Prolia Side Effects (Page 36)
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I would like to know of any side effects others may have experienced after receiving Prolia infusions. Up to now I have none.

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Re: Dottie (# 2457)

Dottie,
I,too, had terrible skin rashes in my scalp, on my face , legs arms and chest. Also in my mouth. This started after the second shot and progressed after the third . I saw a dermatologist who have be cream and a solution for my body and scalp. The mouth, a different story. It comes and goes and I find eating anything spicy still aggravates it. All the meds a specialist tried for my mouth had side effects so I stopped them all.
Good luck with the rash.i think that by not continuing the Prolia you will 'lick' the problem. I just wish I could say the same for the continual muscle pain I am still experiencing. It had done more harm to more people and I don't understand why Amgen does not acknowledge that these are real problems and give more warning to potential users. I signed no waiver saying that if I might experience side effects I would not hold Amgen responsible. I was told by the prescribing Doctor that she knew on no on who had had any!! Was I ever naive!

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Re: Dottie (# 2457)

I went to my dermatologist re: the scalp itching and hair loss-- got some stuff to rub into my scalp that has really helped the itching and is alleviating the rash. The jury is still out on the hair loss part as I am still shedding. MY shot was also March of this year...

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I had my first prolia shot in Aug of 2017 and broke out in rash and itching in my vaginal area. Didn’t contact my Dr. cause I thought it was coincidental. The rash was also under my arms. Lost all the hair under my arms and it never grew back. I had my 2nd shot March of 2018 and the same thing happened. This time attacking my scalp with dozens of itchy pimples and itching all over my body. It’s driving me crazy with no relief. It’s been almost 3 months now. Afraid it may never go away.

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Re: Dee (# 2453)

I have taken Actonel for 8 weeks so far with few, if any, side-effects. It is too soon to gauge its efficacy.
Being a weekly tablet is a huge plus as far as I am concerned. There is no way to undo a six-monthly injection like the dreaded Prolia, the unwanted effects of which are ongoing but gradually diminishing.

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Re: Dee (# 2453)

I have Pamidronate infusions and find them really good, started 3 monthly, now 6 monthly. All the fractures in my spine are healed and i am no longer in a wheelchair.
After the 1st dose i had a severe reaction and ended up in A&E but my body is now used to it.

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Re: Poodle (# 2451)

Dear Poodle, Thanks for your information. We knew the effects of the Prolia injection. My mother had refused the first time, but her specialist stalked her, then she let it do it. She was afraid that they would not transplant her otherwise. Then the misery began, pain in her hands, tingling and as if there was power on it. Then it went to her shoulders a pain that she could no longer lie down and sleep. She also hardly slept for 6 months from the pain. The specialists and the nurses pretend that there was nothing wrong. At one point she was crooked, she could not walk anymore. She was referred to the neurologist for her hand. She saw that she had carpal tunnel syndrome, due to the constrictions. A hand allowed them to operate without success. We were busy with the transplant why they were in such a hurry to give a prolia injection. And it is prescribed by a trainee of a future nephrologist. Is that allowed? Was this an experiment because they do that with the old people. The transplant was through the blood group. My mother had B and my brother A. Because there were few antibodies, the transplant could continue. Three weeks before the operation, her immune system was shut down and two weeks before the operation she had to take a lot of medication for (rejection). They are criminals! Thanks a lot!!!

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Re: ANTONETTE (# 2449)

If Prolia is not an option, what would you take for osteoporosis?
Thank you!

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Re: Poodle (# 2442)

Thank you, I will contact both FDA and Amgen.. I did contact them re: the hair loss but wanted to see if the leaking was an ongoing problem. It is very weird.. does not happen at night while sleeping.. just randomly during the day and not every day. No warning, just "splush" like someone turned on a water hose. Have an appointment set up with a urologist. Thank you again for your response. You really express care for all of us.

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Re: Giralda (# 2447)

First MDs have to match blood types for a kidney donor to the person needing the kidney. If the blood type was not perfectly matched, a person rejects a donor kidney. Human blood comes in about 3 varieties. I am a person who can give to all but only receive my specific type back. This is quite rare I am told. I don't know what country you live in but a lot of South America is equivalent medically to the US now and also the UK. I don't know if Prolia played a roll in this or not but it well could have because Prolia deletes a lot of T-cells and T-cell helpers from the human body. This is the reason so many different infections happen while using Prolia. Our T-cells and their helpers are the first line defense against viruses, bacteria, and cancer too. Their job is to seek out and destroy 'bad' things before they can cause us any harm. This may help you understand what happened. Perhaps the kidney was rejected because the T-cells and T-cell helpers were unable to keep your Mother healthy and thus she rejected the donor kidney. I know for sure anti-rejection drugs have to be administered to the person receiving a kidney transplant. Did your Mother receive those drugs? Did her diminished T-cells and T-cell helpers fail to keep her healthy after the transplant? These are questions you have to ask her Medical Team in express terms. Lastly, I offer my deep condolences for your loss. A loss of a Mother at any age is difficult at best. Be well~

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Re: ANTONETTE (# 2449)

I second Antoinette. My apologies for not making myself clear. My point was that it seems to be prescribed indiscriminately by Dr.s who aren't even specialists in the field. That being said, it shouldn't even be available at all. I agree that no one should be taking it at all.
Since recalling it us unlikely, all we can do is to educate people.

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NO ONE SHOULD BE TAKING PROLIA AT ALL !!! THIS DRUG NEEDS TO BE TAKEN OFF THE MARKET AT ONCE. I'VE POSTED ON HERE MANY YRS. AGO ABT. THIS DRUG. IT HAS ALL TYPES OF SIDE EFFECTS. EYE PROBLEMS, BALANCE PROBLEMS, FIBROMYALGI TYPE PAIN AFTER THE INJECTIONS.

DO NOT TAKE THIS DRUG !!!!! ANTONETTE ROYCE RNC BS CS MA

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Giralda (# 2447)

I am so sorry that this has happened . My condolences for your loss.

I am sorry too that your mother had to have such an experience.

There needs to be some guidelines about the prescribing of this toxic drug.

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Re: Poodle (# 2446)

I Poodle thank you soo mach for your information. Last year, May 22, my mother received a Prolia injection, while we and my mother did not want it. The doctor has stalked her to take it. My mother had a donor from her son and had to wait a long time for the operation, 11 months. Every time they had an excuse that no operating rooms were available. When my mother could no longer walk from the pain all over her body and was unable to transplant, she suddenly had a date. That was November 2017. The transplant went well but because of all the antibodies, the kidney stopped after a few hours. After the operation, she came to the room and I saw that she was peeding a lot. I'm sure the doctors knew that the kidney was going to repel. But why did they remove the kidney of my healthy brother, who had not been with the GP for more than 10 years. After 2 days she died en we don't know why.
Sorry for my English.

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Re: Giralda (# 2444)

The half life of Prolia is 16 days meaning that in 16 days 1/2 of the Prolia injection is deleted from the human body, then in 16 more days another 1/2 of that half is deleted from the human body, and then in 16 more days another 1/2 of the remaining is deleted, ad nauseam until we only have a tiny molecule at the end of the 6 months duration of one injection. Just because the Prolia is gone, does not mean the side effects leave with it. They last years past a one and only injection of Prolia. You can now see how this would affect a person on dialysis. Prolia causes lots and lots of infections and many of them are bladder infections. This should give you another clue about Prolia and dialysis. There are now 3 confirmed ladies in the US with severe leakage from their bladders that cannot be stopped due to previous use of Prolia. Prolia loves to dive into our muscles and eat what little calcium there is in the muscles. It causes both hyper and hypocalcemia. Interesting it can do both. It can also cause hypo potassium. How about infections of the muscles around the heart which is very dangerous? When one is on dialysis, one needs to be as healthy as possible and as you can easily see that does not happen with Prolia. Some ladies can take it for a while before it catches up to them and they have to quit. Upon quitting, a vertebra in the back will break. You will be looking forward to a kidney transplant. They cannot transplant a healthy kidney into a person with lots of infections. These are just known facts. I hope this answers your questions. Feel free to call Amgen and discuss these facts with them. They have a toll free number in every country in the world. Their head office is in California in the USA. Be well~

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Re: Judy (# 2441)

Unfortunately that seems to be the story with most of the doctors, not that they are necessarily doing testing for Amgen but that they will not believe that our issues have to do with Prolia. At best they say that we do not understand our bodies and at worst that we are liars.Do not allow anyone to talk you into having this poison as I have done several times but no more. You need to either change doctors or stand on your rights and be thoroughly disliked.

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dialysis and prolia injection. who knows something more about it. may you prescribe this rubbish to a patient who is dialyzed. I understand that this poison remains in your blood and can not be filtered out. I come from Europe and want to know more about it

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Re: Judy (# 2441)

That is outrageous ! Although it is illegal, they get around it by reimbursement for
praising the drugs at meetings, etc. Still, I can't believe all of them are. Is it arrogance that prevents them from listening to their patients ?

Ps one of the myriad of issues that occurred while on Prolia was that my cholesterol elevated, and has remained so. Previously my cholesterol was normal; I have no family history either.
My Dr. feels strongly that I should take meds, I disagree. Fortunately, this is a Dr. who listens.

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Re: Lizzie (# 2419)

Please notice my most recent response to you on page 1 here. I found there are 3 women that have leaking after the Prolia. One could have been you as they just stated the age of the woman, not any type of name at all. Thus, we know for sure you are not the only one in the US to have this side effect. Have you called Amgen about it? Do it now if you have not. They are required by law to contact the FDA about side effects. You can also contact the FDA by phone and they will send the paperwork to your home to be filled out and sent back to them. Look up their toll free number on the net. Be well~

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sal (# 2436) --

My white blood count was way up and only now after being off almost 2 years is it back to a more normal level.
As to doctors on the take..the doctor that gave it to me does a lot of drug testing for these companies. I know because I was in one and I'm sure they do't do it out of the goodness of their heart. When I told her of my side effects she scoffed at it and said she worked with the drug company and prolia did not cause my problems. They were all psychosomatic. !!Never went back to her office!

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Diana (# 2438) --

It must be connected, but WHY won't they pay attention ? Hypocalcemia is right there in the magazine ads !

I wish you continued good health

Be well.

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