Any Withdrawal Symptoms From Symbicort
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I have been on symbicort for 3 years. I would like to get off it as my asthma is manageable...Are there any physical withdrawals to worry about?

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Re: Tigerink (# 19) Expand Referenced Message

Hey Im wondering about the symptoms you got from stopping symbicort. I stopped and I am pretty sick but I’m also withdrawing from a benzo but got really bad when I stopped the Symbicort can you tell me your symptoms and how long they lasted. And if your sure it was the symbicort?

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31

I have taken myself off this medication 2 times now as I don't like the side effects. I cut down very, very slowly on the dosage - like 3 puffs a day for 3 or 4 days and then 2 puffs a day for 4 days and so on. I get a bit of head pain but it is not too bad.

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30

I was on symbicort for 10 years then read this was the cause of a members voice deterioration and immediately came of it 2 months ago. Nothing whatsoever has happened to me except getting my natural voice back and was a blessing in disguise. I must admit for the last month I've done a lot more walking and this has helped my breathing pattern to enormously.

Good luck and hope you have the same success as me

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29

I agree with you that it is best we moderate the dosage. Using symbicort for the last 6 yrs, MD's suggested dosage was 2 puffs twice a day. From the beginning, I have lived and breathed well with only 1 puff per day. Prior to Symbicort I was given Advair inhaler. Used Advair for abt 7 years with no side effect With Symbicort I gained over 30 lbs in the first 6 months using the inhaler.
Prior to Advair, I used Serevent inhale and Accolate (pill form). Serevent had reported deaths. But they emphasized the dangers of using it as rescue remedy during an asthma attack... it may have been the case in the unfortunate deaths.

I am hoping to stop taking Symbicort hoping to shed the unnecessary extra 30 pounds. I am now, 5 feet tall and weigh 160 lbs, while 130 was full enough for me.

OVERMEDICATION by the medical profession remains a serious abuse. We are all ultimately responsible for our bodies, we know how it feels every moment. And, as the person inside, we should feel FREE to adjust RX (medications) judicicously and responsibly. Everyone should be able to consult these changes with his/her medic without entering into pharmaceutical guidelines fanaticism. The pharmaco is all about big $$$ and hooking overmedicated people. BEWARE folks!

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28

WOW, My voice has been terrible for a long time and you're the first person who gave me a clue as to the reason why. Thanks for that. I'm coming off this s*** as my asthma is manageable without it.

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27

I've been on Symbicort for three years and have also used Dulera, Advair and Breo all of which have major side effects including muscle pain and muscle loss, vertigo flu like symptoms. Symbicort was the most effective but I had to taper off because of extreme fibromyalgia. It's only been a month both pain is subsiding and I'm sleeping better. He can try calling Astra Zeneca to see if they can help continuing with his medication
I found out personally that you have to use the minimal amount that you can function with. I'm 70 and had asthma for 69 years. Still work and try to enjoy life, just with less energy

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26

Hi! I'm having problems with my husbands medication.He is on proair-HFA and symbicort. The insurance won't let him get symbicorty any more he's been off symbicort for 2 days and has not got out of his chair. He says hes got cold or flu IL think its withdrawal from symbicort. I don't know what to do for him.Has any one got any sugestions. Can he do this without help. wife cant cope.

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25

I had shortness of breath and opacity which showed up on a lung scan. Pulmonary dr. started me on Symbicort a month ago. PCP said it was viral pneumonia and would take 8 weeks to recover. She told me to continue Symbicort. Saw pulmonary dr. and he said to stop Symbicort if it didn't make any difference in the shortness of breath. And it really had not. Within 24 hours of discontinuing, I felt like I had the flu..headache, fever, joint pain. Is this a reaction to stopping it suddenly?

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24

I am 70 and have been on symbacort and flonase for several years. The fibromyalgia and fatigue has made life extremely difficult. I was always very active before but ow don't have the energy or interest to do anything. I'm TOO young mentally to retire and give up. I just want my life back. I did not know about the connection between an iodine allergy and symbacort. Can anyone please help with this.

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23

Hi, Steven. I've just read your post five years later and am interested in how you.'re going with your asthma. I've been on symbicort 200/6 for ten years! I would really like to wean off it and was very interested in your reply. Will also look up Bouteyko. Thanks, hope to hear from you soon.

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22

I was prescribed Symbicort for wheezing which was mild. I was subsequently diagonesd with infection in lung which got cured by taking antibiotic for 5 days. I am per tkt alright now with no wheezing. The doctor insists on gradual giving up of Symbicort by reducing the dose. I want to stop taking Symbicort immediately as I don't feel comfortable. I never had any history in the past. I have used Sumbicort only 2 weeks. Please advise if I can stop using Symbicort.

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21

I recently came off it after 8 years and don't feel 100 years old. It's possible, and when I did I discovered that I really didn't need it, as well as that if I do have a brief wheezy day, I can use it that day and then no more. Note that the drug manufacturers themselves actually recommend that you don't use Symbicort in the long-term, due to the risks caused by formoterol, which is linked to increased death rates from asthma. I couldn't find any long-term studies that had looked into the impact of steady use of Symbicort for a duration longer than a year. All that said, it was indeed a great drug when I was using it because it was like I never had to think about my asthma. However, I feel good being off it and usually only need my Ventolin inhaler once ever 2-3 days. I'm no longer using any corticosteroids for my asthma.

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20

Here is my honest experience :

I am 42 year old male. Asthma all my life. On Ventolin and pulmicourt until I was 23.

At 23 I was put on Symbicort 200 / 6. For the first time in my life I could breathe. I could also eat better. I had always ran to keep fit but with Symbicort I could keep running and got fitter and fitter. At 23 I stopped Ventolin and all other meds completely. Now I was just on Symbicort.

It has changed my life for the better. Over the years I have had to learn how to "work" with the drug. Taking this first thing in the morning is like having 5 cups of extra stong coffee! Therefore your mind is racing, you can be snappy with others and a little short with others - because you are essentially hyper.

I needed to run to work off the excess energy otherwise I could have snapped with friends / co workers.

So. I am slim and Asthma is under control right?

Well here are some of the minor problems :

1. Moon face. It's going to happen. Get over it and run / do sport / dance. No never feel full on this drug so move or you will become fat!

2. Head fuzz. If you don't excersize to clear your head this can become a problem.

3. Hair loss. If you take too much. Abdominal fat also if you abuse and take too much.

4. If you try to come off this - you will feel like 100 years old.

Long and short - don't abuse this gift. Keep healthy, eat healthy, excersize, don't abuse your body with drugs and alcohol if over 30 years. Make this drug work for you - I haven't had an attack since 1996.

Don't take this medicine for granted - don't up the dose unless your doctor recommends.

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19

Thank you for sharing. I ran out of symbicort. I thought no big deal I'll get it in a few days when I get home. I felt severe tiredness, confusion, anxiety, and very irritable. Took the symbicort and it went away shortly after. I wish I had known.

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18

I've been on one puff a day of Symbicort for years and had no real complaint, but then got to wondering if I even needed it anymore after noting to a friend I'd gone probably 20 years without an asthma attack. I began weaning myself off about 3 months ago, first going to a puff every other day, then one time a week when I went two days in between, now two days between each puff. Taking it slow, giving each new change 3-4 weeks, will see if I can get off it entirely in time. I found the psychological stuff the trickiest - on a day when I was skipping, I would get fearful that I MIGHT get wheezy, even though I wasn't. That seems to have passed now. I am surprised at how different I'm starting to feel in my body - less thick is the only way I can describe it. I tried to get off inhaled steroids years ago and went too fast, so this time I am going super-slow. So far so good!

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17

Hi I've been off symbicort now for 3 mos. I still have no need for the steroid! Diet alone improved my s/s 60%!!
I did have a reaction (i believe ) to sudden withdrawal from symbicort. I had mental confusion, short term memory loss, speech impairment- studdering/speech impairment, and an inability to cope with stress.
It is my understanding that steroids affect cortisol levels and cortisol affects mood and emotion.
So a non scientific warning- do not abruptly stop any medication (symbicort) without consulting your DR.
Whoops I made a huge mistake, but any negative side affect has resolved itself. I am very healthy! I run 15-20 miles per wk. I can run a 7 min mile...
Try looking into food allergies, especially gluten or wheat. I had No idea I was sensitive to wheat (GMOs have affected our health)
God speed and good luck,
Happy breathing to u and yours,
Lung power

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16

I had been on Symbicort for years and got down to 1 puff a day because I was always hoarse. Tried to get off but I had very bad joint pains and tiredness - felt like I was 100 years old - so got back on. On my second time trying to get off. I find I can go around 3 days and then need 1 puff. Tried breathing techniques and oils but find they don't give much relief - not even placibo effect. Carefully tracking how long I can go without a puff. Also trying to eat less - which also helps.

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15

Hi- I have had asthma for about 17yrs. I have been on symbicort for approx 4-5 years and Advair before that- I take ventolin and atrovent regularly... However, I recently went gluten free. And no red meat limited dairy and low anti inflammatory foods... All can be researched...
I am not taking my symbicort for first time tonight. I ran 2 miles in 17 min. Today 1st mile 9:30 second mile 7:30- no symbicort... Just a puff or two of ventolin. Not bragging- have not done that since my 30s now 46- This new diet is working for me- I hope some one who reads this may help them. Good luck God bless. Air is taken for granted until you can't breath... I feel so healthy!!! First time in about 17yts of dealing with this non sense- mainly diet related. But, ask your doctor first before try anything- Take care-

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I got down to 1 puff a day. After a few years, tried to stop. No breakthing problems but after a week horrible joint pains. Back on Symbicort but now doing 1 puff a day for 2 days, skip a day, etc. Will then do every other day.

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13

I have used hydrocodone 10/325 for 3 years for chronic pain from 2 auto accidents. Have used Symbicort 160/4.5 since last June.
the only problems are with Symbicort. when I discontinued my complaints of not sleeping but for short periods ceased. 4 hours last night and dreamed! Started losing weight and food tasted metallic. Shortness of breadth stopped?? Eating or appetite is back. MD has not returned my calls???

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