My Pm Doctor Suggested I Find A New Pm Doctor (Page 4) (Top voted first)

Hello everybody, my name is Lisa. I have been seeing my pain management doctor for nine years. In the beginning he started me off at regular doses of Morphine Sulfate ER, Roxicodone, Diclofenac, Valium (for my horrific spasms) and Duloxetine. I have had 3 surgeries on my back, two laminectomies and the last one was a complete spinal fusion at L4-5 and S1 wherein they went in and took out a piece of my hip bone and fused it to my lower back along with plates and screws. They went in through my stomach and my back. I was opened in 3 places and the fusion took 17 hours as it was much worse than originally anticipated and my Dr. found another new herniation at L3. None of my three surgeries worked and this is due to an accident when I was 17 years old. I am now 47. I have done everything known to man through years upon years of different therapies, had all the inj's. and even had a spinal stimulator implanted in my back which did not work as my diseases are too far gone. My spine is 98% covered with arthritis. I have RSD. I have a disease called arachnoiditis (sp?) I have spinal stenosis, failed back syndrome, degenerative disc disease, disc desiccation, nerve root impingement…the list goes on. I saw a doctor at the Rothman Institute. It was one of the best neurosurgeons in the country who told me at 32 years old I had the back of an 80 year old steel mill worker and he had never seen a back in worse condition than mine; ESPECIALLY SOMEONE AS YOUNG AS ME. I was 25 when he first saw me and 36 when he put me on full Disability and told me I would end up paralyzed one day and literally cried with me when he told me after my spinal fusion did not work that there was literally nothing that could be done for me for the rest of my life and that I would be in Mortal pain equivalent to a cancer patient for the rest of my life. And that the only thing that could help me would be medication. I held off on taking medication until my two children were over 18 because I did not want them to see me on any pain medication and before that the only time I had taken pain medication was after my surgeries. So for the past 10 years I have been under pain management care. When I got to the doses that finally helped me I was taking three 60 milligram morphine sulfate pills, four 15 milligram Roxicodone for breakthrough pain, three 10 milligram Valiums for my spasms (which were absolutely the only medication that works for my horrific spasms as I had tried every other anti-spasm medication) and the other non-narcotic pain pills to help stop the signal of pain before it got to my brain. Literally after years I got used to all of this medication and yes I know it seems like a great deal but as I said he compared my pain to that of a cancer patient. I had to give up a lucrative career as a paralegal and became homebound and extremely depressed. My life completely stopped. As we all know, we have all been cut down to the bare minimum because of these new regulations. After several cuts in my medication, I now take three 15 milligram morphine sulfates and three 10 milligram Roxicodones and he has completely taken me off of the Valium as he said you cannot take Valium with Morphine any longer and put me on 4 milligrams of Tizanidine three times a day, which is now interfering with my liver function. The last visit I had with him, which was a week ago he took my hands into his and looked into my eyes and told me, "Lisa you need to find another pain management doctor who is willing to help you and give you more medication. I just simply cannot do it, I'm not willing to risk my license. I know you need more medication but I'm very conservative and I just can't do it but I know there are doctors out there that will give you more. I will do anything I can to help you I will speak to the doctors. I will let them know you need more medication and if for some reason you find someone that's great. I will give you all the help you need. If for some reason the doctor's office gets closed down you can come back to me with open arms but whatever medication they have you on I will have to put you back down to the regiment I have you on now." I feel like I've literally become a vegetable I can't even walk up and down my steps without going down my steps on my backside. I have been living on disability since I was 36 years old and received one check a month. I went from living on $4,000 a month to just under $1,200 a month. I am not used to living like this and it is literally killing me from the inside out. The pain is completely unbearable and most nights I cry myself to sleep and most days I cannot function or get out of bed. Never have I gotten high from my medication because my pain level is just simply too high. I do not do street drugs I don't drink at all not one drop. And I need to find someone to help me before I literally literally die from this pain. I live in North Philadelphia and have been traveling down to Ardmore to see my doctor which is in Montgomery County and I'm willing to go to Center City Philadelphia Northeast Philadelphia or and Montgomery County in the areas off of Lancaster Avenue. This is my last hope because I'm completely drained and have run out of all hope. If there is anyone who can help me suggest somewhere to go I would be forever grateful. I have been under pain management care. When I got to the doses that finally helped me I was taking 360 milligram morphine sulfate pills for 15 milligram oxycodone for my horrific spasms and the other non narcotic pain pills to help this signal of pain before it got too my brain. Literally after all of these years my body got used to all of this medication and yes I know it seems like a great deal but as I said he likens my pain to that of a cancer patient. I had to give up a lucrative career as a paralegal and became homebound and extremely depressed my life completely stopped. My pain is NEVER below a 10. I have been living on disability since I was 36 years old and one check on month. I pray No one ever has to go through what I've been through. This is not living. It is merely existing. I want to be able to see my grandchildren again whom I have not seen in a year as my children feel my condition and my depression are not good for them to see. I have the most beautiful 4 year old grandson in the most amazing 3 year old granddaughter. Being a Mom-Mom to them was the light of my life and that has been taken away because of my diseases. My life has completely all but stopped. I need help and I am finally asking for it. I don't know where else to go or what to do. Believe me my heart goes out to everyone who is on this forum as I know we are all being treated unfairly by the DEA as some of us need this medication to merely survive. I have all of the x-rays, MRIs, medical documents, everything you could possibly need to prove all of the diseases I have as I have been going through this for 30 years. If there is anyone who can give me any advice on where to go or what to do I'm willing to travel to Center City Philadelphia northeast Philadelphia Montgomery County as long as it's not too far and Montgomery County like off of Lancaster Avenue is great around the Lancaster Hospital area. I am just desperate to find someone. Bless you to all of you who are suffering through this horrifying ordeal and hopefully the DEA will let the doctors be back in control and help us with what we need. We are not addicts, we are simply people who have been hurt and are suffering horribly and need this medication as a diabetic would need insulin to survive because if I don't end up controlling my pain it will consume me. Thank you for listening everybody and I wish everybody on here well. Thank you my friends. God bless you all.

REPLY

REPORT

I'm sorry they edited my reply Lisa. Honestly sucks, but I know they do it for security reasons etc... I can only imagine the pain you are in and I truly feel bad for you. I'm not sure if I told ya but I am having surgery finally on my back. My doctor said it is getting worse and if I keep putting it off. My life will consist of being in a wheelchair/scooter... and my kids said I need to and my daughter said she wants me to walk her down the Isle, not wheel her down, so I shouldn't be stubborn... but people don't understand pain unless they truly and I mean TRULY have experienced severe pain pretty much twenty four hours a day seven days a week. Then when ya finally get the pain to a point where it's medically under control then a new problem called constipation hits ya literally like a ton of bricks... I'm scared beyond scared cause this surgery I'm having is the first day of school for my kids and they wanna be there for me but this surgery bothers me cause my surgeon is actually going thru my stomach moving stuff out of way to get to my disks and spine... then stitches me up and flips me over and cuts into my back and it has me worried about him moving stuff around in my stomach and if there will be a lot of pain in stomach area cause I really don't need more pain or complications.... It's always a million things that run thru my mind but again with all that I've said that still my pain isn't close to what you are experiencing. I hope you get this message and that way you can see there are people that know to a certain degree what you're going thru and we need to stick together and try and help one another out... Please don't hesitate to write me back even if it's just to try and get your mind of the pain you're having.

REPLY

Was this helpful? 0

Has your dr prescribed movantik (i think thats the correct spelling). Its specifically for people that are constipated from opiods. It does work but start out with a small dose or half a pill. And if you dont already take stook softeners start. It makes a big difference

REPLY

Was this helpful? 0

RAW DOG. Wait now there's a recall on OPANA THE OXYMORPHS WE WERE TALKING ABOUT? Oh no! I was planning on talking to my PM Dr on the 14th to ask him to switch to the OXYMORPHS ER. OF COURSE JUST MY LUCK... IM SO UPSET RAW DOG....

REPLY

Was this helpful? 0

Dr's will give you Suboxone to control your pain, as that is what I am taking. Best change ever. It got me off the couch and gave me my life back. I don't go to a clinic. It's a regular doctor who prescribes it. Addicts go too, and they weened off in 10-12 months. I am treated for pain and have been seeing him for 4 years.

REPLY

Was this helpful? 1

Thank u for responding. Since i posted this my PM doctor cut my meds again. 3 10mg roxys and 3 15mg morphine sulfate a day but this time i was given an explanation WHICH I HAVE NO CLUE IF ITS TRUE OR NOT! He told me the new laws in effect do not allow prescriptions to be written for more than 90mg of morphine a month and since roxys are 1 1/2 times stronger than the morphine sulfate (this is a fact i have confirmed) i cannot be prescribed any more than what i just wrote above as the 3 10 mg roxys equal 45mg of morphine and that plus the 3 15mg of morphine pills all equal 90mg of morphine which my PM DOCTOR SAID IS NOW THE LEGAL LIMIT! I live in Pennsylvania and he said its not just a state thing its a COUNTRY THING!!!! Do you know if this is true!? He continues to tell me he won't put his license in jeopardy and prescribe me more meds but he knows i need way higher doses for the disease i have.... The pain is comparable to Cancer and is simply unbearable...

REPLY

Was this helpful? 0

Thank u so much. They will NOT prescibe methadone for pain, only if u need help weaning off of drugs.... Thank u for your well wishes, i so appreciate it!

REPLY

Was this helpful? 0

They say Subs treat pain but in my experience they do nothing for pain just stop withdraws. I hate subs it's godsend for some but I just hate taking them thought I'd share my 2 cents

REPLY

Was this helpful? 1

RAWDOG these oxymorphs are they equal in strength to morphine sulfate? Im down from 3 60mg tabs a day and its like taking nothing and so many people have told me including you to switch to the oxymorphs. Are they long lasting like time released like the morphine sulfate so i can ask my PM doctor for an evev switch? I go see him again july 14. Would appreciate your input. Thank u my friends!!!

REPLY

Was this helpful? 0

Kat, first of all its my body and yes I have seen someone put one in water. It's no different than the tainted food we put in our body from the GMO'S to the pesticides that are sprayed on our veggies and berries. I've been doing this awhile and aside from my pain problems I'm healthy as a horse. And I stopped smoking marijuana about 15 years ago. I hate it!! You can judge all you want but once again it's my choice, my body and it's helping MY PAIN, but thanx anyways.

REPLY

Was this helpful? 1

What is your problem. You obviously are on here to hurt people who luve in uncontrolled pain every single day of their life. There is no hope for you... Shame on you Miss....

REPLY

Was this helpful? 1

Boo Hoo. I just saw your post. No i wasnt even referring to you but i am now. First of all my pain management doctor has not booted me and I have never come up hot or too high and concentrate in my U/A for drugs never. Second I am not allowed to see my grandchildren because my child has bipolar schizoaffective disorder and has serious mental issues and has been hospitalized over half-a-dozen times for things you have no business knowing and is clearly not your business. Has nothing to do with me being depressed, a drug addict or anything to the above about my issues. You do not know me, you do not know what my pain is like, you do not know what I have gone through for over 30 years. Therefore do not comment on my page. I will not even go into anything further because you are pissing me off beyond anything I have ever come across. You have no right to go into what I am going through because you do not know me and you do not know my diagnosis. How dare you judge me when you do not know anything. Get the hell off my page.

Do not ever refer to my children or my grandchildren. You have no clue what you are talking about. My pain management doctor is trying to find me a doctor that will actually give me more medication than what he is giving me because he knows my pain level is equal to that of a cancer patient. Do you hear me? Someone who has incurable pain on beyond known to man because you are a simpleton and do not know what these diagnosis are maybe you should look them up. I couldn't even list all of them because I didn't want to sound ridiculous but you have no clue the amount of specialists, the amount of acupuncture and the amount of procedures that I have had done that aren't even accepted by the regulatory surgeons or that aren't even approved yet, to get things done to my back before I even started any medication, which was only nine years ago when this accident occurred, when I was 17 and I am now currently 47.

My children have never seen me drunk, my children have never seen me high, my children have never seen me under the influence. Therefore your claims are insignificant moronic and do not mean anything. Get a life stop and trolling on pages to try and make people who are suffering feel horrible about what they are going through, as you know nothing. I apologize to everyone else on here who is going through horrific pain and being caused by the DEA who know nothing about medical situations to be caused more pain because they think we who suffer from intractable pain to be denied our sometimes LIFE SUSTAINING medication because of drug addicts. YOU CAN DIE FROM THIS KIND OF PAIN... IT CAN CAUSE HEART ATTACKS, HEART ARRHYTHMIA AND OTHER LIFE ENDING SITUATIONS. I THANK U BOOHOO NOT TO COMMENT ON MY PAGE ON THINGS U OBVIOUSLY KNOW NOTHING ABOUT.

REPLY

Was this helpful? 1

Dear Valerie. No i have not my dear. My search contines. But i still see my PM dr. He just feels so bad for me and wishes he could help more but his practice is VERY STRICT and he cannot bend the rules for me. He truly is a wonderful man... Just bound by ridiculous new laws...

REPLY

Was this helpful? 0

Thank you RAWDOG. i will be seeing my PM dr on the 14th and will ask to be switched to the Oxymorphs. You are so right these Morphines do nothing and there is no point in taking them. I will keep u posted! Thanks 4 all your help my friend!!!!

REPLY

Was this helpful? 0

Dear Ray, I know exactly what you are going through as when I had my spinal fusion I had an interior and posterior spinal fusion and they went through my stomach first and pushed all my organs out of the way to fuse the screws to my spine through the front and pushed everything out of the way and that really did freak me out too. Then they closed up my stomach and they opened up my hip area and they literally sawed off a piece of my hip bone, closed my hip up, turned me over, opened up my back and soldered on my hip bone to my spine, and then put more screws in my spine along with the hip bone. So yes I do understand what you are getting ready to go through and I don't blame you for being scared. I was given a week's notice when I was going to have this surgery and for that week I cried my eyes out. I wish you nothing and I sincerely mean nothing but the best of luck and a speedy recovery in this surgery and I pray to God that it works and that you were able to walk your beautiful daughter down the aisle.

Please let me know when the surgery is coming up and I can keep in touch with you and we can communicate on how you're doing and you can certainly talk to me and let me know if you're worried and I can hopefully help you with some of your fears and yes I understand about the constipation, OMG it is so bad sometimes that I have had a hernia due to the constipation and I understand that the complications that come along with some of these issues can be worse than the issues themselves. And people who don't go through it certainly do not understand what we go through on a daily basis living in this kind of horrific pain 24/7. People who think they know and are judgmental about us taking medication need to stay off their soapboxes because they actually have no clue what we live like day to day. But my children saw that I had to use a scooter and couldn't walk anymore, it literally devastated them. Even though they are grown it didn't matter for them to see their mother not being able to walk. It was heartbreaking for them. So I understand your children wanting you to have this surgery in hopes that you won't have to resort to using the scooter. I pray for you sweetheart. I pray that you come through this so much better than you went into it. Please contact me again and let me know exactly what kind of surgery you are having sweetheart. My prayers and thoughts are with you Ray!!!

REPLY

Was this helpful? 0

So I went to my PM DOC today and he mentioned nothing to me about having to change scripts(due to the Opana recall) so I have my normal script of 60 30mg oxymorphone ER'S I'M SOOOOOOOO HAPPY!!!!!!!
Now when I go fill my oxycodone on WednesdayI'm gonna make sure my pharmacy has enough of them in stock(I only say this cause I noticed when she filled them the other day they were down to a small bottle) so before I leave on Wednesday I'm gonna ask them if they have to order more, or not. I'm guessing if there is anything they want to say to me about any issues that would be a perfect time to say so I'll keep all you posted on what happens!!!

REPLY

Was this helpful? 0

Yes their is a recall on OPANA ( NOT OXymorphone) it is different. Some say that the oxymorphone will soon follow suit but I'm sure that's some time away you know how drug companys drag their feet. And remember all pain docs are different some are more strict and up to date on things mine is more on the lenient side and like I said even the pharmacy said nothing to me about not being able to fill again next month so... good luck

REPLY

Was this helpful? 0

Not everyone wakes up behind-the-wheel lost in the woods or has reactions to medications the way some people do. Some of us actually need it to survive not all of us react the way some of you do and none of us appreciate being told we are addicts and none of us appreciate being told maybe we will wake up one day and realize what we are doing to ourselves...

REPLY

Was this helpful? 0

Boo Hoo. Kindly stop commenting on my post as you do not know me or my FULL HISTORY or what I too know about chronic pain and pain management. I am not looking for negative comments or negative people like u. I have enough problems. Thank u.

REPLY

Was this helpful? 0

My current doctor is unfortunately in the hospital very ill which forced me to find a new doctor to refill my Vyvanse an...

8 REPLIES

Hi, I moved from Utah to California just recently. I've been stable on Morphine and Roxicodone for the past 15 years...

10 REPLIES

My doctor moved out of state and I am having a heck of a time finding. A doctor who will prescribe my much needed Xanax....

9 REPLIES

Hello, I am 39 years old and have been prescribed vyvanse for almost 8 years. Being diagnosed with this as an adult was ...

3 REPLIES

Going into my 8th week of treatment... Not too many side effects. My surgically induced osteoarthritis stopped 3 weeks i...

1 REPLY

I lost my job a few months ago & am in the process of foreclosure...also take care of elderly parent....tried SSRI&#...

We just moved to the Fort Worth area and I'm looking for a doctor who would prescribe xanax. I have taken in the pas...

12 REPLIES

I had a doctor who prescribed me suboxone but I dropped dirty and he dropped me as a patient. I found a new doctor but h...

I've been in two different suboxone clinics that I couldn't afford to keep going to because I had to pay to go t...

2 REPLIES

I was recently dropped by my doctor of 11 years for no reason, and i need to find a new doctor in my area that is accept...