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Prolia Side Effects (Page 5)
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Alexis Says:
 
Would like to know of side effects after Prolia infusion from other persons. Up to now I have none.

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555
Summer Says:
 
Where is the FDA? How long do we have to suffer?

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554
marsha Says:
 
my 89 year old mother was on prolia and got a severe case of cellulitis which she was septic and ended up getting her leg amputated was in the hospital for 6 months has a prostetic leg but cant walk to well and is wheelchair bound this drug ruined her life

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553
Lala Says:
 
True, the jaw pain is typical. I had it and eventually it turned into ONJ. I don't know about your case, but any use of Fosamax, Reclast and Prolia are very detrimental to the health.
I wish God's blessings. Avoid these medications at all cost if possible.

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552
Janice in Redding Says:
 
My oncologist prescribed Prolia and told me to watch for side effects. I had the shot on Dec. 31st 2013 and didn't seem to have any side effects. But by July when I was due again my jaw hurt. It didn't hurt bad and I still don't know if it was from the Prolia, but I suspect it was. I would never take another shot of it nor would I recommend it to anyone else. I saw my dentist in August and he didn't see any connection to the drug?? he recommended I use hot and cold packs and if it doesn't stop the pain he would have me wear something in my mouth at night and see if that helps. I've not contacted him again, I'm just hoping it goes away.

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551
C Louise Says:
 
Joyce B. Thank you for the reply. Dads potassium has been okay so far but things are changing for him daily. I will keep track of that as well and thanks again.

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550
Joyce B Says:
 
C Louise , 3 wks after my second injection I had low potassium requiring I take supplement till levels returned to normal . I believe some of those side effects may be what is the problem with your father . How is his potassium levels ???

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549
C Louise Says:
 
Dad is developing blisters! Blood blisters on the back of his hand, on his cheek and on his shin! NEVER had blisters before and certainly never in these places. Horrible Prolia. I am just sick about my dad. Please see my previous 2 posts. Someone please help!

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548
Lala Says:
via mobile
 
I want to know how many persons have developed ONJ drug induced??


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547
Lala Says:
via mobile
 
I had Fosamax for 4 years, Reclast for 2 and Prolia for two. I am not sure when I became aware of the side effects. At this moment, I don't want to take any more meds. This is very frustrating

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546
Antonette Says:
 
Were you diagnosed with necrosis of the jaw after just PROLIA ? Because RECLAST can do the same damage ! Seems like we are all guina pigs for all the big pharmaceutical companies !!! Being a nurse, I have tried many of the meds I prescribe to others, therefore I know what the patient would be feeling. However in this new age of meds, there are just some I would never take !! My problem is that now I am due for another round of RECLAST,(haven't had any in the past 4 years). My doctor doesn't know what to give me, she feels nothing is safe. And she thinks she's just reaching by using RECLAST again w/me. So we'll see what happens next. The drug companies do not have long enough trials of anything used for osteoporosis, they present the doctor with statistics, and only after the doctor uses these meds, dthey find out all the side effects-and then it is too damn late, b/c they can't take it out !!! I feel sorry for all who have had symptoms, as I myself suffer. But I have so many things wrong, I really don't know what to blame things on anymore. Good Luck to all !

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545
C Louise Says:
 
My dad went into the hospital again this week on Monday. Several more side effects of this drug that doctors arent familiar with until you tell them to research on line.!!! Sad! Amgen employed drug reps are NOT doing a good job at informing doctors. Dad was admitted to one hospital as as of this minute is being transferred to a bigger hospital where more specialist hopefully can figure out what to do for him. I reported earlier, please see the problems up until now. Dad has a severe case of pneumonia, a blood clot in his leg, had a mild heart attack ( hmmmm wonder if that could have connection to his low blood calcium level that Prolia causes!), he has horrible muscle cramps and jerking! Amgen is just an awful company to deal with, I've called them twice and reported all of this then I called the FDA to make sure they reported this. Its a long process to figure it out even though legally they are supposed to report to FDA but believe me, I'll take the time to know if they've reported it or not and if they haven't there will be further action. Dad was close to death yesterday, I hope he can pull thru. All side effects started 3 days after his 1st injection. BEWARE and warn people of this drug.

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544
LalA Says:
via mobile
 
I too had suffered consequences from the side effects. I would join a class action suit. Now I have been diagnosed with necrosis ONJ and it's getting worse. I don't know what to do.

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543
Summer Says:
 
Hi Benny: It's Summer. I can relate to the loss of concentration and being unable to remember a sentence or conversation. You are right I have suffered a great deal with this drug. I only took one dose. My husband was the one to carry me and nurture me through this long journey. I don't know what I would have done with out him. We are bless to have such caring spouses.

As for Amgen: I have spoke to the CO office, Tammy and Eric. Tammy sees nice, but has given me conflicting information. Eric just seems, cut and dry. They have transferred me to speak with Brian who is in Thousand Oaks CA. Brian is a Pharmacist. Brian Tammy and Eric all take reports, but no one from Amgen has ever returned my calls. I have spent many $$$ out of pocket to deal with the side effects of this drug. Sent one letter to FDA. Will send another letter soon. Please post and let us know if Amgen has returned your phone calls.

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542
DPGirl Says:
 
NO!!!!!

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541
Helen g Says:
 
I have had two injections of Prolia. Now feel a achy all the time. Plus constantly hungry. I was probably given the same dose as well and weigh in the low 80's. Not too much weight gain yet, but I think it is due to bone loss as my size is bigger. Have always had constipation problems but now definitely worse. Should I take a third shot as scheduled? HELP PLEASE!

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540
Joyce B Says:
 
My dentist told me hyperbariatic chamber was ONLY thing to help me with terrible symptoms . Not like he had any reason to lie and he was VERY knowlegable about prolia . I learned more from him than the doc that gave it to me . Unfortunately after I had started shots . If I had the 1200 cash for 1 hour to be in it , I would have . GOOD LUCK

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539
BMBennett Says:
via mobile
 
Indeed. I'm terribly sorry to hear of your Bride's suffering. I watch as my wife tries to help me along after my issues with Prolia, I can see the frustrated pity on her face in her inability to help. I wish you and your wife all my best and may God bless you both, always...

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538
Antonette Says:
 
Sorry about your wife, but you are right in saying it's POISON !!! I don't know if a hyperbaric chamber will help any of her problems she's having. Did a doctor suggest this to you ? If so, it's quite interesting ! I would not take PROLIA ever again, but I have to consider taking RECLAST again, as it has been 4 years since I have used any med for osteoporosis. And I'm shrinking inheight and have broken all my ribs and bones in my toes & feet. So i hope RECLAST doesn't do any damage to me, b/c that is a cancer drug, but given in smaller doses to us.

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537
Sore in FL Says:
 
My wife has been suffering from the following symptoms for 20 months. Severe hives, itching and dry skin, swollen face, aches and pains, eye floaters and chills. These started after her 3rd Prolia shot. She had no idea what was causing it and went to the er several times, an allergist and various doctors. When getting her last Prolia shot last month she read the side effects and realized that everything she has suffered with for 20 months is on the side effect list. We are considering a hyperbaric treatment to quickly remove the Prolia poison from her system. It is amazing how quickly doctors prescribe these poisonous unproven drugs. We are not guinea pigs.

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536
BMBennett Says:
via mobile
 
Hey Summer,
I can only assume by your questioning and the fact that we're talking that you too have had much suffering in your life as well. I'm terribly sorry for your pain, as I would not wish the circumstances which bring us together here upon anyone, much less someone as nice as yourself...
I've honestly no idea from whence to derive truthful answered as opposed to those given us by others with their purposefully misleading and/or deceitful answers, told to us mostly by those who need to recoup the research and development dollars spent to first create, then "insure" the pharmaceuticals are approved by the FDA. I have lost all trust, confidence and respect for these who deny the most obvious side effects, claiming them "impossible" until the empirical evidence and medical testing is so undeniable that they fold and confess "off the record" only to have the conversation heard and verified by many...
It's a dishonest world, our Dr's have been every bit as ill informed and misled as we patients, however if we speak out with the slight piece of truth we've become privileged to, we are discounted as lunatics and personally, my credibility and integrity were called into question. It was at that point I became so incensed and angered by the denials I found a medical professional willing to hear me and act. This led to the entire staff at the Oncology Center becoming aware of my personal side effects and adding the most unbearable of them to their own in house documentation as well as their Patient Information Sheets handed to each and every prospective Prolia patient for their own concideration prior to the actual injection.
The side effect of most great importance to me of all I had was the nearly immediate loss of my wits. Within days of the injection, I had begun to lose focus and concentration abilities. Approximately 10 days after, the confusion that set in was so intense I could not finish a sentence if in fact I was even able to get the thought verbalized before it was forgotten. I was however more than aware of what was happening to me and it was even more pronounced in the looks of fear, sadness and pity I received from my Bride of 25yrs and my family, as they watched in horror the once intelligent, highly educated writer/author I am simply fade into nothingness. No longer able to answer even the most simple of questions, the frustration was most disconcerting and frightening, as I did not know at that time if this debilitation was to be temporary or if I were to be permanently only a shadow of my prior self.
I'm grateful to God the side effect was temporary for the most part when after nine weeks I was once again able to cognitively function. The side effect had been fading slowly however I've never before known the Hellish confines of a mind nearly completely lost, taking all I am with it.
It's been nearly five months now since the injection. I still have what my wife and I have come to call "Brain Days", though we were never given an explanation other than dehydration as a possible cause for this incredulous issue. These " Brain Days" are rather few and far between now, perhaps twice to three times per week I'm at a loss for clear thinking. Dehydration I assure you has never been, nor is it now an issue though the electrolytes in Gatorade were a help in overcoming the longer periods of complete confusion. These days I might even have a partial "Brain Day" with the confusion not setting in until mid-afternoon. For this I am also grateful.
Unfortunately, the only bone growth to be found is in the form of multiple and severe stenosis within my spinal canal, now placing great internal pressure on the spinal cord from C-3 through C-7, an area that had not been effected by the Osteoporosis and Osteoarthritis prior to August according to the most recent imaging. The films from August clearly show what had not been in just May, again, prior to the late June injection. I sought out bone growth and that is precisely what I got. Perhaps I wasn't specific enough with exactly where we'd wanted it. The bone density tests still show my hips at only 27% ...
This is where our need for an impractical sense of humor is supposed to save us from depression. Fortunately, my sense of humor and my faith remain in tact.
Although you and I don't know each other, I will indeed be keeping you in my prayers. It would appear my prayers for others have done far more good than my prayers for myself so it is to that end I have committed myself.

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