CellCept Forums

Recently active CellCept forums and community discussion threads. Post your question or story about CellCept and connect with others who have experience with the same medications. No registration is required and your identity remains anonymous.
Anyone have MCTD with active limited scleroderma?

I have been diagnosed with this about 3 to 4 years ago and have tried many treatments. Ultimately I am on CellCept 500 mg 4 a day. My concern is taking this long term. Are there other alternative medications that have worked for any of you? I don't like the long-term side effects including sudden death and cancer. Also, how will you know if you're in remission because you're on the medication? I I know I can ask my rheumatologist about other therapies, but I was just wondering if anybody had any positive results with any other medications? Thank you very much for your time. ## Hi Cynthia, I started CellCept about a month ago for MCTD with Scleroderma that has started attacking my lungs. I have been on Methotrexate before this for a couple years. The methotrexate really helpe...

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cellcept expectations?

I have been on cellcept for many years for severe systemic lupus. I am happy to say that I am in remission and have aecently stopped taking it. What symptoms do I expect if any? ## I have been on Cellcept for 2 1/2 years. I have had MS for 21 years and it secondary progressive. I have had wonderful results on cellcept without all of the side effects of the other meds. I can't take them because of severe adverse reactions. ## I just started Cellcept a couple of months ago- am often cold, my hands start to shake, fingers get stiff, walking is worse (can hardly do it), and depression is bad. Char, I too have had MS for 21 years an am Secondary Progressive. When you started Cellcept, did you initially have new symptoms and /or worse existing ones? If so, how long before before they got ...

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Cellcept - when I can eat popsicles

I started cellcept yesterday for a liver problem. It says I can't eat 2 hours before and 4 hours after. I would like to know does that include popsicles? ## Hello, Brenda! How are you? Popsicles are actually considered a clear liquid, so it should be fine, unless you've been instructed otherwise. They are just like ice chips, but with flavor. The FDA lists its typical side effects as possibly including diarrhea, stomach pain, weight loss, cough and pale skin. Is there anything else I can help with? ## No thats all. Thank You so much Verwon that was very helpful. ## I hope not!! I seem to be addicted to popsicles!! I eat three or four a day??? The cellcept and cymbolta makes my mouth so dry!! ## am taking Cellcept, how long after taking it can I eat?

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cell cep

new drug for lupus ## I am on daily of 3000mg of cell cep for threatment of Pemphagus.are there any long term usage side effects?I have been on it close to four years .any chance of weaning the medication out? ## Did you mean the immunosuppressive drug Cellcept? The FDA lists its typical side effects as possibly including nausea, dizziness, vomiting, headache, and runny nose. As to long term side effects, there are always risks with taking any medication, such as liver damage, or kidney damage. As to weaning off of it, the really depends on the severity of your condition, and what your doctor thinks you should do.

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new to cellcept

I am starting cellcept tomorrow so that I can finally go off of imuran and eventually prednisone. Have been on many meds for 16 yrs after being diagnosed with dermatomyositis. Also have fibromyalgia...hope to hear from someone who has had success with this medication. The Doctor has a lot of positive things to say about this med including little or no side affects. Looking forward to hearing from you. ## I have pulmonary fibrosis & am starting cellcept now. I've been on lots of other meds but it just keeps getting worse. They took me off cytoxan after 6 months. That didnt stop it. I walk slow, but I get there... ## I've been on it for 1 1/2 yrs. It has almost put lupus in remission. I've been on imuran and IV cytoxan since 2001. It's a very good therapy. ## Better no...

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Desperate for help, only 21, much appreciated if I had any advice from anyone.

I have a chronic eye disease called Uveitis.. My eye doctor wants to put me on a drug called CellCept.. He says he hopes to use CellCept to keep my eye stable. The problem and fear that I have is that I am a Benzodiazepine and anti-depressant addict, I take them to go to sleep.. 10mg Diazepam and 30mg of Mirtazepine. When they put me on Predisolone they said there wouldn't be any interaction, and there was. I was a total mess on Preds, maybe due to the combination. Couldn't function, couldn't walk, just a mess! Since coming off Preds my health has improved. I'm very worried about starting CellCept.. I'm worried about getting PML (Progressive multifocal leukoencephalopathy). I'm very fearful that maybe due to the fact I'm taking Diazepam and Mirtazepine that b...

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Cellcept pregnancy

Hi, my name is lucy. I am 25 years old. I had a liver transplant about 2 years ago. I am currently taking cellcept. I am 4 weeks pregnant. I am very scared because i was told by doctors not to get pregnant while on cellcept. Im only seeing negative things about it and ive been searching for a healthy baby success story. If there are any out there that can help me, please reach out. I will be forever grateful.

Cellcept meals

How long before and after meal should i wait to take cellcept? I don't want to take to soon.I've been on it 5 days. ## Hello, Brenda! How are you? The instructions provided by the manufacturer say one hour before a meal, or 2 hours after. The FDA lists its typical side effects as possibly including nausea, dizziness, anxiety and trouble sleeping. Is there anything else I can help with?

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cellcept for multiple sclerosis

cellcept was prescribed for me by neurologist for multiple sclerosis. Have had MS for 20 years and had symptom progression 2 years ago. Within 4 weeks I had almost complete turnaround with my MS disabilities. I could see better, was able to walk without my cane. I could swallow without choking. I speach and handwritting improved 100%. My doctor is with the Vanderbilt MS clinic. I have not been able to talk with anyone else with MS who has had such improvement. I have had no side effects. I must have CBC blood test every 6-8 weeks. Would like to hear if this is considered a break-through with other MS patients. I don't think FDA has approved cellcept for use in MS treatment. ## My mom has had MS for 25yrs, has been wheelchair bound since 1998, we tried Avenox, Copaxon, Betaseron shot...

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Cellcept for CIDP

I have started taking Cellcept for the treatment of CIDP. I am interested in knowing if anyone else is taking cellcept for CIDP and what kind of results they have had. ## I started taking it 3 week ago for CIDP...My Neurologist told me that it could take up to 6 months to started working. ## I have cidp and am on prednisone right now, My neurologist is going to add cellcept next month and I am wondering how it is going for those already on it. ## I have been on cellcept for over 4years. I am now having a number of issues that are believed to be associated with it! ## CellCept contains the active ingredient Mycophenolate and is used primarily as an immunosuppressant for organ transplantation. Some of the most common side effects associated with this medication include: increase susceptib...

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Reduced cellcept dose from 2000/day to 1000/day

My doctor has approved a drop from 2000/day to 1000/day and I am experiencing a fogginess and lack of pep. I use it with prednesone for myasthenia gravis. Has anyone had adverse issues when using a lower dose of cellcept? Bob ## It is completely normal to experience withdrawal type symptoms any time you lower the dosage of a medication, or stop taking it. It occurs because your body was used to the previous dosage you were taking. Have the symptoms tapered of by now? This should happen, once your body adjusts to the new lower dosage.

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lower my dose

Do you know when you body has had enough of this type of medication. ## I'm not quite sure what you're asking. Could you please clarify? CellCept contains a form of Mycophenolic Acid and it is used to as an immunosuppressant. It is very important to use it according to your doctor's instructions to get the best results for your health and well being.

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lupus nephritis ## I am a doctor of internal diseases and I need some information about selsept for my patient. ## Cellcept contains the active ingredient Mycophenolate, it is an immunosuppressant, most commonly used to prevent rejection in organ transplants. Common side effects may include: nausea, drowsiness, diarrhea and infections. You can read more here: Do you have any other questions?

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side affects and withdrawal

My husband was diagnosed with lupus in july 2007. he was put on prenisone and then in January 2008 he started on cellcept. after this many months he started with diareha. he had a colonoscopy to rule out other problems. the doctor was sure that the diarehia was from the cellcelp. he stopped the cellcept this past friday. will my husband have withdrawal and will the diarehia stop. should they start another type of therapy in place of the cellcep. ## I have been on cellcept for nearly 5 years now(kidney transplant). Your husband's diareha can be from the cellcept. I went off of cellcept when I got pregnant with my son. After I had him I had to go back on cellcept and I got diareha, I remember when I first started cellcept I had it also. I hope this helps.

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