Epclusa Side Effects (Top voted first)

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Kathleen Says:

Hello. I am 16 months post epclusa and feel worse than when I started. I was a server for over 40 years. Full of energy. Then hep c happened. I had epclysa for 12 weeks. Now I am in bed most of the tune from no energy. My ears are ringing. I feel deflated. Anyone else feel like this? My hep c nurse waived off my complaints.

94 Replies (5 Pages)

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1
Lou Says:

Hi Kathleen, I really feel for you, I finished Epclusa a year ago and like you I've had so many side effects l can hardly walk most afternoons due to leg joint pain. I get exhausted so easily, nausea, numb toes/fingers; probably a circulation problem. I did not have any of these problems pre-treatment. I've also got Edema on my legs and my stomach is really swollen. I feel so uncomfortable and unbalanced. If I mention this to the hep C liver people they just say, "oh it wouldn't be the treatment". So far the virus isn't showing, but I think I'd rather have the virus then feel like this. All I hear from the liver people are lies, plus no support when I ring them. I'm in Australia. I feel like a guinea pig and my life is wrecked. I think there is going to be a lot of very sick people in the near future. They know nothing about what DAAs do in a couple years time. Really hope you are ok. Take care.

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Lou Says:

Re: VerFree (# 2) Expand Referenced Message

I'd like to see the percentage of people over 40yrs old who have done treatment who now have major health problems some fatal instead of being fed rubbish about very few sideeffect s ,I think that there would be a lot of people who would have not done treatment ,and took there chance with hcv instead of living in severe pain every day ,knowing that there's no body out there with a clue with what is going on with our bodies or any idea what damage the DAAs have done or what they will do , Also no support from the people who convinced us to do treatment ,I think it's about time some people looked up Epclusa post treatment side effects .

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New day Says:

Re: VerFree (# 2) Expand Referenced Message

So you work for the pharmaceutical company?
Many of us were symptom free for 35 yrs. had these Anti virals pushed on us and life was never the same. There is more in these drugs then anti virals
Until it’s you, comment many of our lives have been cut in half post treatment. By ny virus or hello death?

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12
Friendz4 Says:

Re: Lou (# 11) Expand Referenced Message

Hi Lou it seems the miracle was not a miracle drug after all. It was pushed through too fast not enough time to see the side effects they are devastating unbearable. Harvoni and Epclusa posts have so many people in the same situation. I have gone to Drs for 4 years had every test and scans and feel something happened to my immune system and I am in overdrive.

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13
Sunshyne Says:

Re: VerFree (# 2) Expand Referenced Message

I call BS. Just like Harvoni this drug is making people sick, sicker and killing others. My husband had NO CANCER in his blood work or scan. Started drug and died 5 months to the day of start treatment date ... liver, pancreas and adrenal glands. Follow the patients after treatment.

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17
Sunshyne Says:

Re: Lou (# 15) Expand Referenced Message

Is anyone reading these comments? Does anyone care? Where is a lawyeror law firm who will help all of Gilads victims and the families who have lost their loved one to this poison that us now under a new name. Advertising a 99% cute rate. My husband was cleared by week 5. And died week 20. 8 weeks after treatment.

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Lou Says:

Re: VerFree (# 2) Expand Referenced Message

I think it's not a coincidence that a lot of people have lived near normal lives untill post treatment ,my virus has gone thankfully but so has my pain free days ,ears constantly ringing nausea total exhaustion numbness severe joint pain Edema infections ect .but oh I forgot very few side effects, sure thing mmm.

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Lou Says:

Re: VerFree (# 2) Expand Referenced Message

It's more than a coincidence ,that so many people have gotten sick, shortly after starting Epclusa DAAs don't you think, IV heard too many times from ignorant people that they have never heard of that symptom before ,and try to blame it on something else ,when is somebody going to aim up ,and admit that very little was known about the wonder med ,let's find a minority group of guinea pigs and make some $$$

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Friendz4 Says:

Re: Lou (# 5) Expand Referenced Message

These side effects were not mentioned prior to treatment if they had been I would not have taken this treatment I have severe tinnitus 24/7 hearing loss. My head is always clogged up, neuropathy through my body. Hands and feet are the worst. Extreme anxiety, awful brain fog, and confusion rashes that never went away since treatment. My Immune system is so messed up I have muscle spasms, and something happened to sleep pattern, breathing problems and I have been to Drs for 4 years during treatment. My Dr said like all of you it’s not from the treatment. Well it’s not a coincidence that these side effects are the same we are all experiencing. {edited for privacy}

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Friendz4 Says:

Re: Lou (# 15) Expand Referenced Message

The anxiety is unbearable I am a shell of who I use to be I had no liver damage and was living a wonderful life we were not told the truth about this drug my life is destroyed Please join Harvoni Epclusa post you can search it anywhere it will come up can’t drive a car anymore or even live peacefully the drug was pushed through to fast. And we were the lab rats I have lost vision in my eye have cataracts severe floaters and my muscles spasm all the time.

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Friendz4 Says:

Re: Lou (# 19) Expand Referenced Message

Yes it does effect our immune system I was treated 4 years ago was never sick prior to treatment I am sick all the time now on and off antibiotics join Harvoni Epclusa post after treatment where there are a lot of people dealing with side effects since treatment

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54
Kathleen Says:

Re: Lou (# 53) Expand Referenced Message

Hi. Haven't heard from you for awhile. Glad to know you are still hanging in there.

I'm so frustrated with big pharma. My body has suffered greatly during and after epclusa. Two new diagnosis since then. It has caused my arthritis and my eyes to be very painful. Can't stand light. When I awaken I have to gradually use lights.

I go see eye doctor on the 13th. Hope you are doing better. Still the new person in town?

Think I used my name Kathleen on this site before. Let me know what's happening with your health.

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5
Lou Says:

Hi Kathleen, hope you are doing ok. We've still got fires and smokey air, not much fun with breathing problems. My breathing problems don't seem to be responding to the cortasteroids; just bloated and exhausted as usual. Now I've got a letter telling me I have an appointment for a stress test on Monday on a treadmill. Not looking forward to it much, as I seem to have a lot of symptoms that go with heart problems. If that's what it is there's not much I can do about it. I still feel Epclusa has caused my problems. They will never admit it. The thought of going on treadmill scares me, as I haven't had much energy as of late with the bad air I've been breathing. It's been near 3 months now. Sick of it now. I feel I've just about had enough of doing tests, paying out money and getting nowhere. Hope you're ok. Sorry for the whining, bad day today.

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Friendz4 Says:

Re: Lou (# 7) Expand Referenced Message

Hi Lou we are on a group of people harmed severely from these DAA with no support from Dr they all say the same thing it’s not from the med it is not a coincidence that all these same side effects are happening to us. {edited for privacy}

Editor's note: Per our privacy policy, personal contact information (such as telephone numbers, email addresses, etc) is not allowed to appear on our discussion threads.

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Friendz4 Says:

Re: Lou (# 25) Expand Referenced Message

The sad part is a majority of us are experiencing the same horrible debilitating side effects and we can’t converse any other way that in here and they will not let us provide our information for contact or use any website information it gets deleted harvoni epclusa post tx is a site to search where we are in a group that descusses all the side effects I can’t leave my information they block it out try to search what site I wrote and you will find us please we need to get this out there

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45
Vincent Says:

Re: Lou (# 3) Expand Referenced Message

I'm 57 years old suffered with liver disease and hepatitis c for years I was put on eclipse 4 months after it was approved by the FDA I had horrendous side effects to first year couldn't even get off the couch it was a real chore just to go to the bathroom I'm 3 years since I took the drug and I feel wonderful I quit drinking alcohol I don't do drugs of any kind and I'll watch what I eat and I take a nap everyday I'm 57 years old and I feel like I am 18 yes I had side effects for 3 years horrendous side effects the first year but the key is not to drink alcohol to eat healthy and to take a nap everyday it is worth it cuz I feel wonderful living proof completely cured of liver disease and hepatitis c completely cured my viral load was over a million parts per and today I am healthy as a horse other than the ear ringing

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Kathleen Says:

Re: Lou (# 56) Expand Referenced Message

So good to hear from you again Lou.
I was diagnosed with immune system arthritis last year. Started steroids and another drug . Now my eyes are so sensitive to light that I finally see a doctor tomorrow. None of these things happened until epclusa.
I dont know how they get away with doing us like this?
I'm so glad you are hanging in there with me.
I have been asked to do a talk about Epclus at a center here.
I am considering doing so. Will let you know..
Take care lou

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66
Anna Says:

Yes this is devastating I was a healthy person no liver issues shouid have been left alone this is not living I hope someone gets them

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67
Lou Says:

Re: Anna (# 66) Expand Referenced Message

Anna sorry that you have had similar effects ,what part of world are you ? I think it's time we started getting some kind of action on these people there's a lot of really good people suffering , with not Evan apology just lies.take care, a lot of people have had a hard enough life already we didn't deserve crap and lied.

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68
Lou Says:

Re: Sunshyne (# 65) Expand Referenced Message

We all deserve apology for all the crap theve put us thru, take care ! MN is it good place ??

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