Prolia Side Effects (Page 5)
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Alexis Says:
 
Would like to know of side effects after Prolia infusion from other persons. Up to now I have none.

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611
Victoria Says:
 
C Louise, I am so so sorry to hear of the passing of your Dad. My thoughts and prayers are with you {{{HUG}}}

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610
Lola Says:
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After a bone density scan in April 2013 that showed osteopenia, I had a single injection of PROLIA that ruined my life. I am still suffering from side effects of this poison as it badly compromised my immune system but had no positive impact on results of my bone density test in April 2015. I am so sorry for all people that had a misfortune of getting PROLIA injection...

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609
Gayle Says:
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I just got my second injection this past week. I haven't experienced any of the issues that others have experienced, which I am truly thankful. I would like insurance companies to allow us to get a density scan after a year being on this drug (just to ensure positive results), but for now...you must wait 2 years.

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608
C Louise Says:
 
My dad passed away On Saturday. His true decline started In August 2014, 2 days after his first Prolia injection(read all previous posts). None of his side effects were ever monitored by his doctor, and we have no idea what his bones look like being 8 months after the lethal drug (I would like to know but was told a bone scan would not be feasible at this point) so I will always wonder since he had so much "bone pain" during his last weeks and it got worse each day. His hip and leg bones including shin bones, knees hurt so bad he could barely stand it and required much morphine (he was on Hospice care at home) to try to control the bone pain. I hope you will all continue to tell people about this awful drug and I wish all of you well. I hope one day there will be a lawsuit or some act that will get this drug off the market. Deep in my mind I know that won't happen as once these drugs are on the market, I think its almost impossible to get them off the market. I pray for all of you who are having problems after Prolia.

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607
Duckbill Says:
 
Going for knee replacement tomorrow. Anxious to see how this affects all my Prolia problems. God is in control.

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606
Carolyn Says:
 
I know that this is a terrible lethal drug. My side effects continue but are being managed with Prednisone which has its own set of side effects. I will keep you in my prayers.

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605
BMBennett Says:
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Joyce B., I feel your pain. I had only one injection in June of last year. Not only have 7 of my teeth rotted out but I've also lost the vast majority of my left jaw bone. There was indeed bone growth as promised, unfortunately it was withing my spinal canal in the form of spurs as well as closing, almost entirely strangulating the nerve roots from where they exit. I'm now only 47 years of age and still suffer from swelling and pain at the injection site. My bones continue to crumble rapidly, more rapidly than before the Prolia toxins were introduced into my system. From approximately July through October of last year, I checked in and reported my degradation to the group as I simply was dumbfounded by this incredible mistake I made in accepting the injection to begin with. My spine from T-2 through C-4 is now in 13 separate pieces. C-2 through C-7 are in what my Dr's call "Severe" condition and failing. I've lost feeling in more places than modesty permits me to mention however, the left side of my face is only the least of them.
At my current rate of degeneration, I know I've not very much longer to suffer before the involuntary functions of both my respiratory and cardiac systems are shut down by this incredulous and tragic turn of events, as the formidial regions of the vertebrae continue to diminish in diameter. I've recently began loosing my sight due to a new Occipital Neuralgia that only one year ago wasn't present nor even foreseeable.
Please, continue your work in spreading the word about Prolia, as long as you can. I beg that people would know of this forum prior to taking the injection... Had I known half the issues I've read here, surely I'd never become an Amgen victim.
Be well, be safe and be blessed always and in great abundance...
Sincerely and Respectfully yours,
Benjamin Bennett, Th.D

(Also, forgive me my misspellings)

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604
C Louise Says:
 
Hi Victoria. I was hoping to hear from you again. You were on my mind all day today at work. I am copying and pasting my comment for you (it was #583 at least from what I see). Are you planning to report to the FDA? Good for you if you are planning to. They need to hear from as many of us as possible. Yes, my dad started losing weight within the first 2 weeks after the infusion and has continued to lose up to this day. I hope you can see all the rest of my comments on this site as well to see all he's had happen. I think I have read every comment on here that have been posted by all the people. One day I hope I will find the right professional to listen to me. I've tried to explain dad's situation to so many doctors and they have all sloughed me off so far.

If you go to fda.gov then on the very first page, on the left hand side under Recalls and alerts, click on Medwatch/Safety Alerts (in blue), on the next page you will see a reddish/orange box that says "Report a Problem", click that and on the right side you'll see Consumer/Patient in a blue box. Once you click that it should say "About Problem" and just follow down and fill in any information that you wish. I didn't list all meds taken or any of that. I basically gave them all the side effects and poor health my dad has been in since the inj., lack of prescribing doctor knowledge, lack of ER doctor knowledge at all, etc. Please let me know if I can help further. I hope this helps.

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603
Victoria Says:
 
This drug also made your dad loose weight? I was a tiny person to begin with but I have lost an additional 5 lbs. I was 104 and am now 99lbs. that is a lot for someone so small. I tried going to the web site but could not find what you were talking about. can you post that site again, not just or me but for others also. thank you for all your information and prayers and {{HUGS}} to you and your Dad

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602
C Louise Says:
 
Victoria. So glad you wrote. Please read my previous posts on this site. I believe I started posting in October 2014. They are lengthy but it's because i am just sick about my dad's condition and I hope to have other people be informed of what happened to him after this awful inj. Please call the FDA and ask to talk to a pharmacist. That's who I finally talked to, after talking to several ER doctors, hospital doctors, etc and this pharmacist is the ONLY person who told me that the medication will be out of the body after 6 months but people might still have side effects long after the 6 months. I don't think anyone really knows for sure how long the side effects will last but I see several people on this site who continue to be so so sick much longer than 6 months. It's an awful drug. My dad is now home on Hospice. He started losing weight just 2 weeks after the inj. and has lost over 30 lbs. total. He hasn't walked on his own since 4 days after the inj. and the list of ill effects goes on as you can read about in my previous posts. And like you, NO doctors will admit that Prolia caused any of his problems. I know it did. He had none of these problems before being given the drug. I sure wish we could get this drug off the market to save more victims and even more, I wish the ignorant doctors would stop telling people things that are not true about this drug. Please let me know if I can help you with a phone # for the FDA if you should decide to contact them. I'm really hoping many people will contact them either by phone or file a report thru the FDA website on their Medwatch link. I am going to keep after them until I get some satisfaction. My dad is at the end of life now and before this drug he was still walking and mowing his own lawn and doing normal activities. I will be thinking about you as I know what you're experiencing.

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601
Victoria Says:
 
C Louise, yes I can see your post. Are you saying the side effects will continue and they will get worse? Because that is what is happening with me. The side effect I got and the reason I stopped after one shot are getting worse. I was given the shot by an oncologist and when they ask for my side effect and why I was stopping the shot, I was told tingling and numbness in the legs and arms was not one of them. The blew me off. I did not have any of this prior to receiving the shot and now 8 months later it is unbearable. Is what your saying is that this will not go away in time?

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600
barb Says:
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Well , you would think I learned my lesson with the first cancer drug i took, depo provera, after breaking both arms simultaneously from a forward fall, i was told cancer drugs deplete your bones of everything and make them brittle, i already have osteogenesis inperfecta. Now , on prolia, finding out just recently it is also a cancer drug, i have fell again breaking my entire right side, crushing my elbow into dust on the cement and breaking my leg in 3 places. No more drugs for me I will take my chances.

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599
C Louise Says:
 
Victoria. Are you able to see my posts? Please let me know. The drug may be gone from the body in 6 months but the side effects probably won't be.

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598
Victoria Says:
 
Will it ever come out of your system in time?

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597
Victoria Says:
 
I had my 1st shot in July 2014, When it came time for my second in January I refused. the tingling in my arms legs and face was horrible. Here it is almost April, I thought after 6 months it would be out of my system but the systems, tingling which feels like ice on my face, legs and arms is getting worse every day. I never, ever should have taken that shot. And like you the doctor say it is not from the shot. but I DID NOT have this before. It is getting so bad I have not life. all I do is cry and every day get more and more depressed.

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596
ricky Says:
 
To deal with the horrible side effects of Prolia after my Fifth shot, excuse me, I thought I had taken Four, I used prednisone which gave me terrible mood swings. I am now through with that and I listen to free meditation tapes on my iPad. I do not know what else to do.i drink lots of water hoping somehow the Prolia will wash out. Doctors who prescribe the drug are just interested in bone growth and it does do that But really detrimental to the rest of the body. Sometimes the smell of food makes me ill. For months I was not able to lay my head on a pillow because my scalp felt like it was attacked by pins and needles. The doctors of course say they never heard that before and I say you are hearing it now. Stay strong and be thankful for the short time in between when we feel somewhat better. No time to be an atheist we need lots of prayer

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595
Reggie Says:
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I have had four prolia and went through rough time but began to feel ok because I'm learning to live with pain, I've been to dentist again following crowns n root canal, nothing wrong with teeth but my jaw!! I've numbness dude of face pain in ear neck back nd been diagnosed with TMJ DYSFUNCTION .. Anyone else? Gx

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594
Angela Says:
 
Had my 6th Prolia injection yesterday and have experienced first side effects. Have terrible itching going on initially in groin area and also arms, fingers and face. Very diasappointed as have tried many drugs prior to using Prolia, without success. My last bone density test indicated improvement for me. I will not take Prolia again so need to look for an alternative drug.

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593
C Louise Says:
 
I have reported to the FDA 4 times by email and I have called them several times. I called them 2 weeks ago to tell them there needs to be a way to tell prescribing doctors to STOP telling people that if you don't feel good or have side effects once you take a Prolia infusion that you will feel better at the end of the 6 months because the drug will be out of your body. I told them this is just not true. The lady transferred me to a pharmacist at FDA. He is the first to shed any light on what happens to people who take this awful drug. He told me the drug actually should be out the body at the end of 6 months, however, people can still suffer side effects for an unknown amount of time after that. He said this is a very well know fact about drugs like this that doctors should learn in their "Pharmacology" class in college. I told him the doctors MUST let people know this (that they may still have side effects long after 6 months) and I asked how we can make sure this happens. He said the first step is to report thru Medwatch on the FDA website. I have reported my dad's side effects 4 times on there plus the fact that the side effects last longer than 6 months and I hope all of you who have continued problems from Prolia will do the same. I also called Amgen. Got a girl named Kim. The first one at Amgen who would actually listen. I told her the same. I want the Amgen drug reps to stress to doctors that they cannot try to talk people into getting this drug because the effects will only last 6 months. The FDA told me that any comments that Amgen receives, must legally be reported to the FDA. There is a way to make sure your comments to Amgen are reported to the FDA. It's thru the Freedom of Information Act and the FDA can tell you how to receive these reports. The FDA can also give you #s if you think your doctor has been negligent in how he handled you with the Prolia. My dad is now home and on Hospice and in his last days. He has not walked on his own since 2 days after receiving his one and only Prolia infusion. It ruined him. You can read my previous comments on this site about my dad if you wish to see if you're experiencing any of the same health problems/side effects as him and you have received Prolia. I am just sick at what this drug did to my dad. He never had a broken bone in his whole life but now has had 3 broken bones (pelvic bone, elbow and lower back) all within 6 months time of receiving Prolia. A lot of good this drug for Osteoporosis did! I am begging as many of you as possible to report to Amgen and the FDA. I also suggested to Amgen and the FDA that the literature/inserts/magazine ads for Prolia must include warning information in regards to the ongoing side effects.

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592
Duckbill Says:
 
It has been almost 4 years since I had my one and only disgusting Prolia shot. Nothing has gotten better. Trust me, don't take. ONJ, burning face, periphrerial neuraphy, Burning legs and feet and Fibromyalgia, and not the greatest disposition. I've had a complete personality change. I pray a lot and hope a lot. Ya'll keep your chin up. God is in control.

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