Prolia Side Effects (Page 5)
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Alexis Says:
 
Would like to know of side effects after Prolia infusion from other persons. Up to now I have none.

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599
C Louise Says:
 
Victoria. Are you able to see my posts? Please let me know. The drug may be gone from the body in 6 months but the side effects probably won't be.

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598
Victoria Says:
 
Will it ever come out of your system in time?

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597
Victoria Says:
 
I had my 1st shot in July 2014, When it came time for my second in January I refused. the tingling in my arms legs and face was horrible. Here it is almost April, I thought after 6 months it would be out of my system but the systems, tingling which feels like ice on my face, legs and arms is getting worse every day. I never, ever should have taken that shot. And like you the doctor say it is not from the shot. but I DID NOT have this before. It is getting so bad I have not life. all I do is cry and every day get more and more depressed.

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596
ricky Says:
 
To deal with the horrible side effects of Prolia after my Fifth shot, excuse me, I thought I had taken Four, I used prednisone which gave me terrible mood swings. I am now through with that and I listen to free meditation tapes on my iPad. I do not know what else to do.i drink lots of water hoping somehow the Prolia will wash out. Doctors who prescribe the drug are just interested in bone growth and it does do that But really detrimental to the rest of the body. Sometimes the smell of food makes me ill. For months I was not able to lay my head on a pillow because my scalp felt like it was attacked by pins and needles. The doctors of course say they never heard that before and I say you are hearing it now. Stay strong and be thankful for the short time in between when we feel somewhat better. No time to be an atheist we need lots of prayer

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595
Reggie Says:
via mobile
 
I have had four prolia and went through rough time but began to feel ok because I'm learning to live with pain, I've been to dentist again following crowns n root canal, nothing wrong with teeth but my jaw!! I've numbness dude of face pain in ear neck back nd been diagnosed with TMJ DYSFUNCTION .. Anyone else? Gx

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594
Angela Says:
 
Had my 6th Prolia injection yesterday and have experienced first side effects. Have terrible itching going on initially in groin area and also arms, fingers and face. Very diasappointed as have tried many drugs prior to using Prolia, without success. My last bone density test indicated improvement for me. I will not take Prolia again so need to look for an alternative drug.

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593
C Louise Says:
 
I have reported to the FDA 4 times by email and I have called them several times. I called them 2 weeks ago to tell them there needs to be a way to tell prescribing doctors to STOP telling people that if you don't feel good or have side effects once you take a Prolia infusion that you will feel better at the end of the 6 months because the drug will be out of your body. I told them this is just not true. The lady transferred me to a pharmacist at FDA. He is the first to shed any light on what happens to people who take this awful drug. He told me the drug actually should be out the body at the end of 6 months, however, people can still suffer side effects for an unknown amount of time after that. He said this is a very well know fact about drugs like this that doctors should learn in their "Pharmacology" class in college. I told him the doctors MUST let people know this (that they may still have side effects long after 6 months) and I asked how we can make sure this happens. He said the first step is to report thru Medwatch on the FDA website. I have reported my dad's side effects 4 times on there plus the fact that the side effects last longer than 6 months and I hope all of you who have continued problems from Prolia will do the same. I also called Amgen. Got a girl named Kim. The first one at Amgen who would actually listen. I told her the same. I want the Amgen drug reps to stress to doctors that they cannot try to talk people into getting this drug because the effects will only last 6 months. The FDA told me that any comments that Amgen receives, must legally be reported to the FDA. There is a way to make sure your comments to Amgen are reported to the FDA. It's thru the Freedom of Information Act and the FDA can tell you how to receive these reports. The FDA can also give you #s if you think your doctor has been negligent in how he handled you with the Prolia. My dad is now home and on Hospice and in his last days. He has not walked on his own since 2 days after receiving his one and only Prolia infusion. It ruined him. You can read my previous comments on this site about my dad if you wish to see if you're experiencing any of the same health problems/side effects as him and you have received Prolia. I am just sick at what this drug did to my dad. He never had a broken bone in his whole life but now has had 3 broken bones (pelvic bone, elbow and lower back) all within 6 months time of receiving Prolia. A lot of good this drug for Osteoporosis did! I am begging as many of you as possible to report to Amgen and the FDA. I also suggested to Amgen and the FDA that the literature/inserts/magazine ads for Prolia must include warning information in regards to the ongoing side effects.

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592
Duckbill Says:
 
It has been almost 4 years since I had my one and only disgusting Prolia shot. Nothing has gotten better. Trust me, don't take. ONJ, burning face, periphrerial neuraphy, Burning legs and feet and Fibromyalgia, and not the greatest disposition. I've had a complete personality change. I pray a lot and hope a lot. Ya'll keep your chin up. God is in control.

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591
Victoria Says:
 
Once you stop your shots it should be out of your body in 6 months. A friend of mine got me started on OSAplex by xymogen. it is very hard to find on your own but I did find it at brimhallsupplements. She told me her bone density improved after one year. It is not cheep, $71.20 for 60 packets. I am trying that. Have been on it 1 1/2 months. Try coconut oil on your face and scalp that might help. it works on everything.

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590
ANTONETTE Says:
 
once prolia is in your system, there is no way to remove it DO NOT TKE THIS DRUG AGAIN !!!

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589
ricky Says:
 
Extreme scalp and face itching after my fourth shot of Prolia. Absolutely excruciating. I am now on steroids and hoping this will all go away soon. I will not take any more shots. What can u do once it is in your system? I work out and take my calcium so I am looking for a more natural way to combat my osteoporosis. At first I did not connect this to Prolia, but I am now sure it is.

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588
carolyngo Says:
 
I am glad to hear that your had no side effects.
I had my first Prolia injection in July 2014. About 10 days l later I experienced quite severe joint and muscle pain. Since I have moderate arthritis I did not connect the pain to the Prolia. Mr family Dr. put me on a steriod which took care of it.
On January 20, 2015 I had my second Prolia injection. On Feb. 1 I noticed a rash on my legs and elbows. It was quite large and developed white pus centers. No pain or itching connected to the rash. Weird, right?
Feb 3rd, could not get out of bed. Severe, terrible joint and muscle pain. Stiffness so bad I needed assistance to walk.. To complicate things further, I was on vacation and out of the country. I was able to email my Dr. and he arranged for Prednesone to be called to a CVS in Spain. It helped a lot.Today is Feb 14. I am still having some hip pain, although bearable.
Those of you that have no side effects, wonderful. For those of us that have side effects they can be life threatening. I have been told that, for me anyway, the side effects will get worse if I continue treatment.


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587
Joyce B Says:
 
I speak for myself , being a medical professional I know the difference between old age and serious side effects of a medication . BUT very glad you have not has these effects . After 2 injections my bone density did not improve one bit , in fact got worse !!

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586
LadyInMidlo Says:
 
I've had 6 or 7 injections so far. I'd love to blame all my illnesses, aches and pain on Prolia but, the reality is, I'm 54. Unless you have an "early onset" of osteopenia/osteoporosis I'd say most of the symptoms I'd read above sound like old age. I can hardly get out of bed without joint pain - arthritis of some sort in fingers, wrist, knee and now in my back. I've always had dizzy spells if I get up too quickly - bit of low blood pressure. My bladder is fine but, I've heard of older, smaller, women who've had several children developing problems. I did have an early menopause and am now through that nightmare. I don't really care for what I was left with but can't blame Prolia. It is an important part of maintaining my bones.

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585
Joyce B Says:
 
UPDATE : Its now 16 months since last injection . Still having hip pain and now effecting my beautiful teeth that I have worked 59 yrs to keep . Mom always told me your first opinion of someone should be by their teeth . In the last 6 months I developed 3 cavities and now nerve damage to another and needs to be pulled . NO DOUBT in my mind this med takes calcium from your body to make new . WISH I HAD NEVER and that doc had been able to inform me more of this !!!!!

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584
kerick Says:
 
You are so right. My poor 83 yo mother has been suffering since Oct from this shot. She is so tired, and has leg & back pain. Up until this shot, she was completely self sufficient. It took only 2 weeks after the shot for her to feel like she was going down hill. Complete lack of energy, weakness, and muscle pain are the worst parts for her. She is counting the days until it wears off- 6 more miserable weeks to go.

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583
Jeanne Says:
 
I had my first and last Prolia injection early January. I am ( still trying to be) an active 57yr old who after 2 weeks of getting the injection am experiencing terrible leg, feet, hip, groin, and now jaw pain with occasional dizziness. This injection is making my life miserable. I researched Prolia prior to my injection, but was told at my doctor that it is very unlikely to have side effects. Are the doctor clueless?I see nothing positive online from anyone. This injection should not be on the market

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582
C Louise Says:
 
DPGIRL I'm curious of what was going on that they thought you were having a stroke? The doctors in the hospital in ER thought my dad was having a heart attack because his heart enzymes were severely elevated. His blood calcium level was also very low. His doctor prescribed Prolia even though dad has a latex allergy, had small intestine surgery AND has kidney failure due to Diabetes! And to top it off, the doctor didn't put dad on a calcium supplement, therefore he got Hypocalcemia which affects the heart enzymes, which is why they said he was having a heart attack. I had to pull the doctor aside and tell him about the drug (he got on his smart phone to research it quickly as he didn't know much about it)and made him do a blood test to check his blood calcium level. Once they discovered the level was low (dad was could no longer breath at this point and they were ready to put him on life support) they started IVs of something to bring the blood calcium level up and within 2 hours he started to improve. The killer drug was prescribed by his family doctor (and the ER doctors know just about nothing about it) because dad had hip and other joint pain because he was dehydrated but the doctor said it was osteoporosis causing the pain. Dad had a previous history of hip and joint pain and always got IV fluid and would feel better but the doctor took a different path this time and it was awful. Just curious as to what your symptoms were and why they thought you were having a stroke. Thanks for letting me know.

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581
C Louise Says:
 
If you go to fda.gov then on the very first page, on the left hand side under Recalls and alerts, click on Medwatch/Safety Alerts (in blue), on the next page you will see a reddish/orange box that says "Report a Problem", click that and on the right side you'll see Consumer/Patient in a blue box. Once you click that it should say "About Problem" and just follow down and fill in any information that you wish. I didn't list all meds taken or any of that. I basically gave them all the side effects and poor health my dad has been in since the injection, lack of prescribing doctor knowledge, lack of ER doctor knowledge at all, etc. Please let me know if I can help further. I hope this helps.

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580
Anonymous Says:
 
Victoria: FDA Reporting Serious Problems to FDA

You are looking for: Consumer Reporting Form FDA #3500B expiration 6/30/15
Form can be printed and mailed to FDA or emailed.

FDA phone # 1-800 FDA-1088

Wishing you all the best.

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