Accutane Long Term Side Effects (Page 94)

I have a son that took accutane 60 mg a day for six months in a row three years ago. Now after many trips to doctors over strange medical problems, it seems accuatne is the culprit medication that has caused servere joint and muscle pain, severe dry lips, redness in face, eye infections of own immune system attacking itself, systems of osteoarthritis in both shoulders, both wrist and right hand, blood in stool, possible hair loss, abnormal liver function test results in AST and ALT. My son went from being a high school football and track athlete while taking this medication three years ago to someone that is in constant pain just washing a car. After I have researched this drug extensively, I can't believe that the FDA allows this drug originally made for cancer patients to be marketed for teenagers with acne. All one has to do is look online what vitamin A overdose does to someone and then you have the results of what this medication has done to my son. This drug needs to be taken off them market ASAP and the drug companies that make it need to compensate all teenagers that they have possible ruined their future. Shame on them! What is going on here?

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Why would you be here visiting this page if everything was alright .....except to promote this drug ? Out of all the people around me that took accutane, 100% have permanent side effects years later (me included) and it will be worse with years. Most of them have aged prematurely , have stomach problems and very dry eyes 20 years after taking the drug. I would say the lucky ones are those with a very oily skin. Talking about myself, i had depression straight after ending accutane. and still suffer from this. But except that, everything was ok. Unfortunately side effects started to show up noticeably 10 years after taking accutane. l lost my hairs , have severe dry eyes, lung, nose, throat...everything is so dry. my skin looks so old.....my stomach burns, my bones are very fragile. Because side effects start to be very noticeable only after 10 years many people won't relate accutane with that....that's why doctors think that not anyone has side effects. Unfortunately...this is wrong.

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Hey it been a year later since i too acutane and ibeen getting a geographic toungue too i am scared i been trying to figure out if this acutane is the cause

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I am 37 and took Accutane when I was 19. I dealt with constipation, IBS and infertility for a decade. At 30 I became so ill with abdominal issues and severe headaches and joint pain. They figured out I had leaky gut syndrome and a bad candida yeast infection. I could no longer tolerate gluten, dairy, or yeast. The leaky gut and infertility definitely due to Accutane. You should see a naturalpathic doctor. Mine saved my life. Research leaky gut syndrome. Oh and Accutane has been linked to ulcerative colitis, Chron's and other issues. Luckily I don't have those, but I continue to have unexplained abdominal pain all the time. My digestion is all messed up. Still chronically constipated. I too had the gall bladder removed at 24 because of a stone. Now I'm showing signs of Sjogrens. Got to get tested for that next. Accutane wrecks us!

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It's quite a notion for everyone to believe that Accutane is for sure the main cause of their GI problems. Many people have similar problems who never went on Accutane. Diet , lack of water, lack of fiber can be factors too, and antibiotics can cause significant gut symptoms that may be persist for a long time. I think there are a few people in denial when saying Accutane is EVERYTHING that created a problem for them.

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But! I am not saying it isn't harmful to your gut that is a fact. Just that in many cases things snowball if the gut doesn't repair which it is able to, but lifestyle gets in the way. No one to blame.

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I was on accurate for 6 months when I was 29. I am now 46. For years I have had what doctors have always suggested as bladder infections and blood in urine. I am curious if this is experienced with anyone else out there?

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My son is 19. Had severe acne at 15 and we tried everything to avoid accutane. He needed relief and several trials of accutane cleared him up with minimal side effects at that time. He has some acne back now at 19 and some lymph node inflammation; some depression; other things going on and I have wondered if some things he never tells me about. I'm a nurse and researched all that I could about accutane. I am afraid I did the wrong thing. This drug is so harsh and with all the politics behind meds, there is no real protection. When acne is cystic and severe, something has to be done...my son is the gift in my life and I'm worried something is wrong. He also has some hip issues that developed, I believe, as a result of accutane. He was a happy 13 y/o...he is doing well in college now; loves writing rap; he is a good young man. But I am very worried accutane has done some harm. I relate to what you are saying. Look up acnepractice.com for more natural interventions. We also were involved with that....

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I too wonder and stress every single day if I did the wrong thing by putting my son on Accutane. He has been off of it for 18 months now and is 16 1/2. He was 15 when he started on it and begged for it because it was supposed to be the miracle cure to acne. Not only was his skin slow to react (he still has acne but it's better), he experienced severe irritability and depression. He confessed to me after a few months off of it that he cannot feel it when he has an orgasm. I'm certain this was extremely difficult to tell his mom. Pediatrician said it was all in his mind, eventually sent him to a urologist who ran a few tests and said they were normal..go see a psychotherapist. He did that and is still not better. Took him to another urologist....normal tests and now waiting for an endocrinology and neurology appt. He thinks that this is going to ruin his life and is devastated over it, as am I. I would do anything and take him anywhere for treatment. He is a gift to me and all I want is for him to be happy. Anyone reading this and has answers or suggestions, please reach out. Thank you.

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Accutane causes Degenerative Disc Disease(which I was diagnosed with after a scan) in the back according to my back surgeon.

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I tested negative for bladder infections for over 2 decades. Finally, a urologist diagnosed me with Interstitial Cystitis, which is inflammation, not an infection. I believe it is a similar effect to what happens to Chron's disease patients in the GI tract. Of course folks who took accutane and developed Chron's had a legal case against accutane and won. So, I'm awaiting litigation for Interstitial Cystitis, which has left me permanently disabled with multiple debilitating illnesses which began after accutane.

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I took this poison in 2009. I'm almost 28. And still have issues to this day. I have facial flushing dry dry eyes skin nose mouth scalp
Sleep issues, Cold extremities, Acne comes and goes. I have to apply olive oil all over my face and it's still dry. I scrape it all the time.
Restasis failed and xiidra doesn't work. Eye plugs. Sjorgens was told I don't have every symptom yet. I'm a male mind u. Spent 6 years housebound after this drug. Was told I had thyroiditis from an ultrasound in 2013. Levothyroxine made me go from 150-119 pounds, so I stopped that med and was told my thyroid was normal lmao. Medical mystery. On a gluten wheat egg dairy free diet. See no improvements 4 months into it. I am depressed everyday and anxious OCD bdd now. No meds work. I've been on soooooo many NT to mention I refuse to have more issues from meds. I think we should all meet up and ambush the Accutane company and force them to do something. My heart and gut says nothing will ever get better. I mean the older you get the more u age. Pray for all of us, this is bulls***. And I'm sorry so many of u have lost lives or know ppl who have took their own life from this poison.

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Hi,

I would appreciate any helpful feedback on this issue of mine. I am a 31 year old male who has been on 2 courses of Roaccutane in my teens. Once at age 16 for 9 months and then again at age 18 for 10 months due to a relapse in acne. It was terrible. Doctors told me about the dry skin and dry lips. Sick joke. The first course I was at school and I almost failed that year because of depression etc. The second time was after school and was horrible. Lived like a hermit for all 10 months with depression and too scared to show my face. Looked like i had a terminal illness.

In the last 11 years (2005-2016) I have had many health problems. Depression, chronic nocturia, insomnia, brain fog, social anxiety, fatigue, aches and more. My life has been hell and difficult to live.

Is it possible that the 2 courses of this drug could have stuffed up my neurological system/liver that could have caused me to have these issues?

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I feel your pain. Although I always had anxiety before this drug, it's nothing like I do now. I have to say I feel my mental and isolation drf stems from this drug. I look so different now and feel different.

What side effects do u have still? Some stuff can improve mentally.

I've had Insomnia myself for a decade now.

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Watch the liver. It contains a lot of vitamin A which after Accutane with its perverted vitamin A can really mess you up. Vitamin A from veggies seems to be allright. Polar explorers got sick and died after ingesting polar bear liver.

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I have been on roaccutane/accutane 2 times. Once for 9 months at 16 and then again for 10 months at 18. Had a very dysfunctional life since then with depression, anxiety, insomnia, nocturia, high intolerance to medication and so on. I wonder if it played a role.

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My daughter took Accutane in the med 1990's for severe acne. Everything else failed, antibiotics, facial creams, and the list goes on. She began talking about suicide asking me if she tried to kill herself would she end up in a certain hospital. Let's fast forward to 2017. She is now 32 years of age. She lost twins with a tubal pregnancy, she had a partial hysterectomy, countless miscarriages, gal bladder removed, near appendix rupture, and now a tumor on her liver. She can't afford the needed surgery so here's another prescription for pain. Gee doc another prescription drug addict is just what we need. My heart aches as I was the parent who took her to the doctors every month to get the blood work and needed pregnancy evaluation. The after effects long after taking this chemotherapy pill is dangerous. Stay away from it.

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Wrong, the information wasn't on the internet in the early 90s. Hell there was barely any internet at that point.

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Yes, probably you are suferring long term side effects. You will find a lot of information and other people with the same problems that you described in acne..rg. Look for a post called "Repairing the long-term damage from Accutane",

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I totally agree with your posting. My 17 year old son started taking Accutane in November of 2016, in which he would experience severe nose bleeds, joint pain and by February 2017 he was having severe panic attacks and severe sadness. He never had any problems before this. He is a very good student, no drugs issues, athlete, loved going to school until now, in which he has severe panic attacks, feels sad, experiencing panic attacks, and he has missed 21 days of school because of these symptoms. I am a nurse and I have researched everything from vitamin A toxicity and Accutane is a derivative of vitamin A. Doctors keep telling me the drug should be out of the system but if it is a derivative of vitamin A, vitamin A stays in the liver up to 300 days. This drug caused this I know, even during his panic attacks my son said it is the medication because I was fine before this. Thank God he was only on it for 4 months!! If your child is experiencing these symptoms stop the medication, stay away from vitamin A for a little while, get them some psychiatric help, have them drink 6-8 glasses of water a day and don't take supplements for about 6 months. I wish I would not have let him go on this medication and the FDA needs to reevaluate this medication because it does cause chronic issues to these young teens and young adults!!!

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Hello, As you have heard everyone reacts differently to medications, but, I highly recommend that you do not take this drug unless you will be permanently disfigured from your acne. Myself and two children took this drug many years ago and we all suffer from permanent side effects. This sad thing is no doctor will admit it is from the accutane. My daughter, myself and son all suffer with constant neck pain and stomach issues. We all receive chiropractic care and my son and daughter periodically suffer, from vomiting, diarrhea and stomach pain. When my daughter went to the emergency room because of blood in her stool and severe stomach pain, they told her she must have ate some bad food. Was that possible, sure but her husband ate the same thing and was fine. Personally, I don't think enough research was done on this drug and doctors certainly don't educate you, they are only there to write the prescription.

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