Gleevec, Survival Rate, Gist Tumor

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GG Says:

I have a GIST Tumor and have started taking Gleevec, 800MGS per day. I know there is no cure but I am curious about how long people live on average. My dr talks about the guy that has been on it for 8 years but I know he is the exception. What I can surmise is about 3-5 years. Any input would be appreciated

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Verwon Says:

Hello, GG! How are you? I am very sorry about your diagnosis and I sincerely hope you continue to do well.

Yes, it seems the median average is about 5 years, though those who have surgery and take Gleevec for 3 years have been known to survive an additional 10 years, if they had a recurrence and full life spans for those who weren't at risk of recurrence.

Overall, with the new treatment protocols that have been discovered after 2000, the overall 5 year survival rate for those with this type of tumor was approximately 79%.

The FDA lists the typical side effects of Gleevec as possibly including diarrhea, stomach pain, headache, skin rash and muscle pain.

Is there anything else I can help with?

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