Prolia & Hair Loss (Page 9)

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I've just recently had my second Prolia shot. So far so good...a little back pain. I continually have stress fractures on my feet and have also taken fosamax. My current problem is hair loss & I wondered if anyone else was having that problem?

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161

For everyone's edification: Xgeva is NOT chemo. It is used to rebuild bone mass that has been deteriorated from the cancer which generally started in the breast. It rebuilds bone for a spinal collapse, hip and wrist. However, I did find a published paper written by three MD's regarding a male that used Prolia. His genetics showed it was impossible for him to have A. Alopecia in his lifetime. However, after Prolia he developed it and it closed the hair follicles on his head tight shut so that no new hair growth could ever start. With this new information, I believe we all need to get into our Dermatologists as soon as possible to make sure ours are not closed shut. If they are, we are beyond help and if not, then we can proceed with the remedy I suggested. The paper did not state how many Prolia shots he had. Sorry for having to tell the real truth about Prolia. Be well~

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162

When everyone gets back from their dermatologist, please post the result here so we can keep a count on it for the possibility of a legal suit against Amgen. Going bald is definitely not listed as one of the side effects, but then teeth dying at the gum line is not listed either. I'm frantically searching for an attorney to represent all Prolia victims and the more evidence we have, the better.

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163

I saw the Dermatologist the other day. They found no evidence that Prolia was the problem for my hair loss. Let me know if you find someone to represent you. I had no hair loss till I went on Prolia. Unfortunately no studies have been done to prove our theory.

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164

I will they are reviewing my case now. Hopefully they will take it.

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165

I am experiencing hair loss. Have bald spots. 60 days after my shot. Not a listed side effect. Did find out that they are using prolia for chemotherapy for breast cancer patients. Our hair loss has been studied and confirmed.

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166

It was listed on my Medicare bill as a chemotherapy drug. That is when we went on this site to find out I wasn't the only person who was losing their hair by the handfuls since the Prolia shots started. I was never told that the shot was causing the hair loss. I was told it was OLD AGE!

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167

Karen~that's what I was told too but we are losing too much for just old age. That is why we have to have hair follicles checked well by a Dermatologist to make sure they are capable of starting to regrow hair, not having A. Alopecia. I know it cannot be 'old age' because my brother is 7 years older than I and he still has nice hair. I do not after Prolia. Then, reading the published medical paper about A. Alopecia did it. That is why we have to check with our Dermatologists to make sure we are capable of starting new hair growth. Be well~Pood

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168

Yes, there is a published medical paper by 3 doctors that caused a male using Prolia to go bald when his genetics showed it to be IMPOSSIBLE. I would like to know who 'they' are that may be representing us in this regard against Amgen. So far, we are hunting down attorneys that may take a legal case. I've been searching for two years and so has Diana. So far we are at zero unless one has a broken femur.

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169

I'm still losing hair 7 months after my shot (first & only); I've actually been losing more this past week. The hair loss seems to go in cycles. Very unhappy my doctor recommended this med & with the side effects.

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170

Gamp~Unfortunately, I, myself, have written that Prolia is chemo which is very untrue. I am sorry for writing that and I was 100% wrong. The Xgeva makes bone strong in people who have cancer that has spread to the blood or the bones. Undergoing chemo and radiation, bones need to be made stronger, thus the reason for Xgeva for people whose cancer has spread beyond the beginning which is generally in the breast and yes, men get breast cancer too. It has zero to do with chemotherapy and everything about building up bone mass which unfortunately is old bone being built on top of old bone. Perhaps victims of that vicious disease care less about how it works, just that it does work so they do not have spinal collapse and other very large bone problems. One syringe of Prolia is 1.7mL and in it there are 60mg of denosumab. The l.7mL =1,700mg of which one can subtract the 60mg of Prolia and we know what is in it...basically salt water. Do we have this explained well now? It does not treat the cancer. It makes bones stronger for those that are receiving chemotherapy and radiation therapy to kill the cancer cells in their blood or bones. Thanks all. Pood

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171

The process is well described in the Wikipedia link I posted last week, as well as both uses. Denosumab stops the formation of osteoclasts, which are cells that remove old bone cells. The definition of chemotherapy is any chemical that is used to treat cancer. A clear conclusion can be drawn from that. Denosumab, in the higher dosage of 120 mg, is named Xgeva, & is used in treating a form of cancer. Denosumab in the 60 mg dosage is Prolia. Same drug. As mentioned in a couple of posts by others, billed & identified as chemo by the medical industry. The inj's. are normally given in the infusion center, where cancer patients are treated with chemo, because of the nature of the medication. My doctor's office told me they are not permitted to give the inj's., patients can only receive them in the infusion center. I would guess that's industry wide, but I don't know. The important thing is that this side effect is being reported by more people, which I hope will lead to Amgen acknowledging ALL the side effects & informing patients. What big pharma gets away with, at our expense!

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172

I had my first injection and I have noticed hair loss also .My legs have really been hurting and I never had problems with my legs until now .

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173

Re: Hurting (# 172) Expand Referenced Message

I have posted before on all of the problems I have had with this shot. I also was on Fosamax and discontinued use because of terrible leg pain. Hair loss has now improved and I did not get my last shot and I will not get another. The hair loss tool too long to slow down after discontinued use. There wasn't one change in all three of my bone scans over the past 11 years. Do what you need to do ladies.

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174

Re: Shirley (# 17) Expand Referenced Message

Hi Shirley,
My hair has been falling out, and you are probably right, I had one injection of prolia and I will never do that again. My hair used to be nice and lots more of it now it is very thin and when I hold my hair it is like half of it is missing. This company should state that it can cause hair loss. All these people including myself should sign something to have this company compensate for the hell it put us through.

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175

I have had hair loss. In my 4th now only hoping as it dissipates from my system it will go away.

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176

Re: Goatc (# 175) Expand Referenced Message

I had many shots and there was never any good results from the shots. The hair loss has not stopped yet and the last shot was 9 months ago.

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177

I've just had my second Prolia shot and my hair is falling out by the handful, also what's left is limp and lifeless. I hadn't thought of it being the cause until a few days ago. Now have to wait over 5 months for it to leave my system. I'm depressed over it. It'll be a long few months waiting for it to leave my system. For sure won't go for another injection. Please everyone take with caution if it's recommended that you take it. It's not listed as one of the side affects.

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178

Yes, many of us...most of us report hair loss and breakage. I had really nice long hair and now it is thin and barely starting to grow again. I had my last Prolia shot in March 2015 so this problem does not stop as soon as you quit the medication. I guess the hair loss is because it is partly a chemo drug Xgeva...which I did not know until it was too late. I had more colds and flu while taking that drug as it weakens your immune system. I told my doctor I just could not continue taking it and would risk bone fractures. Good luck to you.

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179

Re: Karen (# 166) Expand Referenced Message

My Doctor still believes my hair loss to be 'old age' even tho I had not lost any prior to Prolia. They just don't want to face the facts and until all of us report this issue to the FDA or whatever governing body of your particular country, Prolia will continue its toll on our hair. I can make mine look very nice with a good four handfuls of mousse to make each strand about 20 times larger and then put on an other product on top of that. It's barely enough to satisfy my 'vain self' as Diana O. wrote. I know I am guilty of not reporting mine to the FDA and I promise I will do so. Hugs~

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180

Been on Prolia for 3 years, still slowly losing hair. My doctor says it's not the Prolia. I really question that.

Also, I have not made any real improvement in my bones, but they aren't getting worse. Anyone else like this?

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