Epclusa Side Effects (Page 6)

Hello. I am 16 months post epclusa and feel worse than when I started. I was a server for over 40 years. Full of energy. Then hep c happened. I had epclysa for 12 weeks. Now I am in bed most of the tune from no energy. My ears are ringing. I feel deflated. Anyone else feel like this? My hep c nurse waived off my complaints.

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Re: Kev (# 100)

Kev, I'm in Australia finished epclusa probably 7 yrs ago ,no hcv anymore ,but I now have asthma find myself breathless swollen feet ankles also low immune system ,too many problems to mention .I'm 69 yrs old levery time I go to drs if I mentinlon epclusa he strongly disagree s that it may have changed my life for the worse he has no answers why I've deteriated so much! ,I use to go swimming fishing ect wish I never let epclusa into my life .at least I could wear socks shoes with out cutting into my feet .now I am super paranoid of catching covid,I'd like to go back too 70s 80s when I still managed to feel fine ! Stay safe Kev ect

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Re: Friendz4 (# 99)

To Friends ,same your not alone ,I feel we were guinea pigs ,like has anyone really cared about how we feel ,where are you? I'm in Australia IV had no support from liver clinic or epclusa people ,we all should have been paid damages for what they have done,do you remember Kathleen a lady who was suffering from epclusa in America she use to join conversations often about problems since doing epclusa I'd really like to know .thanks take care try stay safe.

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Re: Kathleen (# 89)

Hi really great to see your message Kathleen IV been worried about you getting cold here in Australia sorry to hear things have not improved for you ,I am the same ,I hate looking at my puffy feet abdoman no word from Gilliard as usual it's been yrs now since I did treatment ,no help ever.my kid sister passed away last Saturday ,drs say she could not cope with covid on top of liver problems ,epclusa didn't help her .take care K everyone ,??

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Re: Kathleen (# 86)

IV been thinking about you Kathleen ,what is covid situation in Carmichael ? My kid sister died from covid last weekend, having liver problems on top of covid was too much take care my friend.

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Re: Lou (# 1)

Hear you & feel your pain

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Re: Friendz4 (# 99)

Hi ,hope you are not feeling too bad ,I finishy epclusa about 5 yrs ago I'm 69 yrs old ,don't seem to have virus anymore ,but lots of other problems ,too many too mention ATM ,drs have no answers ,I havnt heard a word from Gilliard !I get these body jerks often usually when relaxing dr hasn't a clue ,anyone else get these jerking symptoms.also have cold asthma since epclusa my life feels crap since treatment epclusa

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Re: Friendz4 (# 8)

Do these groups include Harvoni patients as well?

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Re: KatyKat (# 98)

KatyKat join the club ,I'm dam sure I felt better back in the good ol daze ,probably best time of my life ,we had best music ect I'd hate to be a teenager these days it's all so boring ,I hate epclusa for what it's done ,don't believe everything you hear ,it's no wonder cure ,were just guinea pigs!! Now we have covid (great)

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Is that Kathleen fr carmichael USA would like to hear from you again.

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Re: Lou (# 109)

Yes hello Lou.
Still struggling like me? Glad to hear from you

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Re: Lou (# 104)

So sorry she died. Horrible sickness.
I've had all 5 boosters. Still a thing here in usa.
Epclusa is still the ruin of me.

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Re: Kathi (# 111)

Hi Kathi,thanks for your message ,if we are talking about the same person ,we were good friends we both had problems ,IV been wondering why I hadn't heard anything from her ,Do you know any details.thanks .Lou in Australia

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Re: Kathi (# 110)

Sorry about previous message I made a mistake ,are you Kath from Carmichael ? Really like to hear from you. .Lou

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Re: Lou (# 113)

Yes it's me. Have worried about your health since epclusa.
I think it has ruined me.
Did your sister take covid vaccine ?

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Re: Kathi (# 114)

Hi Kath ,no my sister never took epclusa ,but she always worked in clubs also alcoholic I think ,she made a few mistakes in life as we do ,I don't think she had a good start my mother made her leave school early and help her in clothes making ,then she escaped with alcohol drugs ect then a bad relationship had a daughter who is a waste of time ,then she caught covid plus serosis liver .I'm glad she is finally out of pain,IV had a few hospital stays with breathing issues also having lot of trouble with sore swollen feet cramping ,my dr is hard to see plus hospital is good place to catch covid which I really don't need, my house got flooded March last year lot of mold damage plus lost just about everything including my old car ,so now they have me in a thing called a pod village while waiting for insurance to fix house IV been living in ,a pod is like a container with windows or a caravan with no wheels ,guess it's ok not much room has tv air con ,since flood lot of homeless people great to hear from you ,Lou.

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Re: Lou (# 115)

So sorry about your sister. Did she take covid shots? Basically not taking them is a death sentence here. I've had 5 boosters. Sounds like you have suffered so much since Epclusa. Now to lose your home and everything is just awful. California has had so many floods this year. So much damage. I live about a quarter mile from the American River. Its a big one and quite long. Hundreds of homeless live over the river banks. Over 10.000 homeless in our area. At 75 I'm not well enough or young enough to move. I hope it won't happen. I've often thought about you, my brother in arms with epclusa horrors. Take care. Respond soon if you can. I'm so sorry about your living conditions.

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Re: Kathi (# 116)

Great to hear from you. I can relate to what you're saying. So far, I've had four COVID shots, and luckily, I haven't caught the virus. Recently, I had to spend four days in the hospital. I was watching late-night TV – I can't even remember what I was watching – but I had one of those body jerk reactions when I was nearly asleep. Anyway, I fell off the stupid chair in the place I was staying, and I thought I had broken ribs. It turned out they were only bruised, but it was still very painful, even three weeks later.

Also, I had a lung infection, so I received antibiotic injections in the hospital. I really didn't enjoy being in the hospital with so much COVID around. I think I caught the lung infection in the accommodation I was given for a few weeks; it wasn't a very good place. However, there's very little accommodation available since the floods. I agree that it's hard at our age to get motivated. Coughing with bruised ribs wasn't easy.

The American River sounds really nice. It wouldn't be good for us to catch COVID after everything we've been through. There is an antiviral prescription available if you test positive for COVID and are over 65 or have other health problems. I haven't heard if it's successful or not.

Anyway Kathi, I'm getting tired and might attempt to get a bit of sleep. Take care!

Lou

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Re: Kathi (# 110)

Hi Kathi, I'm wondering what the percentage of people catching covid after Epclusa or Harvoni and getting very sick are... The government here seems to think the pandemic is over, I really don't think so. Do you think Trump has a chance of being president again? Why do some people go to prison when others who deserve to go get a suspended sentence and a slap on the wrist?! Getting cool over here now. I think better than hot days! Take care Lou.

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Re: Lou (# 118)

Not sore if epclusa makes getting covid worse.
I dont think trump will be elected again thank God.
Certain people get away with a lot and never get caught. Seems like bad people everywhere.
160 mass shooting in usa in 3 months. Schools. Churches. Restaurants parking lots even at funerals.
I'm quite scared when I go out now. I'm 75 , a woman and an easy target.
Getting hot here already. Luckily we had lots of rain this year.

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Re: Lou (# 118)

Hi hope all is ok ,I forgot to mention that it must be terrible ,for you to feel scared to go out with amount of shootings , unfortunately everything is changing here a lot more crime ,the world is a different place these days it has lost a lot of its innocence with pandamics , homeless ,ect I worry for the kids what kind of world will they have , certainly don't need someone like Trump , leading things , Australia is kinda like USA state these days I think ,.anyway take care ok Lou.

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