Accutane Long Term Side Effects (Page 97)
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I have a son that took accutane 60 mg a day for six months in a row three years ago. Now after many trips to doctors over strange medical problems, it seems accuatne is the culprit medication that has caused servere joint and muscle pain, severe dry lips, redness in face, eye infections of own immune system attacking itself, systems of osteoarthritis in both shoulders, both wrist and right hand, blood in stool, possible hair loss, abnormal liver function test results in AST and ALT. My son went from being a high school football and track athlete while taking this medication three years ago to someone that is in constant pain just washing a car. After I have researched this drug extensively, I can't believe that the FDA allows this drug originally made for cancer patients to be marketed for teenagers with acne. All one has to do is look online what vitamin A overdose does to someone and then you have the results of what this medication has done to my son. This drug needs to be taken off them market ASAP and the drug companies that make it need to compensate all teenagers that they have possible ruined their future. Shame on them! What is going on here?

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13

My sister-in-law passed away last year of stomach and liver cancer. She was on accutane for a long term. I believe her immune system was compromised by accutance and eventually caused her cancer. Are any attorneys handling cases of this such.

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12

Considering starting accutane for my daughter, age 14. Very concerned about the effects, especially since she is a very young girl whose body is not fully developed. We are currently trying a run of Yaz for 5 months now, and monthly dose of a Z pac. Also tried a herbal remedy. Seems like she has gone from stage 4 to stage 2 or less... Not sure but I have had a 2 different Diagnosis from 2 different Md's this week< The derm said cystic 2, the plastic surgeon (seen for scar removal) said chronic acne. After reading all of your posts, I am not sure to start her on accutane or not, esp since the 2 diagnosis were so different in one week.
I am a Registered Nurse and I understand the complications of todays medicine and their side effects. It is unfortunate that her acne has taken her from a year round great swimmer to sitting home inside all summer and not going to any pool.
However, I am going to consider delaying the accutane initiation.
My prayers and thoughts are with all of you who are dealing with the life changes from acne and the treatment courses out there.

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11

i took accutane when i was in high school. up until now i feel like accutane worked great for me. i am now 25 years old. at the time of taking the medication i had all of the dryness, chapped lips, very pale and easily burnt skin. i also had to constantly get blood work done. at this time i am currently losing hair. hair loss is not in my family. i was wondering if there were long term side effects of this drug that causes that. or could it be the side effects finally catching up to me now. and could i do anything to help my case.

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10

I was going to start accutane next week. After reading these posts, I have decided against it. My thanks (and sympathy) go out to all who have shared their stories!!

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9

I was put on Accutane when I was 25 and had my final dose in 2008. A year later and I'm experiencing problems and symptoms I never have before. Like Dennis, I have severe stomach problems including cramping, bloating, pain, etc, and earlier this year I was diagnosed with IBS by a gastroenterologist.

I don't have joint pains fortunately, but I suffer from insomnia and drastic mood swings. I constantly lack energy and my concentration has completely gone off the boil.

The acne cleared up, but I have permanent red marks all over my arms and back that were never there before. I was told oh, those are fine, they'll clear up eventually, but one year later they are as prominent as they were before. I have rashes along my forearms. Additionally, my face is always dry, I become very flushed and sunburnt easily, and I developed scarring toward the end of treatment when the acne was supposed to be clearing up.

The worst thing is I told my dermatologist all of this, but was informed that those aren't his area of expertise and I should see another specialist about those problems. He knew the drug was causing these illnesses but he shunted me off onto other practitioners once he got his fee. Essentially, he didn't give a s***.

I would caution anybody about to go onto accutane or any of its variants to research and assess this drug beforehand. Weigh up the severity of your acne and your self-esteem against the intended benefits, but be certain that you're willing to pay another price in the long-run. The choice is ultimately yours, but if you are being prescribed accutane and there is no other option than living with low self-image, it's important to realize that you've been let down - by your medical practitioner, your support network and/or by life.

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8

I had urticaria(dermographism) at the mid of the third month while taking accutane and still have after 3 months from stopping it, i feel itchy every night and have horrible hives and welts when ever i scratch my skin even smoothly

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7

My brother, his 2 twin friends, a friend of mine, and myself all took Accutane once for 6 months, and all of us are doing great. My brother and his 2 friends took it about 4 years ago, and my friend and I were on it 10 years ago. None of us have suffered from any side effects or conditions.

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6

Mandie,
Please remember that I am not a doctor and I am only giving you my own personal advise. Even though you know 5 people that have taken accutane doesn't mean that the next person that takes it will not be one of many who have long term side effects from this medication. My son has seen over 5 doctors and each doctor has a different answer to what he has. As of yesterday, a specialist told him he may have spondyloarthritis and has scheduled him for two different MRI's and a colonoscopy. Please continue to read more about this drug before you decide to take it. There are now many other options for acne than this medication. Maybe by trying some other over the counter meds might help you. Google the top ten acne products and try one first, maybe it will help.Good Luck !

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5

Im supposed to start taking accutance in 2 weeks..i know 5 people who have been on it and are fine..but it hasnt been years later..now im starting to think if im making the biggest mistake of my life..

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4

The problem with any medical issue and blaming it on a drug is, of course, actually proving that the drug caused it. This will not be an easy nor cheap process.

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3

Dennis,
I am sorry to hear about your health situation. Have you mentioned to your Gastroenterologist that you were prescribed accutane at 15 years old ? Accutane has been proven in a court of law to cause Irritable Bowel Disease. If you would like, email me at Scottp623[at]aol[dot]com and I would be glad to send you some information I have collected. My son seems to have some of the constant pain in his joints, also in his shoulders, both wrist and right hand that you have. Have you had a bone scan done ? Please email me. You are in my thoughts and prayers. I was amazed once I started researching this medication on how many others are out there with similar health problems after taking accutane. I will be looking for your email. Best Wishes !

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2

I took Accutane when i was 15 yrs old...I had my first back surgery when I was 20...my second when I was 23..niether of these surgeries was caused by a specific accident I just woke up one day and got out of bed and my back gave out....I also have very bad stomach problems I take 40mg of nexium and 300mg of zantac daily or my indigestion gets so bad I can't stand it...I have been scooped from both ends and lots of blood tests and the doctors cannot explain stomach at all...I'm not sure if this is a side effect or not...Is anyone else out there having stomach problems due to accutane? I'm in constant pain in all my joints especially my back, shoulders and wrists. I am now 33 and take about 1600mg of motrin just to get thru the pain of everyday life.

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1

I sympathize with you on the accutane. Even my neurology doctor has told me how the fda works and quite frankly it is pretty scary. If his stories are true than the fda is hand in hand with the drug companies and not the poor consumer. But back to the accutane. It has really changed my son's life but not the way it has affected yours. My son has had other accutane problems. I am not the type of person to sue and am a registered nurse but i want this to stop before too many more children are hurt. Here is our story. My son was on accutane for one year and it stopped his growth and fused his bones. I know this for a fact and could prove it. My son had wrist xrays to tell his bone age about 3 months before starting on accutane. The xrays showed that he had 3-5 years of more growing based on the bones not being fused. He went on accutane and after about a year or so i realized that he was not growing. we went back to the doctor and they did more xrays on his wrists. I was shocked to find that his bones had fused over the year he was on accutane and he would not grow anymore. I remembered signing a release on the accutane related to bone problems but it never said that it outright stunt your childs growth permamently. I would never had allowed my son to be on it if i knew it would do this to him. My son is now 19 years old and is 5 ft 3 inches. My husband is 5 10 and i am 5 5. His siblings are much taller than him. When he was a baby his growth chart showed him at 5 ft 8 inches. It breaks my heart to see what it has done to him. I am sorry if I offend any one who is short but my son would not be soo short if it had not been for the medication. I am sorry about all of the kids on accutane that have suffered in one way or another.

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