Anyone Have Mctd With Active Limited Scleroderma?

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Cynthia Says:
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I have been diagnosed with this about 3 to 4 years ago and have tried many treatments. Ultimately I am on CellCept 500 mg 4 a day. My concern is taking this long term. Are there other alternative medications that have worked for any of you? I don't like the long-term side effects including sudden death and cancer. Also, how will you know if you're in remission because you're on the medication? I I know I can ask my rheumatologist about other therapies, but I was just wondering if anybody had any positive results with any other medications? Thank you very much for your time.

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Mary Says:
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Hi Cynthia,

I started CellCept about a month ago for MCTD with Scleroderma that has started attacking my lungs. I have been on Methotrexate before this for a couple years. The methotrexate really helped me and was well tolerated after a several month adjustment period. They are adding the CellCept to my drug regimen to try to get my lung issues stabilized. So far the side effects are difficult with CellCept, my muscles are burning and I’ve had some weird stuff going on, but that could be related to my recent flu.

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