Chronic Pain Patients Must Get Organized To Lobby For Their Rights. (Page 28) (Top voted first)

People with chronic, intractable pain are being discriminated against and it is imperative that we join forces to fight for our civil rights to life, liberty and the pursuit of happiness. Please send information on existing associations and organizations that can help or how to establish one that can help pain patients fight for their rights with petitions, letters; emails to send to these state and federal politicians that are determined use prescription drugs, doctors and pharmacies to further their political careers. Drug abuse is not the same as opiate dependent because of chronic pain management and there are over 100 million people living with pain and many of us are unable to live without medication. If the deaths from abuse seems high, the suicides from pain patients that are unable to get relief will be significantly higher. If we do not fight these governors (Colorado's Hickenlooper is a perfect example) and federal agencies that are discriminating pain patients we will be even more victimized. Obviously these politicians no little about pain and they are not aware that chronic pain patients are voters. The statistics used to support their claims regarding deaths from prescription medications are seriously skewed and lacking in additional factors that contributed to the deaths. Compromising the doctor/pharmacy and patient relations is not the government's job; as John Boehner stated government needs to stay out of healthcare and let the trained healthcare professionals make decisions regarding their patients not some politician looking for recognition.

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Re: James (# 139)

It is a great pain med except when you are allergic to it.

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Re: Linda (# 2)

Oh my heart goes out to you!! I am taking similar meds and dreading the day when they stop either one of these medications because you know SOONER OR LATER they won't let use Pain People be allowed to take two pain medications at the same time, holy cow. I mean should we get relief or something!! They do NOT understand WHY we are taking the medications, let alone understand the medications-short acting and longer acting-just for example. We are NOT sitting in our car abusing it or whatever it is addicts do & pass-out. Hope you get ur needed relief.

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Re: Tom H (# 485)

Update!!! I am now forced to end the medical marijuana program. I have been noticing that I was gradually getting allergic reactions to the oils, and now find that I am allergic to all cannabis products.

It started with the oils where my throat started to swell and almost close with blood pressure dropping. I had troubles with the hemp products in the beginning because I am allergic to hemp seed. That's why I got the medical marijuana card and purchased the oils from the dispensaries that didn't use hemp. I thought they changed the way they were making the oils, but they say they haven't and they don't use hemp. Now I'm getting the same allergic reactions to the very low THC high CBD flower.

I have read comments by other people that have smoked the street marijuana for many years that are now allergic to the medically grown marijuana. Are they growing it different and that is what is causing all the problems?

Whatever it is, after being off the opiates for over a year, I am now back on the opiates.

So I guess the government got what they wanted. They used the so-called opiate crisis to start a medical cannabis program, which paved the way for recreational use beginning January 2020 in Illinois, just to collect those big tax dollars and collect more in kickbacks. (GREEDY CORRUPT money addicts need more sources of income that will feed their money addictions!!)

If they were able to tax the opiates, there would never have been a crisis!!!

Where is this miracle drug Trump talked about for relieving pain for us chronic pain sufferers that is non-addicting when the so-called opioid crisis started? Has anyone heard about that happening and what is the name of that so-called miracle drug?
Probably not, because it's all nothing more than a bunch of BS and more lies!!!

The reality is that we were all used, abused, and ended up suffering more just so they could steal the sale of marijuana from the street dealers to allowing the government to sell it legally for those big tax dollars. Not much different than what happened when they stole the selling of alcohol from the bootleggers and the mob back in the day!

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Re: Tom H (# 494)

I developed a condition called CHS after one month of using medical marijuana oral solution. CHS is cannabinoid hyperemesis Syndrome. I had severe stomach cramping and nausea. I was fortunate that I found out what was the cause because in severe cases people vomit up to 70 times daily, get severely dehydrated, get diarrhea, and need hospitalization. The symptoms took several weeks to subside after using 1 dose daily for a month of .5 -1 ml oral solution. The medical marijuana program in NY State is crap!

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Well for what it's worth, I wrote to the attorney general to express my disappointment with the banning of Soma and possible opiates. And I might just keep doing it because they caused the aggravation with me. So why not do the same.

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Re: methadonehater (# 490)

Thanks for that info but it's all the same for me. I can believe that because I should have been on that jury.

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Re: I feel ur pain (# 498)

Researching I found this so far:

Chronic Pain Warriors Unite for our Rights to Pain Mgt.mThis website tells you who we need to contact in our area & much more. They protested at the CDC in June.

If anyone is in Tennessee there is Senator Lamar Alexander who has brought our problem up several times this year in sessions & welcomes info on our struggles.

One thing that should make ur blood boil is on 6/28/2019 the CDC basically said ops on the guidelines but not before 30+ states incorporated it into their legislature.

I'm still looking for more info.

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Re: methadonehater (# 508)

When the Attorney General gets the letter he's going to think it's crazy . Because the Government Did NOT .Repeat NOT. Ban Soma

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Re: methadonehater (# 497)

Methadone is the s***.

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Re: Optimistic (# 525)

Where is this rally?

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Re: Optimistic (# 525)

Wish I could... money right and 24/7 caregiver to Mom.If we had the means would drive us both there to be able to attend...

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All of you should go to the methadone clinic & screw pmd. I would but you can't let them know you have any pain or it's all over.

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Even if there are politicians that that have pain it makes no difference , They can be against this for political gain and have access at the same time. The ones with weath and power will always have access to what ever that want or need. Why should they be concerned about other's that have chronic pain

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Re: Stacey (# 10)

I realize this ia an old post, but had to reply; IF this is your medical issue YOU should have had gallstones and gallbladder removed, and YOUR PAIN WILL BE GONE, THAT IS WHAT YOU WANT; RIGHT!?

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Re: methadonehater (# 496)

I have noticed that you are negative toward others that comment here. You really should be more sensitive and there should be someone that keeps negative people like you from repeatedly bashing other people’s posts. Your “name” says a lot about you,
“methadone hater”.

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Re: methadonehater (# 512)

Well it’s appropriate considering your attitude and the hate you throw at many people who post here. Hate won’t solve our issues. The guidelines have been put into effect. People are suffering.

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Re: Shebiesgirl (# 37)

There is nothing to sue over. It is up to each doctor what they prescribe for individual patients. Many doctors tell patients they can't prescribe certain medications and/or dosages due to new laws. But, this is not true.

The government is not going to listen to patients. They will listen to doctors. But, doctors are not suing or doing other things that would lead to changes for two reasons. One, as I states earlier it is still up to each doctor to prescribe what they think individual patients need. The government is not forcing doctors to do anything they do not want to do. . Second, all but a very few doctors agree with the recommended reduction in opiate prescribing.

If a pain patient is seeing a doctor that will not prescribe a certain medication or dosage. They need to change doctors. If they can't find a doctor that will prescribe what they want after they have seen the ones in their area. The patient needs to accept what they have been prescribe in the past is more than they need.

When a patient truly needs pain medications to function. They are willing to take lowers doses. It takes a while for the body to adjust. But, lower doses are more effective than higher doses without the dangerous side effects.

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