Fight For Florida Pain Care Action Network

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1. Oxycontin prescribed by pain management doctor is changed to Opana by CVS/Walgreens. The pharmacist claims it's "supposed" to be the same, (well that is subjective). I've taken Oxycontin for 3 years and never had side effects and yet Opana causes me to have Nausea & frequent documented syncope episodes.. 2. CVS/Walgreens now require a non-narcotic in order to fill a prescription for a controlled II substance. The pain management doctor in order to assist patient prescribes automatically to everyone a prescription for Ibuprofen of which I'm allergic to, (N-Saids). The Pharmacist directs me to just not take it. This is unconscionable which from an adult dictionary means not guided or controlled by conscience. From a kids dictionary to break it down further: Un-con-scio-na-ble as not being in agreement with what is right or just, unreasonable, excessive. Why would my insurance be billed and I be expected to pay a co-payment for something that I'm not even going to take? And why is our health system un-con-scio-na-ble? Guess who the pharmaceutical representative is? 3. It is no longer reasonable to expect a patient to get their pain medications from the same pharmacist each month when pharmacies such as CVS & Walgreens will tell you I have the prescription that you have been prescribed however; I'm saving them for my regular patients because they drive all the way from the Florida Panhandle, I live in the immediate area and you are going to give the prescription you have on hand or put it on hold for a customer/patient coming from at least a four-hour drive which by the way is usually a car-load of three/four people who chip in on the prescription. If I can observe it I'm sure there pharmacy cameras pick it up for viewing? 4. I'm not only judged when I'm hospitalized for a heart condition, multiple PE's, a current ascending aortic aneurysm but I'm informed by most assigned attendees that they "REFUSE", (also documented) to assess my pain and management it while I'm in the hospital. I have the right to have my pain assessed and managed no different than my blood pressure medication which if taken off of my pain medications can and does cause immediate withdrawals causing, (documented) heart attack symptoms and I have undergone a heart Cautherization to ensure I did not have a blockage. In addition, with having a heart condition, multiple pulmonary embolisms, a current ascending aortic thoracic aneurysm which can result in a rupture causing immediate death upon going off of my pain medications. My point is other health issues can have a serious impact when you also have chronic pain for cervical discectomy fusion plating of C1 through C7 as well as 6 other herinated/bulged discs including spinal stenosis, a four section fractured/shattered left clavicle, Fibromyalgia, COPD, Pulmonary hypotension, High Blood Pressure, and other documented health issues that have resulted in the approval of my social security disability appeal in October of 2011.

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Kristen Flippin Says:
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I agree with you completely! If you we're to go into the ER and then be admitted and you were a diabetic, they would never dream of refusing to treat you for that and refuse you insulin. Why are we expected to have to suffer excruciating pain for a disease we have no more control over than someone with heart disease, diabetes, high blood pressure, etc. We did not ask to become victims of this disease of chronic pain. My pudendal neuralgia (nerve disease) was a result of a surgery to remove a cyst gone wrong. So not only has my life been forever changed for the worst, I never received a dime for this malpractice, and to top it all off you feel like you are permanently labeled and judged because you have to take pain medicine just to be able to walk, care for your children, etc. Things most people who are not in chronic pain take for granted. I am on permanent disability as well and would love to go back to work as I miss working and the social interaction that comes w it. Not to mention the financial benefits! The strain my disability has put on my marriage, my family, my finances, etc. is bad enough without having to deal w the social stigma and just plain rude and ignorant comments you receive by people who are just plain ignorant. I have learned to accept that these people will never understand as they are not in our shoes and just shrug it off and let it go! What else can we do?

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TruthHunter Says:
After recent surgery, I was given a combination, of Oxycodone and Tylenol, apparently required by law. In order to get pain relief, I was taking near maximum safe Tylenol doses. It was just "assumed" that my liver could handle it. Later experimentation showed that the side effects were from the Tylenol. How many so called are Prescription Med overdose deaths are actually from Tylenol poisoning?

I knew a young man who had a severe back injury. He had no problem getting pain medication from pain clinics they just looked at his x-rays. He had a lot of trouble getting the $200+- for the office visit and $250 to fill a months' prescription. This is a prescritption that Medicare accepts billing for around $40. He never had a job that included Insurance, so he had to pay as a noninsured. Is it surprising that he only took what he absolutely couldn't do without and sold the rest to pay for it?

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Hurting in Kentucky Says:
Any help for a disabled patient in KY. My doctor killed himself due to the new laws and I a now bed ridden du to new laws. Need attorneys to help us legal pain patients because our civil rights have been walked on.. I was actually told I could not go to er because it would violate contract for pain care. I am in acute pain and I feel like I have been left out to die. I am retired from the federal government.

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