Prolia Side Effects (Page 75) (Newest replies first)

Alexis Says:

Tue, January 11, 2011

I would like to know of any side effects others may have experienced after receiving Prolia infusions. Up to now I have none.

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Judy Says:
Mon, January 16, 2017

Pood, I started taking magnesium ,50 mg twice daily with meals, and after 2 days I've had terrible diarrhea so not too anxious to continue. Does wonders for my painful anal fissures!

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Pood Says:
Sun, January 15, 2017

Diana~do we have two Dianas on this site? Anyway, look at Kitty's last post where she called Amgen and they asked her if she had stomach problems from Prolia. Why would Amgen be searching for more damning evidence of their product other than they know it's not what it was supposed to be and are busy cooking up the next one for us? I'm very happy with my Calcitonin. Thank you Dr.!!!!

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Pood Says:
Sun, January 15, 2017

Judy~apparently you have not read some of my prior posts regarding Prolia. The only way to help the muscle 'discomfort' is by using minimum 500mg Magnesium every night at bedtime. That puts an end to that and if they then move to you feet, take a pure salt tablet for 5-7 days. Sometimes it can be difficult to find, so I take a large amount of salt in the palm of my hand and eat it very quickly and then some water to get the taste out of my mouth.

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Pood Says:
Sun, January 15, 2017

Judy~i'm sure they have had to revise it because the FDA in the US is busy putting new warning labels on the boxes as if our MD's look at the boxes.

Sorry, I had to find your stress comment funny. Of course Prolia is causing you stress. Your body is falling apart around you and you are supposed to remain calm, cool and collected. I think NOT! I's downright amazing we survive this at all as I know it has killed between 4-5,000 of us and that's an old count. Pood

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Linda Says:
Sun, January 15, 2017

I was told there were no side effects from Prolia except redness at the injection site. Wrong.

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Judy Says:
Sun, January 15, 2017

Poodle, I found a letter online dated Sept 20,2012 from Amgen addressed to Healthcare providers with the subject heading "serious risks associated with the use of Prolia" . It goes on to mention all the adverse reactions. It also refers to an accompanying Medication Guide. It does suggest that it should be reviewed with each patient every time Prolia is administered as the information contained may change over time. It is signed by Michael Severino MD ,senior VP, Global Developement and Chief Medical Officer. I don't know if the same letter was sent out to Canadian doctors but I can't see any reason it shouldn't have been! Certainly I feel vindicated after having it suggested that it was stress causing these horrible side effects. They are what was causing my stress!!

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Pood Says:
Sun, January 15, 2017

Judy, I saw it on Amgen's website under Prolia. It said we are supposed to receive it from our Docs when we get the injection(s). Now whether or not it's still there I cannot say as I have not looked. Amgen only followed people in their human studies for 11 months so they have no knowledge other than what we give them that happens after 11 months. This is why it is vitally important to report every single thing to them as they are required by law to give it to the body of your country's government that approves drugs for use on humans.

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Kitty Says:
Sun, January 15, 2017

While on the phone last week with a law firm that represents Amgen, they asked me if I was having stomach problems with Prolia. I thought it was odd that they would ask this, unless they have had an uptick in reports? Your thoughts?

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Judy Says:
Sun, January 15, 2017

Pood, I would love to get my hands on this letter. Is it available online? It's been a week past when I should have received my 4th injection and am still experiencing side effects. Achy muscles, itchy rashes and sores in mouth. Sure they tell you what side effects you may get but nothing about them going away once you stop!

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Diana Says:
Sat, January 14, 2017

Pood, this is really shameful. This stuff is literally pushed on us. Even my pre Prolia research did not prepare me for the possibilities of what transpired. And of course we are not offered the information from Amgen. Have you come across anything that indicated ulcers in the stomach and esophagus? I'm suspicious it is related. Perhaps not, but, dange this stuff is wicked.

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Judy Says:
Sat, January 14, 2017

Oh yeah, there is one other rather embarrassing thing I've also experienced while on Prolia....on top of the eczema all over my arms, legs back and chest I have anal fissures which are very painful. Since it is skin I figure it must be included as a skin irritation. Have tried many over the counter things, zinc ointment, vasoline and hemorrhoid cream but so far nothing works. Any suggestions?

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Judy Says:
Sat, January 14, 2017

Poodle, re the "dear patient" letter you mentioned, what exactly was said in it, or did you actually see it? I have been told by 2 doctors that the side effects I'm experiencing are all caused by stress, etc. Yes, I have had stress dealing with my husband's 2 strokes and an ablation for his AFib but that was 3-4 years ago and he is doing well. Even a friend of mine who has had no problems with Prolia said that when she mentioned my problems to her Dr she was told that they were probably not caused by Prolia. Just a coincidence they said! Almost seems like a conspiracy to pooh-pooh the fact that side effects don't exist. I do know that these drug companies pay big bucks to the government as well as hospitals and doctors who administer it. I was in sales and marketing with a large multi-national food company so I know how this all works. If there is some way I could read this letter I'd love to see it. I did talk to the company consultant and he certainly didn't discount what I was experiencing.

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Poodle Says:
Sat, January 14, 2017

There is also something none of us have received and it is totally our Doctor's fault. Amgen, manufacturer of Prolia, has a 'Dear Patient' letter that tells us more of the bad things that can happen with Prolia. Mine had never heard of it so I told her if you are going to pass this off to your patients, you darn well better get it. Amgen wrote it for a purpose. Pood

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Diana Says:
Fri, January 13, 2017

This is good to know - thank you. I have ulcers throughout my stomach and a large hiatal hernia and hate the meds I started, but the dr. said cancer would be end result if we didn't get acid down. I'm bleeding internally from the ulcers. I will be sure to take my meds with plenty of vit C

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Linda Says:
Fri, January 13, 2017

I have one implant and need four more. My regular is going to give me an estimate on my next visit. My first one was $3,000. Ugh!

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