bout of ic going onto the kidney, pyleitus, dr gave me pessaries daily for two week, antibs a weekly tablet for a month, horrible treatment but did feel really well at the end of it, but weeks later symptoms back. l had a long talk with the local pharmacist he told me the meds l had were for a deep seated infection, never heard of such, he explained, read up a bit more, saw gp and insisted on seeing a urologist, l had xray, scan, scope, finally after years suffering got a diagnosis treatment, which slowly but surely improved my lot, never cured but symptoms controlled with 9o per cent improvement
And it was definetly the info and advice from pharmacist
that helped me understand how real the problem was and oppose the docs diagnosis, and attitude. So agree how much the pharmacists can help with good advice.

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39
Lily B Says:

It has been only 1 months since my Prolia injection and I cannot sleep with indigestion and stomach cramps, which get worse at night for some reason. I was persuaded to take this injection by my Specialist but I regret having done this without enough research first. Hopefully this symptom will wear with the weeks ahead but I fear the damage it may have caused to my stomach. Why I did not read all these anti-Prolia posts first, I cannot understand. My dad ALWAYS preached about the drug companies making their millions at the expense of the illadvised. His words are haunting me now and if I could undo this dodgy injection, I certainly would. I haven't been feeling right since.

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40
Barbie Kuljis Says:

Hi, this is Barbie again...More complications from Prolia...(5 Months now)I was told I had walking pneumonia and shown X-rays...was on 4 courses an antibiotic and more steroids....My primary doctor felt she had given me the strongest meds with inhalers and nebulizer and she tried to admit me to the hospital for IV meds and more extensive testing and as she walked me out of her office told me she felt I had heart failure....they couldn't find a bed for me in admitting and sent me to ER....and after waiting for a Doctor on a gurney in ER for 8 hours and original orders for testing changed....I was sent home after being told, they were not familiar with Prolia and it wasn't on there formulary of drugs, and it wasn't posted on my record I had the Drug Prolia and that I had an allergic reaction to it....weeks later I was sent for testing in Pulmonary and only got the one same test my primary gave me....to say the least I was very confused... I also saw a Pulmonologist and her diagnoses was I didn't have pneumonia, I had a Reactive Lung Inflammation to the Drug Prolia. I had an echocardiogram for my heart and now after 18 days, they can't seem to get me the results, telling me they are not in yet....having had IC, interstitial Cystitis, for over 30 years and in remission with meds, I now have severe spasms in my bladder...
The severity of pain in my esophagus and swallowing and extended abdomen is having me see my gastro doc, for an endoscopy.....Plus my teeth are still in pain and I still am not sleeping...the Oral Dental Surgeon has told me the drug will be in my system at least one and a half years and I only had the one injection of Prolia......Thanks everyone for your support....Barbie

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