Osteoporosis Forums

Recently active Osteoporosis forums and community discussion threads. Post your question or story about Osteoporosis and connect with others who have experience with the same medications. No registration is required and your identity remains anonymous.

Popular Threads



Recently Active Discussions

Page of 12    Next Page     New Thread    RSS Feed
Prolia & Hair Loss

I've just recently had my second Prolia shot. So far so good...a little back pain. I continually have stress fractures on my feet and have also taken fosamax. My current problem is hair loss & I wondered if anyone else was having that problem? ## Hello, Gracie! How are you? No, this isn't listed from what I can find, but I'll check a couple more sources to be sure and post back. Are you on any other medications? How old are you? ## I'm 57. On no other meds except evista and a pill for reflux. A friend sent me a website that stated that there was a study with some hair loss ## Yes, after my second shot of Prolea, I had two UTIs, fatigue, huge bumps under the skin on my face and all over my scalp, an array of unexplained symptoms like peripheral neuropathy (not diabeti...

Updated in Prolia
Prolia side effects

Would like to know of side effects after Prolia infusion from other persons. Up to now I have none. ## Prolia is used to treat or prevent Osteoporosis, specifically in post-menopausal women, it contains the active ingredient Denosumab. I'm glad to hear you've had no side effects, however, they can include: skin infections, jaw bone problems, irritation at the injection site and hypocalcemia. Read more: Is there anyone else with experience using this? ## How are you doing now? Still now side effects? Please let us know ## I was given a shot of prolia 8 days ago. I am suffering from pains in my arms and legs, digestive discomfort and nausea. Has anyone had this shot as I would like to know how long these side effects last as I am unable to work at the moment. I really feel terribl...

Updated in Prolia
Prolia Injection Side Effects

Aprox 2 weeks after the prolia injection I started to experience nausea and weight loss. Also, loss of appetite and a keen sense of smell developed. It was difficult to eat or smell cooked food. It has been months and these symptoms have decreased dramatically. In contacting their website they would not confirm or deny this as a side effect of the drug. Has anyone else experienced nausea w/this drug? ## Hi Bonnie, From what I could gather, the following side effects are associated with Prolia, that may be similar to what you had experienced: -nausea -tingling in your fingers, toes, or around your mouth -pain, numbness, swelling, or drainage from mouth, teeth, or jaw -vomiting Referenced from: nlm.nih.gov/medlineplus/druginfo/meds/a610023.html You or your doctor can also report various s...

Updated in Prolia
Severe constipation from Prolia injections?

Anyone have this problem? I was given two shots over the last year no problem. Third shot in November and I cannot resolve my severe constipation. Nothing helps. I eat enough fiber, drink enough water, and work out most days. Miralax doesn't help. Any suggestions? ## Heat some prune juice and drink it but make sure you have easy access to a bathroom. Also pitted prunes. Heat them also after adding water to cover and microwaving them till plump. Not all at once. It may work like dynamite!!! Just a cup of the juice at night, go in morning or whenever it wants you to! ## The antibody Denosumab® or Prolia® for skeletal/bone loss issues comes with a long list of side effects with some being very severe. Constipation is among the top three, so it happens quite often. These issue...

Updated in Prolia
Prolia issues and side effects

I am not going to have my next shot of Prolia due 11 June. I have already had two injections and lately have suffered horrible side effects such as terrible constipation, leg and foot cramps, skin rashes, stomach pain,etc. I also found out that Prolia works by stopping the body's own bone production, causing old bone to become denser. This results in probable fractures due to old brittle bones, Prolia also causes low calcium levels in the blood, a weird side effect seeing it is supposed?to strengthen boned! ## I am sorry for your pain and suffering, I am on the "high risk list" for fractures, so having a product that has rebuilt bone mass in MY body is a blessing. No, I don't like the side effects, but I don't want to be in a wheel chair either.. Good Luck To You and...

Updated in Prolia
Tymlos - the new approved drug

I have been prescribed Tymlos but my insurance denied me. I'm in the appeal process and my dr. says we could start Reclast if I am again denied. Any suggestions on how to obtain Tymlos? And does anyone have experience with Reclast? ## I get my Tymlos free. I had no Rx Insurance. I am retired and on Medicare. My arthritis Dr sent in an application for me and I was approved. You might ask your Dr's office as they should know how to apply for help. You might not get it free but if your insurance denied you then you may get a significant amount of help... Does anyone have any experience with this drug? After my first shot, I had lower back pains and a mild headache. ## I have Been taking tymlos for two months. Feel more stiff than before use. My co pay first two months was $415 per ...

Updated in Tymlos
Prolia side effects ongoing

I had my infusion Mar 4 2015. I have experienced severe stomach pains, leg pains that wake me up at night, a horrible dry cough, near migraine type headaches, very severe weakness, trouble walking, constipation, had to have dental work that I usually have great teeth, some trouble sleeping. My rheumatologist did nothing to try to help me with the symptoms but my primary doctor gave me medication that help with the stomach pains, take Excedrin for Migraines and enteric aspirin for back and body, and other meds to try and find some comfort. I'm somewhat better than the few weeks after the infusion but still have a lot of problems. Hopefully this doesn't last for 6 months. ## Hello, Shirl! How are you? I'm so sorry about what you're going through. Everything you've list...

Updated in Prolia
Celiac disease/wheat sensitivity after prolia

Just updating my situation with severe diarrhea after Prolia shots. I have gone on a totally gluten free diet and what a relief!! My bowels are back to normal (took just four days) and I feel sooo much better overall. The gluten free diet is very expensive, however, I feel it is well worth the cost to not spend my life in the lavatory. Seriously, some attorneys need to start a legal suit against the company that put this poison onto the market to be inj.'ed into unsuspecting patients, causing celiac disease/gluten sensitivity, and all the myriad of other problems I have been reading about. ## Hello, Jeena! How are you? A change in bowel habits can be a normal side effect of Prolia, according to FDA reports. You may also experience nausea, fatigue, headache, and anemia. As to the glu...

Updated in Prolia
Prolia side effects skin rash

I developed a red burning itchy lumpy rash after one injection of Prolia. Mainly on face neck chest arms scalp. Anyone else? ## Hello, Willy! How are you? That can be a side effect of Prolia, as listed by the FDA. You may also experience nausea, hypocalcemia, asthenia and fatigue. However, since it is itchy, you should have it checked out, because it could be an allergic reaction that requires medical treatment. Is there anything else I can help with? ## Willy, please look under Prolia side effects on this site. We have almost 900 people writing and talking about Prolia. You sort of worded your question wrong to land on the mega load of Prolia problems. Yes, it's from Prolia and requires medical attention. You will probably have to take written confirmation to make any MD believe yo...

Updated in Prolia
Prolia Side Effects Duration

Would like to know if anyone had side effects from Prolia but they went away - and how long did it take for that to happen? ## There have been many posts about people suffering side effects, which in theory should wear off in a few weeks, but it hasn't worked that way for many. Here's a link to a post with comments from several people that have been suffering problems: Are you also suffering from problems? ## First injection Feb. One week later could barely walk or use my arms due to pain. Now have back pain, musculoskeletal pain, cholesterol very high and walk with a cane or walker,very seldom drive now, due to arm weakness.AND my doctor said there were no side effects.!!! Will not take second shot in August. ## Have you rec'd any info on your question. Or since May can you...

Updated in Prolia
Prolia Scleroderma

Hi, has anyone had the prolia shot and have an auto immune disease? I have scleroderma and bones of a 101 year old woman, I am 57 years old. My Doctor wants me to take these shots for the osteo. I am scared to take it because I already have some of these symptoms with my scleroderma, but they are manageable if I am careful and take care of myself. This medication seems like it will kill me. My doctor keeps telling me it's safe..I don't want to take prolia but don't know what else to use in its place, or live my life as is and risk not taking it. I'm tired of taking this for that ailment but now you have this illness so now have to treat that and it goes on an on. Any feedback appreciated. Thank you for sharing your stories. ## DO NOT TAKE PROLIA. I had my first prolia in...

Updated in Prolia
Prolia reviews and information

Manufactured by amgen for treating osteoporosis. ## Prolia, which uses the active ingredient Densoumab to treat post-menopausal Osteoporosis. As of writing this message, it has not yet been approved by the FDA for general use in the U.S., so the information I have on it is limited. Did you have any specific questions? ## I had been injected with prolia for three years, twice a year for a total of 6 shots which are quite expensive. My doctor wanted to inject me again, but I think I had to stop. So far, I had not any side effect.

Updated in Prolia
Fosamax/dental extractions

dangers of dental extractions while on Fosamax ## I'm 65 yrs. old and have been on Fosamax 10+ years. I had a wonderful doctor who retired approx. 4 yrs. ago. Haven't had good medical care since then and am opting to stop this medication. I am experiencing teeth problems and shoulder and upper back/neck pain. I think 10 years is long enough (maybe too long) to take this med and I am going to stop "cold turkey". I'm going to check into a natural product at my local health food store that might benefit Calcium absorbtion. Does this sound like a reasonable approach? Thanks ## Generally, people are warned to avoid dental work while taking Fosomax due to the possible risk of osteonecrosis of the jaw, it is warned about in the patient advisory leaflet, and is why most pati...

Updated in Fosamax
Bone loss after Prolia

My hip bone numbers are worse after the 6 month shot. ## Not all medications and treatments work for everyone that tries them, that's why they are usually several choices available in any given therapeutic category. The FDA lists the typical side effects of Prolia as possibly including bladder infection, arm/leg pain and back pain. You may need to speak to your doctor about trying an alternative. Is there anything else I can help with? ## This is a terrible drug. I only took 2 injections in 9/14 and 3/15, but still have the resulting hair damage and jaw pain. My ENT and Dentist both told me that my jaw is messed up...Prolia does mention that as a side effect, but not hair damage. My immune system is weaker too...even 3 years after stopping Prolia. Yeah I'll just take the Osteopo...

Updated in Prolia
prolia NEVER AGAIN

had prolia injection February17,2012 was hospitalized the 20th with calcium depleted and was told heart could stop had to wear heart monitor given bags of calcium 24/7 FOR DAYS then went to 12hrs and then down slowly had to have blood drawn daily to see what calcium levels were because calcium levels to high is deadly also had to take mega doses of vitamin D also thyroid was thrown off also in essence was in hospital 50 days with 2 pic lines also which got infected making me very ill when released had to return to hospital every day for weeks for calcium levels checked and calcium infusion and it has just been in the last few months of actually feeling better the area I reside has a medical school and all doctors had never heard of a case like this before it was searched thoroughly and ...

Updated in Prolia
CALCITONIN BP WITH BENZALKONIUM CHLORIDE SOLUTION IP

IT IS A SPRAY TO BE TAKEN THROUGH NOSTRILS FOR THE DEFICIENCY OF CALCIUM.IT'S TRADE NAME IS OSTOSPRAY.IT IS GIVEN FOR KNEE PAIN FOR LAST MANY YEARS (AGE-62) LET ME KNOW SHOULD IT BE INHALED ## NO, just spray it. don't tilt head back it'll run down your throat.

Updated in Calcitonin
Side Effects Of Prolia & Zometa Are Similar

I'm a 59 year old female, diagnosed with Behcet's Disease and I use Prednisone for treatment for my weekly flares. The Prednisone is hard on my bones and has caused me to get osteoporosis in my hips. I had my first infusion of Zometa six days ago. I thought I was going to die from the side effects. I had 103 degree fever for five days, deep bone pain everywhere, muscle pain, flu like symptoms, migraine headache, burning eyes, pale skin, restlessness, and no appetite. Today six days later I'm still fatigued, pale, mild bone pain, mild muscle pain and no appetite. I reported these side effects to my doctor. His nurse suggested I maybe try Prolia injection in six months instead. I found this web site and was reading everything about Prolia and the side effects, they sound exact...

Updated in Prolia
Has Forteo ever restarted menstruation?

Age 49. I've had 18 months of no cycle. On Forteo for 3 weeks and suddenly I wake to menstrual bleeding? Anyone else experience this? ## Hello Marika, According to the NIH Forteo page (sections 5 and 6) and the Forteo website this is not listed as a common/known side effect associated with Forteo. The Forteo website "encourages you to report negative side effects of Prescription drugs to the FDA Visit www.fda.gov/medwatch or call 1-800-FDA-1088". I recommend that you discuss this issue with your primary care doctor immediately as this could be a more threatening issue than simple menstrual bleeding. I hope this helped, let me know if you have any additional questions.

Updated in Forteo
Prolia Loss of Taste and Smell

I have been taking Prolia injections for 2 years now. Over time, I've noticed that my sense of taste and smell has diminished. As of 6 months ago, I have totally lost the ability to taste anything sweet. Desserts of any kind taste bitter to me. I have also been on Levothyroxine (Synthoid) for a few years prior to starting the Prolia, but the loss of taste and smell has been significantly worse since I started the Prolia injections. Has anyone else experienced taste and smell issues taking Prolia? ## Yes I haven't any taste. Feel a little hungry. Then no taste and don't want it. Also my shoulders are really hurting, then goes to my head. I have several health problems but I know my body. Was not a candidate for Prolia at all and I would not take it again. Best of luck to you ...

Updated in Prolia
How long on Prolia therapy for -2.6 bone loss?

My bone density loss was -2.6 on December 2015, but after my third shot, my bone scan came back as -2.0 and I am going for a 4th shot this month. Can you tell me how many more shots I can go for, in order to become normal? I know my doctor might not be able to tell me how long. Please give me advice. Thank you! ## It sounds like your bone density loss has improved since the third shot. Do you find that to be the case as well based on how you feel? Have you gotten your 4th shot yet? And have any bone density results came back after the 4th shot to help determine your progress? In regards to how many shots one may need in order for bone density to become normal, my conclusion based on other Prolia discussion threads here, is that there's no way to know for certain because we all respo...

Updated in Prolia

12 pages of forums were found.

Next Page >



Discuss Osteoporosis

No registration needed.
Simply fill out the form below.

Discuss: Osteoporosis

 *
What are the main keywords of your topic?


 *

 *


 Optional, stays hidden.
Get notified when a reply is posted here.




5) Text Verification: *
Prevents SPAM.

Click here to show the question



This form will be submitted securely


TRUSTe

Discussion Thread Guidelines: Any participation in the discussion threads signifies your agreement with the Terms of Use and Privacy Policy. (1) Act civilized and be respectful towards others. No profanity, vulgarity or lewd / suggestive content is allowed. (2) Posts encouraging, facilitating, or seeking advice about the abuse of medications or other substances are prohibited. (3) Personal contact information (such as telephone numbers, email addresses, etc) is not allowed to appear on our discussion threads. (4) We do not allow our forums to be used for buying, selling, trading, or for the promotion of a product or service. (5) Posting external links to other web sites is not allowed without our prior approval. (6) We reserve the right to edit or remove content which we find objectionable to the community at our sole discretion.


Note: All times displayed are GMT - 7.

This information has been independently compiled and is for informational purposes only. It is not intended to be a substitute for medical advice from a qualified healthcare professional; nor is it intended to diagnose, treat, cure or prevent any disease. For more details please see the Medical Disclaimer. This page was last updated on 21 July 2019.

We are committed to your privacy.

Copyright © 2005-2019 All Rights Reserved. MedsChat® is a registered trademark of Limelight Innovations L.L.C. 9888 W Belleview Ave #5000, Denver, CO, 80123, USA