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Nervous system damage from epclusa

Has anyone experienced severe anxiety, constant crawling feeling in body after epclusa treatment. Its like my brain and body aren't working right anymore? I had terrible side effects. Finished in January, now it's June and feels like I'm still taking the poison. ## Hello, Barbara! How are you? Has there been any change? Those are not normal side effects of this medication according to recent FDA reports. They typical include nausea, dizziness, insomnia, depression, and diarrhea. Are you on any other medications? Do you take any supplements? Do you drink a lot of sugary, or caffeinated beverages? ## Yes I started with hand/arm pain about a month after starting treatment. Now I am three months post treatment and the pain has now been nerve pain in my hands, lower legs, hands, ...

Updated in Epclusa
Epclusa aftermath

Beginning January I completed 3 months of Epclusa, n now am every day dealing with foot,ankle and lower leg swelling. What has happened, am adjusting my diet to minimize effects of that n nausea; it was into the third month that these conditions began to settle in! so far there has been no knowledgeable feed back, like the specialist are only guessing; this is very disconcerting to me. ## I don't know if you know about the lawyers in Texas helping people on harvoni, but epclusa has half of the same medicine in it. They told me to get more people to call. Their name is George Fleming 1-713-621-7944. I took it a year and a half ago and I'm still messed up with my nervous system. Please call them!!!! This may be our only chance. Spread the word to more epclusa patients. ## Hi been ...

Updated in Epclusa
epclusa treatment hep c hearing loss

Im sure epclusa caused hearing problems started with ears ringing then lost hearing in right ear dr prescibed predestone (steroid ) lucky for me hearing came back dr said i was very lucky, liver clinic nurse said epclusa would not cause it i think it did iv never had hearing problems ,id been taking epclusa for 7 days ,its a 3 mth treatment iv done 2 mths dont know if i shud risk doing the last mth im over 60 yrs old ,very hard to get liver clinic to respond or suggest anything. Please any ideas.??? ## Hello Lou, I have been looking into epclusa but I haven't been able to find any reliable source that shows any connection between hearing issues and this medicine. While I couldn't find anything regarding a connection between epclusa and hearing I was able to find some studies tha...

Updated in Epclusa
Hepatitis C- The new Medication

The new Hepatitis C medication. I haven't gotten a straight answer to this day. Can you answer these 3 questions or any 1 of them. 1. What is it called? 2. Do you have to use it in combination with interferon in order for it to work; or can it work without interferon? 3. How do the doctors decide if the patient can tolerate it? ## Connie-Bristol-Mayers is still in clinicals with a new medication that will cure Hep C in a week.. I was in the first trial, had one of the highest viral loads EVER (25 years infected). I took a couple pills twice a day for a month. The viral load was COMPLETELY GONE in 7days. It has yet to go to the FDA. It WILL get a rush and it is anticipated to hit the market in 1-2 years. I TOOK NO INTERFERON OR OTHER DRUGS. Do you have other questions? ## Sorry, late...

Updated in Mavyret
Harvoni side effects for my wife - concerned husband

Hi my wife has just started harvoni - about 9 days or so now - and she is getting swelling in left leg and also feels like there is pressure in her head. Anyone else have anything similar? Thanks ## Hello, Chris! How is your wife doing? Has there been any change? It has been known to cause headaches, according to the FDA, but the edema is unusual. Other typical side effects may include nausea, diarrhea and insomnia. Is the only medication that she is on? She should likely have this checked out by her doctor. ## Hello. I took Harvoni for 12 weeks, 6 months ago. I had the weird pressure in my head also. It continued on and off thru treatment. It was a pressureb headache. It went away soon as I finished the meds. I also have swelling in both my feet and ankles. Its related to me being a 55...

Updated in Harvoni
Starting treatment soon for genotype 3 hepatitis C - have had it for 30 years

Can I get any feedback from someone who's been in a similar situation? I have a very physical job... Am i going to be too sick to work? ## There is really no way anyone can say for sure, since we are all different and may not react the same to any given medication. In most cases, people try to start a new medication, when they have a few days off, that way you can find out how it is going to affect you, before working, driving, or operating heavy machinery. The FDA does warn that it could cause nausea, dizziness, stomach pain, and diarrhea as side effects. Have you started taking it, yet? Can anyone with experience taking it chime in? ## I am also genotype 3 and 30+ years. For the most part I've been ok on Epclusa. (This is the final week) but if I don't drink enough water I...

Updated in Epclusa
Zepatier and Uncommon Side Effects?

My husband started Zepatier on August 22 2018. It was discovered that he had the chronic Hep C virus when he underwent blood work for Large B cell Non-Hodgkins Lymphoma. After successful Chemotherapy treatments and on the advice of his oncologist it was recommended he start Direct Acting Antiviral Treatment 8 weeks after his blood work showed he was cancer free. Zepatier was the drug chosen to eradicate the HepC virus which may keep the lymphoma from returning as studies showed that Hep C can be a trigger for some types of NHL. He didn't experience any side effects from the Zepatier in the first 3 weeks. On September 14 he started to get a non stop pounding headache, his balance was off, and muscle pains and weakness. The side effects have continued to get worse, acid reflux, nausea...

Updated in Zepatier
Harvoni side effects

I have been taking Harvoni for 3 months now and am having nerve pain in my legs and lower back pain. Is anyone else taking Harvoni having any of these same side effects as me? Please help if you are able. Thank you ## Hi Tony, From what I've researched, "lower back pain" is specifically listed as one of the more common side effects of Sofosbuvir (the second active ingredient in Harvoni); so I'd imagine that "leg pain" may be attributed to this drug as well. If you'd like a more concrete reference, "back pain" is also listed as a side effect of Sofosbuvir on Pubmed at: ncbi.nlm.nih.gov/pubmed/25422576 That said, you may want to contact your doctor if the pain becomes too bothersome or severe. This way you and your doctor can determine if Harvoni is sti...

Updated in Harvoni
Cured my cirrhosis with Mavyret and was told I no longer have hepatitis C

This drug works. I had no side effects. I took this expensive medication for 3 months. The name of the drug is Mavyret. Has anyone else had a positive experience with it? ## I see that the FDA approved Mavyret (Glecaprevir + Pibrentasvir) for use in treating hepatitis C on August 3rd, 2017. So it hasn't been on the market for very long relative to other hepatitis C treatment options such as Harvoni (Ledipasvir + Sofosbuvir). This must be why there aren't many reviews yet. Interestingly enough, Mavyret was specifically approved to treat adults with chronic hepatitis C virus (HCV) genotypes 1-6 without cirrhosis (liver disease) or with mild cirrhosis. Source: fda.gov/newsevents/newsroom/pressannouncements/ucm570038.htm Glad to hear it works!

Updated in Mavyret
Hep c treatment using Harvoni medication

I have cirrosis and hep c. My doctor has put me on a 12 week course of Harvoni. I finish my treatment in 3 days and then am off for my blood test. The results of my first blood test show significant improvement. I read a lot of other people's experiences who have been on this treatment. A lot I've read say after there 1st blood test (4 weeks on treatment ) that they have already been cured. I'm feeling quite down that my results don't show this for me. While deciding my treatment, my doctor kept changing his mind of the length of time to be on treatment (12 weeks or 24 weeks).he decided on 12 weeks in the end. He's accidentally given me 1 extra repeat. My 12 weeks is up in a few days and I'm thinking of getting it, so I'll be on it for 16 weeks and not tell h...

Updated in Harvoni
Post Harvoni Reduced Immunity

I finished 8 weeks of Harvoni on April 8 and labs said HCV is undetected. My question is has anyone heard of "post-Harvoni reduced immunity" I came down with a bad case of the flu and doc thinks Harvoni may have caused reduced immunity. Any insights? ## Hi Sam, I have yet to come across any specific details on post-Harvoni immunity. However, in order to reach an accurate conclusion one must also take into consideration some other things that can impact one's level of immune function, such as: environmental factors, diet, mental/emotional health, etc, during and after the time frame of treatment. Not sure if Harvoni is available in inj. form like similar medications are, but just as a side note - there was a study done by Rockefeller University, suggesting that the act of adm...

Updated in Harvoni
Hvc treatment

Is it worth doing epclusa? I'm supposed to start next week. I'm 65 yrs old, diagnosed with copd recently and have shortness of breath, always tired & afraid that treatment will make me feel worse. I'm fibroscan f1, geno 3 V L 8mg. I'm very worried. I probably got infected in the 70s and don't feel real bad from hvc yet, just normal old age feelings I think. Any advice is greatly appreciated. ## Hi Lou, Sorry to hear about the symptoms you've been experiencing. Although I've never taken Epclusa myself, I did want to share a link to other related discussion threads here on MedsChat where you may be able to get a better idea of how others have responded to treatment at: [1] medschat.com/search/epclusa Please note that all medications carry some level of risk...

Updated in Epclusa
Post Harvoni 2 months & still feeling intermittent symptoms

I get fatigue and brain fog but not nearly as severe as with hep and less frequent also itching all over continues intermittently. Anyone got a clue re; these issues, the Dr, just kinda says 'duh'. ## @Blipette, Sorry to hear that you're still experiencing symptoms 2 months after stopping Harvoni. I hear about this sort of thing happening with other types of medications as well, so personally, I don't think it's very unusual. Probably quite frustrating more than anything, being that it's taking so long to leave your body. I really feel for you. From what I've researched, the half life of ledipasvir (one of the primary active ingredients in Harvoni) is right around 47 hours. It's hard to know how much of this medication might've accumulated (overlappin...

Updated in Harvoni
Side effects for Harvoni

Started 3 weeks ago. First 3 days I got tired... but was taking it at 7pm so it worked out great. No side effects at all now! Very happy and looking forward to my first doctor visit to see how much the viral load has dropped. Stay WELL hydrated...I drink at least 8 bottles of water each day and many say it helps. Best of luck to everyone! ## Hello Pop pop! How are you doing? Has there been any change? As to your fluid intake, please be careful, there is such a thing as too much! While many people think you need to drink 8 glasses of water a day, that should actually be your overall fluid intake, not just water, so it should include juices, coffee, sodas and etc....including the liquid in the foods you eat. I just wanted to add this as precautionary note, since taking in too much fluid h...

Updated in Harvoni
long term side effects of harvoni

I had Harvoni treatment last spring. I am not the same. My nervous system is a wreck. My anxiety problems have increased, depression and lack of motivation. My eyes changed drastically. My thoughts are not focused, I am nervous all the time, can focus or sleep. I had a 2 month migraine. Ringing in the ears is intense. I also was on pigalated interferon and ribivirn, I was pulled off mid treatment because I got so sick. After that treatment, I also had long term side effects. There isn't any back support for post harvoni people, nor are their anyone specializing in the after effect of long term HCV infection, it is NOT just a liver disease, it effects the nervous system and all else. I am at a loss for support with the doctors in my area, none seem to want to do any research and they...

Updated in Harvoni
Epclusa Treatment

Is there anyone out there who has taken Epclusa? I'm fixing to start treatment and would like some feedback. ## When you are starting treatment? Can anyone that's been on this medication chime in? The FDA lists the typical side effects as possibly including headache, diarrhea, discouragement, loss of appetite, and nausea. ## I finished 3 months in Jan; side effects began to like stick to me by the beginning of the 3rd month; swelling for me n nausea, felt a little addicted too; that could have been the habit of taking it at 11am daily. Yet something just isnt right for me n there is no info from the professionals! I'm doing research as much as I can and making adjustments... ## I am currently 12 weeks into a 24 week epclusa treatment. It’s been really difficult due to ...

Updated in Epclusa
Livolin and Hepatitis B

I am taking livolin for a liver problem (Hepatitis B) and have been advised to take it for a month. I want to know if chronic Hepatitis B can be cured? Also, what are the side effects of livolin? ## good morning, I have hepatitis b for more than 7 years now, can I take livolin forte. and for how long. can it help ## Hello Celibba, I'm sorry to hear that you got a Hepatitis B infection. I have good news and bad news. I'll start with the bad news, I was unable to find any credible case studies showing that Livolin can help cure Hepatitis B. The good news is that Hepatitis B is an infection that attacks your liver, but when treated it often does not stay long. Livolin Forte is a foreign supplement not regulated by the FDA which reportedly aids the liver by maintaining tissues in th...

Updated
post harvoni weight gain

Having a big problem with weight gain, post Olysio/Solvaldi 12-wk. tx, and 26-wk Harvoni tx. Clear for two years. Is anyone else experiencing this? I'm getting so tired of my doctors telling me to diet, exercise, and drink water. I'm doing that. Exercise is hard because of the edema in my legs, ankles, and feet. Suggestions? Will be seeing my liver specialist May 18th. Thanks. ## Have you tried seeing your specialist sooner? It is hard to say what might be causing such an issue, if you're done taking the medication. How long ago did you finish your course of treatment with it? The FDA and most patients list the typical side effects as possibly including nausea, dizziness, headache, and joint pain. Are you currently on any other medications? How much have you gained? How bad ...

Updated in Harvoni
Harvoni withdrawal symptoms

anyone having problems after stopping harvoni? ## Hello, Kat! How are you? What type of symptoms are you experiencing? I'm not seeing anything about it causing withdrawal symptoms, but it is a relatively new drug. Its typical side effects, as listed by the FDA, may include nausea, diarrhea, headache and weakness. Withdrawal effects would usually be virtually opposite, so may include constipation, dizziness and drowsiness. How long were you on it? ## Hello, I also am having withdrawel feelings, I am constantly tired, I feel fatiqued, slight head ache, have a sick feeling in my stomach I completed the the Harvoni treatment, I pretty much had these same feelings on the Harvoni. I saw my doctor 2 weeks ago, he had me do some blood work, I go back this morning to see him, I hope he has s...

Updated in Harvoni
harvoni and amphetamine false positive

I want to know if harvoni can cause a false positive urine drug test for amphetamine? ## The first thing I said to my doc AND the FDA and Gikead, " there is definitely amphetamine in this drug!" I was told no. I think somehow they snuck some in. Why the insomnia? It felt to me like a bad acid tip on steroids. I don't trust this medication I was in it for 2 very long wks of hell. Now I see people with more muscle mass counter the sides better, women less. It raises the creation Ketosis levels ( misspelled) google that and most of you will find the route cause of CNS issues and heart problems. I hope you all come back on and tell us how you are doing post treatment. Nothing feels worse then to have experienced bad sides and people don't validate your experience. It's n...

Updated in Harvoni

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