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Prolia Side Effects (Page 5)
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Alexis Says:
Would like to know of side effects after Prolia infusion from other persons. Up to now I have none.

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Lalatessy Says:
Dear All: Please do not start on Prolia, Foxamal or any other of the osteoporosis meds. For the past years I have gone through many of the expected side effects, but today I had to visit the OralMaxilloFacial Surgeon as a sore in my mouth has developed into a necrotic spot. Today I had been officially diagnosed with ONJ, Osteo Necrosis of the Jaw which is drug-induced. This is a horrible drug. Several months ago, I had intense jaw pain and now this. For those of you new to this site, I have been sharing many of my side effects. Before you decide to start on this medicine, please read all of the contributions in this chat room.

Good luck!

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Marleen Says:
My doctor wants me to start Prolia and I am very concerned about the side effects of this drug. Can anyone help me with the concerns

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Karynarj Says:
My mother is 88 years old and she is at her 3rd shot of Prolia. No side effects until today. She will take her 4th and last one shot in January 2015. This is what her endocrinologist advise her to do for 2 years. She also take calcium and eat lots of green leafs. Before Prolia she was taken Boniva for several years. I read all the comments and I think that she was luck. Good luck to all of you in your future treatments.

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Rose Says:
I will not take this shot again. I itchy all over and now I am getting hives. I am only into my third week. Who know what will be next?

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Tina Says:
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Thank you so much. I will mention this to my dentist tomorrow.

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Nell Says:
I took my first Shot last year 2013 of prolia no problems I took my second shot in may by June 3 I started swelling and then by the 4 th my knees and neck hurt so bad I thought I would die and my back hurts don't sleep much all my joints ache and hurt I want to stay in bed cannot do my house work/yard work for all the pain and throw up more than I ever have is this caused from the shot I thought it was arthristis but this is much more painful I will not ever take this shot again b/c I started having all these problem about 6 days after last shot and some times in so much pain have to have help getting up

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Joyce B Says:
Tina , not sure if oxygen chamber available in your area but my dentist told me this is only way to reverse effects of prolia . Its been 10 months since my second injection and I am just now starting to feel like myself again . Thank God horrible mouth pain is gone and I still have my teeth . Good Luck !

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Kathleen Says:
algaecal may be a good resource. Granted, they are promoting their own products but that does not mean the information they produce on osteoclasts and osteoblasts can not be verified. This info could provide a good starting point from which to dig deeper into the efficacy of this product.

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Reggie Says:
Hi Tina
That is awful, I've had my 3rd last month & must say I feel wonderful, after my 2nd had serious reactions etc, but managed to get prepared correctly for 3rd, increased calcium etc, diet etc etc, I feel fantastic just tired but not really putting too much into that as life is quite hectic for me right now! I do hope u will b ok, I've chronic osteoporosis, iv started to walk a little too, which I could not manage before! Reggie x

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Tina Says:
I am 44 and have taken 2 prolia injections for severe osteopenia and bone fx. Hx of breast cancer. I now have osteonecrosis of the jaw caused by Prolia. Teeth literally have just fallen out. Oral surgeons don't really know what to do because it takes at least a year before Prolia gets out of system. The whole right side sinus cavity is practically gone. They want to do bone grafts but no one will touch me until it does get out of my body. Evidently, the Prolia is blocking the red blood cells from getting to my jaw area. I still have no idea how all of this will work out. I'm a nurse for a physician who says the studies don't really even show any bone density improvement. DO NOT take this drug!

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Kathleen Says:
Guys - I do not remember where I read this. It was something about attaching to old bone cells which improves the density but the problem was that it also attaches to new bone cells, thus inhibiting their natural growth. I would double check that with my Doc and do my own research. I will try to find this info again. A lot of sights are trying to sell their products; I don't believe that was the case here. Hope this helps. I am new to this (recently diagnosed) so trying to read everything I can get my hands on and often find conflicting info which only serves to confuse the issue. If anyone has new or differing info I'm all ears.

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Summer Says:
Please tell me where you received the information of " Drug increases bone density, but with old bone cells"? Just wondering. Thank you

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Summer Says:
Check out FDA Prolia label update: As of June 2014 Sections Modified Warnings and Precautions

Musculoskeletal pain In post-marketing, experience, severe and occasionally incapacitating bone, joint and / or muscle pain has been reported in patients taking Prolia. The time of on set of symptoms varied from one day to several months after starting Prolia. Consider discontinuing use if severe symptoms develop.

Direct questions/negative reactions to Prolia to: Amgen Health at 1-877-562-4111 and report to FDA

Best to all

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Benny Says:
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The discussion between yourself and Kathleen has me somewhat concerned. Am I to understand that with my bone density at 27% and informed by my surgeon that it has the consistency of "moist drywall", that Prolia may, instead of building new bone mass, as I was led to believe, only serves to retain the old bone in order to appear to have greater density? If in fact this is the case, I'm in serious trouble. I was placed under the impression that it assisted in the production of new bone growth, so much so they've told me it would "out pace" the degeneration at the root of my rapid and fast paced decline. Can someone enlighten me as to whether or not I have understood this correctly?
With much appreciative gratitude,

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Kathleen Says:
And Anni - Prolia seems to NOT allow for new bone to be created. Thusly, your density may improve but it's all on old bone which in many cases gets more brittle by the day. I think the density tests show a false picture of what is really happening to our bones.

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Benny Says:
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Hey Summer, about a week has passed since the introduction of more electrolytes to my system. It has had a positive effect in battling the periods of confusion and subsequent migraines but thus far there hasn't been a complete reprieve from them entirely. They continue to be somewhat more than bothersome yet it wasn't until today that I've awaken in the midst of the confused state and actually had questions regarding my whereabouts. This was short lived but frightening none the less... I've added higher amounts of potassium and magnesium to my diet in hopes of fully counteracting these formidable side effects however that hasn't has enough time to be recognizable as any benefit. Again, I sincerely hope you are well and I'll be in from time to time with updates be they positive or otherwise.
Respectfully submitted,

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Petals Says:
Hi all, thanks to everyone who have shared their experiences and comments. I've found them really useful, particularly as I was nearly swayed by my endocrinologist to start using prolia. I was diagnosed with severe osteoporosis two years ago and recent scans show more deterioration. I also had a bone marker test (wasn't informed of its existence two years ago), and it too, showed a higher rate of leaching from my bones. But what to do? Following my early diagnosis, started taking calcium and vit d. This was a tough decision to make being a vegan. Neither of these seem to have had a positive impact on my bones. Has anyone found that bone deterioration has been halted or slowed down through diet, exercise or alternative remedies? Strontium isn't an option for me as blood clots is one of the possible side effects of that drug. Cheers. P.

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Benny Says:
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Good word Summer...
After being told by both Amgen and my Oncologist that the periods of confusion, severe migraines and lightheadedness I've suffered weren't caused by the Prolia, after pointing out precisely the page, paragraph and line stating clearly that these side effects indeed require immediate notification of the Dr's, I finally have verification and validation. I am one who some people believe go overboard on my water consumption, however, I enjoy water more than any other beverage and I daily consume three 64oz bottles of twice filtered Brita water. My PCP suggested last Thursday evening (7/24/14) that I replace one of those bottles throughout the day with a beverage high in electrolytes such as Pedialite, Gatorade's "G3 Recover", or similar equivalent. For the sake of finances we went with the powder form of the Gatorade and I have seen a most certain improvement over the last few days. Not a complete halt to these side effects at all but definite improvement. The confused periods are decreased significantly as are the severe headaches which encompass the entirety of the frontal quadrant of my head, spanning from just above the eyes to just in front of my ears and in a nearly straight line across the top of the skull. The lightheadedness has subsided accordingly as well but again, this isn't a complete remedy as I continue to have, though fewer, multiple periods daily when it all comes roaring back seemingly with a vengeance of sorts. Kudos to my PCP for the consideration and thought put in to at least give me as much relief as I've had from these debilitating side effects and in turn my hopes are, of course, that others may benefit from my experience. Perhaps given more time these horrid issues will pass completely but for now I'm grateful for the partial relief I've gotten. I'll continue to update as change necessitates, hopefully soon. Meanwhile, thank you Summer and all who may be following this particular issue, may my writing be of assistance to others and may God bless and in His mercy heal us all. Respectfully submitted, ...~Benny

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Kathleen Says:
I see a chiropractor 6 times a month. I am on a product called Osteo B Plus which includes 1000 mgs of calcium, also taking D (4,000 IU's) and walking 30 to 45 minutes daily. He now wants me to walk twice a day. Just diagnosed. We'll see what happens.

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Benny Says:
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Summer, finally able to write you with what may prove to be good news on the matter at hand.
It would seem that even though I consume a rather large amount of water daily my PCP has suggested that my electrolytes are diminished, adding that I should replace an amount of my water intake with Pedialite, a Gatorade, or like substance. I was advised to then give it a couple of days and if these symptoms continue to report to his office post haste. I'll update as necessary with either a pro or con regarding this remedy. May God bless all of you and thank you for this forum. ...~Benny

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