Prolia Side Effects (Page 29)
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I would like to know of any side effects others may have experienced after receiving Prolia infusions. Up to now I have none.

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Re: Gloria (# 2597)

Has anyone tried Pamidronate infusion? They have given me this instead of Prolia

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Re: Gloria (# 2597)

If we can't get it off the market, perhaps we can fight for prescribing guidelines.
Right now it seems like any doctor is prescribing to anyone with a low bone density, even Osteopenia, this seems like
a poor medical practice. When I was an active nurse, there was such a thing as:
Standard of Care.

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Re: sal (# 2596)

I agree with you, I had a friend that took it for bone cancer, when I compared the drug and it was the same one I knew this should be used for only cancer patients. Thanks, sal

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Re: Gloria (# 2595)

There are legitimate uses, for cancer or for people at very high risk for fracture.
However, they are few in number compared to the number of people for whom it is prescribed. There should be strict guidelines for prescribing this drug; but that would cut into profits.

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Re: Norma Yuce (# 2587)

I agree, they should take this drug Denosumab, marketed as Prolia and Xgeva, off the market, it is a cancer drug, a form of chemotherapy. As I have posted many times, it was and still is a nightmare for me. I am not sure my body will ever get better from the shots I took. A HORRIBLE DRUG!

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Re: sal (# 2591)

Yes, sal, you do have a right to refuse. I wish I had been told of all the many side effects of Prolia, drug name is Denosumab, alos marketed as Xgeva. It is a cancer drug, a form of chemotherapy!! As I said, I wish I had known before I took the first shot, it has been a living nightmare for me personally. Hope this helps you.

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Re: Maritere (# 2585)

Sorry you are so sick.
Have them check for parathyroid tumor! Worked for me. I'm much better except after some years still suffering damage to hip post Prolia.

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Re: Norma (# 2580)

I read that if you take Biophosphonates when you stop prolia your bones will not break!!

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Re: Sherry (# 2590)

I also refused another dose. This was against the Dr.s' advice, but I stood my ground.

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Re: Norma Yuce (# 2587)

You have the right to refuse. I did as bad side effects!

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Re: Judy (# 2588)

According to Save Our Bones, Big Pharma has been aggressively marketing( read spending $$ on physicians in Australia )so, for those if you in Australia, be prepared .... More profits over people.

There other interesting articles on that site today; I highly recommend it.

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Re: Norma Yuce (# 2587)

Norma, a bit of advice. We are in charge of our selfs and our bodies. We pay doctors for their help and advice but it doesn't mean we have to follow through. Probably in most cases the doctors are correct but not always. it is our right, if we're not sure about something to say NO. I didn't and to this day I wish I had had the wisdom and strength to do so. I read in our local Canadian paper this morning that Amgen Canada spends $10.86 million in payments to doctors and Healthcare organizations last year. No wonder some doctors are so eager to prescribe Prolia!.Mine was!

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Re: Maritere (# 2585)

Are you on Prolia, I am ready for my shot in end of July. am trying to find someone to take me off. I really like my new primary Doc. But I can see I am not going to get help from him Thought when I go in for my shot of not taking and talking to the Doc, I have asked him several times when I can come off , and keep getting never.
My daughter from Denver is coming in for my appointment She is so upset, Have been diagnosed with RENAL CYSTIC DISEASE now. No one in my family has ever had Kidney disease. Sorry to hear of your story, they should take this medicine off the market.

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Re: sal (# 2582)

I am beginning to experience the joint pain. I had an episode ( and they are increasing in number) where this incredible pain shot into the joint... it felt like lightening had struck. It lasted maybe 30 seconds, but it was excruciating and I was totally helpless. It just rifles through the bone. I am hoping this is a anomaly.

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Re: Norma (# 2580)

You have no idea how much I understand and sympathize with what you are going through! I’ve suffered so much from this poison called Prolia.... There is a Rheumatologist in my family who told me she does not offer Prolia to her patients at all for anything, given the risks involved and that I was very lucky to have experienced such a bad reaction from the first shot thus discontinuing it immediately. Despite that, on the 30th of june it will be 15 months since I had the bad idea of listening to my GP’s insisting recommendations that this would be a “wonder drug” for the osteopenia I had. I have been sick since, experiencing cycles of pain and illness that started with a serious type of cutaneous and vascular inflammation on my legs and arms followed by very swollen legs (diagnosed by a MD in another country, not in Canada, where no one of the MD’s I saw wanted to associate what i was having with this horrible drug—not even to establish an hypothesis). As such, I was diagnosed in another country as having Erythemas Nodossum, usually resulting from an autoimmune response to a med, This left me disabled (could not walk without help or a wheelchair) for a good two months. Had to be put on Prednisone decreasing from a 20mg’s dosage for several weeks. Shortly thereafter I lost 20 pounds in less than three weeks due to a Hyperthyroidism that I did not have before... For the first time in my life, my yearly biochemixal profile showed that I was also anemic, had calcium deficiency and high cholesterol! I, who had just turned 60, had a perfect weight for my size and frame with a healthy BMI, who was on a super healthy, well-balanced diet (and vegetarian since 2011)... who didnt drink alcohol, did not smoke and was at the gym 5/7 days a week doing yoga, cardio and weights.... Well... things did not finish there.... in July 2017 the cycle of pain and swelling in my legs started again...kept half of my days with my legs up and with an ice bag on each...In July 2017 I was also placed on Tapazole for my hyperthyroid and propranolol to control the shaking of ny hands caused by it....August was a weird month! Although I was very skinny and took me forever to gain back my weight...WOW! I felt well until mid Sepember... when at my daughter’s bday party everyone noticed my eyes were very swollen...Although the thyroid numbers were under control, I developed the eye iphtalmooathy associated with hyperthyroidism—Graves disease. If I had an eebemy, i could not wish this on them...Since September I’ve been suffering from not only an esthetic problem but a decreasing vision that was not properly diagnosed nor treated at home. Currently Im semi-hospitalized. In another country diagnosed with an optical nerve compression.... secondary to the Graves, caused by the thyroid problem, caused by PROLIA.... Thyroid disorders are autoimmune in nature. It is well known that Prolia causes it.

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Re: Hazlat (# 2583)

From now on, I only believe what I read on the Internet! There are legitimate uses for this drug; the best we can hope for is for practitioner to narrow the eligibility for it. That doesn't seem likely due to enormous profits. It is important that we educate others to do the research and be their own advocate.

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Re: Poodle (# 2576)

Hi , not just USA and Canada...add UK to that, thanks to this forum I refused the drug, but my consultant tried to tell me not to believe everything i read on the internet.....i do hope you all manage to get some relief and get this drug banned for all of us.

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Re: Diana (# 2581)

Well, I sure sucfeted from rashes and hives while on Prolia. Now, 1 1/2 since my last shot it has flared again; ing with the painful, swollen joints that I did not experience prior to Prolia. My Derm
was convinced I t was due to Prolia.

The good news is that my Cholesterol numbers are finally improving. This is something else I developed during Prolia. My Dr. advised medication but I refused. Finally, there is progress and she isn't urging meds.

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Re: Poodle (# 2576)

Poodle, do you know if eczema and topical dermatitis is connected to Prolia? I'm thinking really, only death may relieve us of all the possible symptoms. I'm looking but haven't seen the diagnosis of skin disorders like this associated with Prolia. However they are autoimmune - - so I'm thinking its entirely possible. The skin issues mentioned with Prolia are sort of like, will, the just drop "skin problems" and move right along with no details. Thanks. I was doing so well, sigh. I found out these issues have everything to do with inflamation of the liver and the nerves right under the skin, or so I think anyway from what I'm reading.

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I have taken the Prolia shot for 7 years now. Just had a CD of back because of severe pain. Every side effect has damaged my spine. FINDINGS: there IS PARTIAL VISUALIZATION OF A CHRONIC SUPERIOR ENDPLATE COMPRESSION DEFORMITY WITH APPROXIMATELY 50 PERCENT LOSS OF THE t11 VERTEBRAL BODY HEIGHT DEMONSTRATED ON CORRELATED CT OF CHEST DATED 11/30/2017. I had blood in my urine. I had a Doctor for 20 years who is the one that put me on it, reason I left him is because we never got to see him, just the physician assistant. After not seeing the primary care Doc. for 3 years, we had to leave. I have asked the Doc that gives me the shot of Prolia when I can quit, he said probably never. I read research on this drug after the awful pain I was having, then went to my family Doc. I think no one wants to tell me that when you come off of this drug, bones will break. What an awful thing to do to people. You must get this information out before it destroys others lives.

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Would like to know if anyone had side effects from Prolia but they went away - and how long did it take for that to happ...

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I had my infusion Mar 4 2015. I have experienced severe stomach pains, leg pains that wake me up at night, a horrible dr...

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I developed a red burning itchy lumpy rash after one injection of Prolia. Mainly on face neck chest arms scalp. Anyone e...

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I'm a 59 year old female, diagnosed with Behcet's Disease and I use Prednisone for treatment for my weekly flare...

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I am 60 yrs old and suffer from osteoarthritis, osteoporosis, and myofascial pain syndrome. After discussing with my end...

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I am 81 and had my first Prolia Shot May 7, 2015 and after three weeks I have developed a red rash looking sight UNDER t...

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Aprox 2 weeks after the prolia injection I started to experience nausea and weight loss. Also, loss of appetite and a ke...

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I am not going to have my next shot of Prolia due 11 June. I have already had two injections and lately have suffered ho...

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I am a 57 year old female who has -2.5 bone density scores on hips and -3.4 in the spine. I used Forteo for 2 years, but...

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What does the pharmaceutical people of Prolia advised regarding its side effects? ## Hello, Lala! How are you? They do w...

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