Anyone With Secondary Progressive Taking Ampyra?

I have been taking Ampyra for 1 month tomorrow. I have only seen a very, very slight improvement. I would like to get some feed back from other people that have SPMS on how they are doing

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I also have SPMS and will be on Ampyra for 1 month tomorrow. Just before starting ampyra, I got to the point that I started falling down from a standing position. After starting ampyra, that falling has stopped. It is now easier for me to turn over in bed and the feeling of weakness in my legs is getting less and less. I read that one person who also has SP MS waited 2 months before really noticeable change for the better happened. I hope for the best.

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Ampyra is a very new medication, just recently approved by thee FDA, it contains the active ingredient Dalframpridine. It is most commonly used to help treat MS symptoms.

That said, yes, headaches are a common side effect, which should wear off as your body adjusts to the medication. If they don't or become severe, you should speak to your doctor.

Other side effects may include: nausea, insomnia, dizziness and back pain.

Read more here:

https:/­/­rxchat.com/­wiki/­Ampyra/­


As with any medication, it is successfully helping some people and not others.

There are several other posts on it, here are some links:

http:/­/­www.PrescriptionDrug-Info.com/­threads/­After-2-months-neurologist-takes-me-off-Ampyra-D77328.htm

http:/­/­www.PrescriptionDrug-Info.com/­threads/­Ampyra-and-balance-D77138.htm

Are there any other questions?

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I, too are SPMS, been on Ampyra for about a month and have high hopes, so far nothing has changed. There are two people in my support group, also on Ampyra that are going great. Let's all hope we will react as well.

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I have had MS for 24+- years and have been SPMS for like forever. Currently on Avonex, Tysabri was a disaster.. felt like I jumped out of an airplane w/o a parachute! Anyways, just started Ampyra and havn't seen any changers at all after a month. Going to try for another month to see if any changes appear. If not, I am going to switch to taking 2 JellyBellies a day, at least they taste better and are very cheap!

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Would love to hear your results after taking AMPYRA. I also have SPMS, originally dx'd w/RRMS 1985, age 25.

I actually have 2 bottles already filled of A - but I also take Gilenya, Zoloft, Lamictal, Nuvigil & Alprazolem (PRN)... and I have stubbornly refused to start taking ANOTHER drug! But alas, I am not super mobile, i.e., unable to walk or stand for too long, SLOW walking, and let's not forget...drunk walking! Would like to hear others' results!

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