Please Help - I'm Falling And Don't See Any Help In My Future
(Newest replies first)

Updated

I'm a 50 yr old grandma with end stage renal failure! With that being said I also have chronic pain, slipped disc, a bulging disc, neuropathy, severe nerve damage in my neck and down my shoulder, severe hip pain in not just one but both hips now. I have been on pain meds for about 15 yrs....And always feel like I'm being judged every time I walk in the doctor's office! I figured I would change docs and started with a new clinic. The first few months was ok I guess...Then whammmy, he said I'm discharging you at this time because you came back with a positive drug panel for "6 mam" which I have learned is heroin! I have not ever seen nor do I have a desire to see it or do it!!! But now I am without a doc and my meds have run out. I stretched what I had for as long as I could! Now I'm kinda freaking out! I'm in severe pain, I'm a damn basket case (crying at the drop of a hat) just really depressed and lost! I'm always in pain anyway but my medicine made it easier for me to deal with it! I dont know what to do and need help fast!!!!

49 Replies (3 Pages)

Page:1Next PageLast Page
Earliest Newest Votes
49

michael h...i did finally get it! i did not initially because i did not want them to use that against me and insinuatr AGAIN that i was on heroin!!
i did find a doc temporarily! he believed me and iritated the same as i had been saying about the false + screen!!!
thank you too everybody that had kind words and prayers!!








=

Was this helpful? 0
48

My first reply was to to advisde you to get Suboxone for the withdrawals. I don't know how old this message is but if you are going through withdrawals Suboxone does miracles. then three or four days later stop. Again I am in your prayers and I hope your doctor wakes up to his the torture he out you through. HE IS AN A##hole.

Was this helpful? 1
47

Best of luck, this nightmare could happen to anyone of us at any time. I will set aside sometime this evening to do a focused prayer for you to have a positive outcome. Keep us posted.
Best Regards,

Was this helpful? 0
46

I just went to request my record's, HE GOT SHUT DOWN!!! HE CLOSES THE FIRST OF OCTOBER!!! Still does not help me any, and I have not been able to find another pain doctor. I went to one and he refused to even see me, due to my old doctor! I do not know what I am going to do. I have ANOTHER surgery for major nerve damage in my arm on the 15th, but the surgeon does not seem to know who to recommend me to after the last PM doctor refused to see me ! I DON'T want to go in and lie to a doctor, or anyone as far as that goes, I just still do not know what to do! Thank you very much for being kind, a couple of people that replied were just MEAN!!!

Was this helpful? 0
45

lucylove... in response to your solutions...yes i did go back to my last clinic and they have since hired a new pa and that is who i saw...everything was going relatively good until the end of the visit when he sd he needed to get my records, and was he going to find anything that i needed to let him know about before he got the records...so i came clean and told him i was not going to lie about it..and i told him what had happened he then sd he could not give me anything because of the positive--regaurdless that i had been a patient in that office for about a year and half and NEVER had any problems(positive test, no missed appt, always had my btls for my count)! they as well gave me a drug screen which of course was negative! the reason i left this clinic was because my main doctor got done and i did not care for the other doctor....my first and last visit with him was about how much he was going to cut my meds!!! and i went along with it for about 7 or 8 months and then just decided it was time for me to find a new doctor...and yes i kick myself in the a** everyday for making the decision! had i not tried another doctor i would not be in this situation now!!
as for the other clinic that i got the positive test from, they did a repeat test which came back negative(no surprise to me)! but will not return my calls ..and all they could say about the positive test is it was positive and thats that!!! they were suppose to recommend other doctors to see and never did! it took my kidney doc to request my records in order to get the second results!! so i last conversation i had with them they told me they could NOT treat me for pain but they would be(yeah kinda comical) i told them NO i was all set, i am NOT a heroin addict never even seen the stuff! dont need to ever see it im all set with that as well!
so yes i have done all that you sd, with no positive outcome!
No other doctor would treat me because i had that positive drug screen....the only person that would remotely do anything to help is another doctor who is in my primary docs office...its not what i want but cant be too picky at this point...for the time i will see him and let all this die down then try to fine another doctor!

Was this helpful? 0
44

I need to add a correction about the age of 90 that I stated in my below response. I apologize..... and I want to say again (before I might be judged harshly) that I am in NO WAY passing judgement or any ill will in my statements..... but, I just see several "possible" solutions to the problem. And don't forget... you can't go into either office like a raging bull! You need to be calm, and sincerely ask for help and suggestions about where do you go from here... I am in a wheelchair from being crushed by a horse.....so I know pain. I wouldn't be here commenting if I were not living it! Some days, I think it would be easier to just do an amputation from the waist down. I liked the advice from someone below about a malpractice attorney, and I also liked the advice about keeping in touch with your primary care doctor. Although I have just found them to not be comfortable prescribing the medications I need, I would still keep them posted. As for the person that recommended "yoga". That is a good one!!! If it is working for you.... then God bless to the highest. But...for others, it's just not quite a possibly right now.....each person, their own thing, in their own time..... Again, I really wish you the best. I don't know how I got so fortunate to be honored with the pain doctor I have now..(well, I have been going to the same damn place since my first riding fracture at age 9. I am 45 now. And yes, sometimes his assistants can act a little b****y! But, they know nothing of my history except what they see in my records. And quite simply, I just could care less how b****y or judgmental they can be. Let ONE of them live the life we do! I can assure you, they would be walking the same path. And as one of my doctors said "nothing in life is certain...so the people who judge you, just pray that nothing ever happens to put them in this situation". Because one sunny day I walked into the barn, and a trail ride later I was being airlifted to the hospital!!! That certainly wasn't penciled in on my "to do" list that day. Bless, and find comfort soon.

Was this helpful? 2
43

Try "putting the tail between the legs" and go back to your previous clinic. First ask to speak with the manager of the office....then explain why you felt the need to leave and try a new place. Which I'm not quite sure why you didn't do this first if you felt unsatisfactory treatment of yourself ? Then tell them how your results came back...( provided they were always good at the old clinic ) And then ask to return to your previous doctors care. After all, you left there correct ?
I don't mean to sound harsh..... I really really do not, but to me.. this would seem like a common sense approach , maybe not ?
If you dont want to go that route , then request to have a conference about your results with the doctor at the new clinic...yes you can, they are not God,and you may request access to an appointment, (especially with confusing test results). provided you have never had these results on any other test previous ... or request your records with the test results included, and yes, you can most certainly do that too, they belong to you !
Then take those to your last doctor, that for whatever reason you decided to leave. And another question that puzzles me.... if you were getting your meds on a regular basis from the first clinic, why would you try somewhere else ???? I would think by 90 years old you would be past the phase of "stigma" or "what anyone thought of you"
As long as they gave me the medicines I needed to have a functioning life.... stigma me all you want !!!! Again, I don't want to seem judgmental or question your decisions, but i feel that there is more to this story than what was written. Maybe not....but there are at least three immediate common sense approaches you could have taken long before your meds ran out. Please keep me updated on how things are going.... and if I can be of any help.

Was this helpful? 0
42

I can hardly get out of bed let alone do yoga, are you kidding me. I hope one day you will not come to the point that I am at. I was always active until I broke my ankle and after 12 surgeries still am not any better, actually worse because I suffer from RSD because of all the surgeries.

Was this helpful? 0
41

pam i am so sorry for your situation! it sux with what thwse doctors will/ or should i say wont do, becuse they are afraid of losing there license!
i will pray for you, that you hurry and find a doctor! i dont see why they are not treating you for pain!!!

Was this helpful? 0
40

Pam please do not give up. I am praying for you. I like you can not get a prescription for pain medication and I suffer from RSD an incurable nerve pain from multiple surgeries. My docs hands were tied (so he said) because of the new regulations on pain meds. He said we have the people on heroin to thank for us not being able to get our meds. They put us all in a group the ones dying of heroin od are put with people with valid scripts. It makes no sense I have been to two pain clinics the second one I called to get an appointment the clerk answered the phone and told me "we don't hand out pills here". I had not even said anything and was greeted that way. I live in Michigan and am trying desperately to find someone to help me. If I succeed I will find out if they know of a pain clinic in Ohio to help you. Please keep me posted and I will try to find you and I some help. God Bless you

Was this helpful? 0
39

I would do anything in the world to help you!!! I know what your feeling, I JUST went through the same thing!!! I have different problems, but my Dr. said my urine test came back with NONE of my medicine in it, it had some one else's in it!!! The lab HAD to get them mixed up! I am a 57 year old grandmother, with chronic pancreatitiis, among MANY other problem's. I have now been taken off ALL my med's, I can not even find another pain management doctor to see me!!! I am now in a wheel chair, can not walk, (TOO MUCH PAIN) sleep in a recliner, too many things to even go into at this time! I have ANOTHER surgery for my major nerve damage in my right arm in 10 day's, ALL DUE TO A MIX UP AT THE LAB!!! I have seen this doctor for the past at least 6 year's, he gave me hope, he did help me at least deal with all the pain, now I am ready to give up! If I have to live in this much pain, I just can not do it, it is unbearable!!! NO ONE EVEN CARE'S, OR WILL HELP ME. I am from Ohio, I do not know where you are from but I WISH YOU ALL THE LUCK IN THE WORLD AND MY PRAYERS ARE WITH YOU! I wish I could tell you how to get a hold of me, at least we could talk! I will e-mail again soon, if I can! Theses pain doctors think they are God I guess, they don't realize what they are doing to people's life's! THEY ARE DESTROYING WHAT LITTLE LIFE THEY HAVE LEFT AT ALL!!! The only thing I know about myself is, I can not go on like I am now, it's just not worth it. I 100% believe in God, but I have a feeling, I won't be meeting him!!! God Bless you and your family and my prayers are with you!!!

Was this helpful? 0
38

Also especially for Robb, I will pray you never know the pain most of us are speaking of and a condition that will never heal. I hope yoga can one day give me a new pancreas. I'll also pray your heart to open up. It isn't proper to speak to people the way you have, judging them without even knowing them. Also it would be wise for others here not to make psychological assessments of others. I have been in desperate pain before and not been suicidal. Coming off pain medication changes your mood it doesn't mean you are going to kill yourself. We are all free to do what we like with our own bodies supposedly. I sign every petition I see and call my senators to help those of us in pain. We are not addicts. Being physically addicted is not the same as mentally. I am 36 years old and live everyday in great pain that exercise isn't going to change. I live the best way I know how and will do what needs to be done to survive. I see a pain specialist who happens to be very kind and understanding even within the new laws. I am glad their are people with real compassion. Hard to find sometimes but they are out there. I wish the very best for everyone who comes here for help.

Was this helpful? 0
37

I completely agree yankee. This should not be a place for judgement. We come here to ask for help. I wish the administrators would remove comments that are hurtful or shameful. I understand extreme pain and also understand doctors who don't know what they are prescribing or how it will show in a drug panel. I sincerely hope life has gotten better for you. These new laws on pain medicine have been hard for most of us and we certainly don't need other pain patients judging our comments. It would be a lie for any pain patient to say they want their pain to stop at any cost sometimes. That doesn't make us suicidal, most of us don't want to die, but the pain gets so bad we just wish it would go away. God bless and good luck.

Editor's note: Please note that if there is an inappropriate or abusive comment you wish to bring to our attention, we recommend clicking on the Report button at the bottom of the post so that we may review and determine what (if any) action may be necessary. We appreciate your participation on the site and assistance in helping keep the community a friendly and beneficial place for all to share their stories.

Was this helpful? 0
36

Yank, God bless you, you're going through way more than most of us could ever handle. If that pain doctor had your medical records, he had to know the kind of pain you've been experiencing, and for him to even consider dropping you is unconscionable no matter what your test results said. It's not unusual for tests to come back with false+ or false negatives. Since you told him that you had never even seen heroin before (quite emphatically, I'm sure), he had the choice of performing the test again to make sure the heroin wasn't a false+ or send you to have blood work done. He didn't need to treat you like he did. I believe I read one of your posts that said the lab had been giving out incorrect test results and the doctor was providing you with a supply of your pain meds. Are you going to stick with that doctor for the time being or have you found someone else (I hope)? My big concern is with the opiate laws changing, it may be harder to find a new pain doctor. It would be helpful if your primary care doctor could give you a list of pain doctors that he could refer you to. It may give you a better chance if you can say your doctor referred you. Also, if you haven't done it already, you may want to let your primary care doctor know what happened with the pain doctor and the lab. It's possible your primary will help you out until you find another pain doctor, that is, if you're still looking. Even with the law changes, I'm sure some states do not specifically require you to see a pain doctor and some primary care doctors will take in a limited number of pain patients. My primary care doctor does, maybe because I've been seeing him for years. Perhaps yours will consider it. Beyond issues with your pain meds, I hope if you happen to have reason to go to see your primary care doctor, you will consider asking him to give you something to help your neuropathy. The drug they normally give is Neurontin (generic is Gabapentin) and also ask him to check your hips to see if you have bursitis and if you do, give you a cortisone inj. into the bursa. He should be able to do all of this right in his office. By the way, this inj. is entirely different than any you may have received in your neck or back. It's really no worse than getting a flu shot, maybe not even that bad. At least that is likely to reduce at least some of your pain. I've had bursitis in both of my hips probably four or five times and the shots knocked out that pain completely each and every time. Before I go, do you mind telling me what state you live in? God bless you, Yank. It truly breaks my heart thinking about what you must be going through. You'll be in my prayers.

Was this helpful? 0
35

First let me address the the suicide comment. I'M NOT SUICIDAL, I'M IN PAIN!!! And NO I didn't just shop around for doctors, as I was with my last doctor for about 6 yrs!! Yes I finally had another doctor confirm what I had been saying about the false+. I had been put on a new medicine, which the heroin is derived from and he said if it had been him he would have gone for blood work, not just discharged me!! And unless you have chronic pain and severe nerve damage you shouldn't judge me!!

Was this helpful? 1
34

Michael- i am sorry to hear about all that you are going thru!!i kno its not easy, to add NO meds on top of all that! i kno the meds may not take away all the pain but it defiantely helps take the edge off and allows me to function somewhat!...yes, as far as the government it sux! they will treat me as a drug addict, but not for pain! (which I have documentation to support my problems! we live in a messed up society! rather treat a drug addict than someone in pain, (which it is the drug addicts fault for ALL THESE RULES AND LAWS regaurding pain medicine..... I hope you can get help soon! Many prayers sent you way!

Was this helpful? 0
33

The Lost Yankee, Michael H......"You tell me what to do!" As i recommended below, legitimate patients denied pain meds by the medical profession or the government ought to barrage their state and fed political reps with requests for action/relief. There must be people or some group(s) currently involved with doing just that - or who would adopt the issue and run with it. If there isn't, then you folks are well qualified to start the movement...it is to your direct benefit and would be time well spent!

Was this helpful? 1
32

I have had both hips replaced, my knee is nest, hen my back needs a fusion operation. I had five reconstructive surgeries over a twenty-five year period. I have problems with my my spine and bulging discs and was told by the "pain doctor" Someday soon I will need a fusion. ,I have had bone spurs removed from yhe heals on both feet anf I am in coinstant pain. I the Government takes away my only way of functiioning (pain medication) I will be forced to go to he streets for pain releif. These people play God and I am fed up and have taken all the bull#### I am going to take. What are we supposed to do? All my above mentioned medical ailments are documented with MRIs and x-rays. I have had about all the crap I am going to take from our Politicians who play God and get what ever they ask for (pain medication) legal amphetamines etc. It's time for a big change in this "land of the the free" You tell me what to do!

Was this helpful? 4
31

Anytime the government gets involved everything turns to s***. Keep your hand out of my medication which I need for RSD a nerve problem that causes me severe pain and there is NO cure.

Was this helpful? 5
30

Dear Robb, I hate to say anything, but you sir/ma'am do not know what you speak of. I don't know if you are an ***** or if you have been lucky enough not to have truly physically suffered. I will pray that your ignorance will never hurt someone.

Was this helpful? 1
Page:1Next PageLast Page

More Discussions:

I Am 22 Year Old But My Hair Is Falling And Its About To Be Fenish What Should Do Please Help Me Tell The Benifit Tablit Or Food Recover Feel Proud M

i am 22 year old but my hair is falling and its about to be fenishs what should i do please help me tell me the benifit ...

1 REPLY
i got my pills mixed up and i only got 1 of these left and i dont know what it is please help

Pill with half one side dan and on that same side the other half says 5555 please help ## I located a blue, round pill w...

1 REPLY
I was told it was roxycontin, but Ithe imprints dont match up with the roxycontin imprints I am finding on the internet. Please help.

Use - Pain Killer Shape - Round Color - Light Blue Imprint - A 215 Size - 1/4 of a inch and It is a pill ## Pill Image C...

2 REPLIES
I Used The Epitrel On My Stomach And Upper Part Under Breast Skin Start Peeling Help Me Dont Know What To Do

I used the Epitrel on my stomach and my upper part under the breast and my skin is peeling help me I had dark marks and ...

1 REPLY
don't know please help

light green with PAL on one side and 8 scored in the middle then another 8 on this side the pill is oblong , not footbal...

2 REPLIES
Seeking help with pain and anxiety medicine.

Until recently my family doctor was treating me but due to the current changes in Texas. He will no longer write my pres...

12 REPLIES
Dilaudid-I find it helpful w/anxiety and I don't use it everyday

I was given dilaudid a year ago for rotator cuff surgery. My physical therapy was an incredibly challenging recovery wit...

2 REPLIES
where do I find help for pain medication that works like oxycodone seems to be the only relief but don t want to sound like a drug addict but I ran

My name is Kendra. I am a 25yr old single mother. I have been suffering from chronic back pain from the age of 17yrs old...

10 REPLIES
i ve alrady took percocet and they dont help will my doctor put me on roxicodone

i,ve took percocet for a month and they hurt my stomach i want to ask my doctor to put me on roxicodone because i have s...

4 REPLIES
Need Help. Don't know if my friend us abusing methadone.

My friend had been on methadone for about 3yrs now. Takes 150 mg dose. Before he used to get 2 weeks of take homes and s...

2 REPLIES