Prolia Side Effects (Page 35)
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I would like to know of any side effects others may have experienced after receiving Prolia infusions. Up to now I have none.

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Re: Elaine (# 2468)

I just made a post to you at the top re: depression. Read it and act on it. Be well~

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Re: Elaine (# 2468)

This depression you are now experiencing post Prolia. Have you had any extensive blood work done, as your Immunoglobbulins? They will tell the truth about what is inside of you and can reveal the real cause of your depression. I never knew I had Celiac Disease before my Prolia injection. Prolia brought it to the front and center. Celiacs also have depression. I would encourage you to have them tested. If your iGA is way low and another one too, then you too are Celiac but never knew it. These are special blood tests that can be run. I encourage everyone on Prolia to have them. They will help your Dr. manage your problems and also BELIEVE YOU because it shows up in your blood. They are kind of like the keys to our DNA. My Psychiatrists have been trying for years to find out the cause of my depression and I could never find any. After we did these special blood test, I found out there is NO reason. It's my DNA. Be well~

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Re: TransplantedYankee (# 2470)

That was supposedly the reasoning for mine. She wanted me to have healthy bone for my total knee replacement. Big problem in her thinking - What surgeon is stupid enough to operate on a person with a very faulty immune system!! Now that 3+ years have passed, the TKR is scheduled for June 2018. Finally. Not looking forward to it but will be very nice to be out of pain. Be well~

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Re: Marion (# 2469)

It all depends on what one looks like when she goes into the Drs. office. When I walked into my Dr's. office after the 3rd month of my 1 and only Prolia injection, she asked me: "What the F is wrong with you?" I replied: "You and your dam Prolia." At that time she got really, really busy and started doing all types of exotic blood work and worked with an Immunologist to get me over the worst of it. Apparently when one loses 68 pounds in 3 months and is whiter than a well bleached sheet it gets the Drs. attention in a big way. I did not have 68 pounds to lose and still have a very difficult time of putting any weight on. Something changed in my body during that time that is still hampering my weight gain. I have managed to get to 112 and that seems to be as far as it will go. Be well~

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Re: Elaine (# 2468)

I did not state it lasts a 'lifetime'. I stated that the side effects of Prolia do not go away when the drug does after the 5th month. Some last a long time after the one and only injection. I am on about 4 years after my one and only injection and still have some problems as to the muscle spasms and my hair shedding worse than a dog. It caused my Celiac Disease to come out of hiding (never knew I had it before) and I am still dealing with side effects from that. Sometimes I can eat all the gluten I want and then suddenly no! I have to be totally gluten free for some months and then start over again. The only side effect I know for sure is permanent is DEATH. If any of us has something in our DNA that was previously unknown, Prolia brings it to the center front. I hope this clarifies some issues we are all facing here. Be well~

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Re: Lady (# 2472)

THAT WOULD BE IMPOSSIBLE SINCE IT HAS TO BE INJECTED BY A MD AND YOU CANNOT GET IT MORE OFTEN THAN EVERY 6 MONTHS. What medication do you think you are writing about or is it the alcohol that is doing the writing here. Confused!

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Re: Lynne (# 7)

I took one shot and will not take another. My hair is falling out in handfuls. I have leg cramps and lower back pain. I am taking tons of vitamins. Biotin for my hair, calcium and Vit D, potassium and magnesium.

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I love this medication. I take more than is needed and it works just fine I drink alcohol with it as well. It’s splendid.

This message has been demoted due to inaccuracy and multiple down votes.

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Re: TransplantedYankee (# 2470)

You were a lot wiser than I was.I got convinced by the doctor {gynaecologist!] that I was being over concerned about side effects that I finally broke down and agreed!. The worst decision I ever made as I'm still dealing with the after effects. Not as bad but still dealing with muscle pain and mouth sensitivity. However not as bad as others. By the way, I stopped seeing the doctor who prescribed it.

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Re: Judy (# 2466)

Even my trusted PCP tried to defend Prolia! She said I should “try” it, once. Then if I didn’t like it I could quit it! I could not make myself do it...bcuz I couldn’t rake the chance of being in pain for 6 months when my knees were killing me too. I did not need More pain!!

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Re: Lizzie (# 2467)

None of us are crazy for linking Prolia to our symptoms post injections but try telling that to our medicos. They just will not believe us. I have got to the stage where I don't really trust any of them with any of my other health issues. So where do we turn. Fortunately I believe that my faith in God is the only thing keeping me sane in all of this. We certainly can't trust the so called experts these days.

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Re: Judy (# 2459)
and Dottie i too haf the smin rashs and depression and immune system damage to an already comorimised one related to Hashimotos thyroiditis. I am almost 1.5 yrs past my last injection still suffering side effect of skin sensitivity and depression which by the way u never had issues with euther problem before. According to Poodle the effects you sufferred from will be lasting potentially lufetime but no other effects will surface from the Prolia.

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You are definitely in the right place! You may not experience any side effects, but it still helps to be aware of potential problems. I had no idea about any side effects until they actually happened to me, and then I discovered others with the same effects. We don't all have the same side effects, but I have found people that experience the same problems I am having.. so it helps to know I am not alone in this mess and also am not crazy for linking it to Prolia. Hope you stay clear of any problems!

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Re: sal (# 2465)

Sal, don't beat yourself up. I ,too, had the exact same situation as you and also gave in to the doctors "speil" about how this was a wonder drug that would change my life. It did, but unfortunately for the worse!

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Re: TransplantedYankee (# 2464)

I wish I had had your clear thinking. I was so shocked to find I had gone from Osteopenia to vertebral fractures that I became frightened and vulnerable, in spite of my opposition to ever taking these meds. I KNEW better, but I allowed my emotions to rule.

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Re: Giralda (# 2447)
Stalking is right!! I was given a lecture that lasted a long time about all the good things Prolia did for Osteoporosis! I was leery though and did not fall for it!! Heck, I have never broken a bone!!

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Re: Lynne (# 3)
I was offered Prolia too. I looked it up first. In men it could cause severe back pain! I opted out! Prolia requires 2 shots or whatever, a year. I thought, “what if I had back pain for 6 months!” That’s when I said NO!!

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Re: Lizzie (# 2460)

Oh my G_D, Lizzie, I also had only ever had one cold sore in my life. The oral specialist I saw put me on several different anti- viral as well but I reacted with stomach upset etc so I stopped. She said it was herpes. My blood test also showed very elevated white blood count. After hearing your reaction it confirms to me that Prolia definitely was the cause. The oral specialist had also said she'd seen this before. The money I have and still am spending on these side effects is staggering. Thank heavens I have dental insurance, except it is not covering the dental implant and bone graft......also due to Prolia, I might add!

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Dottie (# 2457)

My skin reaction did resolve but it took about a year, although mine were not as bad as yours.

I wish good health to you.

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Re: Judy (# 2459)

I also have had the problem inside my mouth. Prior to the Prolia shot, I had gotten a cold sore maybe twice in my life time. Within two weeks of the shot I had to go to the dentist because I thought I had a gum infection... he said it was the same thing that causes the cold sores.. herpes simplex 1...but really raging inside my mouth. Since then I have had 2 more outbreaks..both inside my mouth. I am currently taking an antiviral medication to stop the current outbreak. I think ( again just my opinion) the Prolia messes with our immune system and dormant stuff in the body flairs up.

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