Help! Single Disabled Mom Wrongfully Kicked Out Of Pain Management (Page 4) (Top voted first)

Ok, this will be lengthy to include all the necessary details but can someone help please? My being able to raise my daughter depends on my necessary medicine. I have no clue where else to turn. I have DDD with 4 herniated as of 2014 MRI, adv & degenerative osteoarthritis of the spine, tarlov cysts, neuropathy and nerve compression so badly that my left leg will give out with little warning. My father and I went to our PM last week, only a few days after unexpectedly burying my oldest sister. I've been a very trustworthy patient of his for four years and my Dad just about one year. Doc puts us both in same room which he's never done before. Doc starts talking to my Dad who is clearly morose & then says to my Dad, I don't like your attitude, which again just answers to his questions in a monotone voice. I explained to dr we just buried my sister, my dad's daughter so he's not doing well. Honest to God, that pos says "So, we all go through stuff". My Dad & I exchanged looks as if to say did he really just say that? Then doc asks how the super-charger script that begins with an N is working & Dad said yes a bit. Then the Dr flat out lies and says yeah I've had patients on that for 6 months and they're down to 1 opiate a day. That's a lie. He only began prescribing them two months ago. My Dad says Doc Ido, I hope but don't see how that's possible. Doc says I'm not going to argue to which my Dad replies I'm having a conversation, not an argument. And he was...if my Dad was wrong I'd have called him on it. So we head out and his daughter the receptionist asks to reschedule, my Dad says he's not coming back and I said I was unsure. Called today to make an appt and I was told I'm no longer a patient. I asked why and she said you released yourself. I said no I didn't, my father did. This is a family run practice so no one to complain to. Oh and they also declined to send my records & said have your new Dr. request them.

My question is I know I can't do anything just because he was a jerk to my Dad, but can I report him for lying about releasing myself thereby avoiding having to prescribe me one last time and for giving me no notice to go find a new Dr before I need my meds refilled? This last appt he was going to force me to continue inj's. suddenly when I haven't had one in a year because they don't work for more than a week on me. Dr got all weirded out a few months ago when his anesthesiologist was busted for supposedly not keeping correct docs & was fined $455k. My Dad thinks it was a set-up from the start...despite being excellent patients who never abused anything, never had dirty U/A, very rarely rescheduled appts and not once missed an appt, proof we're both permanently disabled from SS Disability... he wanted to dump us. Only thing we can figure is doc is or was def up to something sketchy & he knows my Dad is a retired cop and he doesn't want that around. So now my poor father and I are searching for new Dr at worst time. Does anyone know a good PM anywhere in the Chicagoland area who isn't afraid to prescribe, though I'm pretty far S/W of the city in Plainfield? I've tried everything in the world prior to getting on opiates and it is the only thing that has made my pain significantly retreat. I will take a new fancy OTC aspirin if it's strong enough, I just need to function and be in less pain. Custody of my 6 year old daughter depends on this...my life depends on this. How do they not see what this opiate crackdown is doing to legitimate chronic pain sufferers. Anyway, ty for those few who took time to read my novel. If you refer a good PM I would never use your name. Thank you all very much.

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Re: TIM (# 44)

Tim, while a lot of what you said is true, especially the political, the doctors however are under certain regulatory guidelines to insure the health and well being of all their patients. Meaning, i.e., if they have a patient who has been pain managed and let's just say on Morphine 60 mg twice a day and a muscle relaxer than that Dr. is obligated to his patient to withdraw or decrease his meds according to his health history (usually 10-15% per month) to insure that the patient does not suffer any ill percussions such as heart attack, stroke the etc REGARDLESS of what the government agencies state. That is not happening across America these doctors are running scared and in fear of losing their license that is their only concern. Last time I checked these government agencies did not go to medical school and take the Hippocratic Oath. The physicians need to decrease meds at a tolerable dosage per month, document, document document and the government has no choice but to go along. If they have fear of their medical license then take to social media and TV telling of violations of medical practices and the government will have mud in the eye so to speak.

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Re: TIM (# 44)

(1) I have been saying this for at least 2 years. (2) I do know that mixing various forms of intoxicants increase dramatically the chances of od death. (3) Absolutely (4) Changes in prescribing opioids has changed due to the political climate. Agree, NOT the Doctors fault or "big pharma's" fault. YES, marijuana was made unlawful by legislation and it will take legislation on the Federal level to make it legal. NOT some States "voting" on it. Until and unless the Supremacy Clause is overturned then NO STATE can "vote" something in that is against Federal law. (5) No comment, as I do not know what the "standard" is. (6) Agree completely. (7) Again, agree completely. (8) I have posted this same thing on many occasions. Get ready or be in for a dose of reality. People need to be armed with FACTS. NOT some pablum thoughts or posts that mislead others into believing they are fine when they are not going to be.

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Re: pamelaQ (# 45)

What you post is pie in the sky. One would THINK that a Doctor is under an obligation to insure the health and welfare of the Doctor's patients but WHOSE definition of "insuring the health and well being of all of their patients" is this Doctor under, your definition, his definition, or the regulatory agency that is charged with overseeing what Doctor's do? Many Doctor's have been sued by these so called "activist" organizations and it is costing them thousands to defend these frivolous legal suits. The "activists" KNOW that it is easier to get the Doctors to capitulate then it would be to win. Many Doctors have just said "forget it" and they will only prescribe the minimum medically necessary (by THEIR definition. NOT yours.) to provide pain relief. As was pointed out the Doctors may make the decision about how and in what amount to treat a patient. If you don't like their decision you may go to another Doctor or to the ER. These Doctors are "running scared" and they are concerned about losing their license. After all, it is their livelihood. They could care less whether any patient likes it or agrees with them. So, the Doctors "need" to decrease meds at a tolerable dosage per month? TOLERABLE by whose definition? Yours or theirs? Thinking any Doctor that is in fear of losing their medical license will take to social media to mount a campaign is just plain pie in the sky. It is much easier to drop the patient or refer them to the ER. AGAIN, reality is a b**** sometimes.

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Re: w john (# 47)

John, I hear what you are saying and I'm not putting all the responsibility on the doctors! Patients are culpable as well, that being said, doctors cannot decrease drugs at such a rapid pace that patient's start having heart attacks, strokes, coma, the ect and I'm positive the doctors and the White House does not want to take responsibility either. Not ALL physician's but many are running so scared they are not bothering with proper protocol in pain med reduction, actually not just pain meds, Neurontin, Lyrica are also on the list to just name a few. Patient's can't abuse the system any longer and for those patient's who haven't you are going to have to talk with your physician, establish a reasonable reduction based on your medical history and age. If everyone doesn't work together there will be a lot of dead bodies and not from overdose. Read side effects of some of these meds without slow reduction before you jump my butt and tell me I'm the one crazy. I pray that all will keep a level head, work together and all ends well.

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Re: pamelaQ (# 48)

1 possibly right here! My Dr's is lowering me at such a rapid pace my bp is av. 150/120&bpm 126 at a resting state. He claims this is normal but I KNOW it's not. Plenty of Dr's are doing the same so yes there are gonna be allot off bodies piling up. I made sure my family is ready to fight if I don't survive this! Sadly even if someone was willing to fix me right now I wouldn't be physically capable of handling it. Thanks to every dumbass that aided in this "epidemic". Most of he Dr's out there are only concerned with themselves&have forgotten the oath they took. It really is sad&its gonna get very messy very soon!

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Re: pamelaQ (# 48)

It is YOU that is being dogmatic about this issue. Saying what a Doctor can and cannot do. There is a huge difference between the legality of this issue and the MORALITY of this issue. YOU say "Doctors CANNOT decrease drugs at such a rapid rate...." I'm sorry. They can and they do. As I posted earlier if you disagree you have the freedom to go to another Doctor or go to the ER. BTW, there is a huge difference between "crazy" and "mistaken". SHOW ME where I said you are "crazy". You do NOT, however, have a good grip on the law. Your posts are so dogmatic and the real world is not like that. Granted, some Doctors do not seem to be on the high side of the morality issue here but to say that "Doctor's CANNOT decrease drugs at such a rapid rate...." is just plain wrong. They CAN and they DO. It would mostly come down to who has the most believable position and right now, as far as MOST people go, ALL users of opioids are criminals. Thus the so called "opioid crisis". I know full well what the labels say about titrating down but AGAIN it is the Doctor's position on what is the proper rate to titrate down. YOUR OPINION does not mean anything to them. You can try to reason with them. You can try and beg but most of the time it will get you nowhere.Try arguing with a Doctor and see what you get as far as any pain med prescriptions go. If you were not so dogmatic in your position and statements you would not have the harsh reality of the FACTS posted back to you. AGAIN, your thoughts and the reality of the FACTS are two different positions. You post about the way you think it should be. I post about the harsh reality whether I agree with them or not.

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Re: w john (# 50)

John, I'm truly sorry that I have upset you with my statements, that being said, this statement of fact is not going to make you feel better either: here goes; You are the one being dogmatic if you think that all patient's on opioids are criminals. I hope for your sake and I'm sincere in that , that nothing happens to you that you yourself will have to be placed on long term meds. It's been my experience that those people who mouth and judge others without being pragmatic of both concerns will get a bite in the butt. Let's call a truce? You can keep your opinions and I'll keep mine. P.S. I know more of the laws and regulations regarding doctors than you think, doesn't change the fact that not all physicians are abiding by them, that the reality. Have a Nice Day!

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Re: pamelaQ (# 52)

First, you really need a lesson in reading comprehension. AT NO TIME did I ever say that "all opioid users are criminals". Where did you get this nonsense? I NEVER said that. What I did say was that, in this political climate, MOST people, both professional and non professional, are rolling every consumer of pain meds into the same category as the criminal element. Street addicts, the ones that steal pills from relatives and businesses, and other criminal type elements are causing the Doctors and PM centers to look at everyone with the same jaundiced eye. This has caused pain med manufacturers to change their formulas or worse quit making pain meds altogether. I have been on long term pain med regimen for over 10 years. Where you get that I stated the misinformation that YOU think I posted or that I am not speaking from experience is absolutely amazing to me.

OPINIONS are fine as long as they are founded in fact and not just someone's OPINION. It will behoove you to get founded in FACT and not just make up things as you go along. The fact that you have misstated my position and statements on more than one occasion tells me that you would rather post statements based on emotions. Lastly, it is the Doctor's decision that will count. NOT an OPINION based on emotions. It does not matter what your opinion is. That I am being dogmatic on. Keep in mind that many of these online conversations are based on a person's UNDERSTANDING of laws of their State. Laws and rules can and are different based on the State and sometimes even the locality where the laws are in place. PLEASE READ what is posted and NOT what you think is posted. I NEVER said the things that you posted I said and there is not 1 iota of evidence to say that I did. I am not looking for an argument but I will not be wildly misquoted and not respond. That would be tantamount to an admission of guilt.

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Re: w john (# 53)

I am not speaking from an emotional argument, I read. Exactly who do you think is putting the muscle on physicians? Try CMS as in Medicare (CMS always sets the precedence for all insurance/agencies) and the CDC. As to laws regarding physician's you misquote what I stated. Doctors can not leave a patient "knowingly" in a critical state of health that could cause death, however, many physicians feel that they are having to make a decision of their own "survival" of livelihood and unfortunately for PM patients we are losing. It doesn't matter that the so called "opioid crisis" has been diminishing since 2012-2014. The rise of Fentanyl and illicit drug deaths has superseded any and all positive changes for long term PM patients. I'll bet you didn't know how "Big Pharma" even got started? Here's the info, why don't you go look it up? I think you'll be shocked. Try Rockefeller, Carnegie and Flexner. Go to: "How rockefeller founded modern medicine and killed natural cures". I don't just talk to hear myself speak. Have a nice evening.

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Re: pamelaQ (# 54)

You ARE making an emotional argument. I know who is putting the muscle on physicians. It is the politicians, the DEA, and popular opinion. Just two days ago there was a story about a guy who all of his friends say was abusing cocaine. He also took other illicit drugs as a mixture but it was the cocaine that killed him. The headline read "Promising College Student caught up in the "opioid crisis." He abused cocaine. His friends told him that his cocaine use was out of control but still his death was blamed on the "opioid crisis". You say "Doctors cannot leave a patient "knowingly" in a critical state. You have NEVER previously stated or used the word "knowingly". You have only posted your whine about Doctors not titrating people down properly ACCORDING TO THE WAY YOU THINK IT SHOULD BE. AGAIN, if you are in a "critical state of health" GO TO THE EMERGENCY ROOM. A Doctor is only required to STABILIZE a patient if they are in a "critical state of health". NOT prescribe them whatever pain meds that THEY feel they want or need. "Stabilizing" a patient is NOT titrating them down at a rate that the patient "feels" they should be entitled to. I could not care less how "Big Pharma" got started. I listened to my sister and father rail on "Big Pharma" all my life.

"Big Pharma" is blamed for everything that ever goes wrong with prescription medicine. While they have been complicit in many scandals the pharmaceutical companies have spent billions on many drugs that are good. Nevertheless, how will understanding "how Big Pharma got started" even be germane to where we are today? KNOWING this information will not contribute one thing to where we are today. We are where we are. I don't know where you get the "quotes" you CLAIM to post that I have said. I have called you out on at least TWO occasions and asked you to back up what you posted and I have gotten in response is some rant about how Big Pharma got started or Doctors leaving a patient in a "CRITICAL state". Once again, if you disagree with how your Doctor is treating you then go to another Doctor or go to the ER. I am still waiting for you to show me where I ever called you "stupid" or where I posted that all users of opioid pain meds are criminals. YOU said I said BOTH of these things. Either apologize and admit that you made a mistake or prove your post. I will be waiting. Probably for a long time because you can NOT prove your post and for some reason you do not strike me as a person who is humble enough to say "I was mistaken. I apologize".

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Re: w john (# 57)

I did post back. Here it is again. You have your opinion I have mine. In simpler terms "we agree to disagree". Have a blessed day.

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Re: Patrice (# 36)

Hi Patrice! I'm managing. Just underwent my 3rd vascular surgery (stents-bilaterally) last week. It's a combination of taking NSAIDS and my smoking but I still need something for the daily pain. I have been Morphine since Jan 2017, Oxycontin since April 2017 and Hydracodone since July 2017. I now take Advil in the am and AdvilPM @ bedtime. Keep strong and things will improve. Positive thoughts will yield positive results.

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Re: Kat (# 7)

NOT sure where you are in Kansas, but I do know of a pain management Dr. In Lenexa. His name is Marvin Faulkner....he practices out of Kansas Institute of
Medicine. Fair warning he is seriously like bi-polar....never know what kind of mood he'll be in when you see him. But he does do pain management.

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Re: Silverlining (# 63)

Hi! I'm sorry you are going through so much trouble but at the same time glad I'm not the only one hearing from Dr.'s the truth. I was getting on the record ( meaning it would be in my medical records) and off the record (meaning his word against mine) same deal as you. It was a tough 14 months for me coming off those pain meds. Now I live with the pain and have had procedure upon procedure but unable to fix the back or permanent nerve pain in rt leg/foot. It is what it is til a solution is reached. I am a positive thinker so I am hoping a positive result will yield but get frustrated it's been since 2008. Just hanging on. Good Luck to you to.

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Re: Silverlining (# 65)

I know how you feel, can't do any home with stairs. Everything must be ground floor. We have a moderately sized home (2500 sq ft) and it kills me walking around. I'm trying to convince my husband to down size because daily cleaning this baby it too much. You keep holding onto those positive thoughts and I wish you Good Luck with your upcoming marriage.

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Re: pamelaQ (# 67)

Thank you&back at ya! I feel sooo bad because my fiance has to do pretty much all the housework as now my prosthetics lock up preventing any leg movement. I swear he deserves an award for sainthood! I can't even have him go into the dress with me as he's ready to flip on them himself!

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Please visit the website for Pfizer. There is a drug that is morphine and naloxone, tamper resistant. Here in Louisiana only 2 docs in the state. I'm trying to make them understand at correct dose,it is wonderful.Send info to state reps, Pfizer,and anybody who will listen.

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Re: JMJ (# 72)

Your post is a little long but I understand what you are trying to point out and it takes some time. My opinion is not "jaded" by the narrow parameters I have to operate in. I try and deal in the "today". Where we are RIGHT NOW. We can talk about the politics and the "over correction" that is being made and how it is unfair. However, that does not change the facts of what is going on right now. I think most people understand that a "happy medium" needs to be found but until more than the "patient" side of the issue is working on the issue we are screwed. Most pain prescribers I know do try and "taper" their patients off of an addictive substance. It is the RATE of the taper that the disagreement comes in. Patients want to "taper off" at a rate where they will experience almost no, if any, discomfort at all. The Doctors have a different philosophy of what "tapering off" means. THIS is the rub. If you have been on a pain med for years THERE WILL be a withdrawal period no matter at what rate you feel is reasonable. Many patients will NOT "wrap their heads around" the taper process at all. Why? They just do not want to taper off. In fact there are many that enjoy where they are and scream bloody murder if they are told they will have their meds reduced. I was accused by one poster of posting "all pain med users are criminals". NOTHING could be further from the truth. What I said was "all opiate users are being grouped into one group the legal, justified, responsible pain med users and the street criminals that steal their medication, and the street heroin users". I agree with your post for the most part. I do think there is a lot of where we SHOULD BE as opposed to where we actually are. It is okay to state how things should be and expressing a hope that an issue will be more "centered". Normally, like the Stock Market that deviates all over the place, there will be a correction that goes more to the center and stabilizes but until then we are stuck with dealing with where we are right now. Thank you for your post. It makes sense if only ALL PARTIES would cooperate and work towards a middle ground solution but right now that is just not happening. Until it does we are forced to deal with the facts as they are right now.

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Re: TIM (# 69)

Why haven’t pain doctors banded together and risen up against all the political/legal interference on our and their behalf! What a bunch of overpaid cowards! Clearly they had not compassion to begin with if it never occurred to them to stand up for the patient...It’s no longer a career field but strictly business and they only care about the money!

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