Ampyra Headaches
(Newest replies first)

Updated

I have been taking Ampyra for 4 days. I have noticed a decrease in fatigue but headaches daily. The question is will they eventually go away on their own, or do I skip a day and see if they stop or quit til I see the doc ?

88 Replies (5 Pages)

Page:1Next PageLast Page
Earliest Newest Votes
88

I started taking Ampyra yesterday 8-31-2016. I've already noticed two common side effects: blurred vision and headaches. I'm hoping this is temporary. I've heard great things about this medication, and wouldn't want to give up on it so soon. Anyone's input would be great. :-)

Was this helpful? 0
87

Hi, I took 3 days dosages and felt absolutely horrible- balance was way off (had very little balance issues prior). The last dose gave me a huge anxiety attack.
I immediately stopped taking, now it feels like I am in a relapse . I hope to God I return to what I was before. I had very few issues and wish I never took it.

Was this helpful? 1
86

Hi, feel so blessed when I read other's experiences. I am onto my 2nd month of this. It has helped walking, no headaches. I have had a bad cold (lots of others had this too) and experienced a hives breakout in month 2 which I questioned the gp about and they seemed to think was not due to the drug. So expensive as it is I would recommend this.

Was this helpful? 0
85

I'm trying to find the cause od MS?
question for everyone?
have you ever lived with any kind of fear?
fear of somebody for example ??

Was this helpful? 0
84

hi the instructions say to keep to 12 hours apart (so i get very nervous about keeping that strict) - i was also told that it works better on an empty stomach, so to take early in the morning and before dinner. I've just started and have found it helped and then today not so good.

Was this helpful? 0
83

hi the instructions say to keep to 12 hours apart (so i get very nerouse about keeping that stict) - i was also told that it works better on an empty stomach, so to take early in the morning and before dinner. I've just started and have found it helped and then today not so good.

Was this helpful? 0
82

What is the max time ampyra should taken to treat walking and balance im ms ?
is it 3 month, 6month or forever

Was this helpful? 0
81

I'm trying to find the cause od this dides
so have you ever lived with the fear of phycical violane ??

Was this helpful? 0
80

I am having same effect as well as nausea

Was this helpful? 0
79

Hi there,

you are not supposed to skip a day, so you should continue with it and see if the headaches subside; if they do not go away, I would recommend your speaking with your neurologist. By the way, I'm writing from Canada, and it's called FAMPYRA here. Good luck!H

Was this helpful? 0
78

I took my first dose of Ampyra at 6pm and could not go to sleep at all that night, got up at 6am and took second dose, felt dizzy, headach and body aches like I had the flu. very disappointed. wanted this medicine to help me walk better as I have numbness and weakness in my right leg and foot. did not take any Ampyra today because I could not miss work. How am I supposed to walk better when I feel like I cannot get off of the couch from the side affects?

Was this helpful? 1
77

I have been on Ampyra for about 5 weeks and notice an improvement in reducing fatigue. The first three weeks on it I had incredible headaches in the morning, but they went away.

Do NOT take anything with acetominophen including the previously named over-the-counter headache drugs above. If you look up the drug interactions with Ampyra in the Physician's Desk Reference, acetominophen can cause seizures in combination with Ampyra. It has this reaction with other drugs, so look it up! Do not assume your neurologist knows this. And it isn't clearly listed in the consumer information from the manufacturer.

Was this helpful? 1
76

Hi, been on it a year the only things is weakness an the worset back siatica type nerve pain drove me to morphine an it dosent help i stopped it 2 days ago nerve pain almost gone, pain so bad i was thinking bad thouughts if you know what i mean,will never take again. Rhonda


Was this helpful? 0
75

Thank you 24char. I also have chronic back pain. I have been on Ampyra since the summer. I stopped because I had major surgery then rehab because of complications. I see my doc in about 10 days. I am so confused about whether to take it or not but you have encouraged me. I am 53 was diagnosed in '95 and took Avonex for 13 years. I finally quite because it was so hard on me and getting harder. My brother and nephew have MS. My brother is on Copaxone but having trouble with it after several years. My nephew is on the new oral med and my brother is trying to get on it too. I will keep people posted about that. I am confused about the pain I am having everywhere. Does anyone else experience this? We are getting a new MS facility in OKC - I will also keep people updated on it. Dr. Gabriel Pardo is the founder. Try goggling it - I have high hopes. I will see it first hand 3/24. Let's keep on blogging! Together we can! I also have a Bioness L300 for foot drop - it is fantastic! I still use a walker but it is great!

Was this helpful? 0
74

I was surprised to hear of all that have had headaches when starting the Amprya. I have had no bad side effects from it.. I usually have problems, could not use Avonex or Rebif. I am on Copaxone but only inject half as they make me so sick. I was concerned about the possible back pain as I have a chronic back injury which causes pain, but it has not increased. I attended a seminar last month and learned a lot about how the drug works by filling in the "gaps" in our spinal cord that have been damaged. That may be the cause of some of the pain at the beginning. I don't see how stopping and restarting could make any difference, seems to me that it would just set you back. It has been a wonder drug for me, I plan on walking a marathon this summer with my grand kids and daughter, something I never could have done before. I was dx'd in '96. I started Amprya in June '10. All these drugs work differently for us, maybe due to where the damage is? Good luck to us all.

Was this helpful? 0
73

Hi HSS, though I am not (yet) on Ampyra, I went to a seminar Wed, 3/8/11, given by Dr. Tullman, an MS neuro. at Columbia in NYC. He advised that if we do not see any improvement w/in 5 weeks, then it is unlikely that we will, and to stop taking it. What does your doctor say? Good Luck on your healing journey!

Was this helpful? 0
72

I have SPMS & have been on Ampyra for 2 weeks. It's amazing. I usually use a scooter & could only walk about 2 city blocks before my leg died, Now, it's seriously easier to walk.

My question is for anyone with PPMS: How did you get your MD to prescribe this? I want to recommend a friend with longstanding PPMS get her doctor to prescribe it, but am afraid she'll be turned down bc she's wheelchair-bound. Thanks, Arlene

Was this helpful? 0
71

I wish we could all get answers but I think MS is so unpredictable that we make assumptions that are based on ???? I attribute things to the heat, the cold, the barometric pressure etc. when there really is no rhyme or reason. Stress and illness have been huge factors for me right now. I am also distressed that when we reach a certain point the drs. just randomly dismiss everything wrong with us. I swear I could walk into an ER with blood spurting from my eyes and a doc would nonchalantly remark - oh it's your MS again!

Was this helpful? 0
70

Will u be staying with Avonex? despite of setbacks? I wonder when will a doctor consider changing treatment plan? I was dx 97. started betaseron 2000-2001 then nothing until 2008, resumed betaseron and set backs started. Would that be the unwelcomed progression of MS? Right now, Iam thankful of Ampyra. It's definitely helping eventhough it's not perfect. Any inputs are welcome. thank you.

Was this helpful? 0
69

I notice change for the better in my walking (on day 2). I was walking so well for about 5 -6 weeks and then the meds seemed to stop working. I am still taking Ampyra and avonex and I am not walking well at all. I did try stopping Ampyra for a week and restarting, but it didn't work well like when I first staryed taking it.

Was this helpful? 0
Page:1Next PageLast Page

More Discussions:

Headaches with Efudex treatment

I am on Day 30 of Efudex treatment on the top of my nose and a small area on my chest. I stopped the cream on Day 28 as ...

4 REPLIES
Headaches with Bystolic

Have been on 5 mg Bystolic past 10 days for recently diagnosed afib, the headaches have been daily and rough, also vivid...

4 REPLIES
Headaches and Sore Joints from Citalopram

I have been taking Citalopram for 2 weeks and have been suffering painful headaches and aching joints. I also have had a...

4 REPLIES
Headaches & Comtan

Having daily cluster type headaches with vision loss and pain at forhead and back of neck. Noticed since starting Comtan...

2 REPLIES
Headaches with neausia on Tri-sprintec

I have been taking Tri-sprintec for a year now. For the past view months I have been getting anywhere from mild to sever...

2 REPLIES
headaches while taking Pletal

I began taking Pletal for leg pain due to my PAD. I got almost immediate relief from some of the pain within just a few ...

2 REPLIES
headaches and dizziness

I have been taking lasartan hct 100/25 for a few months for high blood pressure. I want to know does this medication cau...

2 REPLIES
Headaches and suboxone withdrawal

I am down to 2mg of suboxone a day for about 6 weeks now, I take 1 mg in am and 1mg in afternoon, at around 11am (7hrs a...

1 REPLY
Headaches on xeralto??

1 week on Xeralto for heart ablation. Was on waif in for 2 months no problems. Having bad headache before bed and waking...

1 REPLY
Headaches using prozac

Ive been on 40mg. of Prozac for twenty years and would sometimes get a slight headache and would go off Prozac for a few...

1 REPLY