Prolia & Hair Loss (Page 8)

I've just recently had my second Prolia shot. So far so good...a little back pain. I continually have stress fractures on my feet and have also taken fosamax. My current problem is hair loss & I wondered if anyone else was having that problem?

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Don't know how long it stays in your body, but I was supposed to get a 2nd shot on 7/24/17. My body still itches and I'm losing hair. I take it is a money maker and doctors don't care.

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Yes u are right, I had my 3rd shot and I will not the 4rd due in October my hair started falling and I told my doctor she said no .well no more for me .

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Linda I think I read it doesn't totally leave your body. That makes sense, because after about 3 years you don't take it anymore. It's adding density to bones, so something remains with you. My hair is still barely growing, and it's been nearly 2.5 years since I had the second (and last) injection. I do think my immune system has recovered. I did not know Prolia had some chemo components, which definitely would explain weakness in the immune system.

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I was on reclast but my doctor decided to change it with the side effects I was having. Had my first prolia injection in June and since then I have experienced hair loss. At first I thought it was just the time of the year for shedding but then I realized that it was coming out more and more. I woke up one morning to find a large amount of hair on my pillow. I haven't changed any medications except for the prolia so I am claiming that it may have caused the hair loss which continues.

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My hair is shedding. Wasn't before this shot. In the shower clumps coming out. Why haven't they listed that side effect. I am a wreck with all the bad things happening. If you want to know how long each side effect will call Amgen they will you and aprx time of each one.

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Wow can't believe how many women are having the same issues I went through.

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Will call Amgen and check the side effects of prolia and how long it remains in your system.

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It's simple. Buy a bottle or two of Saw Palmetto for women. Buy a bottle or two of all B vitamins and a bottle or two of Vitamin A. Follow directions on the bottles as to how to take these. I don't know if what you buy is what I have so please follow directions on the bottles. Mine say to take B's and A with a meal. I have no idea what strength, brand, etc. you have purchased. I only know mine and I'm sure it will not go through on this site as it could be construed as advertising. Stop saying Prolia is for chemo. It is not. It's twin, Xgiva is. I happen to believe Prolia contains more of the 'active ingredient' in it due to the hair loss and other problems we ladies have been experiencing.

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Both Xgeva & Prolia are a medication called Denosumab. Xgeva is used to treat cancer, which is why people refer to it as a "cancer drug". It's appropriate to connect Denosumab in some sense to cancer, as it is a cancer-treating drug. Prolia is a lesser dosage, that's all. Unfortunately, many of us who have received Prolia injections to treat bone loss are experiencing hair loss as well as other symptoms, but the hair loss has not been listed as a side effect by the manufacturer. Yet. People should be aware that this is a drug used to treat cancer & has the side effects related to them; just be aware that what is meant is it's a cancer-treating drug.

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Very interesting thought. The first step would be?

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I will buy Saw Palmetto and the vitamins, and I will post the information in a month, and see if this lady's information works. All I can say is as long as I don't brake another bone I will be very happy!

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Amgen will tell you that in 6 months you are free of Prolia. That is what all their literature states and that is the reason for an injection every 6 months. Just because Prolia is gone, does not in the least mean that side effects are gone as Prolia can and often causes major damage to the human body. Prolia does NOT treat cancer. It's twin, Xgeva does. Prolia has much, much, much less of the active ingredient in it. We know it is made from ovaries of Chinese hamsters. Amgen also states the half life of Prolia is 16 days so do the math. I dislike my comments being misconstrued. The only legal action in the USA against Amgen for Prolia is the broken femur. I seriously doubt any of you know what chemo is truly like. I do! Been there and done that. I am only here to help people thru Prolia since I am a survivor. Pood

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Jwia~please stop misinforming people. Prolia does not treat cancer in any way, shape or form. It is for bone density - causing old bone to grow on old bone, thusly, giving the body zero new bone. It is true that Prolia has a twin called Xgiva. The second is for chemo. It has zero to do with bone formation. Prolia has so tiny little much of the active ingredient in it it's impossible to call it a chemo drug. I seriously doubt you know what chemo is like. It's not shedding. It all falls out - head, eyebrows, eyelashes and every hair on the human body. One also lies in bed for days on end after a chemo treatment being so sick that even water is intolerable. If you want to help people thru Prolia, please tell them the truth. Do you really believe the FDA would approve Prolia if it were for chemo? Pood

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Gamp~the effect on our immune system with Prolia has zero to do with chemo. it decreases it a little so that certain infections can happen. By the 6th month the immune system is back to normal again. I know of no one that has got cancer from being on Prolia. Look at all the new biologics. They affect the immune system. Do you want to say that Humera is chemo too although it is used for Chrons Disease and dermatological problems. Please do not misinform people. They have enough to deal with without adding in false claims. Thanking you in advance, Pood

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Prolia has 60 mg, Xgeva 120 mg. I wouldn't call that "much, much, much less" a dosage, although since Xgeva is usually given every 4 weeks rather than twice a year, a patient does receive more of the medication over time, so it would then be a much higher overall dosage. Xgeva is used to treat giant cell tumor of the bone & bone metastasis, which is when cancer cells spread to other tissues, in this case, to bone. My understanding of chemotherapy is that chemo involves any chemical that treats cancer, so I would say Xgeva is chemo. Prolia is exactly the same chemical compound, just half the dosage.At any rate, Denosumab has a lot of side effects that come along with it, many can be pretty nasty, & we as patients need to be aware of them. My doctor didn't go through them with me, I just got the info sheet & was told to read it. We all really need to research these new drugs before taking them. My purpose wasn't to attack the information you put out here, Poodle, but to clarify, as far as my understanding. I could be wrong. I appreciate what you have shared to help us all, as well as what others are sharing as well. I am sorry you have had to experience cancer, & am glad you have survived. I know it's a tough battle.

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Did I ever say anything different about how Prolia is taken? I know exactly how Prolia is given. I am getting very tired of all the misinformation on this site about Prolia. It has more than sufficient problems that one does not have to make up false stories about it. I found how to make our hair grow again and be healthy but you want me to tell you every little step. That is impossible as it would be advertising. I told you what to buy and read the directions on the bottles of how to take all three items. This is not brain science ladies. Buy and read and take as instructed on the bottles of the supplements you bought. Just make sure the saw palmetto is for women, not men. We do not have prostrate problems.

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Combination is one bottle of ALL of the B vitamins. One bottle of Vitamin A. One bottle of saw palmetto for women. Take as directed on your bottles. Mine say the B's and A are to be taken with a meal. I bought two of each to make sure I have sufficient on hand to stop hair loss and regrow my hair. Maybe we will need three. I do not know but I know the formula works and has proven results. What do you have to lose? Pood

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Jwla~I searched every site about Prolia and how much of the active ingredient is in Prolia. Nothing says how much. It just says it comes in a 60mg syringe. We know a lot of what is in that syringe is saline. We don't know how much of the 'Chinese hamsters ovaries' is in it. This leads to a conclusion that none of us really knows. I am even wondering if Amgen will tell us as it may be a trade secret. Have you ever thought of that when you were comparing apples to oranges?? Pood

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Poodle, I wasn't the one who said Prolia has a chemo component to it...I saw it elsewhere in this thread...but you're right, I shouldn't say that without firsthand knowledge. I hope you will also call out the others who mentioned it here...thanks. All I know for sure is that my hair is still falling out and is not growing like it used to. I was mainly curious if others had that side effect, and it appears they do, so I'm done with this.

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Poodle - Here area some links for you to find the information I mentioned in my last post:

Dosage: you answered part of your question in your response, when you said it comes in a 60 mg syringe. The 60 mg (milligrams) is the dosage amount. The dosage amounts for both Prolia & Xgeva can be found here:

Source - prolia (denosumab)

Information on Denosumab, which is the medication in BOTH Prolia (60mg) & Xgeva (120mg) & its uses, including treating cancer, can be found here on Wikipedia:

Source - wiki/Denosumab

The Denosumab is what defines the medication, not any additional elements such as saline. Our blood has a normal saline value; that information can be found on Wikipedia as well with a search. Saline solutions are often used in medications to prevent complications in treatment as well as re-hydration.

From the Denosumab page in Wikipedia you can click on the highlighted word monoclonal antibody to find information on the production of antibodies from mouse spleen cells—no mention of ovaries, but perhaps that can be found in another source I haven't yet found—& its use in treating osteoporosis AND cancer.

I am not comparing apples to oranges, I am comparing apples to apples. Prolia & Xgeva are EXACTLY the same compound (its formula can be found on the Denosumab Wikipedia page; one formula, two medications).

I don't know why you are fixed on arguing with me or trying to prove me wrong. It seems very personal. As I said in my last post, I am not attacking you; however, I have a graduate degree in Biology with a background in Biochemistry & am an educator as well. When I see information that is incorrect, my inclination is to offer corrected information. It is not to put anyone down, it is simply to offer corrected or perhaps additional information to consider. You may see it as attacking you, it isn't. We all can make choices: to not accept it, debate it, ask questions.

You & I don't need to continue on in this personal debate. It's about sharing information. And I am not the enemy.

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