Gastrointestinal Stromal Tumor (gist) Removal

13 Replies Updated



Conversation Starter

Stephen Says:


What happens after surgery when you have a GI stromal tumor (GIST) removed from your stomach? I am wondering about the recovery period and how long it takes to recover? I have one 2 inches in my stomach and need surgery. It's not cancer but still should come out. I wonder why? Help, someone talk to me.



Showing Replies 1 - 13 of 13 RSS Feed


Page of 1     Sorted By:
1
Wayne Says:

Are you sure its not cancer? Have they done a biopsy? I was told that i had one 7in by 4in. After removal i was put on Gleevac (Oral Chemo Pill) 400 mg for a year and a half. Then found out I had tumors in liver. They changed my meds to 800mg Gleevac. It is supposed to reduce the growth of the tumors. Now, they have me on Sutent because my body got used to the Gleevac.

REPLYSHAREREPORT
Was this helpful?     0     0  
2
Sam Says:

Re: Wayne (# 1)

Sorry to hear this, will pray for you.This cancer stuff can be serious, have they considered radiation?
Sam

REPLYSHAREREPORT
Was this helpful?     0     0  
3
pamelaq Says:

Hi ! I'm sorry to hear your bad news., however, your recovery time and what to expect will depend on the technique used. I had mine done robotically, I felt great afterward other than the soreness of incision on the stomach. I had 4 small incisions at, around and near the naval. Talk to your doctor and ask what technique and what to expect. He or She should provide you with corresponding literature. Hope this helps.

REPLYSHAREREPORT
Was this helpful?     0     0  
4
Anne Says:
via mobile

These tumors have a tendency to bleed and hinder absorption of nutrients. There isn't clear evidence showing that the tumor may become malignant after time. Therefore most physicians will want to remove them. They can do this with small tumors via gastroenterology, or scoping the stomach. Like any surgery it will take about 6 weeks healing and you'll be on a special diet for awhile while healing. You need to talk to your doctor and ask him about everything that concerns you. He's your #1 teacher. He can give you more details. If you're not satisfied then by all means get a second opinion. Sometimes it's a good idea anyway just to put your mind at ease.
Good luck & keep us posted.

REPLYSHAREREPORT
Was this helpful?     1     0  
5
Angry 65 year old Says:

Re: Sam (# 2)

HI MY BROTHER IS A PHYSICIAN OUT OF STATE AND I REMEMBER WHEN HIS PRECIOUS WIFE GOT BREAST CA -THEY REFUSED RADIATION(she's also a PA) WHEN I ASKED WHY HE SAID PEOLE DON'T UNDERSTAND THAT OTHER ORGANS CAN BE HARMED GREATLY BY RADIATION. SHE DID CHEMO LONGER AS OPPOSED TO RADIATION. SO IF MY BRO DOC DOESN'T WNAT IT FOR HIS BELOVED, THAT'S GOOD ENOUGH FOR ME. NEVER RAADIATION FOR ME. ...just sayin'


REPLYSHAREREPORT
Was this helpful?     0     0  
6
Anne Says:
via mobile

Re: Angry 65 year old (# 5)

Sam, that's true. Radiation can harm other organs but they've come a long way in making it very precise to the site of cancer. It's safer now then it used to be. Most doctors highly recommend radiation before chemo in breast cancer patients. Survival rates are higher with radiation and chemo. How long ago did she have the chemo? Chemo isn't real easy on the organs either. I hope she recovers and has no reoccurance. My prayers are with her. I had cancer when I was 20 and can happily say I'm cancer free today. Best of luck!

REPLYSHAREREPORT
Was this helpful?     0     0  
7
Anne Says:
via mobile

Re: Wayne (# 1)

Best of luck in your fight against cancer! My prayers are with you and everyone else with this horrible disease.

REPLYSHAREREPORT
Was this helpful?     0     0  
8
Steve Says:

Re: Wayne (# 1)

They want me to do chemo for 2weeks to guarantee it doesn't come back but I refused!!!

REPLYSHAREREPORT
Was this helpful?     0     0  
9
pamelaq Says:

Hi! I completely understand about not wanting to do chemo or radiation, however, it is important to know the staging and if isolated also if the dr. felt all cancer was removed during the surgery and if lymph nodes, tissue and etc were affected. Most surgeons in a case of cancer of intestine usually do a liquid form during surgery and a round of chemo after as a safeguard. I would ask these pertinent questions and seek a 2nd opinion with a oncologist maybe even get a 3rd opinion. The stage really matters. I hope this helps and good luck, I will pray for you.

REPLYSHAREREPORT
Was this helpful?     0     0  
10
Wayne Says:

Re: Steve (# 8)

I was informed that Chemo and Radiation didnt work on GIST tumors. I never had either,except for a Chemo pill.

REPLYSHAREREPORT
Was this helpful?     0     0  
11
Anne Says:
via mobile

Re: Steve (# 8)

They recommend this to "try" to ensure that all the cancer cells that may remain after surgery are destroyed. Doctors usually take more tissue then what is needed to try and get all the cancer out. Some cancer cells may still remain in spite of that so they use radiation to kill the cells that may still be there. That's the reasoning behind the radiation but only you know what's right for you and how much you want to do.

REPLYSHAREREPORT
Was this helpful?     0     0  
12
Steve Says:
via mobile

Iipamelaq (# 3) --

I am still vomiting 6weeks later after surgery and had the same thing you had please help me understand.



REPLYSHAREREPORT
Was this helpful?     0     0  
13
pamelaq Says:

Re: Steve (# 12)

I can't give medical advice per se, I'm not a doctor or nurse, however, if it were me I would go to my doctor or seek a 2nd or 3rd opinion. I would have with me my operative report and all pathology reports. My husband has this surgery and ended up with cancer of the appendix. They think they have it all, but we consulted with an Oncologist and he is scheduled for a 3 day Osctero Scan to insure the cancer did not attach to anything. You need to follow thru with discussion with your doctors. I will pray for you and wish you the best of luck. P.S. All patient's are different and so will their experiences. Please keep this in mind.

REPLYSHAREREPORT
Was this helpful?     0     0  


Viewing page 1 of 1     Reply


More Discussions:

Gastrointestinal problem
few days ago suddenly I feel severe anxiety and stomach problems and I prescribed by a physician doctor to use medicine ...
Lozepam GastroIntestinal Side Effects
Hi all, I've started retaking lorazepam temporarily until my xanax prescription comes in. I originally went off lora... 1 reply
evista... gastrointestinal side effects
Approximately 5 hours after taking 1 tab of evista, severe vomiting and diarrhea developed lasting almost 4hrs....this w... 1 reply
experienced gastrointestinal prob and past few days often burp
i had an intercourse wt a bf last friday and taken lady pills on saturday afternoon.following days i often have an hour ... 2 replies
Pentrexyl for gastrointestinal infectionDR
I will be traveling to Mexico very soon. And besides the logical precautions like not drinking water or drinks with ice ... 1 reply
Ecosprin AV 150 & Clopilet Led to Gastrointestinal Bleeding
Hello, My father, a diabetic from last 10 years, suffered from a heart attack 2 months back and had an angioplasty done ... 1 reply
Qsymia not working after brain tumor removal
I was on qsymia, it worked great. I lost 45lbs. I had a tumor that was noncancerous and started back taking it because I...
Gleevec, Survival Rate, GIST Tumor
I have a GIST Tumor and have started taking Gleevec, 800MGS per day. I know there is no cure but I am curious about how ... 1 reply
removal of jadelle after 5year
I used jadelle for 5year now , can I get it removed I haven't planned to get pregnant or must I continue with this o... 4 replies
removal of rynatuss from market
Why is the fda causing rynatuss to be removed from market. ## The manufacturer doesn't have to remove it from the ma... 1 reply


Post a Reply

No registration needed.
Simply fill out the form below.

 *

 *


 Optional, stays hidden.
Get notified when a reply is posted here.




4) Text Verification: *
Prevents SPAM.

Click here to show the question



This form will be submitted securely


TRUSTe

Discussion Thread Guidelines: Any participation in the discussion threads signifies your agreement with the Terms of Use and Privacy Policy. (1) Act civilized and be respectful towards others. No profanity, vulgarity or lewd / suggestive content is allowed. (2) Posts encouraging, facilitating, or seeking advice about the abuse of medications or other substances are prohibited. (3) Personal contact information (such as telephone numbers, email addresses, etc) is not allowed to appear on our discussion threads. (4) We do not allow our forums to be used for buying, selling, trading, or for the promotion of a product or service. (5) Posting external links to other web sites is not allowed without our prior approval. (6) We reserve the right to edit or remove content which we find objectionable to the community at our sole discretion.


Note: All times displayed are GMT - 7.

This information has been independently compiled and is for informational purposes only. It is not intended to be a substitute for medical advice from a qualified healthcare professional; nor is it intended to diagnose, treat, cure or prevent any disease. For more details please see the Medical Disclaimer. This page was last updated on 6 January 2018.

We are committed to your privacy.

Copyright © 2005-2019 All Rights Reserved. MedsChat® is a registered trademark of Limelight Innovations L.L.C. 9888 W Belleview Ave #5000, Denver, CO, 80123, USA