Prolia Side Effects
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I would like to know of any side effects others may have experienced after receiving Prolia infusions. Up to now I have none.

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I had one Prolia injection and my teeth started breaking at the gum line. It was horrible. I no long have any of my natural teeth. Dentures were awful too, so I now have a mouth full of dental implants that are very expensive. Wish someone had told me before I took Prolia.

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Out of all the people who have written to describe their concerns about Prolia, I’m curious to know how many were already dealing with arthritis. Any information would be welcome.

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Re: Verwon (# 1)

I’ve been on this for about 6/7 yrs and I have never had any side affects. I must be one of the lucky ones, thank the Lord.

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Re: Jmatt (# 3152)

It is all about the money for these doctors. Do not take this drug!

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Re: May (# 3154)

I have now found a new doctor and the first thing she wants is a bone density test. I know what comes next PROLIA. No way> I already had too much damage to my hair by taking that shot for 2 years before I guessed that it was NOT old age causing all the hair loss.

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Re: Nikki (# 3136)

My GP, whom I have a lot of respect for, keeps trying to get me to agree to take Prolia. Fortunately my friend’s husband is a GP and strongly advised me NOT to take it. My GP mentions it every time I see him, comparing the risks to the same as driving a car! Also says if I was his mother he’d encourage me to take it. I’m sticking to my guns, digging my heels in and happily taking vit K2/D3 only. The more I read on this forum the more I’m convinced that somewhere down the line there’ll be a class action against the makers of Prolia!

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Re: Jmatt (# 3152)

Good decision. Don’t fall for the Medicos opinions . I suspect that many of them are thinking of their hip pockets and not your hips or any other part of your bone structure

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Re: Nikki (# 3136)

My gynecologist says: oh just a little shot twice a year.
I don’t trust this drug.
I took Forteo and it about killed me.
So, I am very hesitant about this drug.

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Re: Lynne (# 3)

Do not take anymore as this can last forever. Try something more natural to assist with your osteoporosis. I eat food with calcium and take 4,000 units of VitD a day. Yogurt is really good, cottage cheese certain veggies etc.

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Re: Verwon (# 1)

I have used it. One injection and am still suffering from side effects. Made my osteoporosis pain worse, affected my asthma so terribly that now I have attacks quite often and lung infections, impacted my endocrine system so now I have allergic type flares for nothing like inflammation of my face and right ear and mouth. So yes I Wish I had never believe my endocrinologist and will forever blame her for my current state. It is a drug that was modified from a drug for bone cancer and given to otherwise healthy women because it has made pharma lots of $$$. Everyone I have met have had reactions but did not know it because doctors connected their symptoms to other issues they had. I could write a book and will never recommend or support these drugs. I now am attending therapy called OSTEOSTRONG and will test my density at the six month mark to see if anything has changed. Will report back. Look up Osteostrong especially if you live in the US if Canada I think only 2 clinics so far.

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Re: Darcy (# 3137)

The PA I see at the rheumatologist's office took me seriously when I told her about the side effects of Prolia. She hadn't heard of any side effects. I don't know if anyone else has mentioned it to her but I made sure to let her know in case anyone else comes in with problems.

I think you're right about kick-backs or at the very least, something not right about the majority of doctors dismissing our concerns and for them not to do their homework about this drug in the first place.

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Re: Jolly (# 3138)

Thank you for letting me know how long it took for your hair to return to normal.

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Re: Dawn (# 3140)

I've had asthma since I was a child. After taking Prolia it gave me asthma-related COPD. Consider asking your pulmonologist if you have it too. COPD is one of the side effects of the drug.

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Re: Gloria (# 3141)

I have a friend who had breast cancer and they gave her Prolia. It gave her side effects, too. She told everyone she knew how bad it was. I told her I already knew how horrid it was because I already suffering side effects from it, too.

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My mother was on Prolia for 2 years. She developed non-hodgkins lymphoma, blood cancer.

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Re: Nikki (# 3136)

I had horrible side effects from Prolia, wish I had never taken it. Found out through research that it has been used for bone cancer patients since 2010, a form of Chemo. And no, they do not advertise that face!

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Re: Darcy (# 3137)

Yes, what a shame they are still marketing this horrible drug, I agree with you. It was the most horrible drug I have ever had. Still suffering the horrible side effects of Prolia. But still advertising it.

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Re: Judy (# 3139)

I am sure the doctors are getting kick-backs from Amgen! As I have stated so many times, it is being marketed for money, Amgen nor the doctors tell you that this drug is being given to bone cancer patients, since 2010! It is a form of Chemo, but, of course, Amgen does not advertise that information. As I have stated many times, Prolia was a horrible drug for me and I still suffer for the side effects of Prolia. Wish I had never taken the first injection. Horrible drug!!

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I had all the horrible side effects from Prolia, it was almost deadly for me. I wish I had never taken the first shot, and I wish I had researched the drug instead of trusting my doctor. It has been and is still being used for bone cancer patients, since 2010! It is a for of Chemo, but they do not advertise or inform you of this information. As I said, it was a horrible drug for me and I am still suffering the side effects, I think the damage to my body is permanent. Horrible Drug!!

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Re: Jolly (# 3138)

I was the same but with different symptoms and still 3 years later am struggling with issues such as abdominal pain, nausea and now my asthma is more severe than before. Since this drug and many others for osteoporosis alter your immune system doctors just think it is something with you not the med. I started therapy called Osteostrong which I believe came out of the US and that there are many clinic and do feel better with the back pain. The darn injection weekend my spine even more. Trying to stay positive. They say that they can if my bone density. I am going once per week for a year.

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