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Long term side effects of Harvoni

I had Harvoni treatment last spring. I am not the same. My nervous system is a wreck. My anxiety problems have increased, depression and lack of motivation. My eyes changed drastically. My thoughts are not focused, I am nervous all the time, can focus or sleep. I had a 2 month migraine. Ringing in the ears is intense. I also was on pigalated interferon and ribivirn, I was pulled off mid treatment because I got so sick. After that treatment, I also had long term side effects. There isn't any back support for post harvoni people, nor are their anyone specializing in the after effect of long term HCV infection, it is NOT just a liver disease, it effects the nervous system and all else. I am at a loss for support with the doctors in my area, none seem to want to do any research and they...

Mixing meds with harvoni treatment?

In need of an answer asap. Start" harvoni treatment this Tuesday." Doctor is( taking away Digoxin for heart and changing it to Metoprolol Succinate ER-did take metoprolol tartrate for B/P.) He also wants me to take (liquid Gabapentin in place of my xanax that I have taken for 16 years. Was taking 3-4, 2mg tablets of xanax daily, then I cut back to 1 mg tablets 3-4 tabs daily, which I cut back myself and feel I am ok, and do not want withdrawals, and have to go to work-no choice but also need the Harvoni. Why all of the changes? I don't mind the Metoprolol Succ ER change, but the xanax, yes. ## I checked several databases, and didn't find any interactions listed between Harvoni, and Xanax, however, it is always possible that your doctor is aware of some issue that has not...

Side effects and lack of transparency Harvoni

As I read the side effects I find myself getting more and more annoyed at big pharma. If you google Gilead and litigation you will see that this drug was pushed though trials and sort of held back side effects. In addition that's not really safe because the people that participated in the trials were very ill. My hepatitis was fortunately stable, as i posted on another thread 2 wks into this and i am going to the doc tomorrow and saying OFF! Of course they cover their arse and do the labs to see if its not anything else. My face is pasty white, i discussed the mood swings i am like a black box warning but alive. its taking every bit of energy to keep my emotions in tact. I DRINK a Gal easy of water, its not the water, its the freaking drug! I think they are either dismissive or don...

Harvoni side effects for my wife - concerned husband

Hi my wife has just started harvoni - about 9 days or so now - and she is getting swelling in left leg and also feels like there is pressure in her head. Anyone else have anything similar? Thanks ## Hello, Chris! How is your wife doing? Has there been any change? It has been known to cause headaches, according to the FDA, but the edema is unusual. Other typical side effects may include nausea, diarrhea and insomnia. Is the only medication that she is on? She should likely have this checked out by her doctor. ## Hello. I took Harvoni for 12 weeks, 6 months ago. I had the weird pressure in my head also. It continued on and off thru treatment. It was a pressureb headache. It went away soon as I finished the meds. I also have swelling in both my feet and ankles. Its related to me being a 55...

I've been on Harvoni for 2 Weeks

I started Harvoni about two weeks ago. I must admit I am very tired and get slight headaches- nothing I can't handle.. I am starting to feel better already - not sure if it's a placebo affect, but I feel blessed my Insurance approved me for the Harvoni treatment..I must be one of the lucky ones and not the experiencing the major side effects like what I've been reading in this forum. I hope when I am done with the Harvoni treatment - I will be cured of this horrible disease of the liver...Oh and my viral load was over 2 million with a stage 0-1 fibrosis. So, my Hep C disease was caught early on..If you have the opportunity to get treatment- it's one of the risks versus reward type thing and well worth the try and get cured. ## Hello, Sarah! Are you still doing well on Ha...

post harvoni weight gain

Having a big problem with weight gain, post Olysio/Solvaldi 12-wk. tx, and 26-wk Harvoni tx. Clear for two years. Is anyone else experiencing this? I'm getting so tired of my doctors telling me to diet, exercise, and drink water. I'm doing that. Exercise is hard because of the edema in my legs, ankles, and feet. Suggestions? Will be seeing my liver specialist May 18th. Thanks. ## Have you tried seeing your specialist sooner? It is hard to say what might be causing such an issue, if you're done taking the medication. How long ago did you finish your course of treatment with it? The FDA and most patients list the typical side effects as possibly including nausea, dizziness, headache, and joint pain. Are you currently on any other medications? How much have you gained? How bad ...

Harvoni post treatment

I'm done now and finished 12 week tx 4/14/15 and I can say back pain, neck pain and pain in the legs is now a part of it for me. I was dealing with the head aches and sick feeling. Still feel sick and fatigued with joint ache. Hoping all of this stops soon. I'm tired of being sick ## Hello, Mike! How are you? Those are all typical side effects of Harvoni, as reported by the FDA and other users. They should improve with time, now that you've finished your course of treatment with it. Other side effects may also include diarrhea and insomnia. How well did it work for you? It seems that many have had good results with it. ## I was wondering if your joint pain has gone away . I am 55 in good shape and all my labs are normal except viral loan shows 1mm and slightly elevated enzym...

Harvoni side effects

I have been taking Harvoni for 3 months now and am having nerve pain in my legs and lower back pain. Is anyone else taking Harvoni having any of these same side effects as me? Please help if you are able. Thank you ## Hi Tony, From what I've researched, "lower back pain" is specifically listed as one of the more common side effects of Sofosbuvir (the second active ingredient in Harvoni); so I'd imagine that "leg pain" may be attributed to this drug as well. If you'd like a more concrete reference, "back pain" is also listed as a side effect of Sofosbuvir on Pubmed at: ncbi.nlm.nih.gov/pubmed/25422576 That said, you may want to contact your doctor if the pain becomes too bothersome or severe. This way you and your doctor can determine if Harvoni is sti...

Hep c treatment using Harvoni medication

I have cirrosis and hep c. My doctor has put me on a 12 week course of Harvoni. I finish my treatment in 3 days and then am off for my blood test. The results of my first blood test show significant improvement. I read a lot of other people's experiences who have been on this treatment. A lot I've read say after there 1st blood test (4 weeks on treatment ) that they have already been cured. I'm feeling quite down that my results don't show this for me. While deciding my treatment, my doctor kept changing his mind of the length of time to be on treatment (12 weeks or 24 weeks).he decided on 12 weeks in the end. He's accidentally given me 1 extra repeat. My 12 weeks is up in a few days and I'm thinking of getting it, so I'll be on it for 16 weeks and not tell h...

Post Harvoni Reduced Immunity

I finished 8 weeks of Harvoni on April 8 and labs said HCV is undetected. My question is has anyone heard of "post-Harvoni reduced immunity" I came down with a bad case of the flu and doc thinks Harvoni may have caused reduced immunity. Any insights? ## Hi Sam, I have yet to come across any specific details on post-Harvoni immunity. However, in order to reach an accurate conclusion one must also take into consideration some other things that can impact one's level of immune function, such as: environmental factors, diet, mental/emotional health, etc, during and after the time frame of treatment. Not sure if Harvoni is available in inj. form like similar medications are, but just as a side note - there was a study done by Rockefeller University, suggesting that the act of adm...

Post Harvoni 2 months & still feeling intermittent symptoms

I get fatigue and brain fog but not nearly as severe as with hep and less frequent also itching all over continues intermittently. Anyone got a clue re; these issues, the Dr, just kinda says 'duh'. ## @Blipette, Sorry to hear that you're still experiencing symptoms 2 months after stopping Harvoni. I hear about this sort of thing happening with other types of medications as well, so personally, I don't think it's very unusual. Probably quite frustrating more than anything, being that it's taking so long to leave your body. I really feel for you. From what I've researched, the half life of ledipasvir (one of the primary active ingredients in Harvoni) is right around 47 hours. It's hard to know how much of this medication might've accumulated (overlappin...

Side effects for Harvoni

Started 3 weeks ago. First 3 days I got tired... but was taking it at 7pm so it worked out great. No side effects at all now! Very happy and looking forward to my first doctor visit to see how much the viral load has dropped. Stay WELL hydrated...I drink at least 8 bottles of water each day and many say it helps. Best of luck to everyone! ## Hello Pop pop! How are you doing? Has there been any change? As to your fluid intake, please be careful, there is such a thing as too much! While many people think you need to drink 8 glasses of water a day, that should actually be your overall fluid intake, not just water, so it should include juices, coffee, sodas and etc....including the liquid in the foods you eat. I just wanted to add this as precautionary note, since taking in too much fluid h...

Harvoni withdrawal symptoms

anyone having problems after stopping harvoni? ## Hello, Kat! How are you? What type of symptoms are you experiencing? I'm not seeing anything about it causing withdrawal symptoms, but it is a relatively new drug. Its typical side effects, as listed by the FDA, may include nausea, diarrhea, headache and weakness. Withdrawal effects would usually be virtually opposite, so may include constipation, dizziness and drowsiness. How long were you on it? ## Hello, I also am having withdrawel feelings, I am constantly tired, I feel fatiqued, slight head ache, have a sick feeling in my stomach I completed the the Harvoni treatment, I pretty much had these same feelings on the Harvoni. I saw my doctor 2 weeks ago, he had me do some blood work, I go back this morning to see him, I hope he has s...

harvoni and amphetamine false positive

I want to know if harvoni can cause a false positive urine drug test for amphetamine? ## The first thing I said to my doc AND the FDA and Gikead, " there is definitely amphetamine in this drug!" I was told no. I think somehow they snuck some in. Why the insomnia? It felt to me like a bad acid tip on steroids. I don't trust this medication I was in it for 2 very long wks of hell. Now I see people with more muscle mass counter the sides better, women less. It raises the creation Ketosis levels ( misspelled) google that and most of you will find the route cause of CNS issues and heart problems. I hope you all come back on and tell us how you are doing post treatment. Nothing feels worse then to have experienced bad sides and people don't validate your experience. It's n...

Harvoni and headaches

I have started a 12 wk program of Harvoni this is day 4 ,, Iam having head aches they come and go but are never far away , they seem to always be in the back ground , Is this normal or what ????? ## Hi Michael, Sorry to hear about the headaches you've been having lately. According to the manufacturer, headaches are actually reported to be one of the most common side effects of Harvoni in clinic trials. However my findings go on to state that you should contact your doctor if the symptoms become too bothersome or severe. On that note, I would even consider inquiring about alternative treatment options, knowing that headaches associated with Harvoni may or may not go away on their own until you stop taking what's causing it to begin with. Any thoughts on this? I hope you feel bett...

Harvoni treatment

Hello, I am Hans (71 years). I live in Germany. I've been taking Harvoni for 6 weeks. I am happy that I have no problems and no side effects. I started with a viral load of 1.1 million. The fist blood test after 14 days had a reduction to 94 (!). In 2 days I shall see my doc again. I'm curious about the new result (I hope ZERO). Good luck to all. ## 10 more days to go with the harvoni.. Did have some side effects: Confusion, anxiety, insomnia and some hair loss... I'll be glad when it's over and hope I can get back to normal. Undetected at 4 weeks. ## I did really well on Harvoni tx too, Hans. I had to be on it for 24-wks., as I was at 4th stage liver failure. I've been virus-free for 2 years. My side effects on Harvoni, were mostly fatigue, got 3 or 4 headaches tota...

Harvoni treatment side effects

Curious, I've started my 5th week of treatment and am wondering if anyone has experienced similar side effects as me: Confusion, depression, crazy acid reflux, and mood swings...3 weeks left to go. ## Hello, Joe! How are you? Yes, those can be typical side effects of this medication, along with headache, nausea and dry mouth, as reported by the U.S. FDA. However, such side effects are usually transient and should go away, within a week or two of finishing our course of treatment. Is there anything else I can help with? ## Hi Joe I would finish your treatment! Your in the home stretch. I know the sides are bad...and I live with them still but I am virus free and that is important to hang on to in your battle to get well. I also did the 8 week plan and it worked. ## Joe you are doing ...

Taste change on harvoni

I have just begun Harvoni, this will be my sixth day. After the third day I noticed a change in how I am tasting foods. They are more sweet and foods that have a fat content are more heavy and cloying. Has anyone else experienced things like this? ## After my husband finished the 8 weeks course of Harvoni, on May 20, 2015, he came down with a very bad cold. A lot of coughing. And at that point- he lost his sense of smell and sense of taste completely. He still can not taste or smell. ## That isn't listed as a typical side effect of Harvoni, as listed by the FDA, but it is something that most medications can cause, so it's really not surprising. They tend to cause dry mouth and that can really alter the flavor of some foods. Other side effects may possibly include diarrhea, heada...

Harvoni may be giving me a false positive

Will this medication make thc stay in your system longer than normal? Or is this med flushing out old thc? I have been postive for thc for almost 7 weeks. It's a problem. ## I did 12 week's of Harvoni about 2 year's ago. Since then I test positive for cocaine. I don't do cocaine. Not on any antibiotics, don't drink tonic water, no kidney disease, not diabetic. Can't figure out why I test positive since I took Harvoni. Can you tell me why? ## I was positive for thc for 6months. Could harvonia have had anything to do with that. Could my liver had a hard time matabilizin it. ## Omg same thing is happening to me; I’m going to loose my dr. Cuz of it. Did u get any answers?

Harvoni and Marijuana

Will medically prescribed marijuana interfere with harvoni treatment? ## Throughout treatment you may be given a drug panel and, should you come back positive, it can compromise your continued treatment (getting your medication...). I certainly wouldn't risk it. ## @Pepper, As far as potential drug interactions are concerned, I haven't seen documented research suggesting that there's any risk involved with marijuana and harvoni. So my personal opinion is that because you know your body better than anyone else and how these drugs might be affecting you individually (from previous experience - assuming this isn't your first time taking either substance), perhaps a suggestion would be to start with a much smaller dose than you'd typically have for the sake of understand...


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