Prolia Side Effects (Page 5)
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Alexis Says:
 
Would like to know of side effects after Prolia infusion from other persons. Up to now I have none.

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1310
Sheri Says:
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Had to go for more blood this morning, sodium blood level low and liver enzymes a little high

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1309
Poodle Says:
 
Jan, of course, your blood pressure has risen with all the water retention. That squeezes the blood and it cannot travel as fast through your body as it should. The excess water makes it difficult for the blood to circulate to the heart and back. I think you can buy some OTC water pills. Have no idea of if they work. Please take Magnesium at night - 300-500 mg. That will stop the muscle cramps. I still get them even now in my ankles so I've gone back to my Magnesium. I even get them sometimes on the day and it's a lot of fun on a phone call where I have to say: Hold on a second I have to get up and walk. I have cramps in my ankles. Now that I'm back to magnesium every night they have stopped. This is a side effect of Prolia trying to get calcium out of our muscles. Wish I had never heard that word but we will get thru this. Get your docs in a row and get your supplements. Please have your calcium tested monthly. It can change over time and you want just a tiny bit high. With love~

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1308
Jan Says:
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I don't know. My appt is in May. I'm frustrated with being so sick from the medication.

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1307
Poodle Says:
 
Skitty~This is the one that tells the truth. Good Work Lady!!!!! Has all the deaths listed, etc. It's a gold mine for people on Prolia.

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1306
Poodle Says:
 
Sheri~what are they going to do about it?

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1305
Poodle Says:
 
Canadian~have you sent all your side effect information to HealthCanada yet. They are your version of the FDA in the US. They control which drugs are used in Canada and the FDA has been busy putting more warning labels on Prolia. Hopefully, you can get that done in Canada too. Hugs~Pood

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1304
Poodle Says:
 
C. Louise~it is filed in a Court, with Prolia, most probably in CA since that is where they are. The only people that know who join are the attorneys and the judge. They keep them quiet to keep out the press. There are legal fees involved but if we got sufficient people here and they also announced it via TV more and more people would join to lessen expenses if we happened to lose which is very unlikely as we even have the FDA on our side now. No one would know who did what. Merck has been sued various times and we never know who the victims were. It would be the same with Prolia. I told them we had a Forum full of injured women from Prolia. They called me every day wanting a number and I kept ducking their calls. I finally had to answer and said we don't have sufficient at this time. I also joined one in NY with a company that was doing shady business practices a number of years ago. All said and done, my name was never mentioned that I know about nor did I receive any compensation or spent one cent as that was not my goal. They were enjoined from doing what they had been doing to people and that's all I wanted. I received one piece of paper with the Judge's ruling which made me happy. Maybe in a few months we can try again after people have had time to think it through. Hugs~Pood

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1303
Rick Says:
 
Hi Canadian,

She is near Toronto. There appears to be very little help offered as her body can not tolerate almost all medications. I prefer not to give details here because they are negative and would not inspire others. I am very happy Pood has been of help to you and many others I know. I have not encouraged my sister to follow this site because knowing her so well it would not be a positive for her. The problem Canadian is that many of the side effects of this horrible drug can take over your body so in fact they never go away. It has been mentioned a few times on this site that many have died from their side effects. My sister came very close last April but survived. She is very weakened from infections which attack any weak areas in her body (pancreas, heart, eyes, throat, etc.) as she has virtually no immune system. There appear to be many levels of side effects from none to death. Some side effects last 6 months and start to go away others never leave. Canadian you will learn your body through this experience and you will be your best healer.

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1302
Sheri Says:
 
I just had blood work and my liver enzymes were elevated.

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1301
Canadian Says:
 
Some more side effects developed: Mild fatty liver, high cholesterol and a bladder issue which I didnot have these problem before.

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1300
Canadian Says:
 
Rich - I just saw your post again your sister live in Toronto. Where did she get her injection and any family doctors admitted the Side effects? I did not get much help from the family doctors here.

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1299
Canadian Says:
 
Rick - I always appreciate Poodle from bottom of my heart that she really gave us helpful advices and encouragements. I did not write here recently as I felt very depress as the 6 months passed I am still fighting with the severe side effects. I feel very tired of talking about my side effects sometimes; but I still come here to get some hopes. Poodle thanks again!

Rick - how is your sister feeling now. Two years gone - my heart goes with her as I know her feeling. As for myself, I am suffering of an incomplete formoral fracture (my right tight bone). Still have problem with my Stomach. Leg muscle pains etc. Is your sister living in Toronto?

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1298
Jan Says:
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I did not do the infusion. That is once a year. I did the 6 month shot of Prolia after taking an oral RX for a few months. You are supposed to get the shot every 6 months for 2 years or more. I'm so glad I only did the bi-yearly injection and not the full year infusion all at once.

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1297
Rick Says:
 
Pood, I am sorry you responded with such hostility. I live in the U.S., my sister lives in Canada and she is the victim. This should have answered most of your hostile comments. I drove from S. Fl. to Toronto about a year ago and spent 5 weeks helping her after her hospital discharge with a sever blood infection. Her immune system is virtually non existent. She has or has had almost all the negative side effects - her weight ranges from 75 - 80 lbs. with most of her internal organs burnt including a Pancreatic breakdown........ It is past 2 years since her 4th shot of Prolia. My message was not intended to create hostility but to possibly shed some light on your poor response to the law suit. Thanks, Rick

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1296
C Louise Says:
 
Pood! Please tell all of us how a Class Action Suit works as far as are patient records retrieved? Is it revealed who gave the patient name or why the records are being requested? Are names of the people involved in the Class Action Suit published or are they kept confidential? I would just like to know. Never been involved in anything like that before so I have questions and I'm sure others on here have questions as well. Thank you for any information.

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1295
Skitty Says:
 
If people come here and read what others are going through they won't take it at all.

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1294
Skitty Says:
 
Yeah... 7% doesn't seem like much huh? I have to read the statistics. He told me if it is above 3% you need to medicate??? lol.. something doesn't seem right. I need to medicate with these deathly drugs? Anyway, he told me calcitonin is no more, I wonder if this is really true? He isn't going to treat me so I have to find someone else and hope my endo does the other evaluations I need done to figure out if there is another cause for me. I have no faith anymore. But thank you so much to you Pood and to all of you for sharing your stories. I don't think I would have taken prolia but reading what you wrote confirmed my fears. He said now I am very young relatively so it's not a problem but later it will be- he said forteo wears off when you stop I think but I pointed out they all do except for biophosphinates. And what you get is old bone with new bone piles on top apparently.

He referred me to an endo who specializes in Osteoporosis. If I go, it's a hike, lets see what she says. I have to do another urine calcium because one was high and to me at least it isn't clear what is going on with my pth. I stopped vitamin D and calcium due to all of this- prolia causes elevations in pth levels and calcium issues that was one of the warnings added on. He said he has patients on it who are ok, I said great for them but if you have the deathly side effects it is a living hell if you survive it at all. He said when other drugs come out, I said I'm going ot wait for something safe, the side effects will be just as bad. I told him about prolia having 4,500 deaths reported since it was on the market with death being the highest adverse event reported. It's crazy.

By the way I found my post.. I can't find my email with the number but it was a different one than the one you mentioned. It as at: PROLIA Top Adverse Events & Effects based on FDA MedWatch Reports

I can't find this info at the FDA website but it must be there somewhere. I will email them and ask where the death toll is posted at their website in adverse events. I think there was a different graph at ask a patient than the ones visible now too.

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1293
Diana Says:
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Pood, this is just not ending. Now post 13 months hypercalcemia and I have to stop all calcium and now having terrible night cramps. And ultimately if not controlled, death. If we do go to lawsuit and our doctors essentially are telling most of us that all we suffer is nonexistant or not associated with Prolia how do we stand a chance of winning. If there is any chance it will help stop this stuff or at least prompt some testing or taking a patients complete history before injecting, I will be up to standing with you and others in a lawsuit.

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1292
Diana Says:
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Jan, heartbreaking story. Now I know why my ears are ringing. Anyway stay close to a doctor who can watch you if you can find one. Have your calcium blood levels checked. Now I have an overload of calcium leaching from my body. They are talking about removing part of my parathyroid. Calcium builds bone so now that I have taken Prolia calcium can kill me aka hypercalcemia. I can only pray we will be well again. So sorry this happened to you.

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1291
Skitty Says:
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Thanks pood I found the post will repost later. It was at askapatient. I'm not feeling well and I'm on my phone so I will do it later. My doctor told me over 3% risk you should medicate wtf? LOL I agree I don't think my risk is that great right now because he told me right now or you were still very young but later it is going to be a problem then he said you to my aversion to medications he's referring me to someone else and he doesn't know what's up do about the hyperparathyroid situation he felt since my PGH one down it is OK now. But people who have this condition told me my calcium is fluctuating too much and that is a sign of hyperparathyroidism which could be involved in the osteoporosis. Will post more on this later for anyone else who has the situation going on sale. By the way I think you were doing a great job I am glad there was somebody here who cares enough to spend time informing people – Thank you so much.

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