Epclusa Ruined My Life (Page 15)

Has anyone experienced severe anxiety, constant crawling feeling in body after epclusa treatment. Its like my brain and body aren't working right anymore? I had terrible side effects. Finished in January, now it's June and feels like I'm still taking the poison.

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Re: Lor (# 280)

So sorry to hear this brotha. I'm right there with you. I just finished treatment last year and have all the same stuff going on. I feel horrible and act differently. I'm always snappy, and it's taken a toll on my whole family as well. I just don't know where to go from here, as doctors won't even acknowledge that Epclusa could be the culprit. I just did labs the other day and my numbers are all over the place. Nobody understands this stuff, and a lot of people seem to think it's all in my head, but I've never had anxiety and I've never in my life felt so sick that I couldn't leave my house. I shake all the time, had to quit my job (I'm a tattoo artist) because I can't hold my hand steady. I can't handle doing more than one task at a time. Even my coordination is messed up; my hands and fingers move like I'm drunk all the time. I got Hep C in prison and lived with it for almost 20 years and felt fine until I did this treatment.

{edited for privacy}. Don't hesitate to hit me up, man. It'd be cool to chat with someone who actually knows how this feels. I hope you can get some answers. I hope we all can, and that this doesn't end up being a death sentence.

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Re: Jason (# 281)

I can totally understand what you're saying. I'm in Australia. If I mention to my Dr about all the crap symptoms I've gotten ever since I got talked into doing this treatment, he just says "oh epclusa wouldn't cause that", plus he gets his info from the local liver clinic - omg, they're the ones pushing exclusively! I've met some pretty shady people over the years, but exclusively gilliard wins hands down. Reach out to me if you want to compare notes.

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Re: Jason (# 281)

Hi Jason. Sounds like we have similar things going on. It's been a few yrs since I did treatment, my viral load was always in the millions, epclusa people said don't worry about that mmm, anyway since doing the treatment can't say I feel great, I've got puffy feet fluid I think I've always been skinny now I have a fat stomach kinda my dr is stuffed all he says is oh it wouldn't be treatment caused your problems, I've got asthma copd now, ever had that before I'm fact I reckon I felt better pre treatment.wish we cud sue the crap out of them. I'm in Australia where are you? I reckon we would have a lot in common hey. Take care.

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Re: Kathleen (# 17)

How much hair kiss did you suffer? Thank you for sharing

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Re: Skpp930 (# 5)

How much hair loss did you incur ? Thank you for sharing

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Re: Jason (# 281)

Hi Jason hope your going ok ,I' m in Australia sounds like we all get treated the same ! It's been yrs since I did treatment probably 5 yrs ,can't believe how fast time goes these days ,I don't know if epclusa causedy current asthma copd nausea anxiety ,all I know is I felt ok pre treatment ,I really miss the old days , everything is so expensive these days not sure if it's just Australia idont think so ,every time I hear the news on tv or radio it's always bad news ,I think it makes me feel worse so I try and avoid the news ,anyway mate just letting you know your not alone ,I think there are a few soul survivors left ,I have lost just about all old friends from 70s 80s ECT, it has almost been like being in a war ( not really ) just surviving hey. ,,Take it easy it wouldn't be bad being a tattoo artist these days in Australia everybody ses to have one back in the old days " ha ha ' they kind-of had a message bet you wish you were still doing tatts! Take care

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Re: Davoe (# 70)

I am into my second week and am now so exhausted that I just want to stay in bed all day. I'm tired, hear buzzing in my ears, am severely depressed and ache in every joint in my body.

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Re: Kathleen (# 18)

I'll back your lobbying!

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Re: Al (# 274)

It may kill the disease but it also kills your soul.

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Re: Kathi (# 23)

Did you have the liver cirrhosis before the medicine or after you took it? My fiancé did not have cirrhosis before the medication but got it after he’s currently in the hospital in ICU on a ventilator for the fourth time this year. I’m glad I found this for him. I hope your doing better

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Continued from my last post... Also it did more harm than good by making it really hard to cough. I've not had a proper night's sleep in what seems like weeks now, feeling really exhausted. My Dr prescribed antihistamines which I found out made it really hard to clear my chest in the night. I would probably be on oxygen if I didn't smoke. I've tried quitting, but it's the only vice I have left and stopping probably won't make any difference. I'm hardly going to start running marathons LOL.

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Re: Kathleen (# 72)

My Friend is 65 he just started it 4 days ago. Dr. Told him Hep C for 30 years because of his liver damage. Anything I should tell him? 10/17 /23 Dr told him 80 ounces of water a day too. ( that's all)

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Re: Kathleen (# 13)

I took epclusa 12 wks. In 2022 at age 64. Breezed thru without any issues except tinnitus. 3 months after last dose all the stuff started. Weight gain, severe leg pain, vertigo, dizziness, blurred vision. I can't do anything without a struggle fear and pain. My thyroid stopped working, cholesterol levels went crazy and I am so dizzy all the time life is completely a mess. Been to cardio docs, ENT docs, next is neurology cause no one knows why all this suddenly started. I filed complaints through dispensing pharmacy that went to FDA and Gilead. I'm seriously considering a lawyer next. We all need to become part of this to stop this poison from hurting anyone else. I was NOT informed about any of this, by anyone. My fault for wanting to rid myself of hep c ? Not enough disclosure to make an educated decision. The clock is ticking for me and I am damn mad. I use to be a vibrant healthy happy person. Active as all get out. Now I struggle to walk anywhere, daily tasks etc. I know THEY KNOW who has taken this drug. I won't stop pursuing this, neither should all if you. Thank you everyone, I know I am not alone in this and need medical science to be accountable to all that have been harmed. Speak out!!!

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Re: Jason (# 279)

Keep all your paperwork, or get all medical files and have ready. Contact your dispensing pharmacy and file complaints thru them to FDA and Gilead. Then be willing to speak out about your story. I am close to finding an attorney or attorneys that want ro tackle this beast with me and any others hurt by this drug. Keep checking news, etc. I THINK ITS VERY POSSIBLE.

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Re: 10 2023 (# 294)

Just wondering what did it do to you? My fiancé got a liver disease after taking it and he was perfectly fine before. He’s currently in the hospital. He’s very bad off.

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Re: 10 2023 (# 294)

Good luck. I really hope you have success. I'm in Australia, if you need any feedback.

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Re: 10 2023 (# 293)

Hi. I'm in Australia. I can relate to your story. I now have COPD, asthma, swollen feet, neurology problems I'm sure and all I get from drs is "oh no epclusa wouldn't cause any problems, it's a wonderful med". The liver clinic has a lot to answer for.

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Re: Kathi (# 19)

I'm on my 2nd week of treatment and I've got shoulder pain so bad I cry, it started on the Left but has migrated to both shoulders now, across the top of my chest and into my neck and jaw. When it first started I thought I was having a heart attack. When did your muscle pain begin?

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Re: Skpp930 (# 7)

I had hep c from being stupid at 15.1 year and turned life around.Lonh story short,altho having cirrhosis, my liver enzymes were impressive,normal.Told Ecuplsa would give me,maybe mild headaches.
Felt like I was dying.Reported it to Dr many times and checked me for everything but.
Finished and my Liver Enzymes are to the roof.Exhausted,lost hair,basically my life.I was lied to on so many levels,then find out this Company paid $178 million to push this poison NEVER told of SERIOUS side effects and death.
I have been crying for two days and can't even trust my Dr,as trusted with my life! I have a child,on the spectrum who depends on me.Yet so sick,vomiting,weak etc.I was much better off before treatment with blood work to prove it!
I am beside myself with sadness for my child and anger towards the Dr and Company lying about this drug for the BLESSED BUCK.Sickening.

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Re: Toni (# 299)

Sorry to hear your story,where are you ?I'm in Australia I did treatment over 5 yrs ago I got rid of virus but I now have asthma copd ,neurology problems puffy feet found out last week I've lost 12 kilos in a year my Dr can't explain ,every time I mention epclusa he tells me how great it is obviously brainwashed ,iv just turned 70 wish I'd never touched epclusa my breathing is stuffed felt healthier pre treatment. Best wishes

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