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Nervous system damage from epclusa

Has anyone experienced severe anxiety, constant crawling feeling in body after epclusa treatment. Its like my brain and body aren't working right anymore? I had terrible side effects. Finished in January, now it's June and feels like I'm still taking the poison. ## Hello, Barbara! How are you? Has there been any change? Those are not normal side effects of this medication according to recent FDA reports. They typical include nausea, dizziness, insomnia, depression, and diarrhea. Are you on any other medications? Do you take any supplements? Do you drink a lot of sugary, or caffeinated beverages? ## Yes I started with hand/arm pain about a month after starting treatment. Now I am three months post treatment and the pain has now been nerve pain in my hands, lower legs, hands, ...

Updated in Epclusa
Epclusa Treatment

Is there anyone out there who has taken Epclusa? I'm fixing to start treatment and would like some feedback. ## When you are starting treatment? Can anyone that's been on this medication chime in? The FDA lists the typical side effects as possibly including headache, diarrhea, discouragement, loss of appetite, and nausea. ## I finished 3 months in Jan; side effects began to like stick to me by the beginning of the 3rd month; swelling for me n nausea, felt a little addicted too; that could have been the habit of taking it at 11am daily. Yet something just isnt right for me n there is no info from the professionals! I'm doing research as much as I can and making adjustments... ## I am currently 12 weeks into a 24 week epclusa treatment. It’s been really difficult due to ...

Updated in Epclusa
Nasa Flo Nasal Spray

1- kinds of positive effectiveness on pulmonary diseases 2-side effects ## I'm sorry, I am having trouble finding information on this. Where you referring to the product manufactured by NeilMed that is a sinus rinse called NasaFlo? If so, it is just a saline rinse to help clear the sinuses. ## Hi ,I am on my 3rd prescription of anti biotics for what started as small skin irradiation on shin,it's been 14 days now ,it has doubled in size plus infected my dr thinks it's improving I hope so,I also have copd onset asthma,emphasemia I'm 67yrs old ,finished Epclusa treatment 2 yrs ago,IV read recently that flixotide (containing fluticasone proprionate) can cause skin infection s that can take many mths to heal,my dr has me on flixotide twice a day, in my opinion 3 scripts antib...

Updated in Epclusa
Light at the end of the tunnel

Forgive my procrastinating! I want to share with you my great news! I'm Geno type 2, I'm on day 50 of sovadi and ribavirin last week my lab results came back hep c undetectable! We are so thankful... The side effects so far have been minimal! 34 more days to go! That's it so far. Very pleased with my treatment. Peace out to everyone on the journey! ## Wow! That's amazing! Congratulations, and here's to hoping it continues. The typical side effects of Sovaldi, and Ribavirin my include appetite loss, muscle cramping, nausea, skin itching, and irritability. Which ones have you experienced, so far?

Updated in Sovaldi
Mavyret living with side effects?

I was diagnosed with Hep C 25 yrs ago, took Interferon injections for a yr, my Hep C came back as soon as I stopped treatment. Then was given Interferon and Ribavirin but couldn't tolerate it. In 2016 I made it 5 weeks into Harvoni and couldn't live with the side effects. Since 2016 my liver fibrosis has increased now at a 2-3 was a 1-2 for yrs but its now jumped up since the Harvoni. My Dr wants me to start a new treatment but with my sensitivity to medications I'm scared. I've been looking into Mavyret? The paperwork the nurse gave me said 8 weeks? Looks doable ? Was wondering if anyone has had any long term side effects? My Dr said most people tolerate Harvoni , but on this forum I found a group who had as bad, if not worse side effects then I had!. Please can you hel...

Updated in Mavyret
epclusa treatment hep c hearing loss

Im sure epclusa caused hearing problems started with ears ringing then lost hearing in right ear dr prescibed predestone (steroid ) lucky for me hearing came back dr said i was very lucky, liver clinic nurse said epclusa would not cause it i think it did iv never had hearing problems ,id been taking epclusa for 7 days ,its a 3 mth treatment iv done 2 mths dont know if i shud risk doing the last mth im over 60 yrs old ,very hard to get liver clinic to respond or suggest anything. Please any ideas.??? ## Hello Lou, I have been looking into epclusa but I haven't been able to find any reliable source that shows any connection between hearing issues and this medicine. While I couldn't find anything regarding a connection between epclusa and hearing I was able to find some studies tha...

Updated in Epclusa
Epclusa side effects

Hello. I am 16 months post epclusa and feel worse than when I started. I was a server for over 40 years. Full of energy. Then hep c happened. I had epclysa for 12 weeks. Now I am in bed most of the tune from no energy. My ears are ringing. I feel deflated. Anyone else feel like this? My hep c nurse waived off my complaints. ## Hi Kathleen, I really feel for you, I finished Epclusa a year ago and like you I've had so many side effects l can hardly walk most afternoons due to leg joint pain. I get exhausted so easily, nausea, numb toes/fingers; probably a circulation problem. I did not have any of these problems pre-treatment. I've also got Edema on my legs and my stomach is really swollen. I feel so uncomfortable and unbalanced. If I mention this to the hep C liver people they ju...

Updated in Epclusa
Harvoni side effects for my wife - concerned husband

Hi my wife has just started harvoni - about 9 days or so now - and she is getting swelling in left leg and also feels like there is pressure in her head. Anyone else have anything similar? Thanks ## Hello, Chris! How is your wife doing? Has there been any change? It has been known to cause headaches, according to the FDA, but the edema is unusual. Other typical side effects may include nausea, diarrhea and insomnia. Is the only medication that she is on? She should likely have this checked out by her doctor. ## Hello. I took Harvoni for 12 weeks, 6 months ago. I had the weird pressure in my head also. It continued on and off thru treatment. It was a pressureb headache. It went away soon as I finished the meds. I also have swelling in both my feet and ankles. Its related to me being a 55...

Updated in Harvoni
Side effects and lack of transparency Harvoni

As I read the side effects I find myself getting more and more annoyed at big pharma. If you google Gilead and litigation you will see that this drug was pushed though trials and sort of held back side effects. In addition that's not really safe because the people that participated in the trials were very ill. My hepatitis was fortunately stable, as i posted on another thread 2 wks into this and i am going to the doc tomorrow and saying OFF! Of course they cover their arse and do the labs to see if its not anything else. My face is pasty white, i discussed the mood swings i am like a black box warning but alive. its taking every bit of energy to keep my emotions in tact. I DRINK a Gal easy of water, its not the water, its the freaking drug! I think they are either dismissive or don...

Updated in Harvoni
I've been on Harvoni for 2 Weeks

I started Harvoni about two weeks ago. I must admit I am very tired and get slight headaches- nothing I can't handle.. I am starting to feel better already - not sure if it's a placebo affect, but I feel blessed my Insurance approved me for the Harvoni treatment..I must be one of the lucky ones and not the experiencing the major side effects like what I've been reading in this forum. I hope when I am done with the Harvoni treatment - I will be cured of this horrible disease of the liver...Oh and my viral load was over 2 million with a stage 0-1 fibrosis. So, my Hep C disease was caught early on..If you have the opportunity to get treatment- it's one of the risks versus reward type thing and well worth the try and get cured. ## Hello, Sarah! Are you still doing well on Ha...

Updated in Harvoni
Epclusa and leg and back pain

Has anyone taken Epclusa and experienced back and leg pain? I already have 2 herniated discs but it seems that since I started the medicine it has increased my pain and started pain in my legs. ## Joint and muscle aches can be a normal side effect of this medication, according to FDA reports, you may also experience nausea, dizziness, and headache. Has there been any change? Are you on any other medications? ## Not any new meds other than Epclusa. Dr. put me Gabapentin which has helped with the leg pain. ## About 2.5 to 3 weeks after starting epclusa I've had back pain and leg pain its worsened and am down to my last 2 days. I'm hoping my pain is contributed to the epclusa and was wondering how soon after treatment will the pain go away ## No new medicines. Pain in legs started ...

Updated in Sofosbuvir + Velpatasvir
Poste epclusa symptoms

3 months after treatment with epclusa, numb fingers, toes, no energy at all severe anxiety pain in knees. I'm 65 years old, before treatment I felt fine enjoyed life now it's opposite wish I could feel normal again. The liver nurse said "you were probably going to get unwell symptoms anyway, but I do not believe this and blame epclusa. I'm in Australia during treatment. I had no support from the liver clinic or liver Dr. ## You are not the first person to report such issues after finishing treatment with Epclusa. There are several posts on this site, and others, all from people dealing with similar issues. Everything you've described is listed by the FDA as normal side effects of the medication that should, theoretically, go away once you have finished your course of...

Updated in Epclusa
post harvoni weight gain

Having a big problem with weight gain, post Olysio/Solvaldi 12-wk. tx, and 26-wk Harvoni tx. Clear for two years. Is anyone else experiencing this? I'm getting so tired of my doctors telling me to diet, exercise, and drink water. I'm doing that. Exercise is hard because of the edema in my legs, ankles, and feet. Suggestions? Will be seeing my liver specialist May 18th. Thanks. ## Have you tried seeing your specialist sooner? It is hard to say what might be causing such an issue, if you're done taking the medication. How long ago did you finish your course of treatment with it? The FDA and most patients list the typical side effects as possibly including nausea, dizziness, headache, and joint pain. Are you currently on any other medications? How much have you gained? How bad ...

Updated in Harvoni
Epclusa aftermath

Beginning January I completed 3 months of Epclusa, n now am every day dealing with foot,ankle and lower leg swelling. What has happened, am adjusting my diet to minimize effects of that n nausea; it was into the third month that these conditions began to settle in! so far there has been no knowledgeable feed back, like the specialist are only guessing; this is very disconcerting to me. ## I don't know if you know about the lawyers in Texas helping people on harvoni, but epclusa has half of the same medicine in it. They told me to get more people to call. Their name is George Fleming 1-713-621-7944. I took it a year and a half ago and I'm still messed up with my nervous system. Please call them!!!! This may be our only chance. Spread the word to more epclusa patients. ## Hi been ...

Updated in Epclusa
Treatment age factor

Hi I'm in Australia ,hvc pos geno 3,63yrs old I have mild emphasemia I am worried about side effects at my age breathless Ness depression ext my fibrosan was 6.5 thankfully I don't have bad liver symptoms yet,thinking my age may be issue with doing treatment, I think it's normal to feel bit tired at63 I grew up in 70s great yrs but dangerous. Thanks people. ## Hello, Davoe! How are you? Yes, the older you are the more sensitive you can become to side effects, to you may experience more of them and experience them more intensely than younger people. The U.S. FDA lists the typical ones for Sovaldi as possibly including nausea, dizziness, headache, feeling tired and insomnia. Are you on any other medications? ## Hi, I am genotype 3 and just finished the treatment on the 11/8. T...

Updated in Sovaldi
long term side effects of harvoni

I had Harvoni treatment last spring. I am not the same. My nervous system is a wreck. My anxiety problems have increased, depression and lack of motivation. My eyes changed drastically. My thoughts are not focused, I am nervous all the time, can focus or sleep. I had a 2 month migraine. Ringing in the ears is intense. I also was on pigalated interferon and ribivirn, I was pulled off mid treatment because I got so sick. After that treatment, I also had long term side effects. There isn't any back support for post harvoni people, nor are their anyone specializing in the after effect of long term HCV infection, it is NOT just a liver disease, it effects the nervous system and all else. I am at a loss for support with the doctors in my area, none seem to want to do any research and they...

Updated in Harvoni
Harvoni post treatment

I'm done now and finished 12 week tx 4/14/15 and I can say back pain, neck pain and pain in the legs is now a part of it for me. I was dealing with the head aches and sick feeling. Still feel sick and fatigued with joint ache. Hoping all of this stops soon. I'm tired of being sick ## Hello, Mike! How are you? Those are all typical side effects of Harvoni, as reported by the FDA and other users. They should improve with time, now that you've finished your course of treatment with it. Other side effects may also include diarrhea and insomnia. How well did it work for you? It seems that many have had good results with it. ## I was wondering if your joint pain has gone away . I am 55 in good shape and all my labs are normal except viral loan shows 1mm and slightly elevated enzym...

Updated in Harvoni
Post Epclusa Heat Exhaustion

Finished Epclusa 2 months ago and hot weather is making me very exhausted, plus my legs have mild edema. I'm 65yrs old and dont know if the treatment was successful yet. ## Hello Davoe, This is perfectly normal. Reportedly it takes roughly 12 weeks before the doctors will run tests to see if there is no longer a virus load and even when the tests show that the treatment was successful the body will still need additional time to heal. The healing process length is a case by case basis due to variables such as exercise regiment, diet, age, the bodies ability to recover etc. During the healing process you are already going to be fatigued more than normal and adding heat to the equation will only result in more exhaustion. Just be sure to appropriately hydrate and take as many breaks to...

Updated in Epclusa
Hepatitis C- The new Medication

The new Hepatitis C medication. I haven't gotten a straight answer to this day. Can you answer these 3 questions or any 1 of them. 1. What is it called? 2. Do you have to use it in combination with interferon in order for it to work; or can it work without interferon? 3. How do the doctors decide if the patient can tolerate it? ## Connie-Bristol-Mayers is still in clinicals with a new medication that will cure Hep C in a week.. I was in the first trial, had one of the highest viral loads EVER (25 years infected). I took a couple pills twice a day for a month. The viral load was COMPLETELY GONE in 7days. It has yet to go to the FDA. It WILL get a rush and it is anticipated to hit the market in 1-2 years. I TOOK NO INTERFERON OR OTHER DRUGS. Do you have other questions? ## Sorry, late...

Updated in Mavyret
Starting treatment soon for genotype 3 hepatitis C - have had it for 30 years

Can I get any feedback from someone who's been in a similar situation? I have a very physical job... Am i going to be too sick to work? ## There is really no way anyone can say for sure, since we are all different and may not react the same to any given medication. In most cases, people try to start a new medication, when they have a few days off, that way you can find out how it is going to affect you, before working, driving, or operating heavy machinery. The FDA does warn that it could cause nausea, dizziness, stomach pain, and diarrhea as side effects. Have you started taking it, yet? Can anyone with experience taking it chime in? ## I am also genotype 3 and 30+ years. For the most part I've been ok on Epclusa. (This is the final week) but if I don't drink enough water I...

Updated in Epclusa

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