Dilaudid Pain Pump (Page 4) (Top voted first)

I would like to talk to anyone who has a pain pump with Dilaudid. My mother has a pain pump and I am worried she will be on it for the rest of her life. She has had the pump for many years and I feel it has affected her greatly. She had to have all her teeth pulled because they were rotting and she also has a problem with her tongue burning and red all the time. I am worried she will never get off the pain pump because she is addicted... she also falls asleep all the time even while you are talking to her. Thanks for any advice.
Teresa.

REPLY

REPORT

Not a big mystery. The Tylenol is added because it helps with the pain more than oxycodone alone. It isn't the doctors who do this. It is the pharmaceutical labs. Percocet, norco, vicodin and several other pain meds have Tylenol added to them

REPLY

Was this helpful? 0

Sounds like a leak to me.Need to have it checked when vomiting. Your bodies talking to you.

REPLY

Was this helpful? 0

I have had a pain pump for chronic pancreatitis for pain for 17 years and it has help tremendously with flare ups with oral for break throughs. But I'm now going to get a pancreatectomy and islet transplant Bc it's time to get off of medications. Best of luck because this is a horrible illness.

REPLY

Was this helpful? 0

Re: nora (# 5)

I've been on my pain pump for 10 months and I have been miserable I feel like I'm in menopause. wake up feeling terrible sweaty hot burning in the face my ears are burning weight gain tired confused. and I don't know what to do I need help.

REPLY

Was this helpful? 0

Re: 2 much pain (# 19)

My husband got his Medtronic pump in June. It has been the miracle we gave been praying for over the past 7 years. His dose is finally stable and hasn't had to rrefill for a little over 2 months since he opted for the 40 ml size. I thank God everyday for bringing the new pain management dr into the practice who ultimately referred us to the new pain doctor who did the surgery and maintains his pump. God is good.

REPLY

Was this helpful? 0

Re: Sully (# 66)

So was my husband for the past 7 years after a bowel obstruction.

REPLY

Was this helpful? 0

Interesting about the tongue. U get laryngal spasm gasp and can't talk. I want it out, but Dr hostile tells me nothing. Do I go to the hospital administrator? Help!

REPLY

Was this helpful? 0

I have been in severe back, leg, foot, arm and hand pain for 10 years. Had multiple surgeries which did not help, in fact Dr's said no more surgeries. Oxycodone is the only drug that works but to any degree. The only way to reduce pain is to lay down. As soon as I get up the pain is on. I have a spinal cord stimulator that helps about 20 % and can actually make the pain worse. Two years ago I asked about a pain pump implant, 4 Dr's said absolutely not as these are only for terminal patients. I was also told the medication will degrade the bone structure over time. Now with the opioid issues the Dr's want to implant the pump stating this will work without any other issues. So what's the real story? There are not enough up to date studies available. I have real doubts that all of a sudden the pump is the best thing since sliced bread. Any comments out there? Also, is anyone using medical marijuana for pain control? Thank you.

REPLY

Was this helpful? 0

I have been a dilauda pain pump patient for 17 years now.It’s has not effected me.The pain pump has giving me a better quality of life.Its the way a good pain doctor that gives his patience the correct amount slowly and he always has me to have a spray of narcan just in case of any reaction.Anyone on narcotic pain control needs to have a shot or a spray of narcan just for safety to counter the effects of any narcotic therapy.And my Dr.Robert Hien has been the best of any pain pump control doctor I have ever had.He very careful on controlling narcotic pain pump solely on durations and on a bolus.Other Medication could have reaction that your mother has.Always talk to your pain doctor on other medication.I hope this may help you understand a better quality of life.My blessings are with your mother!

REPLY

Was this helpful? 0

I have had my pain pump with Dilaudid and Marcain. Ive gone up on the dose slightly due to tolerance over the last 12 years of having it. Initially the pain doctor put morphine in the pump but that caused too many side effects. I too was on Fentanyl 75mcg before the pump. The implantable TENS unit made my Chronic nerve pain much worse. Once i got the meds (dilaudid and marcaine) tweaked it was and still is a gift from God. I couldnt live with the pain yet couldn't function with the side effects of oral/patches/IV opioid. The pump has allowed me to function as a normal human and i never had a problem with the pump itself or the Dilaudid. Maybe the pain dr. Has other meds in the mix? A pain mgmt physician that specializes in such devices needs to evaluate your mother and perhaps find out if she's having a reaction to one of the meds typically used in pumps. Also, even if she and her physician decided it would be best to remove her pump, the physician has to decrease the meds in the pump very slowly to avoid life threatening withdrawal syndrome, not to mention the in-retractable pain she would end up in if suddenly discontinued from dilaudid. Perhaps find another pain mgmt physician that specializes in pain pumps for 2nd opinion to get all facts and options. There's a lot more involved than simply removing a pain pump.

REPLY

Was this helpful? 0

After reviewing the replies to my November post in regard to pain pumps and associated complications, some never experience these issues, but since there has been a big push to implant these devices because of opioid overuse I want to see what changes are made over a two year period before jumping on the band wagon. Yes I am in excruciating pain with severe mobility issues and am taking opioids, muscle relaxers and the usual pain control methods; however, long term I don't want to make the issues worse by having the pain pump and meds cause other potential problems. Also there appears to be inconsistencies between doctors as to the meds used, dosing and even the fact there may not be a doctor within reasonable proximity to fill and maintain the device. I will continue to monitor this site and comments as they have been really helpful.

REPLY

Was this helpful? 0

.What is she useing it for and how old is she ? If she sleeping a lot, maybe her med has to be drop down a little. It exfect her breathing, which makes her sleepy.If she wants to stop it, it will have to be done slow and i mean real slow..Depending on her disease she might be on it forever..

REPLY

Was this helpful? 0

Have been on a Dilaudid pain pump for 2 yrs now..I can never get off it because of the disease i have..I worry how long before the Dilaudid will attack my my organs like liver & kidneys.I'm only 53 and would like to know if i should be doing a living will ??

REPLY

Was this helpful? 0

Hello,

What is the approximate cost of dilaudid refill for a newer Medtronics pump. I don't have prescription coverage and wonder if this is covered under normal medical coverage or if only under prescription. And if it's not covered then I don't know if I can afford it.

REPLY

Was this helpful? 2

I want the pump taken out and to be put back on oral meds... Can they fill me with saline and wean me down orally? I don...

5 REPLIES

I have a pain pump implanted about 1 1/2 months ago. Pain dr. is increasing Dilaudid 1mg/ml every two weeks. I am also t...

1 REPLY

Hi everyone, My mom has a dilaudid pump thing. I really don't know much about it in terms of dosage or anything. She...

2 REPLIES

how long does it take to be weaned off a medtronic pain pump with the med. dilaudid the pain management wants my daughte...

39 REPLIES

My doctors don't seem to think there's much withdrawal if there is med in the pump. I know the change in med wil...

12 REPLIES

I told the neurologist that I was allergic to morphine and she said these two shots will help you we don't allow you...

2 REPLIES

i went to the er the other day and was given dilaudid for pain. when they gave it to me it felt like i was having a hear...

1 REPLY

Our daughter has advanced stage IV double lung cancer which has metastasized all throughout her body. She is now on IV d...

2 REPLIES

I am allergic to Vicodin and Percocet so for my last 2 surgical procedures have been prescribed 4mg oral Dilaudid. I und...

80 REPLIES

My pain Dr. Writes 5 8mg. Dilaudid plus 1 60mg. Avinza 1every 24 hrs. time released morphine, I have been on the dilaudi...

7 REPLIES