Prolia Side Effects (Page 5)
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I would like to know of any side effects others may have experienced after receiving Prolia infusions. Up to now I have none.

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REPORT

Phosphorus 2.3 - 4.7 MG/DL
Magnesium 1.6 - 2.6 MG/DL
Calcium 8.4 - 10.3 MG/DLur

When you have your next blood test make sure your results are between the low numbers and high numbers. Some of them can knock you off your feet with problems talked about on here. They are the ones my wife needed and each time she recouped but the Polia must have at on them and reduced them to dire levels. She got out of the hospital Monday and today is Saturday and she is doing fine right now but if those numbers above drop she will be right back to the hospital. I'm just passing along some info and no way practice medicine.

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Re: Darcy (# 3064)

It's on the FDA website in USA or tga in Australia

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Re: Lizzie (# 3075)

It's on the FDA website in USA or tga in Australia

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Re: Lizzie (# 3075)

Thank you! We need all the information we can to fight this.

Nikki

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Re: Nikki (# 3074)

Look up Prolia in Worst Pills.org -- nothing in there about deaths but it is definitely in there with some articles about the negative effects.

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Re: Kazz (# 3063)

Hi Kazz,
I did a search for deaths from Prolia but didn't come up with anything. Where did you get your information? I think my rheumatologist needs this information. Maybe it will give him pause from giving this drug to his patients.

I'm so sorry for all the problems you're having, too.

May 2021 bring all of us blessings.

Nikki

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I have been off of Prolia now for almost 2 years. I took myself off of it when my hair started to fall out. I have had all kinds of problems health wise since the start of taking this drug. I had many episodes of Vertigo but I never linked the Prolia as the cause even though it started after Prolia began. The pains and swelling in my hands and feet is very bad. My hands swell up like baseballs and the pain is intense. I live on pain meds(Advil). My Dr. was furious when I stopped and tried to get me on another one that you had to get at the hospital intraveinously. I refused. They also tried to push me on to Thyroid drugs which changed my disposition and not for the good. I stopped those drugs too. Every day is a new problem. The doctors are a disgrace when it comes to a drug not right for us or admitting it.

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Re: JenjiOz (# 3071)

I wish I could say the same re my side effects. It’s been 4 years now and the sensitivities in my mouth are still affecting my eating.
Needless to say, I stopped seeing the doctor who prescribed it when she said she’d never heard of anyone having any side effects. Well, she has now!

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Re: Judy (# 3069)

If only we had been warned about the likelihood and nature of side-effects! The doctor who prescribed Prolia for me seemed genuinely surprised by the effects I suffered. Over the past 3 years almost all of them have gradually subsided. The first 18 months were a total nightmare. The doc seemed determined to find some other cause, dietary or environmental, but there was none. It seems that Amgen brainwashed the prescribers.

Fortunately for me, the residual effects are now mild, but have included increased sensitivity to other medications. This effect seems to be lessening, but makes me a little apprehensive about taking anything new.

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Re: Robert (# 3067)

Praying for your wife. Enough of us need to find the strength to band together and stop Amgen from peddling Prolia and it’s next gen ‘new name’ Xgeva at the expense of women who need help with osteoporosis.

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Re: JenjiOz (# 3068)

I have been off this horrid drug and I have never been able to get rid of the sores and sensitivity in my mouth. I’ve given up seeing specialists as none have been able to help me. I just live with it and try not to eat anything that aggravates it. I have warned anyone who has considered or been told to take it....beware! It is supposed to be the drug to take as a last resort if nothing else helps. I didn’t need it. The doctor who prescribed it told me she worked along with the drug company! That should have been a warning for me.

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Re: Robert (# 3067)

That is really dreadful. I really hope your wife recovers quickly and has no other side-effects. Often various apparently unrelated side-effects develop over many months so that the link between cause and effect is not so clear.
We all put too much trust in medical specialists, sometimes to our great detriment.

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My wife was convinced by her rheumatologist to take Prolia. One of the worst decisions she has ever made. Prior to taking Prolia there was no problem with her electrolytes. About 2 weeks or so she had severe tingling in her, hands, feet, around her mouth. She went to the ER and they found he calcium, Phosphate and several other, chemicals needed for life had taken a dive down. She was admitted to the hospital and they raised her levels back up. After several days she went home. The ER work only lasted for 2 days and then back to the ER and admitted to the hospital a second time. Then back home and then back to the ER and admitted for a third time in a little over a week. After studying about Prolia and all the problems I asked the doctors could Prolia be the problem and they said she was in excellent health when she took the drug. And then all hell broke out. She has been home for 2 days now and she will get a blood test in the middle of next week to see if anything has changed, if she makes it that long this time. The doctors are now looking at Prolia as the cause of all the problems. I don't think there is any relief except the hospital. Recap: 3 ER visits and 3 hospital admissions in a little over 1 week.

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Re: Dawn (# 3065)

Big hugs to you! I had 4 or 5 injections and I hate the way my doctor kept pushing me to take the drug. It makes me wonder if he's getting something from Amgen to shove it so much on the patients like me who can't take any of those drugs.

Thank you so much for responding. I'll look up the medical conditions you have and make a note of it so I can be cognizant of the symptoms. God knows I don't want anything else. I'd love to get rid of the medical issues I have.

Sending you more hugs and prayers of healing.

Nikki

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Re: Nikki (# 3061)

I am in the same spot as you. It has almost been 2 years since my injection and I only had one and now I am still having adverse affects and I know they are from Prolia as I remember to well how that felt. I agree lawyers do not want to take other cases as you are not critical in their definition yet it affects every aspect of your life. I have until 2 years to do some and I am always looking and will find someone who will listen. I still have pain in my left area the actual injection site, stomach and bowel problems about every 2 weeks so better than all the time or every week, I still get angioedema of the right side of my face and have developed bronchioectasis lung condition which affects my breathing and my O2 saturation. I am a mess so I feel you struggles.
Dawn

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Re: Kazz (# 3063)

Darcy here ~ Had 2 shots in Jan & June 2019.

First, I wish everyone a Happy Thanksgiving and I wish their problems relating to PROLIA abate tremendously.

Kazz ~ may I ask where you found that 14,000 people have died from Prolia?? I would like to read that article!

At this time I still have little crusty scalp things on my head, a light rash on the back of one of my legs, fatigue, brain fog, and I am noticing skin tag type growths around my middle that are light, then turn darker, some can be scraped off but some will bleed if I do that. Already had a precancer on arm and a cancerous lesion taken off my hand via MOHS surgery.

Keep an eye out for that.

Be well ~ Darcy

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About 6 weeks in I had really splitting headaches...ear infections...vertigo...chronic constipation..blurred vision...burning mouth syndrome...back to back utis.as prolia affects your immune system...brain fog.

Hip pain and on going nausea....I now have an autoimmune disease...an accident I had in early Feb hasnt yet completely healed...sometimes it takes a few injections before you notice side effects..this drug has killed over 14000 ppl....and should be removed from the market as its risks far outweigh its benefits...shoul also only be given as a last resort not first cab off the rank. Have you googled what's in this drug...Chinese hamster ovaries..is one thing.....I can live without it. Now on a relay drug to stop spontaneous vertebrae fractures from the rebound affect

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Re: sheila ross (# 16)

How are you doing now? Did you stay on prolia?

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Re: Darcy (# 3050)

Every time something goes wonky with me the first thing I think is it because of Prolia. It's so hard to not blame it for everything. The eczema I got from it over a year ago is still on my legs. I could smack the crap out of my rheumatologist for coercing me and then refusing to stop giving me the Prolia.

Now, I've got an issue with my left breast. I'm headed back to Amgen's website to see if I can find something. Unless you've had a sudden break while walking or however it's listed as a side effect, those are the only cases attorneys are taking. There is no cure for COPD and now I have asthma-related COPD and the attorney's don't think that's serious enough.

Hugs to all,
Nikki

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Horrible drug for me, the side effects are terrible, and I have permanent problems because of Prolia. It was horrible for me and I will never be the same physically.
As I have stated many times, please research this drug. It is being used for bone cancer patients. It is a form of Chemo!

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