Oxycontin Damaged My Teeth (Page 26)

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Has anyone else known oxycontin to rot the teeth? I used to be on vicodin until my doctor told me I needed to switch to a morphine based meds. She put me on ms contin but I had problems with it so she put me on 80mg oxycontin. Eventually my body built up a tolerance so she kept raising it, i have am now on from 4-6 per day of the 80mg tabs. It scares me that this is what rotted my teeth because only 5 yrs ago i had only 2 cavities that needed filling and then only 1 yr after going on the oxycontin i had to have all my top front teeth pulled as they where rotting from the inside out the dentist said my mouth looked like a heroin addict's mouth looks. He said it was shocking to him that normally he only saw such damage from someone who abused drugs with so much dental damage, but i have never done any street drugs and have only take my meds as prescribed to me. Now i have lost 80% of my teeth and as a beautiful 41 yr old mother its devastating. I cant afford dentures and sure cant afford implants like i would like to have. I am a single mother and refuse to date because i have lost my teeth now, i had beautiful teeth before i started on the oxycontin and only 2 small cavities that needed filling. Does anyone else have this same problem and if so why hasn't the company making oxycontin warn patients of this possible problem?

If i had known this would cause me to lose most of my teeth i would have never agreed to go on it. Of course my family doctor who has been prescribing them tells me she hasn't heard of any other cases, yet when i researched the med online there where others like this why hasn't something been put in the warnings about this med, i sure would have preferred to have lived in pain the rest of my life rather than lose my teeth and be unable to even eat now. My health has gone downhill fast as i cant even chew foods necessary for good health. All I can eat now are yogurts, and liquid type of foods which isn't much. My kids are 7 and 9 yrs old and they watch me cry when we go out to eat and they order steak, and i can smell it but can't order one as i know i wont be able to chew it. This is so devastating for me. I want teeth so badly if i could wish for anything in life besides not to be poor anymore it would be to have a full set of real teeth or implants but i could never dream of having them, and i don't know anyone out there willing to just help me get any either. I have always helped others all my life, but cant even help myself, i have had to have 29 surgeries now since 1991 when a drunk driver hit my car and caused me major injuries with my lower back and knees, i have had a full lower back fusion and 8 arthroscopic knee surgeries until a year ago they finally had to do a full right knee replacement and now they are talking about doing my left knee soon.

So my life has been up and down with surgeries and i would go thru one more surgery just to have teeth implanted if i could. but i could never afford it, but i would like to know why these drug manufacturers are making a medication that could cause teeth to rot like this without warning us patients or even warning the doctors about it. This is just terrible of them i think, as now i am the one paying for this by having no teeth to eat with at such a young age now. I am a vibrant young 41 yr old at 5'3, 120lbs, slim woman, nice looking too as i was a model in my younger days, so i keep my looks up. But to have no teeth now... I never smile anymore, I am to ashamed to smile even though it wasn't my fault i lost my teeth. I think they should pay for me to have new teeth but no one wants to admit that the med causes it, but my diet wasn't the problem back when i started the medication and i wasn't drinking coca-cola either or doing street drugs so i know that wasn't the cause either. The only thing that changed within one year to cause this was starting the oxycontin medication. Well, if anyone out there can help me let me know thanks.

771 Replies (39 Pages)

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501

Ali,

To obtain disability you must have BOTH physical and mental disability. She must require assistance with everything (ADL's) and when you do her interview NOT in person have them do appointment with you on telephone.

Yes prior with my referrals I had a 99.8% rate of approvals without denials on SSA disability applicants. I always empower my pain clients when I did my groups but when you go for SSA benefits you CANNOT function without assistance.

She cannot shower alone. She does not cook. She has limited activities. She may have suicidal ideation due to pain and also her facial appearance. She avoids social situations. Memory issues, perhaps bursts of anger and inappropriate responses (socially in school with others). She will likely if we can get her through be sent to a psychiatrist for a full overhaul. If you get to that point I can further give you some ideas on what to do.

She cannot show independence. I presume she will be going of your benefits or your husband. This can be lucrative and helpful on regular SSDI she has a right to these benefits. Further if you are eligible for Medicare due to her age she should grandfather that and also Medicaid depending on your state.

Hope that helps a bit sister <3

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502

Yes, Mailman, but until you brought it up I just chalked it up to getting older. When I started thinking about it, however, I realized that it started maybe within a year or so after I was on the opioid program. I've never had a very good memory but it was mainly my long-term memory and that's been almost all of my life. My short-term memory has never been an issue and "you're" the first place I've ever admitted this. It makes me feel better knowing that I'm not the only one but also scares me to death that it could get worse and potentially lead to early onset Alzheimer's or dementia. Thanks for sharing this with me/us and I'd be interested to find out if anyone else has noticed this but never made the potential connection. Be as well as you can be.... Christine

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503

Mailman,

If you have brain inflammation because pain truly has not been relieved by opioids yes this can occur; it can also occur as side effects of the medications. It is important to do things to encourage brain function.

Reading, talking or conversations, crossword puzzles, card games, shopping, games on the PC, etc.

You literally need to exercise the brain. Also proteins are needed, we in pain burn them up.

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504

Mailman and Christine,

Aside from the brief explanation given me I've always had photogenic memory (yeppers) and Dr. Famous was telling me early onset dementia due to intractable pain is a potential or possibility.

But if I do not die from lack of a new physician (going on 10 months now at so reduced level that the Central Pain can kill me) I have always advocated FORGETTING diagnoses.

Short story a woman in her 30's I noted from a work injury 12 years ago (Ohio) was symptomatic for RSD. Sure enough I wrote her an assessment and her physician diagnosed the RSD. Prior to her injury no medical issues other then typical female ails over the years. This woman within 8 years had a central line, every hormonal deficit and disorder (thyroid to premature menopause to renal failure), and I kept saying "B--b stop thinking about all of this please let this go," we were doing this relaxation technique (one of my little research studies) where you try to relax the mind (about one hour per day) and let this all go.

When we focus on "what is wrong what is wrong" there is nothing right you see only the end...

I purposely stopped remembering my diagnoses and started (and this is not denial trust me I'd carry my brief medical history around just in case I crashed somewhere, took my pain medications saw my PM) but it hit hard when the one doctor I swear by in Houston died suddenly after 10 plus years on my case. I got sent out to Dr. Famous in California and the interim local PM a kind woman who stepped in and wrote one month for every patient of the deceased physician so no one would die (we lost 3 out of 297 they could not fly in they were not due and expected medications to ship from their pharmacy and would have to come in for this face to face) but now everyone wanted everything, and Dr. Famous informed my insurer for comp that she is a very rare case she is a "high death risk" and for the next year I felt like I had head first done a dive into a pool without water.

This guy did not empower us he wanted us to be slaves.

He did not have a heart; Joel was a psychiatrist for 40 some years and a PM for over 20 years.

He was manic and cruel at times; when my adult daughter died unexpectedly I was glad one of the residents training in his clinic was there for me this Dr. Famous had no children adored his little wifey BUT no feeling or emotive value.

Towards the end of the fifth year he'd give me a hug but blaze through yelling at some of us any of us like I've told many there aint no luck in being there other then you're another lab rat tested for cures for intractable pain.

So getting back to what I really meant sometimes its good to forget how much pain we have and why and just live...

By the way gang I must have brand Duragesic and after this many months and reduced dosage I was nailing the coffin the past few days. Well I've been tried on generics so have some expired (Watson two years and they have the lowest Fentanyl level the FDA allows generics to be 42 to 47% less opioid that's why they do not work as well) and anyhow forgot that IWP had sent me these little snakey Mallinkroft which are only expired a year and in all my dragging around know they were not over exposed to travel heat and so forth. Well the P450 gets to change them every 24 hours (rapid time and metabolizer both) so decided since I do not have an official physician yet (I'd like the one who wrote me a now script in Houston but he is having health issues but he is very kind and smart too and only 40) I'd try one. Now Mallinkroft is only 11 mg. Fentanyl compared to Duragesic at 16,7 mg. Fentanyl for 100 mcg/hour but I already stopped the 100's. I got down to 75's and of course being on patches for over 15 years do not have lower levels laying about but...I've been keeping on one old from the day before; post shower one new (went into renal failure after the last cutback a few months ago) and so far so good I'm still here. I usually do my second around dinner hour and that is anywhere from 4 to 5 p.m. CST no shakes no gags no anything if this is the case I may have enough to hold up while the i****s I just won against (comp) go through the appeal they are doing to try and hold up more on my medications.

My normal medication bill was running $25,000 a month. But the way I see it is I did not ask to have a legitimate workers compensation injury that destroyed my life and profession--initially we do and must rediscover a new role but many of us have divorce, loss of friends and so forth because the disease of PAIN isolates, alienates, and creates prejudice. Under Odumma we are literally lined up for his firing squad but he's almost goners and when that occurs let's hope for an old fashioned American and restore freedom and our Constitution after all we are the best...

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505

I too feel your pain I was prescribed 240 30 mg roxycodone for the last 8 years im so embarrassed to smile cause all I have are 6 teethe in the front. It sucks they should have a warning cause they eat them away from inside out. Keep your head up. Im getting implants on a payment plan you should check in to it. You sound like your a beautiful woman inside and on the outside dont let no one put u down over it im only 34 year old male. But they do need to warn people but I would of much rather not been in pain.

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506

Riley,

Good for you. Tell us more about how you arranged the implants. I think it will help others.

Thanks,
P450

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507

Hello, I am also interested in the Wednesday chats. Can you tell me how to join?

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508

This information is very helpful. I also had tooth loss, from decay and dry mouth. I am on OxyContin bid, and oxycodone bid. Also gabapentin 600 mg bid. Even though I take all of these medications it still does not relieve all of my pain. I do not want to take more. I've been asking my PM about my memory loss, I've been told that usually these opiates only effect the memory at the beginning of usage. this was not the case for me. I am having short term memory loss and long term. I recently signed up for SS, I had neck surgery ACDF, on 3 levels about 2 years ago. It did help only with my radiculopathy. Since then, I have pain all over my body. Not just in the neck. My pain level in my thoracic region is off the charts some days. I am wondering if my diagnosis may be RSD? Does anyone have any information on RSD?

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509

You can create a 'fund me' account and have friends and family donate. Anyone can do it.

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510

I think Angela castelanni is looking for freebies do a Google search she from Michigan an has her pic attached to almost every post she ever made if not her her sons are being propped up beggin for everything from clothes to teeth to food which she can't eat cause oxy rotted her teeth out but she got reviews posted on four square talkin bout eating calzones to with profiles so sad according to her the whole family is disabled even though I don't know how much beta testers make she definitely on the take cause she shadey

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511

I need to get off a very high quantity addiction of Oxycodone. I will run out of my pills soon with only 25 left. What is the best way to start the withdrawal and how should I manage the pills???

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512

I'm in the same situation. I used prescription pain meds for 12 years and as a result I have lost all but 10 of my teeth! My teeth were beautiful before. I'm in the same situation as you. I can't afford Dentures either. I feel alone and ugly. My self esteem is gone. It's a sad situation to be in.

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513

I feel your pain. I'm in the same boat as you. It hurts not to be able to smile. People don't understand. I do. I would love to have my smile back too.

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514

This is happening to me too, we all need to come together and file for litigation against these greedy pharmaceutical companies, I don't have insurance and have to pay out of my ass to loose my teeth from them, I too have beautiful teeth and they are rotting from inside out, one by one. These companies make billions on us, they need to be responsible for the undisclosed damage they cause! Most attorneys won't take the case, bc it's not a slam dunk case that there paralegals can't just shuffle the paper work around to settle and take nearly half your money for basically doing nothing, so they are quick to decline you. But if we all come together and link these findings with professional help and legal action power, we may have a chance to regain some of our money list in repairs as well as compensation for the loss of our dignity and esteem from the problem these damn pills cause. We are usually looked at as low life's bc we are trying to help ourselves feel better and function in life, but the drawl backs are and can be too much to handle and afford. I'm not real comp teck friendly, but can comm good in person, or on phone. I want to form a support group as well as find legal help to get want we deserve from these evil pharmaceutical companies!!

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515

That, my friend (Emerson), is the true challenge; trying to find a lawyer or law firm who will take our case, most likely for a fee, much less pro bono! I've been on this forum for quite sometime and, so far, NO ONE has stepped up to do just that. The problem, in a nut shell, is that the big pharmas have an army of high priced law firms specifically hired to protect them like the whole lot of us! And, there aren't any lawyers, or firms, who have the resources to fight them. As passionate as I once was about filling suit against them, I've had to get realistic real fast after trying (along with many of my comrades on this forum) to do just that. I hate to be so negative that such a suit will never happen, much less be won, but I'd be thrilled if someone were to prove me wrong! Bless you all who live in pain. Christine

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516

They do major damage. I was on Roxys for a year and two of my teeth cracked. I had perfect teeth before.

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517

Yes, I have the same problem, the dentist looks at me funny & my teeth keep rotting out too. They say it's everything else except the pain meds. My teeth seem to be rotting from the inside out too. It's like we are stuck between a rock and hard spot - Angela! Wtf do I do & no one says that oxycodone will rot my teeth but it's got to be the something to do with it. Guess keep having them pulled out and keep adding teeth to my dentures. I also having been dating cuz I don't want her to see me take my dentures out at my age and she never called me again! I get asked out all the time, they think I'm gay I guess. Tooth pain is just as bed as the back pain, now heart pain wtf! Go see another doctor I guess???

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518

Pls let me know if you file one. I've lost almost all my teeth as well. I'm still taking Oxycontin for my pain

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519

Yes I took oxycontin 80mg 4x a day for many years and my teeth did the EXACT same thing, rotted from the inside out. They just crumbled apart as if made of clay instead of bone and, I had perfect teeth ALL my life.I'm now 40 and have no teeth just very painful black stumps where teeth USED to be. It has made me SO UGLY I haven't left my house in 4 years cuz I'm too ashamed of my UGLY face and my disgusting mouth. The physical and emotional pain has made me suicidal. I'm on ssi disability which provides me with Medicaid and a very small monthly check. Medicaid doesn't cover dental and my tiny check I get each month is nowhere NEAR enough to cover MAJOR oral surgery and full dentures.
So it looks like my "face" (or what USED to be a face) is going to be made grotesque by my disgusting mouth till I finally die because I have no recourse.
I have self isolated for so long I have developed extreme social anxiety so, I'll be camped out alone in my room till I finally die too.

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520

Christine, I have a plan that at this point, seems to be our best bet to date? Although I will need your help as well as help of others in this situation. My plan is to bring our problem national attention threw the media outlets, and national coverage of our story, and hopefully position it as a David and Goliath metaphor ?! And if we are lucky enough to get the major media attention, they will need more people to interview and show, not only what I'm going through, but you and many others that are having this similar problem and can't do anything ab but b**** to each other. The media loves a good big bully victimizing innocent people that already suffer w pain and financial problems just buying this medication without health insurance and even people that have it, but still live with fact that there teeth are falling out as a direct relationship to this undisclosed side effect that is causing shire hell on people's already hellish pain. If I can get them to listen to me, I I turn will need as many of you for them toisten to as well ? The more of us the better. Once they hear our story, I am hoping, either drug company will start settling our cases on a individual basis or a big name attorney will hear it as well, and be motivated by either shear compassion or money, to fight for our cause? Either way, it's only chance I see us having at this point? I am asking , once I can show and prove, that I have someone interested in doing a news piece or even story, that you and others will provide a way either me or they can reach you for a interview or possible tv footage of our story and problem? This would mean, possibly showing our faces and voice on camera, and giving our feedback and story?? I think it's our only chance and it just may work??? Tell me what you think, as well as anyone else interested in my ideal?? Peace and love, happy holidays to all, Emerson, for now

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