I Am A St(spasmotic Torticollis) Patient. (Top voted first)

I am currently taking 15mg ER morphine 3x, and 400mcg sublingual spray 3x, and I am going to wean myself off these dangerous medications. I know my pain will increase greatly without pain meds, but I am just tired of my pain dr treating me like a child. Anyone who has this disorder knows what it can do. Just finding a pain dr that will prescribe something that works is so hard. I plan to take it slow, but any advice is greatly welcome. Thanks.

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Hi Mike. I'm curious, what state do u live in? Have you ever tried lyrics or neurontin?
I know the frustration your feeling. I have RSD both hands and feet, one knee and one elbow. I never knew before this that a pain this horrible could exist and not kill. Although I have heard some RSD patients having a stroke or heart attack during times of even higher than normal pain levels.
I never heard of 400 mcg fent. Spray. I have rarely if ever heard of a doc giving more the 100mcg fent. Patch every 58 hrs, but I live on long island n.y. please get back to me and let me know your location, I'll ask some friends if they know a doc near you as soon as I know where u is

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I left out the 400mcg spray is fentyal!

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Hello, Mike! How are you?

Yes, you'll need to taper off very slowly, especially from the Fentanyl, because it's a very potent opiate, over 80 times stronger than the Morphine.

The FDA classifies this medication as a narcotic analgesic, so it has the potential to be habit forming and may cause side effects, such as nausea, dizziness, drowsiness, dry mouth and constipation.

Getting medical help with this would be the best thing to do.

Doctor's do have to be extremely cautious about prescribing these types of medications, which has been frustrating many people. But what is yours doing that makes you feel he is treating you like a child?

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Hi, I am okay, so far. I was taking 3x per day, 15mg morphine and 400mcg fentanyl. I have been a week now taking just two doses of each, and while I have more pain, I have managed to get by with this.

I have never found anyone, whether they have a medical or not, no one can understand how my pain builds up during the day and how bad my particular case of torticollis is.

My current pain management dr does not, will not, listen to me try and explain what happens. He has basically chewed me out, scolded, me, about why I'm taking this medication. Surgery is not an option, pain management is the only way I can have any kind of a reasonable quality of life. He thinks I should be almost pain free just using botox, (now for 8+ years), that is simply not the case. The more active I become, the worse my neck muscles fight each other and this worsens as the day goes on. I'm sure botox may help a lot of people with CD or ST, but everyone reacts differently to all these treatments.

Thanks for your advice. I don't know if I can have a little better quality of life without these medications. The only thing I was on besides botox, and valium, is lortab, I have tried other pain relievers and they do not offer any relief. My life is not very active now, even with these drugs. I only leave my house when I absolutely have to. I used to be a very active person.

This guy might come in my room on my next visit and be as friendly as you could expect, or he might come in and tell me he is not going to give me the medications any more. I am very tired of trying to find drs who will write these prescriptions and or take Tricare. Since my life is limited as it is, I would probably be better off not having to deal with this guy. I also know that God will provide.

MK

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Thanks for your response, I live in Mobile, AL. Yes, that's a very high dosage, being 80x stronger than morphine. I first tried the patches, I don't know the strength, but I couldn't use them because they would make me fall to sleep and they did nothing for my pain. I have not tried the other medications you mentioned.

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Other than the RSD, cymbalta withdrawal was one of the most awful experiences. Never has suicide made such sense to me. I fought, sometimes aloud with myself, not to give in to those thoughts. Some people don't make it. Others end up going back on it because it's so hard to handle. For me, workers comp Will refuse it every few months, but It will usually go through in 3 to 4 days(torture) this month was 11 days. I'm tearing UP just thinking about going through it again. I don't know if I'll make it through next time. I find it bizarre and senseless that the DEA has no problems with this severe addiction, a suicidal addiction for a medication that many chronic pain patients don't need as much as pain meds for a decent quality of life.

During really bad times I have had to go a couple of days without my pain meds. While my RSD pain was painfully devastating the experience couldn't even compare to the brutal torture of Cymbalta withdrawal. I wasnt nearly as suicidal. Why is the DEA alright with the addiction of cymbalta and other SSRI meds? This addiction is severe and deadly, much more so than narcotics. And at least the narcotics are worth the risk for me. Its the difference between living and simply existing. It also is the difference between my children having their mother and husband having his wife rather than a lump laying on the couch hurting to bad to hold a conversation, for weeks at a time.

Does anyone have an idea why the DEA is causing torture for pain patients by withholding helpful meds but allowing the ssri meds.
I thought it was addiction, but that can't be because they are pushing the cymbalta type meds even though the addiction is so much worse along with a higher chance of suicide and many people just can't stop taking it. The addiction and withdrawal is so severe they go back on it. This withdrawal will go on for close to 3 months. Some people end up with symptoms that are lifelong. The withdrawal can also cause kidney and liver damage along with heart palpitations and heart damage. So much more severe than any issues with narcotics, so why?? Anyone???

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