Accutane Long Term Side Effects (Page 93)

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I have a son that took accutane 60 mg a day for six months in a row three years ago. Now after many trips to doctors over strange medical problems, it seems accuatne is the culprit medication that has caused servere joint and muscle pain, severe dry lips, redness in face, eye infections of own immune system attacking itself, systems of osteoarthritis in both shoulders, both wrist and right hand, blood in stool, possible hair loss, abnormal liver function test results in AST and ALT. My son went from being a high school football and track athlete while taking this medication three years ago to someone that is in constant pain just washing a car. After I have researched this drug extensively, I can't believe that the FDA allows this drug originally made for cancer patients to be marketed for teenagers with acne. All one has to do is look online what vitamin A overdose does to someone and then you have the results of what this medication has done to my son. This drug needs to be taken off them market ASAP and the drug companies that make it need to compensate all teenagers that they have possible ruined their future. Shame on them! What is going on here?

1933 Replies (97 Pages)

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1841

KJB- The problem seems to be dermatologists downplaying the potential risks as being associated with Accutane, but not being a result of Accutane, in the reported cases of many side effects. There is also the grievous misconception that one must simply stop the drug and side effects go away. ...This isn't fully explained in the warnings.

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1842

They give you all of these warnings before you start the drug. The doctors are very in depth about what it could possibly do to you. You take it at your own risk. As for all the pain I ass will had it all. I took joint pills and creatine and it helped a great deal. It made me not able to work out hard anymore, I was in so much pain and this made it better.

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1843

Is anyone experiencing liver/gallbladder pain?

Hi. I've been off accutane for about 9 months now and only took it for 6 weeks. I've had lots of problem come and go, usually on a rotation, stomach problems and muscle ache and fatigue persist. Recently, I started getting liver ache. Started in a gallbladder area and now it is all over my liver, turning around my rib cage to the back, back hurts as well. I've had liver function test done a few month ago, all normal, and now waiting for an ultra sound, but it's taking ages. I have a very healthy diet.
Does any of you experience liver area pain. Is it inflammation?

Thanks a million

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1844

Hello, I just wanted to share my story with accutane to spread the word on it's side effects because I wish I had done further research before I took the drug to clear my skin. When I first made the decision to go on accutane I was aware of some of the possible side effects, I went to a dermatologist at the sunshine coast and he told me through his ten years of treating patients with acne he has only had 7 patients with minor side effects and that the odds were in my favour of my acne clearing up with the only side effect most likely being dry skin. I was on accutane for 3 months taking 20 mg per day after three months I got pink eye. After that I took a break from accutane however the problems continued with back aches and head aches so I kept off the accutane. My dermatologist tried to convince me it was unlikely that the accutane was the cause for my pink eye however I made the decision not to go back on accutane. Even after I stopped the treatment my problems continued with stomach problems, bloating, extreme fatigue. 6 months after stopping accutane and I still have these problems although with healthy eating, plenty of water and vitamins they are very slowly easing and i hope they continue to do so. I believe with every ounce of my body that accutane caused these problems and that accutane is a form of poison that dermatologists are making profit from, and making it at the expense of your health and well being. I consider myself lucky that I wasn't on the accutane longer and my prayers and sympathy goes out to those who have had far worst problems than mine that I have read about on this page and other sites. Basically the chances are accutane will cause you problems. Ones that will surface even possibly only after you have stopped the treatment. And don't believe your dermatologists so called "statistics" because there are far more people that have suffered with side effects from accutane than you realize. It is literally poisoning your body to achieve clear skin. And I know how hard it is living with acne, but please don't destroy your health in the process of trying to gain clear skin because accutane is nothing but bad news for your body it will slowly destroy your health and immune system.

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1845

My son took Accutane for 6 months when he was 15 years old and yes it did clear up his acne. He is now 20 years old and feels like he is 50! He too was an athlete and straight A student before and for years has complained of fatigue, weakness in his muscles no matter how much he works out, erectile dysfunction, low testosterone, depression. After Accutane he seemed like a different person-exhibited OCD like behavior and has trouble concentrating. Does anyone have a doctor that understands the long term side effects of Accutane and can help him? I know there are legal cases for the IBS that it causes but what about depression, ED and OCD? He/we implore parents to not allow your child to take this drug.

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1846

I was prescribed Accutane at age 11, and truly believe it caused me health problems years later. I was not told about the possible psychological effects and had a family history of schizophrenia to start. For years after taking the drug my skin was constantly pink and super sensitive. It looked like a sunburn that wasn't going away. The derm was just like wow you have dry skin! and didn't even seem concerned. It was so bad. A few years later I ended up with pretty severe anxiety and depression, so bad I had to drop out of school and homeschool. Im convinced it is what lead to my IBS, I literally can't eat anything without feeling yucky. To top that off, after years of clear skin out of nowhere I got cystic acne in my late teens. Im having to do the work now to clear my skin: Diet, stress relief, hormone balancing with a naturopath, and high end skincare. I would give any $$$ amount to go back and never go on that drug!

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1847

Hello I just read your post about accutane and Sjogrens and think I am in the same boat. I took accutane at age 26 because I was getting large cysts. Then around age 27 so after the accutane my contacts felt dry and that progressed so that age 29 I was completely debilitated by the dry eyes. Now I am a 58 year old female who has tried everything. Plugs at first then went on to have all 4 tear ducts csuterized just had Lipiflow a month ago seems to be kicking in. Would love to hear about other accurate users with permanent dry eyes. But it could also be upsetting. Did anyone else develop dry eyes AFTER stopping accurate?

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1848

HD, get an ultrasound of your liver / gallbladder & take milk thistle or Shisandra. Drugs can affect the liver, these help it restore itself after the damage. For anyone taking this drug! But don't take it while on the drug cause it'll clear it out of your liver too quickly, and make taking the drugs a little pointless.

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1849

Yes you are . Please do not go on this drug ! Listen to what everyone is telling you . It will affect your life in ways you haven't even thought about , years down the track . Trust me , it's just not worth it . You will regret it !

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1850

Give it time , it's coming . Sorry !

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1851

Sorry to be the bearer of bad news but give it time , it's coming . I haven't came across 1 person that hasn't had side effects from this drug , eventually .

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1852

Sorry to be the bearer of bad news when it comes to Roaccutane but give it time , it's coming . I haven't came across 1 person that hasn't had side effects from this drug , eventually .

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1853

I'm afraid we're talking about 20 yrs or more when this ' wonder ' drug came out . There wasn't the same technology around then as there is now , to be able to do research on . Also if your child is 16yrs old they can go to a doctor of their choosing and not have to get your permission . When your at that age , all you care about is how awful your face looks , your not thinking about years down the track and all the side effects that will catch up with you . That's what's so good about this forum , we can warn the younger guys about the dangers of taking this drug !

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1854

I must say . If you tell someone they are going to get bad side effects, the stress of those comments if they are already on the drug has its own effects. Telling someone they are 100 percent for sure going to come out with serious health problems is irresponsible and incorrect unless we know their health personally. Many of us have had negative side effects and At some point we all learn from this mistake, I hope they get rid of the drug someday! But our role as adults now is to inform not force and scare. That has its own health effects. The mind is so powerful!

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1855

I have had two back surgeries more to come and every other bone problem osteoarthritis etc ..... Need a good lawyer ! do not go on this ever! someone please give me a lawyers name :(

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1856

You were lucky to have access to all that information . Many of us didn't and trusted our doctors and dermatologists . More full you !

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1857

Being seriously ill in every way possible from this medication for the past six years I am finally feeling a million times better. Some may not like how I got here but if it helps anyone this is how I did it. First I went on Citalopram which is an anti anxiety. I did this because the bodily stress I was under was causing me a lot of pain and this helped me start to heal in some ways. Then I stopped eating breads, cereals and anything with processed carbs. The only carbs I eat would be in some veggies after I cook them but no potatoes!! I started drinking lots of bone broth you can make it or buy it. And drinking raw goat milk. I go to the butcher and buy my meats lots of organ meats like liver and hearts are great for you. You can do chicken or turkey breasts and brats are great. It should only take a couple weeks to feel much better. I hope this helps! My email is {edited for privacy}.

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1858

Happy to hear you found something that works for you! if it makes you feel happy then I think it's great progress :) some people do very well on low carb diets! Not Impressed with who just shot you down for sharing

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1859

I have had the pain in the liver, stomach and back for many years after Accutane. Turns out it is gas trapped in the stomach and causes pressure on many organs. I have used inner filet organic aloe juice and it really helps gut problems. I am thinking that, all the tissues in the body are dry and the mucous membranes do not function properly. The aloe vera provides a slick coating and the gas is expelled more easily.

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1860

I should mention that there is also a bacterium that causes minute fractures of the lower spine and causes the low back pain. This cannot be determined on a regular x-ray. The bacteria is called P. acnes. It's hard to get rid of but taking Sulfameth & Tmp tabs or doxycycline hyclate are good for it. I would not be able to walk if not for these two antibiotics. The back pain in the upper area is helped with the aloe vera.

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