Prolia Side Effects (Page 5)
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Alexis Says:
 
Would like to know of side effects after Prolia infusion from other persons. Up to now I have none.

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1967
Judy Says:
 
I go back in a few weeks to see the doctor that prescribed the Prolia. She's the doctor who said my side effects were not caused by Prolia but because I was anxious! She's also not a "bone" doctor but a ob-gyn dr. I know she's going to discuss what I should take instead of Prolia so I'm wondering what others have done. She's in big time with pharma! I had some time ago been on Actonel , weekly, and after so many years my GP told me to stop. I was then just borderline osteopenia. I also want to see another Dr. but she is so arrogant and probably tell me not to waste her time. My gut tells me to handle it naturally. My problem now is that I am limited(for how long, I don't know) from weight bearing exercises as I have a rotator cuff tear and am waiting for an MRI next week to find out what can be done for it. I do take 4000 units of D but stopped some years ago from taking calcium and try to get it from diet. However if need be I may have to try meds again and if so have any of you had success with one without horrendous side effects.
It seems that all these "treatments " cause other problems. I look back at my mother and grandmother who both lived into their late 80s and 90s and except for a small break when my grandmother slipped going down some stairs, they had minimal problems besides getting shorter! ( or maybe I was just getting taller!)

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1966
Sal Says:
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Ps. I forgot to list TTAPP as another exercise program. This has been my go-to exercise program for years and prevented me from progressing to Osteoporosis. It was after an extended period of inactivity and inadequate diet following surgery that I progressed to Osteoporosis.

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1965
Sal Says:
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I too have Fibro and thyroid problems, and I am 69. I am DONE with Prolia, the side effects are worse than I ever experienced with Fibro or Myocardial Pain. Instead I am keeping my diet alkaline, doing resistance, Pilates and yoga, plus yoga for osteo.


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1964
Harley Says:
 
This is me to. Ive had two shots so far. Not sure about the third???? I hurt in my leg bones cant sleep headachs blowing up with hot spells and sweating. Im bout bonkers. My bone mass is really bad and im 58, have fibro and thyroi problems.

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1963
Sal Says:
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Oh that is what this dentist is. Although he is a general dentist he is also certified to do oral surgery, implants, peril and ortho. He is a member of an elite dental society in which it's members are also trained and certified in multiple specialties.
The teeth that are moving are on the top directly over the sockets where teeth were extracted. I was afraid to have implants so I had a partial / removable bridge. That was over 20 years ago; and I was warned that this would happen. The top teeth in question are sliding down. When I moved here I researched him carefully,
since I previously was treated by Columbia U. faculty.

At least I postponed implants by 20 years!

Now, If I could just take off the weight.
Since dieting has has not worked, I have given it up. I now eat like a French woman. Since the cycle of painful stiffness ended, I have been pretty active; yet the scale hasn't changed.

Now, off to Pilates !




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1962
Poodle Says:
 
Sal-with moving teeth you don't go to a regular dentist. You have to go to the ones that do implants, gum work, etc. Some people here have reported they had braces put on their teeth but no one ever bothered to post back if it worked or not. I am one week out of having two implants put in and Prolia could not move farther because there was a titanium implant stopping it. Otherwise, I would have needed a lot more implants. Two is more than sufficient. Amgen should have to pay for them because this is NOT written in their side effects. No where. No place!! Be well~Pood

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1961
Sal Says:
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Thank you. This is most helpful. I am now 4 mos. Since my last, and I do mean LAST shot.



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1960
Jeanne Says:
 
You can not have any dentist work done for 6 months after a treatment.

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1959
Sal Says:
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So, I just came from the dentist. The problem I am having moving teeth. These teeth are over the sites where I have a partial plate/ removable bridge as a result of previous extractions. This is the source of my teeth pain.

My question is this : do I need to wait until the Prolia clears my system ? Bear in mind that I have no evidence of necrosis or infection, or any of the horrors related to Prolia.

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1958
Poodle Says:
 
I had exactly the opposite problem with Prolia. In 3 months I lost 65 pounds. I walk into my Dr's office and she says: What the **** is wrong with you. I replied: You and your Prolia so she got busy really fast to get me well quickly. It's still a struggle now to get up to 120 where I would like to be. I just don't care much about food and eating seems to be like work if that makes sense. No. I am not lucky. I just have the opposite problem and apparently my stomach shrunk so much it just cannot process much food even now. Plus Gluten Free is usually not very good at all. Pood

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1957
Judy Says:
 
Pood, I'm aware of how addictive these pills are. I was given a prescription of 30 1 mg in February and I still have 21 left. I only take 1/2 pill as needed. Actually I have found a meditation video on YouTube, Blisssful Relaxation, plus a few others and listen to it every evening and find it extremely helpful. Quite often I fall asleep before it's even finished! I also have a CD of a body scan meditation which is very helpful. I refuse to take any meds unless absolutely necessary. Thanks for your concern.

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1956
Angeline Says:
 
Prolia is a poison drug it should not be on the market.But the doctors keep pushing that drug for the money.That drug is made from the ovaries of Hampstersits a bad drug many people have been in the hospital we should all get together and start a lawsuit Docters lie to their patients I got rid of my doctor he is a liar.

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1955
Poodle Says:
 
Judy~I hate to tell you that the med you are currently on is very, very, very addicting and is extremely difficult to come off of because it causes the heart to stop and you are DEAD. More often than not, one has to be an inpatient at a psychiatrists' hospital to come off of it. Yes, it works really well and that's it's big problem. What are they trying to do with you up there? Kill you???? Prolia was more than sufficient and to now add these meds to your list. Know what you are taking. Check it out well on the net. Best wishes~Pood

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1954
Judy Says:
 
Thanks Pood for the info. Since I last posted about trintellix I stopped taking it. It did help the anxiety but I just couldn't tolerate feeling like a zombie! And I was on the lowest dose. My doctor has given me lorazepam which helps and I have demanded that I be referred to a physiotherapist. I'm now waiting and was told I should hear from someone within 3 weeks and if I don't to call her back. In the meantime I will check out remeron. About 20 years ago I was was Zoloft which really helped but when I tried it recently I had such terrible diarrhea I had to stop. I seem to be very sensitive now to a lot of meds ( Prolia is the best example!) . I've decided the best cure for depression and anxiety is having a pet. We had to put our beloved Persian down 2 years ago so I'm now in the process of finding a new pet to join our household. I'd prefer a dog but as we are not getting any younger and will probably be moving into a condo in the next few years a cat would be more likely to be allowed. Also easier if we decide to go away on holidays!

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1953
Annie Says:
 
My platelet count has decrease a little every year since I have been on Prolia for 3 years. It is now down to 98. Is this a side effect of Prolia? I have decided to tell my Doctor to find me an alternative medication for my Osteoporosis.

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1952
Maritere Says:
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Hi, I lost 17 pounds in two weeks.... Prolia altered my thyroid function such that i have palpitations and feel as if I'm running a marathon all day. Im not sure what is worse, loosing or gaining weight...

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1951
Poodle Says:
 
Judy~I checked on the new drug you got. It does have a lot of side effects and is quite new in the US, at least (2016). It is used to treat MAJOR DEPRESSION. I'm sure if you went to a Psychiatrist you could get easier to manage drugs like diazepam (Valium) for anxiety and Mirtazapine (Remeron) for depression. Neither have bad side effects that I have found. Both should settle you down and you will sleep like a baby. These are both old drugs that have been out for quite some time. Do your own fact checking and find out if you agree. I know the Prolia journey is horrid but I don't believe you have Major Depression. Sometimes Docs get on with the new and forget the old - case in point: Prolia. I've only met one person in my whole long life that had Major Depression and there was a very good reason for it. She was blind and had a seeing eye dog. One day in a city park, someone killed her dog and left her there alone with no help. Eventually someone found her. I don't believe she ever had the money to replace the dog though. Be well~Pood

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1950
Poodle Says:
 
Diana~Gluten intolerance is in your DNA. If you have had children, you do not have Celiac Disease. There is something in Prolia that I really don't understand that brings to the front previously unknown problems in our DNA. C Diff would have to be picked up in a filthy restroom/restaurant and I really don't think you have been out that much to get it. It causes severe diarrhea and is easily detected by a Primary Care Doc. For the gluten, you have to have a special blood test that goes to an out of state lab and it tests your immunoglobulins. If your iGA is low, you have Celiac Disease but with rest and no stress it should go back into remission. Hope this helps answer your questions. Gluten causes vomiting and diarrhea as the body cannot tolerate it and it is damaging the inside of intestines. May I suggest you put both problems separately in your browser and read about them. Be well my friend~Pood

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1949
Linda Says:
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Mine had not come off and it has been over a year. I have lost 10 pounds but it has been a struggle. Good luck.

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1948
Sal Says:
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YIKES! I have been avoiding buying new clothes (so far I have been living in leggings and tunic tops), but none of my warm weather clothes fit me.

The weight doesn't even come off after Prolia clears the system???

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