Prolia Side Effects (Page 32)

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I would like to know of any side effects others may have experienced after receiving Prolia infusions. Up to now I have none.

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621

I was getting my shot at an oncology office. When I called and said I was not going to come back for my 2nd shot due to several side effects, all they asked me was "the doctor would like to know what are the side I am experiencing". When I told them Tingling and numbness in arms and legs, urine leakage, which I did not have before and still have now 8 moths after 1st shot, they said that is not a side effect! I just had surgery for the stress incontinence. I'm not even sure if they told the doctor of my side effects. I am so, so sorry I took this drug. Once it it in your system it is there forever.

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622

Maybe a class action lawsuit would make them aware that they need to get this drug off the market. After one shot I was so bad I will never have another. Vitamin d and calcium is all I will take. My Dr tried to get me to take another new shot that just came out, I said no. The pharmaceutical. Co.are just trying to recoup the money they spent developing the drug. They hide all the bad effects or prolia would have never made it on the market.

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623

I had one injection of Prolia six months ago. Previous to the injection, I could run three miles, be active and working from morning until night. Since the injection, I have lost 27 pounds, had nausea and vomiting without relenting, have caught several "bugs" including bronchitis, and had waves of fatigue so uncharacteristic of my usual 51 year old self. Also, I NEVER again will I do an injection. It has been 6 months of ill health, multiple doctor visits, and many tests. My heart goes out to anyone experiencing side effects from this awful drug.

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624

I have knee replacements and have been on Prolia for a year. I have experienced chronic fatigue, cataracts, a fibrillation and now both my knee replacements are wearing out...Poly wear or wearing down of the plastic piece. I found an online site that states that something in Prolia breaks down the plastic!!!!!!! UK has put a warning on it for low blood calcium, too.

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625

I took one shot and would never take another one. After having steroid shots in my spine for pain I now have osteroporasis, it was improving with calcium and vit t d but after reading up on it I won't be taking b g prolia or steroid of any kind. Steroids wear out your joints and I wouldn't take any pharmaceutical drugs before reading everything on it.

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626

Merle: What was your doctors response to side effects? Did you call Amgen or FDA?

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627

I did file a report. At Mayo, the gastroenterologist believed all my symptoms were related to the Prolia, but other specialists I've had to see have not agreed.

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628

I have also had trouble breathing ever since prolia.

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629

Three weeks after my second shot I got so very sick I now MUST be on Oxygen . Thats been 18 months ago and no improvement .

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630

What were your Prolia side effects? How did your doctor react? What did you do to get some relief? Hopefully we can help each other out and provide some ease of pain.

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631

I've been on Fosamax and then Boniva for probably close to 20 yrs. Two years ago I began to have an itch in my upper arms. I went off of it after having that and TMJ issues. My recent bone density test showed mostly red in color with dots of yellow (no green) so my Doctor put me back on Fosamax (generic brand). My 2nd pill was yesterday and I've had terrible heart burn, indigestion, burning throat and stomach issues. I went back to him thinking that he would just give me name brand. I had a small peptic ulcer that is healed up. He wants me to take Prolia injection and see if it will help the osteoporosis. I can't afford natural supplements, my insurance pays for all Rx. I do take calcium and a one a day vitamin. How many people taking Prolia have no side effects? The ones I'm reading here makes me nervous to take it. I asked him today if I was allergic to it, how they would get it out of my system. They'll watch me.... Thanks for any help!

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632

I wouldn't ever take another prolia shot or take any pill. Calcium and vitamin d. Is all you should take. I tried taking the pills for osteopenia and had one shot of prolia. Next day I could barely move my legs and was in horrible pain for two weeks. Never have been able to walk correctly since then. Do not take it. Very few people had taken it without bad side effects and I don't think it helps. You also have to take calcium and vitamin d with any of the osteoporosis drugs and that is why helps. Have your vitamin d level checked on a regular basis.

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633

I wish I had read this site before I had taken my first shot of Prolia. If you haven't taken that 1st shot don't. There are too many side effects.

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634

You also have to take vitamin d and make sure they check your levels.

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635

I had my Prolia injection a week ago yesterday. My arm hurts really badly where I got the shot, my spine is the worse pain I have had and I've started to get headaches that don't stop. Of course, the first couple of days were in the bathroom barfing and with diarrhea. Does this get better?????

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636

The National Osteoporosis foundation web site may be beneficial.

FDA Office of Management
Division of Freedom of Information (HFI-35)
5600 Fishers Lane Rm 1035
Rockville, MD 20857

Request a report on Prolia events (free of charge). Fax request to: 301-827-9267. Or call: 301-796-3900. Reports are updated every six months.

FDA Med Watch: 1-800-332-0178
Amgen health: 877-562-4111

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637

I just wrote to the FDA to ask them to please take Prolia off the market. This is a living Hell. I wonder if taking out my blood and having someone else's T-cells put in mine would help. It would have to be done numerous times since Prolia deletes our immune system which is basically T-cells.

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638

The internet has all the side effects listed and trust me, you will get them. I just reported mine to the FDA to hopefully get this product off the market. I would much rather have broken bones than live with Prolia. At least the bones will heal but Prolia seems to last forever. It completely removes your immune system so it is definitely NOT a safe drug. There will be no second shot in my lifetime!! I will die first. I also called the FDA and requested all the info they have on Prolia. I live in Wyoming.

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639

I have had one injection of Prolia. I have suffered from abdominal pain, in which they gave me meds to help with this. Two weeks later I noticed a rash all over my Breast and torso, I was given prescription cream and told to take Benedryl. I am now suffering from severe hip and lower back pain, also I was told this is a side effect of the medication. I was told to take Tylenol for the pain. The hip and back pain makes it difficult to walk, sit for long periods of time at work and sleep.

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640

My mom, 62, diagnosed with oateoporosis, was advised to take Prolia six months after her accident. She had a bad fall in the bathroom and had spinal compression (T8-10). She's wearing a brace and is currently taking Strontium Ranelate (2g) and two calcium carbonate tablets per day. Her recovery is slow, she's partly Chinese and is a small woman, about 100lbs. I read through the posts and researched about the drug and got very scared of the side effects experienced by others who had Prolia...I pray you all feel better soon.

My mom has been taking Strontium for a month now, but we did not follow the recommended dose. My consideration was her small body, and taking in too much medicine (specifically a heavy metal) will surely have bad effects. At her first try to take 2g, my mom got very nauseus and weak. She wasn't able to get up for 12hrs after a 7hr sleep, a total of 19hrs of dizziness and the feeling that she wanted to vomit every five minutes. The next night we made everything in half -calcium in the morning and strontium at night. She felt better and was able to move. But still the concern is if it's really helping her to build up bone mass...and until when will she feel pain. I did major changes to her diet: calcium from food, more fiber, no fatty and processed food. I hope her bones will heal soon.

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