Prolia Side Effects (Page 5)
(Newest posts first)

1433 Replies Updated


Conversation Starter


Alexis Says:
 
Would like to know of side effects after Prolia infusion from other persons. Up to now I have none.

Showing Replies 1353 - 1334 of 1433 ( Newest posts first ) RSS Feed


Previous Page     Page of 72    Next Page     Sorted By:

1353
Diana Says:
via mobile
 
Skitty I totally believe you are right. I'm 71 15 Months past shot date - post PRolla and am informed I now have hypercalcemmIa and may need parathyroid surgery. And still having muscle weakness.

Post a Reply   Share page   Report post

Was this helpful?  0 0  
1352
Skitty Says:
 
Thanks Pood, I am too much in distress now, he left me only last week after caring for him for two years with crf/anemia/IBD and lymphoma which took him in the end. I hoped till the end he would somehow beat all this. We have another kitty, but she is not as attached to me, love her very much still. He was a little part siamese cat I trapped by accident and has been the love of my life. I'm just devastated, he has helped me so much with my illnesses. I couldn't give the attention right now to another and especially a kitten. I'm worried they may chew the tubing on my insulin pump. I'm going to visit a friend in CA maybe and then we will decide to adopt again. I was thinking even a dog/pup maybe but I'm not sure. I'm so devastated. I have been through this a few x before but this is just so hard. He has been there for me for everything including two devastating furbaby losses, for 17 years.. he was 18 maybe. I just wanted him to stay with me forever. He was pure love. <3

Post a Reply   Share page   Report post

Was this helpful?  1 0  
1351
Skitty Says:
 
Yes I realized that, I was just wondering where it is posted at the FDA website???? Presumably they have to list them there too but a search doesn't find it. I agree, on of the things prolia seems to do is attack the muscles .. actually I think 5 11 12 and so on are separate but they all affect the muscles and could be fybro like symptoms but anything can cause those symptoms. My guess is it is the effect of prolia on the whole caclium/mineral and hormonal balance which happens in it's inhibition of rank ligand maybe.

Post a Reply   Share page   Report post

Was this helpful?  1 0  
1350
Jan Says:
via mobile
 
Google "Tinitis" and read up on it. I have had earringing in the past and have bouts of increased ringing. I am assuming that my worsened tinitis after my Prolia will get better over time. There are some thing you can do to help it including some supplements and medication. I found in the beginning if I focused on the ringing it would get unbearable. I had to find a means of living with it as a constant background noise like a white noise, instead of focusing on it as unbearable or annoying ringing. It helps to focus on a hobby, have tv or music in the background always, chewing gum, crunching on raw carrots instead of listening to the roar in your ears. There are options to discuss with your doctor or ear specialist. From what I've read on this board, others begin finding symptom relief after 3 and 6 month markers and then continued slow steady improvement. At month 3 I have seen improvement in my acid reflux and frequency of intense itching. I'm hoping all my other symptoms begin to follow this pattern. This is my hope for all who are experiencing the side effects of Prolia. My doctor is under the belief that side effects can get more intense with additional Prolia treatments, I can't take that chance. Being proactive with my current side effects keeps me focused on feeling better and waiting the Prolia out. Hopefully tomorrow my ears will ring less, my itching will be less, I'll sleep better, my pain and fatigue will lessen and my body will continue to rid itself of Prolia. It's not you, it's the Prolia.

Post a Reply   Share page   Report post

Was this helpful?  1 0  
1349
Carlene Says:
 
I have had my first injection of Prolia. I have developed severe ringing in the ears, I have decided not to take the second injection that is due! If my ears ring badly now. What will a second injection due. How long will this ringing in my ears last or is it permanent ?

Post a Reply   Share page   Report post

Was this helpful?  1 0  
1348
Victoria Says:
 
Poodle, a lot of these things you have listed on this list are really duplicated. numbers 5,11,12,14 are all fatigue and pain in the muscles, joint pain. These would all fall under Fibromyalgia. It seems the FDA is giving fancy names to things that are one in the same.

Post a Reply   Share page   Report post

Was this helpful?  1 0  
1347
Poodle Says:
 
Skitty~it was from askapatient as they had copied it from the FDA. Pood

Post a Reply   Share page   Report post

Was this helpful?  0 0  
1346
Jan Says:
via mobile
 
Pood-
I had a toy poodle in college. Snuck her into the dorm in my backpack before tiny dogs rode in purses. I have several dogs now. Love every one of them!

Thank you for all of your information. Hopefully I will have more info to share after I go to the Mayo Clinic.

Since my diagnosis I have given up all soda. What are your thoughts on sparkling water? I have read a mixed bag of opinions on soda,carbonation, phosphates and caffeine - both yay and nay.

Today was a rough day. I also got a call from the school district where I am a substitute because I have not been subbing enough. I had to say that I have been too sick and fatigued to take sub days. The district employee stated her mom had Prolia and was sickened by it, too. What a small world and we really are not alone- thanks for helping me!

Post a Reply   Share page   Report post

Was this helpful?  1 0  
1345
Poodle Says:
 
Jan, I contacted a firm and they said they would take the case if I could get sufficient people and I only had one week to do it. I did not get the number of people needed and others came in too late. I had to tell them we do not have sufficient numbers for you at this time. They were calling me every day and I would not pick up their calls and finally I had to talk to them. Maybe at a later date we can all get together and I'll find another firm. There are many that advertise on TV, so if they are doing one product, they darn well can do another especially with the number of deaths in the short time Prolia has been out because these type of suits are for the victims or the family of the victims. Pood

Post a Reply   Share page   Report post

Was this helpful?  1 0  
1344
Poodle Says:
 
I'm sorry Skittie. I always say the very best thing to do when we lose a fur baby is to get out and get another ASAP. It really helps the grieving process. A new one will never replace the old one but I can promise you that in time you will love it just as much. That's the way I am with Poodles. Cannot live without one. You know there is a kitten at a shelter that would just love to be yours. Go find it and you will enjoy having a kitten around as they are so cute. Pood

Post a Reply   Share page   Report post

Was this helpful?  1 0  
1343
Poodle Says:
 
Jan, I have posted this twice and twice it had to go to review so should be coming soon. If not, get on your pc and put in: How to contact FDA. There are a few things they want to know first: when did you get your injection, who did it and do they have your permission to contact that Dr. and then you go to all your side effects thus far.
Hugs~Pood

Post a Reply   Share page   Report post

Was this helpful?  1 0  
1342
Poodle Says:
 
Jan, I was close - here is how to contact the FDA for adverse events from a medication:

FDA MedWatch or call 800-332-1088

Sorry, I had an extra s in there.

Post a Reply   Share page   Report post

Was this helpful?  0 0  
1341
Poodle Says:
 
Jan, you can search for their phone number on the net and complaints can be given on the phone or in an email which I believe is through medswatch. Please don't quote me on this but that is to my best recollection. It's also in the back pages on this site if you feel like spending a few hours looking so if mine fails, it's back in there somewhere. Hugs~

Post a Reply   Share page   Report post

Was this helpful?  0 0  
1340
C Louise Says:
 
Good for you Jan; Go online to FDA.gov. then file a MedWatch Report. Scroll all the way to the bottom to the "contact FDA" button lower left. Then on the Contact page, scroll down until you see on the right hand side where it says Online and you'll see Medwatch. You can click on that and the form will come up. Even though they only like you to file once, I tend to send them a reminder every couple of months thru MedWatch. Thank you for filing! You are appreciated.

Post a Reply   Share page   Report post

Was this helpful?  1 0  
1339
Jan Says:
via mobile
 
How do I contact the FDA?
I would like to file my side effects with them on the Prolia.

Post a Reply   Share page   Report post

Was this helpful?  1 0  
1338
Skitty Says:
via mobile
 
Granny V, I'm glad you haven't reacted but keep in mind several people here did not have a reaction in till after several shops of pro Leah – the problem is no one knows what is going to happen with each individual person. And even when you have a severe reaction as you can see from what people have written here your doctor is going to say it's not from Prolia 9 Times out of 10 and deny everything! If you die they will say something else caused it not pro Leah…

Post a Reply   Share page   Report post

Was this helpful?  0 0  
1337
Grannyvee Says:
 
I have good cancer markers. But don't know if cancer will return or not but I'm able to tolerate the Arimidex and Prolia. I don't care to take either as Arimidex is also a chemo drug - I need to take it everyday for 5 years. At my age 5 years seems like a long time. I pray that your pain will go away and everyone else's pain cause from this medication. I know people get very sick from medicines.

Post a Reply   Share page   Report post

Was this helpful?  0 0  
1336
Poodle Says:
 
Marri- for muscle pains you need to take 500mg Magnesium every night. That will stop that part. As for the joint pains, your Dr. has to put you on a real pain medication or refer you to a pain specialist where you will get it. The only thing that stops the itching and the array of skin problems is Prednisone and I mean pill, not an OTC cream. You are very correct in stating your immune system is not working well. It's probably only half there and many autoimmune diseases come from this as all the infections, some of which are very dangerous. Get after your Dr. Gather up every side effect you have or have had and report it to the FDA. Take the list of side effects to your Dr. and put it in front of his/her nose and say I have … and have them circled on the side effect list. Undoubtedly you will get some that are not on the list. The FDA has been very busy changing warning labels on Prolia but it seems our Doctors are unable to read or don't care. Keep us informed. We will help you the best we can. We are all Prolia survivors in different stages from the injection. Be well~Pood

Post a Reply   Share page   Report post

Was this helpful?  0 0  
1335
Poodle Says:
 
Skittie~that's where I got it from too but they say it is from the FDA through 2015. I have a very difficult time believing so few people complained about muscle cramps as that is one of the major issues on this site. In my kennel of confusion~

Post a Reply   Share page   Report post

Was this helpful?  0 0  
1334
Poodle Says:
 
granny~I am happy that you are able to tolerate Prolia well and that it is helping you. Unfortunately, for the remainder of us we live in severe pain and cling to life by a thread. FDA reports around 5,000 women have died from Prolia in it's short time out. Do hope and pray the cancer is gone and if it were not from the chemo drugs it will be from Prolia as it is a chemo drug. That has to be the scariest word I ever heard when the nurse called up and said you have cancer. I beat that and I beat Prolia but not all here are so lucky. Good for you. Wish we had more people that wrote in and said it worked well with no problem. You are a lucky person in deed! Pood

Post a Reply   Share page   Report post

Was this helpful?  0 0  


Viewing page 5 of 72

< Prev PageNext Page >


Possibly Related Threads:

Prolia side effects ongoing I had my infusion Mar 4 2015. I have experienced severe stomach pains, leg pains that wake me up at night, a horrible dr... 105 replies
Prolia side effects Skin rash I Developed a red burning itchy lumpy rash after one injection of Prolia. Mainly on face neck chest arms scalp. Anyone e... 3 replies
Side Effects Of Prolia & Zometa Are Similar I'm a 59 year old female, diagnosed with Behcet's Disease and I use Prednisone for treatment for my weekly flare... 4 replies
Side Effects Following Prolia Injection I am 60 yrs old and suffer from osteoarthritis, osteoporosis, and myofascial pain syndrome. After discussing with my end... 45 replies
Prolia, strange side effects? I am 81 and had my first Prolia Shot May 7, 2015 and after three weeks I have developed a red rash looking sight UNDER t... 5 replies
Prolia Injection Side Effects Aprox 2 weeks after the prolia injection I started to experience nausea and weight loss. Also, loss of appetite and a ke... 13 replies
Prolia issues and side effects I am not going to have my next shot of Prolia due 11 June. I have already had two injections and lately have suffered ho... 14 replies
Documenting Daily Prolia Side Effects I am a 57 year old female who has -2.5 bone density scores on hips and -3.4 in the spine. I used Forteo for 2 years, but... 4 replies
what does prolia people say about the side effects What does the pharmaceutical people of Prolia advised regarding its side effects? ## Hello, Lala! How are you? They do w... 24 replies
Side effects of Bactrim I need to know of any side effects that may occur while taking this medication. ## Are there any risks to taking this me... 281 replies


Post a Reply

No registration is needed.
Simply fill out the form below.

 *
Please be detailed.

 *
You may use your first name, or for more privacy, make up a nickname.


 
Optional. Always hidden. This allows us to notify you when a reply is posted here.





4) Text Verification: *
Prevents SPAM.

Click here to show the question



This form will be submitted securely
I'm on a public or shared computer

TRUSTe Privacy Certification

Discussion Thread Guidelines: Any participation in the discussion threads signifies your agreement with the Terms of Use. (1) Act civilized and be respectful towards others. No profanity, vulgarity or lewd / suggestive content is allowed. (2) Posts encouraging, facilitating, or seeking advice about the abuse of medications or other substances are prohibited. (3) Personal contact information (such as telephone numbers, email addresses, etc) is not allowed to appear on our discussion threads. (4) We do not allow our forums to be used for buying, selling, trading, or for the promotion of a product or service. (5) Posting external links to other web sites is not allowed without our prior approval. (6) We reserve the right to edit or remove content which we find objectionable to the community at our sole discretion.