Rsd/crps Since 1993

3 Replies Updated



Conversation Starter

Billy Says:


Is there anyone who has had RSD/CRPS FOR A LONG ENUFF TIME TO WHERE IT WAS UNDER CONTROL WITH MEDS AND MAINTAINABLE AND THEN ALMOST 20 YEARS LATER IT GOT JUST AS BAD IF NOT WORSE AS WHEN I FIRST HOT IT IN 1993..I NOW HAVE TO TREAT IT LIKE I DID BACK ALL THOSE YEARS AGO WITH THE HEAVY MEDS AND ALL THE PAIN N POLITICAL BS THAT IS GOING ON WITH MEDS AND DOC'S NOW...ANY SUGGESTIONS ON DIFFERENT DOSAGES OF MEDS THAT MIGHT WORK BETTER THAN BEFORE THAT I CAN BRING UP WITH MY NEW DOC.



Showing Replies 1 - 3 of 3 RSS Feed


Page of 1     Sorted By:
1
Brambo Says:
via mobile

Ketamine. Also, Gabapentin and Lyrica are facing litigation and may soon disappear.

REPLYSHAREREPORT
Was this helpful?     0     0  
2
VerFree Says:

Conditions such as RSD/CRPS tend to be degenerative, so it can be normal for things to worsen, as you age, and for you to require more aggressive treatment options. Your body also gets used to medications, as time passes, and they can stop working as well for you.

What medications are you currently taking to treat your issues?

What new symptoms are you experiencing?

RSD/CRPS is covered pretty well in this article.

REPLYSHAREREPORT
Was this helpful?     0     0  
3
Betsy Says:
via mobile

I had it from extensive dental work in the same spot a good 12-14 years ago. Luckily it began with what seemed to be Trigeminal neuralgia, and went down my throat and into my stomach. But it stayed only there and was intermittent with many ER visits where they had no clue what that even was! I would feel a sudden explosive feeling in my stomach, go to my head, I would burn terribly, turn colors and stagger terribly! I was told by neurologist I had to ride the attack out. It was caught by him within weeks and gabapentin and cymbals were my only treatments. He said I had a textbooks case! After 1-1/2 years it finally left and never came back... but all these years I have severe fibromyalgia and CFS so severe it is one point off narcolepsy on paper. Since treatment is same, pulmonologist, after 3 negative apnea tests said he would classify it as EDS and I’ve been on Armodafanil for years. I actually fell asleep driving and always kept to back country roads but still went into many ditches even with a very short drive home. If at a red light, I bumped a good 20 cars till I got treated. Thank God my SUV has a huge rubber! Now at lights I put car in park, and I take lot of “unscheduled“ naps all day and all night if I sit down and read, go on iPhone or watch TV. I don’t even know it. I just go out! I do have a big lack of REM sleep. But the unGodly 24/7 365 pain which is unbearable in the morning that I cry for an hour or two praying and reading my Bible wondering how I can go on. No pain relief at all because only Oxy or Vicodin work and they are forbidden in my area! Kratom does help somewhat. My daughter thinks I may have whole body RSD because it’s so rare that it left, and when I was on narcotics I did get a one year remission from fibromyalgia which again is extremely rare! I went off narcotics after 9 months in 2016. But is back with vengeance!!! Interestingly, the beginning of fibromyalgia was exactly when I had a tetanus shot, 5 vials of immunoglobulin, and a rabies series within a week! Then I had a bad reaction to Shingrix shot #1. My rheumatologist told no more vaccines! Go to the website HealthRising for great breaking research. Research is beginning to connect dots... SNFN. And magnetic brain stimulation treatments that sound promising for chronic pain. And my rheumatologist had already told me a ton of misdiagnosis today. But in my heart, living thus nightmare, I believe it’s all connected. Viruses, Shjogrens? Etc. EBV. Other syndromes all may be involved. So happy reading because they have new stuff everyday. Also all of Barby Ingles books! She was treated by Schwartznan who pioneered Ketamine infusions. My daughters doc studied under him and gave her all her Ketamine infusions. Not much help.

REPLYSHAREREPORT
Was this helpful?     0     0  


Viewing page 1 of 1     Reply


More Discussions:

RSD/CRPS meds
I am taking neurontin 800mg 2x's a day, amitriptyline 50mg at bedtime, indomethacine 50mg 3x's a day and tizanid... 17 replies
i have rsd crps and am taking belviq isthis okay
Can you take belviq with rsd/crps?I have been taking this med since nov 2013 ## Hello, Nick! How are you? I'm very s... 1 reply
Cymbalta for RSD/CRPS
I am in the later stages of RSD and have tried ALOT of Rx that haven't helped. Has anyone else taken cymbalta for RS... 40 replies
23 yrs with rsd n crps
How is hydramorphone and/or oxy hcl ir if I've been on MSIR 30, oxy 10/325, valium 10 3x day ## Hello Billy! How are... 2 replies
Need a pain med for Chronic pain from CRPS Type 2 that does not contain TYLENOL
Hello..I have Crps type 2 and take Norco 10/325....Is there any other pain med that DOES NOT CONTAIN TYLENOL that would ... 3 replies
RSD and Itching - 80 on one side and other
Hi, I have had Avascular Necrosis, and Reflex Sympathetic Dystrophy (stage 4). I have implanted Pain pump that infuses t... 1 reply
RSD and Rheumatoid A.
I take Azulfidine for Rheumatoid A. but due to a severe crushed foot injury, I have now developed RSD/CRPS and am told a... 1 reply
my story of rsd the pain med s i take
I Have RSD - and a lot of other health problem's ! I was on loratab 10/500 until today and was told by my pharmacy t... 2 replies
Hi Im James And I Suffer From Rsd Have Now For 10yrs A Very Advanced Case Of The Past 3 Yrs Been In Clinic Tenn But L
Please if u see this pls post back if u can help. I was in tenn clinic for4 yrs and with new law they wont treat me bc i... 3 replies
2-PAM Chloride (Protopam Chloride OR pralidoxime chloride) for injection for RSD
Can anyone tell me if this has been used for treatment of pain due to RSD (Reflex Sympathetic Dystrophy) or CRPS (Chroni... 3 replies


Post a Reply

No registration needed.
Simply fill out the form below.

 *

 *


 Optional, stays hidden.
Get notified when a reply is posted here.




4) Text Verification: *
Prevents SPAM.

Click here to show the question


with the privacy policy (20191231).


This form will be submitted securely


TRUSTe

Discussion Thread Guidelines: Any participation in the discussion threads signifies your agreement with the Terms of Use and Privacy Policy. (1) Act civilized and be respectful towards others. No profanity, vulgarity or lewd / suggestive content is allowed. (2) Posts encouraging, facilitating, or seeking advice about the abuse of medications or other substances are prohibited. (3) Personal contact information (such as telephone numbers, email addresses, etc) is not allowed to appear on our discussion threads. (4) We do not allow our forums to be used for buying, selling, trading, or for the promotion of a product or service. (5) Posting external links to other web sites is not allowed without our prior approval. (6) We reserve the right to edit or remove content which we find objectionable to the community at our sole discretion.


Note: All times displayed are GMT - 7.

This information has been independently compiled and is for informational purposes only. It is not intended to be a substitute for medical advice from a qualified healthcare professional; nor is it intended to diagnose, treat, cure or prevent any disease. For more details please see the Medical Disclaimer. This page was last updated on 29 July 2020.

We are committed to your privacy.

Copyright © 2005-2020 All Rights Reserved. MedsChat® is a registered trademark of Limelight Innovations L.L.C. 9888 W Belleview Ave #5000, Denver, CO, 80123, USA