Harvoni Withdrawal Symptoms (Top voted first)

anyone having problems after stopping harvoni?

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So, I was on a 12 week schedule and it was a bit like a horse kicking my liver in the last 2 weeks of dosing. Detox: this has been much like opiate and methadone detox. Pain in joints cramp in the small muscle groups all through out the body. Leg shakes, insomnia, reflux, pupil dilation at random times, fatigue, runny nose, irregular bowels and worst of all the cold clammy sweat to freezing cold skin all this for 30 days, this is the 5th week for me and Syria are easing but now the rush of hormonal energy makes you feel crazy like double le dosing a 5 hour energy drink and it comes on after midnight. Ugh, sleep? Not before 6a.m., not yet since ive been off. Healed yes, but finished I dont think so... I hope it subsides soon. All the symptoms of opiate withdrawal without the high, cravings, or urges. As far as positives: old wounds healed and smooth scarring, hair on my lower legs has come back, actually hair all over my body has grown. Much like teenwolf,lol. Sounds ridiculous, lol... But im not kidding. Thats it so far.. Hope it helps in your regard. Good luck.

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I understand the uncontrollable feelings and symptoms you are experiencing. My best days have been as of late. I began an exercise program with strength training and walking in the heat of the day.. It works, something about exerting yourself allows the hormones from your liver to regulate and normalize. It's the closest I have felt to being calm. Granted, the amount of time the good feelings last is getting longer the more I maintain exercising. It's like a horrible hang over, lol... Ugh, that takes months to recover from. however I am feeling stronger and more balanced. Please, just dont sit there and think that the bad will leave you... Its miserable to do so, it will migrate from a physical feeling to a more psychological manifestation and then you may think you need a pull for that... You have been given another chance at activity and a much healthier lifestyle. Use it. I hope I helped you in some manner. hang in there...

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Stopped 8 wk tx of Harvoni on March 17th, side effects still very debilitating, concerned and trying to detox my liver and pancreas. Using holistic practices of juicing (beets apple celery parsley carrots blueberries all organic). Also had saved a tiny piece of last pill for a homeopathic remedy which I am just now starting. I am disappointed my Fibromyalgia pain is still with me. I do have more energy, that is really good! Still taking my pain pills though. I am UND since 7 weeks into tx. A little worried about long term effects of TX. Keep posting everyone, need to help each other. Wishing everyone Good Healing from this Nasty Dragon.

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Hello, Kat! How are you?

What type of symptoms are you experiencing?

I'm not seeing anything about it causing withdrawal symptoms, but it is a relatively new drug.

Its typical side effects, as listed by the FDA, may include nausea, diarrhea, headache and weakness. Withdrawal effects would usually be virtually opposite, so may include constipation, dizziness and drowsiness.

How long were you on it?

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i finished my 12 week course 3 months ago a headache or two first week and tiredness for a week or two after taking tablet but then i was fine and now im fine

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Hi I'm having same issues and I've been off a week. How long will the medication take to get out of my system? I was on 12 weeks. I am healthy and I am cured but I feel pretty damn awful. I'm epileptic and its causing a lot of psychiatric side effects (panic attacks, Insomnia, general depression etc....)

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I'm a 45 year old male. All my life average to above average build/health. I quit cigarettes 10 months ago. I exercise regularly for years and have been drug-free & medication free for 9 years. I lived with the virus since 97 with no mental health issues.
Blood work before viral load 1 million. 1st 30 day blood work 15. One five. I had a very difficult time with the headaches and many other symptoms that were not mentioned to me.. I charged headfirst into this medication excited to finally face this dirty secret I had tucked away. I live an active lifestyle. This medication hit hard after day 4 or 5. I was unable to think, read, eat, concentrate, had rage/anger and a host of psychological stress.

The symptoms for me have persisted after stopping the 12 week cycle like I never stopped talking the medicine. 3 days after last dose my immune system crashed like nothing I've ever seen and I caught the flu. It lasted the better part of three weeks and developed into a horrible fluid and cough in my lungs which only aggravated the foggy confusing migraine headaches and disorientation. I have been experiencing all kinds of psychological trauma and repressed memories (hallucinating possibly) I thought I was losing my mind. I had set a goal to finish this medicine even though my body was screaming throughout the 12 weeks. All I did was focus on the last pill...then FINALLY DONE!..I was completely blindsided by how long the side effects would remain.this medicine is still coursing through me no matter how much water I drank or drink..to say I'm scared is an understatement.. WTF did we just take?

It is day 30 after stopping and I'm just barely starting to see mild relief in the mornings.. even eating three healthy meals a day and drinking lots of fluids..but no matter what I do the headaches and confusion creep back in by mid/end of day. That's with no added stress. My days now consist of minimal physical exertion, moving/walking/talking/bright light, cleaning spray aggravates my headaches. Daily chores are almost impossible. Overwhelming. By evening it's difficult to rest/sleep. Ok this is for me as well as anyone else reading..I am seeing relief in the mornings. I keep my meals scheduled like clockwork. Eating before I'm hungry seems to keep my head from pounding. I see my regular doctor in a week. I made it this far. I am seeing SLIGHT relief in the morning. Just be patient for a little more time..you got through it. Stay strong.. Keep reaching out to people. It's all psychological now. It's over..you will feel better soon.

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blindsided,

I am in the same boat as you are. I am almost to my 24 wk post tx lab. Headaches have changed from a daily afternoon thing into the night migraines, leg cramps are getting worse, mood swings, brain fog, hands cramping up, nausea, very little feeling in my feet. One night I think I had a mild stroke, bp was 169/113/103, my heart still feels like it is fluttering half the time, an mri is being scheduled for a brain scan but so far since I had no paralysis from what felt like a stroke i am not getting checked for that. Is anyone else still suffering?

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I've been on Harvoni for 30 days. They said very little side effects. My ass. Mental and physical. Not much for headache but nausea, sweats and chills, irregular bowel movements, muscle cramps, anxiety, depression , and rage. Not sure if this is worth it.

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Hi I'm on day 54 now..symptoms are getting better gradually,God slowly though.
here's what works for me...keeping my meals at the same time every day. don't even let hunger set in or my headaches really start cranking. Mentally I have to force myself to start moving my body my mental health is improving greatly and I can see the finish line..
Now I clearly see why they don't test your blood until three months after.. because I still feel like I am glowing radioactive and that medicine is still in my system big time I can feel it ..
My side effects have been horrible I was completely blindsided By this medication..
OK here's the good part RELIEF is coming..I don't feel better by the day make-believe weeks are one day treat myself very well.i keep the stress level down.shut the phone off ect,I've started exercising pushing through the body pain and making sure I put good food in myself and lots of water still.. The side effects were crippling to me...I hope this helps someone else not lose their mind..
One or two posts from other people gave me the strength to keep fighting...
you will feel better soon.The worst is behind us

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Yes...... it was nightmare at time... best I can tell. I stayed confused and mind fogged! Couldn't remember what I ate that day or even in fact if I did eat.

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I did 12 weeks of harvoni. I didn't seem to notice any side effects at all while on the medicine. But when I stopped I definitely felt withdrawal symptoms. Took about 2 days to start and it was scary. All the sudden out of no where I felt like I was gonna pass out and just had this wave of like panic come over me. Felt down right terrible, shaky, scary, and bad emotional and psychological symptoms. But luckily it did not last long. In about 3ish days I felt pretty much back to normal. So have hope, those painful few bad days are nothing when you consider what the long term effects the disease will have on your body.

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Hi everone. I stopped harvoni 3 days ago. Im feeling a little weird & energy is at a low. I was hoping for a speedy recovery, but that aint happening. As for long term effect, they wouldnt know, as its a new drug, we might grow another head or some such thing, they dont know!!! Forgive my dramatics, just kidding. Im hopeful though, its better than being a contagious pariah. Dont you agree?

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Finished treatment 10 weeks ago. i went through everything muscle, shoulder, body pain, muscles spasms, headaches depression, panic attacks, frustration, Some days are good feel wonderful energy, then crash later not even stand or walk.
Its body's healing from the ravages of hep C virus. It takes time to recover and rebuild. After 10 wonderful days, again i am feeling sick body pain flu like symptoms. But i know there are improvements after each week.

My advice:
1. Drink lots of water at regular intervals.
2. Eat before you feel hungry.
3. Do some moderate exercise on good days.
4.Get rid of stinking thinking.

Wishing you a full and glorious recovery

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Hello, I also am having withdrawel feelings, I am constantly tired, I feel fatiqued, slight head ache, have a sick feeling in my stomach
I completed the the Harvoni treatment, I pretty much had these same feelings on the Harvoni. I saw my doctor 2 weeks ago, he had me do some blood work, I go back this morning to see him, I hope he has some news for me its been a month since I finished the Harvoni.

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I have been on a 12 week course, and finished a week ago. I was negative after 4 weeks. Had moderate headaches and insomnia, but had high blood pressure only in the last week and the week after finishing the drug.

The last week i.e. after completing treatment has been by far the worse .......BP has reduced to normal after 4-5 days (from 145-150 / 85 to 105 / 75) but I now have withdrawal symptoms as many have described them .......dizzyness, headaches, shakes, i feel sick most of the time, etc, etc.

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Hi. I've been on hemodialysis for 14yrs. I just finished a 90 day course of Harvoni 6 days ago. Had lots of side effects including headaches, insomnia, fatigue, sweats, chills, pains all over, nausea, runny nose, pain in my hands & arms, muscle cramping. Lost 6kgs in weight. The insomnia and sick feeling is terrible. Like I have lots of energy but especially after hemodialysis treatment I feel like my body is tired but my mind is going. When do these side effects go away? If anyone has any questions feel free ask. Thank you and I pray to the Lord that Harvoni works for all of us. God bless us all.

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Hi it's definitely worth taking Harvoni. I finished my 12-week therapy on +June 9, 2017; took labs at 4 weeks and again at 12 weeks and no virus is detected. I didn't feel bad during treatment but during the last 3 weeks I started feeling like I do now..exhausted, depressed, sickish feeling in my stomach kind of like I've been on an amusement park ride or hangover, headachy, just want to lay around in my bed (I can't because I'm caring for my 96 year old Dad.), sore throat, I'm glad I'm reading this forum because it helps me to know I'm not alone. I was diagnosed in 2012, took Interferon injections, Ribavirin and Incivek...I was so, so sick. This feeling kind of mimics the way I felt 4 years ago, but on a much, much lower scale. I remind myself that Harvoni is a Very powerful drug and pray that these withdrawal symptoms pass soon. I'm going to continue my aerobics classes 3x per week and daily walking to keep my diabetes and high blood pressure in check. All the best to everyone!

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Re: Joan (# 8)

Hi Joan my insurance would not approve me but there are genetics available in India. I am currently on generic harvoni and have been NON detectable after the first four weeks. Look up BULL Pharmachem, speak to parag jain. I was able to get entire 12 week regimen for under 1000.00, that's less than the price of a single pill in the us.

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Hi, I saw your post about withdrawel symptoms from Havroni. I am having them big time, (just finished tx 2 days ago). I was wondering how you are doing and if the treatment you are doing with little bit of a Havroni pill is helping. If so could you explain how you use it? Thanks so much for sharing!

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