Prolia Forums (Page 3)

IT SEEMS THAT AFTER READING ALL THE REMARKS ON HERE THAT NONE OF US SHOULD CONTINUE ON WITH THIS DRUG !!! IT'S RUNNING HAVOC ON ALL OF THOSE WHO HAVE TAKEN IT. I DON'T KNOW WHAT TO TAKE NEXT, BUT I KNOW ENOUGH NOT TO TAKE ANYMORE OF "THESE CANCER DRUGS ! " PERHAPS THERE IS NOTHING LEFT FOR ME TO TAKE, IN ANY CASE IT WILL NOT BE A DRUG USED FOR CANCER !!! OUR BODIES ARE FIGHTING PROLIA, SO IT SEEMS THAT IT IS NO GOOD FOR US W/OSTEOPOROSIS. THERE WILL MOST LIKELY BE A CLASS ACTION LAWSUIT ABOUT PROLIA IN THE NEAR FUTURE. ## Even though litigation is the usual course of action for many drugs like Prolia, what I find to be sad, is that when it comes down to finding something else that works, doctors go ahead and prescribe another medication with just as many side effects; st...

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After the forth shot of Prolia I am experiencing leg pain. I will stop taking the injection but are the side effects able to reverse? ## Hello, Estelle! How are you feeling? I am very sorry about the problem that you've run into. You are not the first to complain about Prolia and I am expecting many more still to follow, it just doesn't seem to work well for many people. And yes, though it will take time, most side effects do eventually wear off. Is there anything else I can help with? ## Ive had 2 shots so far 60 mlgs in 12 months. My dexa scan was very bad all over me . since shots my bonescache 5x worse and head aches cant sleep anxiety. An more. I have other medical problems. Scared not sure if i should stop are go on and do the other 4 shots he ask me to take..... Idk ## Si...

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Have scoliosis and failed back syndrome. Have intrathecal prialt pump, rheumatoid arthritis, hip turned in, atrial fibrillation, kidney stones, osteoarthritis, two knees that need replacement, neuropathy, history of cellulitis, teeth problems, two feet that need fusions, skin so thin from using prednisone, olecrenitis in elbows. Would you recommend I get a prolia infusion? ## Dear Betsy, I'm very sorry to hear about your situation. Have you had a chance to check out any of the other Prolia-related discussion threads here on MedsChat? If not, posted below are a couple threads with lots of feedback from others who've had personal experience with Prolia: 1) - Prolia side effects 2) - Prolia Side Effects Duration From what I can tell, the possible side effects are a major concern to...

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I am due for my second inj. of Prolia. I have read that neck pain and stiffness with the feeling also of having a swollen gland in side of neck can occur. I am 79 and do not intend on having a second inj. ## I have had Prolia shots for 4-1/2 years. No problem until now. I am having severe neck pain and swelling on the right side of my neck, it is so severe that I cannot function, I have severe chronic osteoporosis, the prolia shots have improved my severely thin bones a lot, should I quit getting the shots? I get the shots every 6 mos.. I also have developed severe indigestion, help!! I also have ear pain on the same side as my neck pain. Thank you for reading.

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I took my first injection of Prolia mid April, I have gone to my dentist, he suggested a night guard. My rhuematologist does not beleive there is any connection between jaw bone/gum pain and Prolia. I have lost about 10 lbs due to not eating. I do not beleive I will be taking a second injection. Has anyone else had clenching of jaws to the point of not able to eat? ## Hi, Mimi! Sorry about the problems you're having, you must be miserable. And to be honest with you, I've read so many posts about people experiencing odd side effects from Prolia, that I don't remember if this was mentioned before, or not. Yes, there have been that many. Thus, yours do not surprise me and this is not a medication I would recommend to anyone as their first choice. Have you talked to your doctor?...

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I have taken Prolia in 2013, I received 2 shots, felt ache, tired, hips hurt, stopped it in 2015 because I had osteopenia, just went for a Bone Density and now I have very bad osteoporosis, I am still on the fence if I should take the Prolia shot again...How do I make my decision....I don't want to break any bones but so scared of all the side effects... ## This medication can cause some serious side effects, such as nausea, dizziness, administraton site irritation, worsening of asthma symptoms, as well as severe joint/muscle aches, according to FDA reports. Did your doctor offer you any other options? Are you on any other medications? Prolia is not the only medication, there are others you can try. Do you take any calcium and vitamin D supplements? ## You have a valid reason for no...

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Have been on Prolia for 4 months. Next injection due in 2 months. Scheduled to have a total knee replacement in 3 weeks. Is it safe to get knee replacement while on Prola? Will the healing be as good if I'm not on Prolia? Are infections a higher possibility? Anyone out there had knee replacement while on Prolia? ## Yes, it has been known to increase the risk of infections, including possibly severe ones, though the FDA states that they are usually not fatal. There are many details about this medication listed here: Thus, it would be best to speak to your doctor, as they may want you to stop it for awhile, before having your surgery. Are you on any other medications?

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Had my second injection of Prolea Nov. 2012. Have developed severe rash on both lower ankles and feet. The rash itches, seems to be forming blisters, and is quite painful. My GP is baffled. I live far from my dermatologist, but am considering making the trip. Anyone have comments or suggestions? ## The following symptoms are listed as general side effects of Prolia (denosumab) injections: red, dry, or itchy skin rash oozing or crusty blisters on skin peeling skin Ref: nlm.nih.gov/medlineplus/druginfo/meds/a610023.html#side-effects If the side effects are becoming too bothersome or severe, I'd definitely encourage you to talk to your doctor about changing medications or opting for a more natural alternative with less side effects. In the end, the side effects may not go away until yo...

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I am due for my second shot on june 1but i have several bad teeth how long do i have to be off of proliabefore i ban get my dental work ## Hello, Sherry! How are you? You need to check that with your dentist, because it's going to depend on the type of dental work required. Something such as a simple filling may not require that you stop the Prolia, but an extraction would be a different matter. Do they have cavities or do they need removed? ## Haven't had a cavity in over 20 years. First prolia shot in September. Just discovered 3 cavities myself. Could be more. Haven't been to dentist. Definitely concerned.!!!

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Had third Prolia shot 6 weeks ago and my life has changed dramatically. Nasea, headaches, numbness, tingling, weakness, back pain... I was very active and now am barely able to get out of bed! Four doctor visits, all kinds of tests, one ER visit and tests all normal. I am not crazy - it is the Prolia!!!! Don't do it. There are other more natural options to help with bone density. I regret getting this shot. By the way, first two shots had no significant side effects but the third one was debilitating!!!! ## Hello, Rennie! How are you doing? I am so very sorry about what you've been through. Has there been any change? Unfortunately, most of these medications can cause such side effects, according to FDA reports. There are reports on here from many people that have had bad experie...

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I started having prolia inj's. nearly 3 years ago. Shortly after the first one I found out about a study being done in South East Queensland, where I live, using carefully monitored weight training exercises to increase bone density. I started attending classes immediately. After 8 months, my second bone density scan showed that I had increased the density in my hip by 10% and in my spine by 6%. Other scans I have had since then have showed further improvement. I have read more about prolia since then and would very much like to discontinue it. I am hoping for some information on the effects of discontinuing prolia after 6 injections. I have heard that stopping the inj's. will result in a reduction of bone density once again. But, as I am also doing the weight bearing exercises ...

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Getting prolia shot tomorrow. Have osteoarthritis and osteoporosis. Tried the once a year shot but had terrible reaction. Dr. Said this was my only other option to save my spine. So scared after reading all the post about bad side effects. Have always drank milk. Take vitamin d but am always in pain. Hope someone can tell me this shot worked for them. ## How did it go? Did you have any problems, or bad reactions? From what I've seen in the posts on here, it's been kind of a 50-50 thing, it works well for about half the people and not so well for the other half. ## Hi I have osteoporosis. And arthritis. had prolia injection have found the pain has reduced. I am happy so far ## I am nearing the end stages of lumbar spinal stenosis. I have had Dr.s telling me the only pain relief I...

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How many inj's. of Prolia are safe to take? Over how many years? ## Hi Judy, From my personal investigation, there doesn't appear to be a set number of inj's or time frame for the duration of therapy associated with Prolia. I have a feeling it's solely based on your doctor's discretion... And if that is the case, perhaps your prescribing doctor can provide more specific details on that. Additionally, there's a popular discussion thread here comprised of patient comments & reviews from their experience with Prolia therapy that may help you with your research at: Prolia Side Effects. ClinicalTrials.gov provides some insight on Prolia as well. I hope this helps, as I too would be interested in knowing what the cut off point is, if any...

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ANY of the side effects mentioned here are true and happen to almost anyone who takes this shot ! Unfortunately they do not know all the problems it will cause. I would never have another shot of Prolia again. You can do it at your own risk, but it's a gamble to do so. ## Sorry to hear about your troubling experience with Prolia. I don't know why, but these types of shots tend to cause a lot of undesirable side effects in most people taking them. The most common side effects I hear of are usually described as aching joints, back pain, and various symptoms associated with an allergic reaction (i.e - swelling, rash, itching). Hopefully more people will take some time out to do their research before committing to high risk drugs like Prolia. From a patient's perspective it can ...

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I had Aclasta infusion in September 2012 followed by severe side effects - chest and rib pain, joint pain, high fever. Specialist now wants me to have Prolia, due now. Having read all the posts about the side effects I'm very wary about taking it. Anyone else in this situation? ## Hello, Sheila! How are you feeling? Sorry about the bad reaction you had to the Aclasta. Not only have others been in that situation, but many of them have stopped Prolia or refused to start it. I understand why doctors are concerned and want to advocate the use of these types of mediations, but I have to wonder if it's really necessary in many cases. I'm really starting to think that more women should get a second opinion, before resorting to these drugs. Most of them, including the Prolia, are al...

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Hello, First I want to say I am 56 and almost never have medicaton problems. I had 4 rounds of chemo in 2010 and am doing great. My oncoligist said it would be benifical for me to have Prolia every 6 months. My T score waas good but he thought it would help me later. I had my first (and only) Prolia injection on 12/01/11. Six days later I was in severe pain and went to see my primary care physician and he sent me streight to the emergancy room.I had upper left abdominal pain and fever. I haven't been to the emergancy room in 25 years. Well I had all the usual tests and they thought it might be diverticulitis. New to me I never had that before. My primary doc and my ortho docs told me he didn't think it was diverticulitis and I should not have Prolia again. I am now having some j...

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Prolia injection is a bad drug and doctors keep telling us its to build the bones its a lie it causes pain and suffering and some people ended in the hospital your body is itching from head to toe and your legs swell up the pain is crucifying you can hardly walk in other words its a poison drug some doctors will suggest that poison for the money I call that greed it never ends.I am getting rid of my doctor before he finds another excuse to poison me again he is a to face liar . ## I am very sorry about what you've experienced, Rose. How are you doing, now? Side effects are a natural hazard of adding a chemical, of some type, to the body to try and correct a health problem. There are no medications that can ever be guaranteed to be side effect free. What you experienced can be normal...

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On May 2012, I got my 1st Prolia injection. Four months later, I gradually started to have groin, hip, thigh and lower back pain on the right side. My rheumatologist says that I have severe osteoarthritis in my lower back and mild to moderateosteoarthritis in my right hip. I can still walk with some pain and bending to tie my shoes or put socks on is excrutiating. Sept. 2015 and I am still on Prolia. Could this be the cause of all my pain? ## Hello, Louise! How are you? Yes, it is possible that it's due to the Prolia. Many people have experience such side effects from it, along with headache and dizziness, as listed by the FDA. In many cases, it has been so severe that they had to stop taking it. Is there anything else I can help with? ## Yes, it is a possibility that Prolia has cau...

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I will be having my second injection of prolia next month. I am experiencing back pain now and then. Sometimes when I have been in arm chair for awhile and when I first get out of bed in a.m.it is quite painful. Other times there is no pain and I feel good. Sometimes it starts for no reason. ## Hello, Sheila! How are you doing? Has there been any change? Aches and pains can be a normal side effect of this medication, as reported by the FDA, you may also experience headache, dizziness, cough, and ear congestion. Is there anything else I can help with?

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Is Prolia FDA approved? I had my 1st injection December 2015 with no side effects or problems except my insurance is refusing to pay saying it is an experimental drug. Don't know if it is worth fighting them for. ## Hello, Judy! Yes, it was approved by the FDA to treat Osteoporosis back in June of 2010. What is your diagnosis? If you don't have Osteoporosis, that may be why they are saying it's experimental. It could be that it's just not approved to treat your issue. The FDA lists its typical side effects as possibly including administration site irritation, redness, swelling, headache and joint pain. ## My diagnosis is osteopenia, not osteoporosis (yet). That explains why they are not paying, even though my Dr. Recommended the injection. Thanks so much for your input ....

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