Accutane And Infertility (Page 16)

I took accutane almost 14 years ago as a teenager. I am now a 32 year old woman who has just been diagnosed with infertility that they believe is linked to autoimmune issues. I truly believe that accutane is the cause of this; from the research that I have done it seems that accutane has been linked to other thyroid-related diseases, but that they have not yet been able to prove a link between accutane and infertility. There are, however, actually more people like me out there than I originally thought. Being diagnosed with ovarian dysfunction has been a horrific, horrific blow. And while there was plenty of information about accutane and birth defects, no one ever mentioned a possibility of future infertility. I was a teenager! This is a tragedy and I believe something should be done about it. If you too have been affected diagnosed with infertility and have taken accutane, please email me. There are plenty of suits against accutance. If there are enough of us, we can come together to do the medical research and get the help we now need.

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I am with you. not sure what your e-mail addy is but mine is {edited for privacy} and would love to go after Accutane...this needs to come off the market. I feel horrible for all the teens that are on it right now and are oblivious. Awareness needs to be done.

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Wow. This post could have been me. I am now 43 with 2 adopted children.

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So happy I came across this post. I took Accutane in my mid teens for painful, deep "zits." We tried to get pregnant for over a year, finally went on Clomid and my first pregnancy resulted in a Molar Pregnancy, which is rare, and resulting cancer FROM the pregnancy (even MORE rare). After waiting a year from finally being cancer free, I got pregnant and was blessed w/ a little boy. Been trying again for over a year and a half for a second on Clomid/Femara, and nothing has worked. I TRULY believe EVERY SINGLE PROBLEM I've had w/ pregnancies is bc of ACCUTANE!!! I am SOOOO PISSED!!!!

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I am 42 and have been trying to conceive for 12 years. I am classified as unexplained. I took accutane at age 14 and I believe this is the cause for my infertility. It is extremely heartbreaking, I am in Canada, but would be interested in knowing more about this!!

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Thought you ladies might find this interesting. When I am able to retrieve the full abstract I will. Hopefully more studies will be done. informahealthcare.com/doi/abs/10.3109/09513590.2013.860118

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Oli Girl, thanks for that post. I read it and it seems there is definitely a link as isotretinoin is indeed the same thing as Accutane...

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I took roaccutane in my early 20's and am unable to conceive, now in my early 40's, was made aware of birth defects but none to do with conceiving

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If you read the study carefully, the women with acne had approximately 50% higher AMH levels. After isotretinoin (Accutane) treatment the levels were approximately 25% higher. Since the higher levels represent increased male hormone levels and may be correlated with acne. Also, with infertility. This study seems to suggest that by lowering the elevated AMH levels, Accutane may improve ovarian function and improve fertility.

It's not clear how the authors derive their conclusion that normalizing abnormally high AMH indiccates a detrimental effect on the ovaries. If you quiet down an abnormally active ovary, you could define it as a detrimental effect, but it seems more logical to call a therapeutic effect.

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I took accutane when I was a junior in college. I am now 36 years old. My husband and I have been trying to conceive for the past 2 years. We have been referred to an infertility specialist.... I just happened to do a search to look into this myself... Please do keep me posted on any additional information. Hugs.

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I took accutane in my 20's and now cannot get preganant. Did you file a lawsuit yet?

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My husband and I both took Accutane when we were younger and we were both diagnosed with infertility when we sstarted trying to conceive. Now my sister says my nephew is starting Accutane. I would really like to save him this heartache if possible.

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I took accutane when I was 15 for 6 months and also have been diagnosed with infertility, and my childhood friend who also took accutane - same thing.

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Hi, I took accutane in my mid twenties. In my later twenties I have dealt with extreme infertility and spent over $50,000 to have a baby, because so many died. Not only are my accutane related symptoms getting worse with age, but my baby has also dealt with life threatening side effects of accutane. I had no idea this drug would make me infertile or pass down the side effects to my off spring. It is horrible!

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What you say about checking for other causes of infertility and also to have a control group is very important. However, much of your information / facts are to do with the medication in the last 10 years. Many women in this forum are in their late 30's and early 40's when it was prescribed much differently. Neither my skin specialist, nor my GP ever prescribed anything except an alcohol wash to dab on my skin and then Accutane. I was on accutane for several YEARS - my acne wasn't "severe" my Mom wanted me to take it for vanity / cosmetic reasons! I think it would be interesting to survey all the women on this forum and also a control group - it's not a huge number in this forum and could be easily done. Create a "survey monkey link",post it to the forum and watch the results come in . . . then we might have some better idea of what is really going on. You're the doctor and should have some idea what questions should be asked. I'd be keen to participate.

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My son took Accutane for 7 months, 10 years ago. The risk of Infertility was explained in detail on several pieces of literature, and we had a long discussion with several doctors about the possibility. I am surprised to hear about anybody who DIDNT know it was a possibility. It was something we had to consider very seriously.

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Are you sure it was infertility? Or was it a problem with children being born with disability of some type if conceived / carried while on the medication? That's been well known for a long time but I'm certainly not aware of any claim that it is related to infertility.... would love to see a scan of the documents you were given to read. Are you able to scan and post or quote verbatim?

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I took Accutane at 18 for severe cystic acne that wouldn't respond to anything else. After struggling with infertility for a year I was recently diagnosed with POF at age 30 - high FSH, few eggs, very poor egg quality. I had normal periods before Accutane, went on birth control pills for 11 years, and now that I'm off the pill, have super-light periods that barely last a day. I'm not sure if Accutane caused my reproductive problems, or if I've always had an underlying condition that affects hormones (and causes acne) and has over time ruined my ovaries. All I know is that I was warned about Accutane causing serious birth defects, but was told nothing about the possibility of infertility.

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Im 55 years old, with no living kids. Have had many miscarriages over year. Ive always bbelieved it was because of accutane. To this day im not on any birth conception. I search for years trying to start a claim. Please keep me update with your findings.

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Dear All,
I took accutane for just 10 days and after reading all this. i am not going to take it again
wil these 10 days have long term effect on me? :( or have i stopped at right time?im really worried

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Istrongly believe aAccutane is caused f infertility n spontaneous miscarriages which ive had a few.at my age having kids is no more in my plans. We shoul . Band togethern hire a team of high power aattorneys n doctors for research. Please reply.

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