Incivek (Thread 242449)

22 Replies Updated



Conversation Starter

Joe Says:


Male 56,I was on the treatment,and almost died at 9 weeks.



Showing Replies 1 - 20 of 22 RSS Feed


Page of 2    Next Page     Sorted By:
1
Joe Says:

I had the rash start slow,it became worse,and worse. I could not walk,my skin was peeling from my body.I am now scared for life. Don't know what life means anymore.To all be careful,when you start getting real sick they will tell to keep taking it,if T did that I would now be dead. I started taking this in march of 2012.

REPLYSHAREREPORT
Was this helpful?     0     0  
2
Verwon Says:

Wow! I am so sorry, Joe.

That had to be terrifying and I understand the way you feel.

However, the good news is that life gets better. While terrifying events that endanger your life can cause confusion and depression, you have to give yourself time to deal with them and come to terms with everything. There is still plenty of meaning to life, but it is short, so you need to take time to figure out what makes you happy and learn to live it to the fullest of what suits you.

I also hope you have a wonderful day!

Can you post back and let me know how you're doing, when you have time?

I've had some terrifying medical adventures myself, so I do understand.

REPLYSHAREREPORT
Was this helpful?     0     0  
3
Joe Says:

Hi,I don't post much this is my frist time. I just picked a site just to warn people with the sickness to not listen to the lies,and if you still give it a try to be very aware of what it does. It is and has been all about money from the start. Their was alot of false information spread about incivek. I also want to say thats for your concern. I'm alright now,and your right about doing what you love to do. I try. Thanks again Joe

REPLYSHAREREPORT
Was this helpful?     0     0  
4
Justin Says:

Hi Joe, I'm very sorry to hear this has happened to you and I'm glad to hear you're alright now. My Mom took Incivek but had to discontinue after 6 weeks because she was doing so badly. Afterwards she just kept getting worse and worse instead of better, and 6 months later she died in our local hospital's CCU. I'm still completely dumbfounded by what happened. Would you mind if I asked you more about what happened to you with the drug? I'm still struggling to piece it together. I definitely understand if it's a sensitive topic.
Thanks,
Justin

REPLYSHAREREPORT
Was this helpful?     0     0  
5
Joe Says:

Hi Justin, What would you like to know? It does not bother me to talk about it.

REPLYSHAREREPORT
Was this helpful?     0     0  
6
Justin Says:

Hi Joe,
Could we talk more over email? Mine is {edited for privacy}.
Thanks,
Justin

REPLYSHAREREPORT
Was this helpful?     0     0  
7
Jorg Says:

"I just picked a site just to warn people with the sickness to not listen to the lies"

I am sorry; what lies? The information about the risks is pretty thorough, and any decent doctor will recommend you discontinue the treatment if it gets really bad. My rash, luckily, was spotty but there are scars and it certainly was no fun. But the results, so far, appear to be worth the trouble.

REPLYSHAREREPORT
Was this helpful?     0     0  
8
Justin Says:

Incivek should have had a Black Box warning from the very beginning and really should have never even been on the market.

REPLYSHAREREPORT
Was this helpful?     0     0  

9
Lindsay Says:

Hi Joe,

I know your post is kind of old but my mom was taking Incivek and just a week ago had to stop due to the rash. She was dated to be completed with the Incivek on Dec. 1st but she had to stop it on Nov. 24th. The rash kept getting worse and now is all over her body. She is very weak and in a sever amount of pain. Do you happen to remember if they gave you cream or anything like that for the rash? Steroids? She has had to go to the ER 2 times for this. No one knows what to do to treat it. How long did it take to rid your body?? Please email me if that is easier. Thank you in advance VERY MUCH!!! The doctors have even been in contact with the people that make Incivek to try and get answers. No one knows what to do for her!!

REPLYSHAREREPORT
Was this helpful?     0     0  
10
Joe Says:

Hi, Sorry to hear whats happen to your mom. What I did was just stopped,and little by little I healed. I drank alot of water to try and flush the drug out of my system. As for the itching nothing worked,except witchhalze,that helped a little. As for the pain I took Magnesium and calcium+D. I also Iron to try and build up my blood cells. If you keep looking on the internet you can find all these things out,thats how I found out. The doctors where no help. The drug company is also no help. Be careful,and good luck,let me know what happens,again good luck,and I wish your mom the best.I will say a prayer for her.

REPLYSHAREREPORT
Was this helpful?     1     0  
11
Joe Says:

Hi Lindsay, I forgot to tell you it took me 14 to 16 weeks before I healed,and I took iron to try and buils up my white or red blood cells,I can't remember. Keep searching the net for answers,google some of the things I said,and you should get some of the answers you need.

REPLYSHAREREPORT
Was this helpful?     1     0  
12
Joe Says:

Hi Lindsay,sorry but I keep remembering things. Did your mom stop the other two drugs that when along with incivek? If not,stop them to. Make sure your doctor tells you that.

REPLYSHAREREPORT
Was this helpful?     1     0  
13
Lindsay Says:
via mobile

Are you cleared of the Hep C now ? Or is there any treatment you are doing to cure it? Please email me if easier - {edited for privacy}

REPLYSHAREREPORT
Was this helpful?     0     0  
14
Lindsay Says:
via mobile

Thank you very much! We are in the hospital now with her. They have her on Benadryl and fluids - doing biopsy today. She's off all meds stopped them last Sunday. If you don't mind me asking are you cured of hep C now?

REPLYSHAREREPORT
Was this helpful?     0     0  
15
Joe Says:

Hi Lindsay, I will not do treat again with any new meds, so far on my third blood test which I recieved today has me stable ,and in good health, but you can relapes, I believe your blood has to remain stable for a year or more after you stop taking the meds. I am about a year and a half, so far so good. I hope this ends up to be the case with your mom. I will be going for another blood test in 3 months,and I hope it continues to be good news.

REPLYSHAREREPORT
Was this helpful?     1     0  
16
Lindsay Says:
via mobile

That's great news!! I'm very happy for you! These doctors here are finally helping and trying to heal the rash and pain. After 4 ER trips and now a new hospital she's in the est place she can be! Did your face ever swell? Or hands or feet? Thank you SO much for your help! And again it is great that you are still stable!! I hope that it stays that way for good!!

REPLYSHAREREPORT
Was this helpful?     0     0  
17
Peaches Says:

My sister is about to start this drug in January. Should wew as family be concerned?

REPLYSHAREREPORT
Was this helpful?     0     0  
18
Lindsay Says:

My advice -- If she forms a rash contact her doctor and make sure she goes into the doctor so they can see the rash. Don't let the doctors put her off!!! Watch the rash very careful. My mom ended up having what's called DRESS Syndrome. Which affects your organs - liver and kidneys the most. Ironic because the drug is suppose to be curing the liver but in turn can damage it severely if DRESS or Stephen Johnson Syndrome is produced from the rash. My mom didn't get the rash until the last 2 weeks of the Incivek. Good luck to your sister and pray for a smooth year!

REPLYSHAREREPORT
Was this helpful?     0     0  
19
Lindsay Says:

Hi Justin, I am very sorry to hear what happened with your mom. This drug is very scary to me. If you don't mind me asking, what did they say caused your moms death from this? Did she end up having the rash very sever? My mom had to stop it as well and is going through the recovery now and was diagnosed with DRESS Syndrome from it and finds out today how it has affected her organs. I'm just nervous that it has taken over her complete insides. If you aren't up for sharing I completely understand. Thank you in advance!

REPLYSHAREREPORT
Was this helpful?     0     0  
20
Justin Slosky Says:

Hi Lindsay,
Rash wasn't the main side effect from Incivek in my Mom's case. It caused severe anemia and tremendous and ultimately fatal damage to her liver and her kidneys. She accumulated several pounds of water and it affected her mental state in a very scary way. Her body and mind completely degenerated. Incivek is such a horrible and scary drug!
My heart goes out to your and your Mom and I hope she's able to make a full recover. Please let me know if you have any more questions, I'll be happy to answer them.

REPLYSHAREREPORT
Was this helpful?     0     0  


Viewing page 1 of 2     Reply

Next Page >


More Discussions:

Incivek Treatment
I am a 59 caucasian male. Have had Hep C for 30 years. Type 1a and 5-million viral load. Will begin triple therapy in tw... 41 replies
Incivek and liver transplant
Has anyone heard if you have had a liver transplant not to take this medicine? My brother had a liver transplant in Dec.... 3 replies
incivek and insurance
i currently have no insurance because im full time student but once i do get insurance how difficult is it to get the me... 3 replies
incivek triple therapy
has anyone had a cure result six post treatment. i find out in two weeks and i cannot find any site that the great cure ... 1 reply
Failed incivek treatment accelerated cirrhosis
Has anyone heard anything regarding incivek treatment actually accelerating the onset of cirrhosis. I went through the t... 2 replies
Milk And Incivek
Can you drink whole milk before you take incivek? ## Incivek has to be taken with fat, to improve absorption in the body... 1 reply
Once Done With incivek/ victrelis Treatment Are You Cured For Life
im supposed to be starting treatment with incivek but insurance wouldnt approve it, did approve victrelis! once cured wi... 1 reply
transplant and Incivek
Has anyone heard if you have had a liver transplant not to take this medicine? My brother had a liver transplant in Dec....


Post a Reply

No registration needed.
Simply fill out the form below.

 *

 *


 Optional, stays hidden.
Get notified when a reply is posted here.




4) Text Verification: *
Prevents SPAM.

Click here to show the question



This form will be submitted securely


TRUSTe

Discussion Thread Guidelines: Any participation in the discussion threads signifies your agreement with the Terms of Use and Privacy Policy. (1) Act civilized and be respectful towards others. No profanity, vulgarity or lewd / suggestive content is allowed. (2) Posts encouraging, facilitating, or seeking advice about the abuse of medications or other substances are prohibited. (3) Personal contact information (such as telephone numbers, email addresses, etc) is not allowed to appear on our discussion threads. (4) We do not allow our forums to be used for buying, selling, trading, or for the promotion of a product or service. (5) Posting external links to other web sites is not allowed without our prior approval. (6) We reserve the right to edit or remove content which we find objectionable to the community at our sole discretion.


Note: All times displayed are GMT - 7.

This information has been independently compiled and is for informational purposes only. It is not intended to be a substitute for medical advice from a qualified healthcare professional; nor is it intended to diagnose, treat, cure or prevent any disease. For more details please see the Medical Disclaimer. This page was last updated on 6 January 2014.

We are committed to your privacy.

Copyright © 2005-2019 All Rights Reserved. MedsChat® is a registered trademark of Limelight Innovations L.L.C. 9888 W Belleview Ave #5000, Denver, CO, 80123, USA