Immunosuppressive Forums (Page 2)

I wear a colostomy and was herniated around the stoma following surgery. More f the stomach wall seems to be weakening upon use of Humira. I now have four (two large in the upper quadrant of the stomach, and two small in the lower quadrant). There is some pain and discomfort as the bowel habits seem to be changing as the size of the hernias increase. There seems to be many very tender spots my back now and the bottoms of my feet burn and hurt. I developed tendonitis, but was also on Cymbalta when that occurred. I have stopped the Cymbalta but the tendonitis has not improved at all. I seem to be extremely anxious now and have anger outbursts and lots of crying. Are most of these found in Humira users? I used the starter in mid-April and am on maintenance doses every two weeks. ## Stomach...

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When taking Xeljanz I'm finally able to stop prednisone after 30yrs. Now I'm having shortness of breath. It's so bad I can't walk to the next room and back without sitting down so I can get my heart to stop pounding and breathing back to normal. Anyone else having this problem? Thanks for any feedback. ## Xeljanz has been known to cause trouble breathing, and high blood pressure, as side effects, either of which could causing your issues. Have you consulted your doctor? It is very important to do so, in order to rule out any possibly dangerous issues. Are you on any other medications? Did you taper off of the Prednisone? ## Yes it took 5 months to taber off.Dr says its not the Xeljanz so I started taking again the same problem started so I stopped it.When taking Xeljanz ...

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I'm really hoping someone who has some knowledge on this sees this. My sister has Crohn's disease, unfortunately she's in the 3% who have a life threatening kind. Her specialist put her on Remicade, which has a lot of side effects like making ur cystic acne waaayyy worse. That is no problem for her because the side effects for medication she's been on in the past would be horrible like chandeliering her bones. Peices of her bones would break off and get caught between the skin and try to stick through the skin. She's been on pain medication ever since i can remember, i couldn't imagine her not ever needing it considering her bowels and intestines are all cut up on the inside which leads to infections like abscesses. Our doctor recently got in trouble for some stu...

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I have been taking Humira for 18 months and I started experiencing central vision loss 9 months ago. I have seen an Opthamologist specialist at UCLA and waiting for results of genetic testing to roll out Stargardt’s disease, but now I’m wondering if it is related, or progressing as quickly as it is due to the medication. I am hesitant to continue this medication due to my vision loss as I’m scared of losing more vision than I have already. In the last 5 months I have gone from 20/80 (with corrective lenses) to 20/300 (with corrective lenses). Has anyone else experienced vision loss/blindness? ## Hi Breanne, Sorry to hear about your situation. According to NIH, "changes in vision" are listed as a known side effect of Humira. It lists everything from "sunken ...

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I've bern on xeljanz for 3 months for RA. It worked great at first but the last month I've had joint pain and the stiffness return along with constant chills and insomnia since commencing this drug. Has anyone else experienced these symptoms? ## Hello Sandra, I did some research and I sourced the list of adverse reactions that the manufacturer claims that are associated with Xeljanz. upper respiratory tract infections, headache, diarrhea, and. cold symptoms such as sore throat, runny or stuffy nose. The chills that you are describing as feeling could be part of the cold symptoms that they claim some of their users are experiencing. As for the joint pain and stiffness there could be a number of reasons that the medicine stop working. One of them is that your body has started to d...

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My dad 67 yrs is suffering from Ankylosing Arthritis and severe Dactylitis. He is being given Remicade (Anti TNF) from last 3 months and is effective. However, his fingers are painting a little and the pain is moving from one finger to another. Doctor stopped his Folitrax and Folvit and started Saaz with increasing dose for next 2 months. Does this have any major side effects? ## Is Saaz good for people of over 65yrs? I mean older people with an ailment?

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I've been on Humira for a little over a year now and the injection pain was pretty unbearable. I used to have a leather belt to bite down on. On a strange hunch I decided to try mega-hot sauce (carolina reaper based) a few minutes before my injection. The perceived leg pain during the injection while my mouth was still ablaze was almost nothing! I thought surely it must be a fluke, maybe I picked a good spot that week. The two weeks later I took another spoonful of hot sauce. Same thing! Though this time I got heart burn from the vinegar based hot sauce. I decided next time to go straight to the source and buy a habanero from the super market. The first time I bit into the habanero I was actually looking forward to the shot! When I actually did the injection I 'academically'...

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It is a small light orange/peach round pill with a score on one side and a coffee cup looking imprint with what looks like a spoon or something in it. ## As far as I'm aware, this logo is used on over the counter products. The company uses it on all of the ones they manufacture, so I don't know which specific one this is, but many of them seem to be supplements, rather than medications. The logo you're looking at is actually meant to be a mortar and pestle, the mortar is a bowl used to hold substances intended to be crushed and the pestle is used to crush them and mix them. Does anyone recognize this pill and know what it is? ## I have the same on my pills Azathioprine 50mg made by Co Pharma

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My husband spent seven weeks in the hospital, seriously ill. A major contributing factor is believed to be the Zinbryta he took for his M.S. Might anyone else have experienced major issues with Zinbryta? ## It is possible, it has actually been removed from the market, via a voluntary manufacturer withdrawal, due to the high number of adverse events that were occurring among those taking it. They do not explain exactly what all was included in the adverse events, so unfortunately, I cannot provide you with more information. However, if his doctors think it was due to the medication, then there is a very good chance that it did cause his illness. Zinbryta Recall Click here. How is he doing, now? ## Much better, thank you, but it was touch and go for a long time, and there is some residual...

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I was diagnosed with rheumatoid arthritis and ankylosis spondylitis in 1998. By 2000 I was so crippled I could barely walk. Anti-inflammatory meds were dropping my weight and not working. Methotrexate gave me heart murmurs and made me pass out. Remicade was new, not much was known about it, i figured it was worth a try. After my 1st infusion I felt better, I went into remission but stayed on every 8 weeks. Amazing for 10-15 years. At 1 point I had an insurance change, switched doctors. She took me off remicade because I was in remission, also she didn't like the drug and thought it was much too inconvenient to sit through infusions. She felt I didn't need it. I didn't mind sitting through infusions... Within a month I was flaring, tried enbrel, almost died from methotrexate,...

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I've been taking Humira for over a year now for Uveitis. I just found out I am expecting. Has anyone taken Humira throughout a pregnancy? If yes, were there any complications along the way? I am concerned about the unborn baby and would love some insight! ## Humira (adalimumab) is classified under pregnancy category B. This means that animal reproductive studies have shown adverse effects to the fetus, however no adequate and well-controlled studies have been done in humans - and that depending upon your situation, the benefits may outweigh potential risk factors. That all said, it may come down to discussing this more in depth with your prescribing doctor to help you make the most informed decision based on your medical history. Hope this helps!

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Hello. I take this medication for colitis as told by my doctor it's safe. Now after reading the notes about this on here i am scared. I've being taking this for 3 weeks now (2 per day) - Am i safe? ## I was suspected to have some auto-immune disease like - Scleroderma, MCTD, Dermatomysositis or Eosonophilic faciitis. All immunological tests parameters had turned out negative including RA factor done repeatedly in advance method in last one half years. ANA/ANF is -ve done several times in different labs. Doctors treated me with Pulse Mythyle Prednisolone IV 1 g each for 5 days and I was admitted in a specialized hospitals for 22 days. I had suffered from whole body itching, pain, mouth ulcer, swallowing difficulty, movement difficulty, swelling of face & limbs, pain in abdome...

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Does anyone else notice adverse affects from the sun when taking Azathioprine? I've been taking it for a few months now & when I'm out in the sun I get little itchy bumps. I just started going tanning again for the first time since I began using the drug & each time I've broken out into this terrible red, itchy rash. I've been going tanning for 20 years with no ill affects - and the only thing that has changed is the addition of the Azathioprine... ## Well first off, let me state that tanning is a very dangerous activity, it can lead to premature skin aging and skin cancer. Secondly, most prescription drugs do not mix with the suns rays and heat, most of them carry warnings to avoid or limit sun exposure as much as possible while taking them. This drug is no exce...

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How long do I have to wait for the medicine take effect? I still have a migraine and dizziness every day. I first infusion was on 8/2 then two weeks later my second infusion was on 8/18. Thank you. ## Do symptoms get worse before they get better while taking Ocrevus? I have not seen any positive effects of Ocrevus. Anyone have the same result? ## Everyone is different, so there is no definitive time frame that can be given, it can vary from person to person, and may depend on the severity of your condition, as well as any recent flares. The FDA lists its most common side effects as possibly including administration site reaction, redness, irritation, swelling, and headache. Did you continue to receive these infusions? If so, how are you doing, now? Are you on any other medications?

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I was on humira injections to treat my complex perianal fistulating crohns disease. It was great until I came out of remission and had reaccurring flares of infection. Infliximab was the reccomended treatment to go on with. There was a period of 4 weeks between treatments and during that time I developed excruciating lower leg pain and can barely walk. They burn and throb even when I'm not walking. My head aches and I feel worse now than before I stopped the humira. I had my first infliximab infusion yesterday and feel like I.ve been run down by a bus. Can anyone out there relate to this? ## Those can be side effects of Remicade, which contains Infliximab, and the warnings advise you to consult your doctor about it. Other issues may include bleeding, tiredness, bruising, fever, and ...

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Hey has anyone had under eye and cheek swelling? I have had derma fillers placed in my tear troughs and cheeks over a year ago and my earlobes repaired and filled with derma filler 2 years ago. My GI Dr insists it’s the derma filler. I went back to the dermo who injected the fillers over a year ago and he said it’s not from the fillers, there is nothing left but injected the dissolving enzyme just to be sure. I have had 8 full under eye and cheeks flares in the last 3 months. It always comes on 3 days after my Humira dose and remains for 2 or 3 days before going away completely. Then slight swelling under each eye and even one ear between the bi-monthly dose. I have been on Humira for one year and 3 months. This all started right at the Humira 1 year mark. Also my vision is ...

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My husband has been on Humira since December, 2017. He has been experiencing leg pain and weakness in his legs. He describes it like it feels like he ran a marathon. He even has trouble getting up sometimes. Is this something like anyone else has experienced and will it go away? Other than this, it has been working for him...took his psoriasis almost completely away. But he really doesn't like this feeling in his legs. ## Those can be normal side effects of this medication, according to NIH reports. Other side effects may include headache, sepsis, sinusitis, anxiety, and insomnia. It is hard to know if they will go away, in some cases they tend to linger when one is on this medication, and it has caused some people to have to stop taking it. You can learn more about this medication ...

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I have been diagnosed with this about 3 to 4 years ago and have tried many treatments. Ultimately I am on CellCept 500 mg 4 a day. My concern is taking this long term. Are there other alternative medications that have worked for any of you? I don't like the long-term side effects including sudden death and cancer. Also, how will you know if you're in remission because you're on the medication? I I know I can ask my rheumatologist about other therapies, but I was just wondering if anybody had any positive results with any other medications? Thank you very much for your time. ## Hi Cynthia, I started CellCept about a month ago for MCTD with Scleroderma that has started attacking my lungs. I have been on Methotrexate before this for a couple years. The methotrexate really helpe...

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I have been on cellcept for many years for severe systemic lupus. I am happy to say that I am in remission and have aecently stopped taking it. What symptoms do I expect if any? ## I have been on Cellcept for 2 1/2 years. I have had MS for 21 years and it secondary progressive. I have had wonderful results on cellcept without all of the side effects of the other meds. I can't take them because of severe adverse reactions. ## I just started Cellcept a couple of months ago- am often cold, my hands start to shake, fingers get stiff, walking is worse (can hardly do it), and depression is bad. Char, I too have had MS for 21 years an am Secondary Progressive. When you started Cellcept, did you initially have new symptoms and /or worse existing ones? If so, how long before before they got ...

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I am suffering from ankylosing spondylitis with hla b27 positive. I am having saaz ds with gaba neuron please tell me is the ankylosing spondylitis curable or it stops can u please tell me anything or any home treatment by which i feel better and cure ankylosing spondylitis. ## I am suffering AS with hla b27 positive. Please tell me if there's a better treatment for Ankyosing spondylitis? ## It is hard saaz. I have had the same issue since 1984. It attacks young males. It is a genetic disorder with no cure. I have tried all options. Sulphazaline does not work in the spine. Enbrel 50 a tnf blocker will work fast. Please ask your reumatologist to try it. Predisolone may work but not for long. Sulphazaline works on the peripheral joints not the spine. Not even methotrexate in low doses...

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