Tolvaptan (Thread 160530)

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Comments Submitted Says:

My son has pkd, and have been told about a new drug call tolvaptan.Please send me any info you have on this.Thank You! Patricia

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1
sandi Says:

i also have pkd and would be interested in trying this drug. is it sold yet?

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2
Joe Says:

Tolvaptan hasn't been FDA approved yet. Phase 3 clinical trials are beginning. Check the PKD Foundation website for more info/clinical trials. The Mayo Clinic is one of several centers participating in the trial.

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3
Joe Says:

Also,
please check the PKD charity website. Tolvaptan is marketed by Otsuka Pharmeceuticals, another possible source of info.

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4
Verwon Says:

Yes, unfortunately, until it passes the rigorous testing for the FDA, it will not be available and you will have to stick with other treatment options.

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